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The Lewy Body Society @lewybodysociety.bsky.social · 17h

People who have Lewy body dementia in their lives can be under pressures others cannot comprehend - they are also some of the most resilient people in the world too.

How do you take care of your mental health? What are you doing/not doing to help you cope?

#WorldMentalHealthDay #Lewybodydementia

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The Lewy Body Society @lewybodysociety.bsky.social · 18d

🧠 Not all dementias are the same.

🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.

👉 Learn more: www.lewybody.org

#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters

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Reposted by The Lewy Body Society

Annie @anniefo-jo.bsky.social · 24d

People with dementia, MS, MND & carer’s. Have you had a social care needs assessment & can you help us with important research about these please? 🙏 contact details on poster @denpru-qm.bsky.social @age-uk.bsky.social @alzheimerssoc.bsky.social @mssocietyuk.bsky.social
@lewybodysociety.bsky.social

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The Lewy Body Society @lewybodysociety.bsky.social · 24d

The Dementia Explorer, the world's first dementia boardgame to help children understand more about the disease 1 in 3 people born today can expect to develop in their lifetime.

Proudly co-produced with @liverpooluni.bsky.social

Exclusively available: www.lewybody.org/shop/

#Dementia #innovation

New Board Game Helps Children Understand Dementia

YouTube video by University of Liverpool

www.youtube.com

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Reposted by The Lewy Body Society

Danielle Christian @dlchristian.bsky.social · 28d

NEW
@arcnwc.bsky.social
#CommunityOfPractice event: #SocialCare in #Dementia

Including:
- Lived experience
- A Dementia care navigator perspective @merseycarenhs.bsky.social
- Latest social care and dementia research

📅 Tuesday 16th October 2-3.30pm (Online)
Register here: tinyurl.com/t4cedtc4

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The Lewy Body Society @lewybodysociety.bsky.social · 29d

Lewy body dementia isn't like other dementias, and because of that it can get missed as a diagnosis.

If you think you or a loved one might have some or all of these symptoms, please go to your GP.

☎️ Admiral dementia nurses: 0800 888 6678.

#lewybodydementia #dementia #dementiasymptoms

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Reposted by The Lewy Body Society

LewyLady @lewylady.bsky.social · Aug 31

One week to go until the #GreatNorthRun. This new banner and I will be on the Camden St bridge cheering on Team @lewybodysociety.bsky.social and everyone else.

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The Lewy Body Society @lewybodysociety.bsky.social · Aug 28

💥 For a small charity, we make a BIG impact - and we are making a bigger one every year!

With Lewy body dementia so misunderstood, no wonder families are turning to us for help.

#Lewybodydementia #Dementiasupport #Dementia

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Reposted by The Lewy Body Society

Carol Bewick @bewickcarol.bsky.social · Aug 21

Board meetings with @lewybodysociety.bsky.social are always invigorating. Exciting plans coming for 2026…

The Lewy Body Society (@lewybodysociety.bsky.social)

We raise awareness, fund research and provide support. Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579

lewybodysociety.bsky.social

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The Lewy Body Society @lewybodysociety.bsky.social · Aug 19

We are delighted Emma Cunniffe has agreed to become a Lewy Body Society ambassador.

Welcome aboard, Emma!

#Lewybodydementia #Dementia #Ambassador

Actor Emma Cunniffe joins Lewy Body Society as ambassador - Lewy Body

North West actor Emma Cunniffe has joined the Lewy Body Society as an ambassador for its crucial work with dementia.

www.lewybody.org

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The Lewy Body Society @lewybodysociety.bsky.social · Jul 29

Great to see our Special Advisory Committee member Anto P Rajkumar Rajamani, Clinical Associate Professor in old age psychiatry at the University of Nottingham, at Alzheimer's Association International Conference 2025 in Toronto

#AAIC #AAIC2025 #Dementia #Lewybodydementia

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The Lewy Body Society @lewybodysociety.bsky.social · Jul 27

Booth 1046💙

LewyLady @lewylady.bsky.social · Jul 25

If you are going to #AAIC2025, please stop by @lewybodysociety.bsky.social booth, 410. And on Wednesday my poster ,002, will be up.

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The Lewy Body Society @lewybodysociety.bsky.social · Jul 27

We are ready to go at #AAIC2025
Booth 1046 #Lewybody #AwarenessMatters 💙

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Reposted by The Lewy Body Society

LewyLady @lewylady.bsky.social · Jun 24

@lewybodysociety.bsky.social #LewyBody#AwarenessWeek

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Reposted by The Lewy Body Society

LewyLady @lewylady.bsky.social · Jun 26

@lewybodysociety.bsky.social #LewyBodyAwarenessWeek From #AAIC2023

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 26

Proud to be an AMRC charity!

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 26

@amrc-uk.bsky.social charities - of which we are one - are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers www.amrc.org.uk/2025-our-sectors-footprint

#CharityImpact #lewybodydementia

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 23

It is Lewy Body Awareness Week!

And we have big news: www.lewybody.org/lewy-body-aw...

#LewyBodyAwarenessWeek #Lewybodydementia #Dementia

Lewy Body Awareness Week: LBS birthday celebration announcement! - Lewy Body

The Lewy Body Society has announced a year of celebration for its 20th anniversary during Lewy Body Awareness Week .

www.lewybody.org

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 19

Hi Leanne, thank you for your question, we are not having a Scarf for Lewy this year as we are busy planning for our 20th Anniversary in 2026.

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Reposted by The Lewy Body Society

Carers Week @carers-week.bsky.social · Jun 12

Lewy Body Society are one of the charity supporters of Carers Week. We asked them why Caring about Equality matters to them

@lewybodysociety.bsky.social

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 11

Northern Ireland's Deputy First Minister Emma Little Pengelly with our ambassador, Les Magee, who was representing the Lewy Body Society at the Carers Week event at Stormont earlier this week.

We are proud to be a partner organisation of Carers Week.

#CarersWeek #NorthernIreland #dementiacarers

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 10

This Carers Week, Lewy Body Society ambassador Karen Young shares her experience of becoming a carer for her husband Alan, a former chartered civil engineer. We think her thoughts will resonate with a lot of people.

#CarersWeek #dementiacarers #lewybodydementia

@carers-week.bsky.social

Caring is a ‘journey of unconditional love and continual adjustment’ - Lewy Body

This Carers Week, Lewy Body Society ambassador Karen Young shares her experience of becoming a carer for her husband Alan.

www.lewybody.org

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 9

Today is the first day of Carers Week 2025.

As the only dementia charity officially part of Carers Week, we are delighted Lewy Body Society supporter Paul Stone has shared his story as a carer in the Carers Week report 2025: Caring About Equality.

#CarersWeek #DementiaCarers #Lewybodydementia

LBS backs Carers Week report calling for more support for unpaid carers - Lewy Body

A new Carers Week report has found millions of unpaid carers feel disadvantaged and are unable to prioritise their own health needs and struggle with employment.

www.lewybody.org

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The Lewy Body Society @lewybodysociety.bsky.social · Jun 6

Delighted article co-authored by our chief exec Jacqui Cannon on Challenges of dementia care in the UK, published in the @bmj.com Editorials.

www.bmj.com/content/389/...

#Lewybodydementia #dementia

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The Lewy Body Society @lewybodysociety.bsky.social · May 27

The ‪‪@liverpooluni.bsky.social‬ is conducting a research project looking at the general public's knowledge and awareness of dementia subtypes.

Start the survey: lancasteruni.eu.qualtrics.com/jfe/form/SV_...

Queries? Contact [email protected]

#Dementiaresearch #lewybodydementia #dementia

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