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Reposted by Kasia Patynowska

MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 3

We’re delighted to announce that our Research Grants Scheme will be funded in partnership and is now open to applications.

Leeds Hospitals Charity and Royal Brompton & Harefield Hospitals Charity will be part funding the scheme with dedicated funding pots.
Applications close 21 July

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Kasia Patynowska @kpatynowska.bsky.social · Jun 9

#Researcher during a day, #trailrunner in the evening! 👌🏻😃
What a fulfilling and enriching day at #UlsterPhDFest with a chance to present some reflections from undertaking #realistreview.
Followed up by a challenging and wonderful #trailrunning in #MourneMountains as part of the #Hill&Dale series!

A woman stands presenting in front of a projected slide titled “Undertaking a Realist Review as a Novice Realist Researcher: Reflections from a study on Peer Support among Healthcare Assistants delivering Hospice Care at Home.” The slide includes her name, Kasia Patynowska, her role as a Doctoral Research Fellow at Ulster University and Research Nurse at Marie Curie, and lists her supervisors. She gestures with her hands while speaking, in a classroom setting with a whiteboard and ceiling tiles visible.

A woman (Kasia Patynowska) is trail running through a grassy, mountainous landscape, smiling broadly and making a joyful hand gesture with both arms raised. She wears a green running outfit, a hydration vest, and a race bib numbered 232. Rolling hills and rugged terrain are visible in the background under a clear sky.

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Kasia Patynowska @kpatynowska.bsky.social · Jun 9

Our #realistreview protocol has finally been published! 🥳
@traceymcconnell.bsky.social
bmjopen.bmj.com/content/15/6...

Understanding peer support among healthcare assistants delivering hospice care at home: a protocol for a realist review

Introduction Globally, the demand for community palliative care, delivered within the home setting, is rising. Hospice support workers, also referred to as healthcare assistants, play a crucial role i...

bmjopen.bmj.com

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Reposted by Kasia Patynowska

Anne Finucane @annefinucane.bsky.social · May 29

My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon!
mygriefmyway.co.uk

Funded by @mariecurieuk.bsky.social

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Kasia Patynowska @kpatynowska.bsky.social · Apr 22

I sought eye contact and smiled at EVERY person in the park yesterday on my run. Just a big kind smile even during speed intervals! And 99% smiled back, some appeared surprised they were not 'invisible' and looked genuinely happy to smile back!
#running #sharehapinness

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Kasia Patynowska @kpatynowska.bsky.social · Apr 8

Indeed! As a slow runner I recognise some of these self-limiting practices which... I decided to overcome last year! I even have a coach now! Me - 5hrs marathoner😅
Working with a coach helped me train better, be braver and trust my abilities more. I'm getting stronger and faster too! #running

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Kasia Patynowska @kpatynowska.bsky.social · Apr 8

Very few of us have access to the track. I do my speedwork in a local park with the workouts I created in Garmin Connect and uploaded to my watch. I use the track on holidays in Poland (there is a free access one next to my sister's home) but I don't really enjoy running on track - bit boring! 😜

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Kasia Patynowska @kpatynowska.bsky.social · Apr 5

I thought we had a bit more time. Sadly, he's no longer with us. He was a wonderful companion for over 13y.
He travelled Europe, was with us when children were born and survived when we added crazy Vizsla to our family.
#Grief when loosing a #pet is horrible and took me by surprise💔

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Kasia Patynowska @kpatynowska.bsky.social · Mar 27

My boys❤️💔
Last big walk.

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Kasia Patynowska @kpatynowska.bsky.social · Mar 22

Not available to stream in UK😭
The trailer looks fab!

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Kasia Patynowska @kpatynowska.bsky.social · Mar 21

As you can see this #PhD Researcher is very enthusiastic about her project!! 🤣
Thanks to @pccongress.bsky.social for introducing 'Work in Progress' category this year!

@ulsteruni.bsky.social @traceymcconnell.bsky.social
#academicsky
#palliativecare
#EOL
#PCC2025

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Kasia Patynowska @kpatynowska.bsky.social · Mar 21

Looking forward to this plenary!
It's good to reflect and talk about the #assisteddying irrespective of our position about the issue.
@pccongress.bsky.social
#PCC2025

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Kasia Patynowska @kpatynowska.bsky.social · Mar 20

Nursing Times award for Clinical Research Nursing finally arrived in Belfast! Great award for a wonderful team of Research Nurses at Marie Curie! Delighted to be part of it!
Thanks @sarah-stan.bsky.social for bring it over for #PCC2025!

@nursingtimes.bsky.social
@mariecurieeolc.bsky.social

A woman takes a selfie in Belfast, holding a Nursing Times Award 2024 for Clinical Research Nursing, which is inscribed with "Marie Curie Research Nurses in hospices". She wears a navy quilted jacket and stands beside the iconic "Big Fish" mosaic. The Albert Memorial Clock and a modern glass building are visible in the background, with the setting sun casting a warm glow.

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Kasia Patynowska @kpatynowska.bsky.social · Mar 11

I forgot to add 'for sharing' after thanking John and Rachel! 😱
Thank you @bprainsack.bsky.social for writing this lovely piece!

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Reposted by Kasia Patynowska

Health and Social Care Workforce Research Unit @hscwru.bsky.social · Mar 7

Coming up in the #Homelessness series at King's (all online; all bookable now):
Palliative and end of life care and homelessness
Caroline Shulman; Briony Hudson.
25 March 2025 10:00 to 11:00
www.kcl.ac.uk/events/palli...

Palliative and end of life care and homelessness

Caroline Shulman, UCL; Briony Hudson, UCL

www.kcl.ac.uk

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Kasia Patynowska @kpatynowska.bsky.social · Mar 7

This paper is a helpful reminder of importance of consistent and scheduled #writing!
I've recently started to write everyday but the paper offers tips how to make it more structured and effective🤩
Thanks @johnmacartney.bsky.social and Rachel Perry!
#academicsky
nilq.qub.ac.uk/index.php/ni...

Northern Ireland Legal Quarterly

The Northern Ireland Legal Quarterly is a legal research journal published quarterly by the School of Law at Queen's University Belfast.

nilq.qub.ac.uk

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Kasia Patynowska @kpatynowska.bsky.social · Feb 24

It is truly difficult to comprehend that we are witnessing this dystopian situation.
As a Polish woman with family trauma of WWII and then the communist regime, I'm watching in disbelief.
www.bmj.com/content/388/...

Anger, despair, and defiance from a voice within the US federal research system

People around the world are watching with disbelief as the new US government closes down its aid programme, withdraws from the World Health Organization (WHO) and the Paris agreement on climate change...

www.bmj.com

Reposted by Kasia Patynowska

Hannah @policyhannah.bsky.social · Feb 21

This is an important new report from @cancerresearchuk.org.

In more deprived areas there are higher levels of cancer incidence, higher prevalence of cancer risk factors, less engagement with screening programmes, and worse diagnosis and survival outcomes.

www.cancerresearchuk.org/sites/defaul...

Deprivation inequalities across the cancer pathway. Compared to least deprived areas, people living in the most deprived areas have a higher proportion of adults who smoke (22% vs 6%), higher proportion of adults who are obese (36% vs 19%), lower proportion participating in bowel screening (57% vs 76%), higher proportion diagnosed via emergency route (26% vs 21%), higher proportion of stage 4 diagnoses (31% vs 24%), higher incidence rate (685 per 100k vs 570 per 100k), lower 5 year survival rate (52% vs 70%), and higher mortality rate (337 per 100k vs 217 per 100k).

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Kasia Patynowska @kpatynowska.bsky.social · Feb 20

Thrilled to showcase this stunning commissioned painting, translating my research into visual art, at the @mariecurieeolc.bsky.social conference last week! It highlights vital role of Healthcare Assistants in delivering hospice care at home.
mariecurie.ivent-pro.com/events/resea...
#MCResearch2025

A vibrant, expressive painting depicting hospice care at home. The artwork features multiple healthcare assistants in purple uniforms tending to a patient lying in bed under a golden-yellow blanket. A black cat lies across the bed. The painting conveys warmth and care, with a rich colour palette of deep blues, yellows, and reds. Surrounding the central scene, carers are shown providing comfort, administering medication, documenting notes, and communicating. A sense of movement and emotion is captured in the layered composition, highlighting the essential role of healthcare assistants in end-of-life care.

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Kasia Patynowska @kpatynowska.bsky.social · Feb 20

Are there any projects combining my two passions—running and palliative care? E.g. research into running for coping with dying, bereavement, etc. Would love to learn more! #running #trailrunning #palliativecare #EOLcare #Health #palliative #publichealth #hospice #AcademicSky #hospicesky

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Kasia Patynowska @kpatynowska.bsky.social · Feb 20

Huge, old, never-ending forests!
I currently live in Northern Ireland and all the forests near Belfast can be run around within 1hr. So much tree coverage has been lost here over recent centuries😭
In Poland forests are much bigger and you can run for hours without doing any loops.

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Kasia Patynowska @kpatynowska.bsky.social · Feb 19

After few days #running in the snow it's a shock coming back to a grey Belfast.
I miss the snow and polish forests!
#trailrunning

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Reposted by Kasia Patynowska

MarieCurieEOLC @mariecurieeolc.bsky.social · Feb 13

We’re excited to announce the launch of new research priorities for palliative and end of life care!

These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

The top 10 new priorities for palliative and end of life care research are:

How do people with dementia experience end of life? How can palliative and end of life care better meet their needs and those of their carers, friends and families?
How can NHS, social services and charities work more collaboratively to provide joined-up care that better meets the needs of people with a serious life-limiting illness and their carers, friends and families?
What kinds of palliative and end of life care and support need to be in place to enable people to die well at home? What skills do staff need? What helps or hinders the delivery of care at home?
What are the best ways to provide personalised palliative and end of life care that meets all the physical, mental, practical, social and spiritual needs of a person with a serious life-limiting illness?
How can palliative and end of life care better meet the complex needs of people with multiple health conditions?
How can communication and care co-ordination be improved across the teams of health and social care professionals caring for people with any serious life-limiting illness?
What skills, training and information do carers, friends and family members need to be able to care for someone who is dying at home (e.g. giving medicines safely by injection, managing incontinence, moving people)? What is the impact (pros and cons) of upskilling the people giving care?
How can the quality of palliative and end of life care in hospital be improved? What helps or hinders improvement?
What are the best ways to provide palliative and end of life care, support and advice at all hours (24/7 or out of hours)?
How can palliative and end of life care better meet the needs of people who live alone, or are socially isolated?

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Kasia Patynowska @kpatynowska.bsky.social · Feb 11

The new priority setting work for palliative and end of life care research led by @mariecurieuk.bsky.social @jameslindalliance.bsky.social

Lucy Selman @lucyselman.bsky.social · Feb 10

Here are the 24 the identified priorities identified in the priority setting exercise

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Reposted by Kasia Patynowska

WHO @who.int · Feb 11

It is International Day of Women and Girls in Science.

Gagandeep Kang’s research on enteric infections has contributed to the rotavirus vaccine rollout in #India, protecting millions of children and shaping a healthier future. for all.

🔬 #WomenInScience #WomenInSTEM

When you have women leaders in science, they think about problems differently.

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