Libby Humphris
@libbyhumphris.bsky.social
Public contributor | Honorary Research Associate @CardiffUni | Advocate for women’s health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public ✨ Crocheter & Rescue Dog Mum
Adrenal crisis 10 days ago, I was worried I would not be able to be at the #CUMEDICPPIE showcase today. Looking forward to a day focused on public involvement and engagement. Do say hello if you see me, I'll be on the Evidence Centre stand.
November 18, 2025 at 10:04 AM
Adrenal crisis 10 days ago, I was worried I would not be able to be at the #CUMEDICPPIE showcase today. Looking forward to a day focused on public involvement and engagement. Do say hello if you see me, I'll be on the Evidence Centre stand.
Having a rough time with my health recently. Infection-virus-flare-another infection. Today my "bad" eye has a weird sore patch developing, another "thing" to sort out. It's exhausting! Very grateful to Nurse Dog Luna keeping me company while I rest up.
October 8, 2025 at 3:36 PM
Having a rough time with my health recently. Infection-virus-flare-another infection. Today my "bad" eye has a weird sore patch developing, another "thing" to sort out. It's exhausting! Very grateful to Nurse Dog Luna keeping me company while I rest up.
It was refreshing to meet with an anaesthetist yesterday at pre-op clinic who introduced me to the @sobauk.co.uk guidelines. I'd not come across them until now. Thank you for making this difficult time that little bit easier 🙏 #SharedDecisionMaking #PatientVoice #Thankyou
August 1, 2025 at 8:15 AM
It was refreshing to meet with an anaesthetist yesterday at pre-op clinic who introduced me to the @sobauk.co.uk guidelines. I'd not come across them until now. Thank you for making this difficult time that little bit easier 🙏 #SharedDecisionMaking #PatientVoice #Thankyou
Reposted by Libby Humphris
📢Developing recommendations for inclusive consent processes for trials
OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include.
Info below:
OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include.
Info below:
May 21, 2025 at 4:34 PM
📢Developing recommendations for inclusive consent processes for trials
OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include.
Info below:
OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include.
Info below:
Reposted by Libby Humphris
📢We are recruiting!
We're looking for a disabled person to join us as Programme Co-ordinator.
This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme.
Closing date: 9am on 22 April.
www.disabilitywales.org/vacancy-prog...
We're looking for a disabled person to join us as Programme Co-ordinator.
This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme.
Closing date: 9am on 22 April.
www.disabilitywales.org/vacancy-prog...
April 11, 2025 at 10:34 AM
📢We are recruiting!
We're looking for a disabled person to join us as Programme Co-ordinator.
This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme.
Closing date: 9am on 22 April.
www.disabilitywales.org/vacancy-prog...
We're looking for a disabled person to join us as Programme Co-ordinator.
This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme.
Closing date: 9am on 22 April.
www.disabilitywales.org/vacancy-prog...
A reminder on one of the hardest days of the year for me. It is never ok to ask someone when they are starting a family, never. Thinking of everyone struggling today. #ChildlessNotByChoice
March 30, 2025 at 9:11 AM
A reminder on one of the hardest days of the year for me. It is never ok to ask someone when they are starting a family, never. Thinking of everyone struggling today. #ChildlessNotByChoice
Reposted by Libby Humphris
Co-Production Collective is looking for someone to manage our projects with partners. If you are interested in co-production in research, policy and service development, we would like to hear from you!
Find out more about the role and how to apply in our blog: shorturl.at/AAPln
#coproduction
Find out more about the role and how to apply in our blog: shorturl.at/AAPln
#coproduction
March 25, 2025 at 4:34 PM
Co-Production Collective is looking for someone to manage our projects with partners. If you are interested in co-production in research, policy and service development, we would like to hear from you!
Find out more about the role and how to apply in our blog: shorturl.at/AAPln
#coproduction
Find out more about the role and how to apply in our blog: shorturl.at/AAPln
#coproduction
Inspired by a talk given by @drmattmorgan.bsky.social a few weeks ago, I'm finally off the mark with my writing plan. Wishing you all a great week ahead.
February 24, 2025 at 11:04 AM
Inspired by a talk given by @drmattmorgan.bsky.social a few weeks ago, I'm finally off the mark with my writing plan. Wishing you all a great week ahead.
Reposted by Libby Humphris
Have you heard of #Lleswyl? It’s the only inclusive virtual festival organised by @daringtodream.bsky.social. Many miss out on events and festivals due to illness, and that’s exactly why Lleswyl exists.
Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
February 6, 2025 at 2:44 PM
Have you heard of #Lleswyl? It’s the only inclusive virtual festival organised by @daringtodream.bsky.social. Many miss out on events and festivals due to illness, and that’s exactly why Lleswyl exists.
Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
It's really tough to see the constant headlines on this topic.
You are not alone, my inbox is always open.
You are not alone, my inbox is always open.
Speculation about disability benefits can be deeply hard on your mental health.
If you’re struggling, please consider talking to a trusted person or the Samaritans. You can call them for free 24/7 on 116 123 or email [email protected]
You are not alone.
www.samaritans.org/how-we-can-h...
If you’re struggling, please consider talking to a trusted person or the Samaritans. You can call them for free 24/7 on 116 123 or email [email protected]
You are not alone.
www.samaritans.org/how-we-can-h...
Contact Us
Contact Us
www.samaritans.org
February 5, 2025 at 1:24 PM
It's really tough to see the constant headlines on this topic.
You are not alone, my inbox is always open.
You are not alone, my inbox is always open.
Grateful to have Nurse Dog Luna keeping me company in my little home office this morning 🐾 She has no idea how important she is to my emotional health, join Luna and I at #Lleswyl2025 later this month to hear more on this. @daringtodream.bsky.social #DogSky #RescueDog
February 5, 2025 at 12:00 PM
Grateful to have Nurse Dog Luna keeping me company in my little home office this morning 🐾 She has no idea how important she is to my emotional health, join Luna and I at #Lleswyl2025 later this month to hear more on this. @daringtodream.bsky.social #DogSky #RescueDog
I struggled to know who I was at the end of last year. With a few tweaks and working hard to hone down on what is really important to me, I am now much happier and more motivated than ever. Sometimes you have to take a step back to realise what it is you want.
February 5, 2025 at 9:19 AM
I struggled to know who I was at the end of last year. With a few tweaks and working hard to hone down on what is really important to me, I am now much happier and more motivated than ever. Sometimes you have to take a step back to realise what it is you want.
Today, fab line up! #PxP #PatientEngagement
📣 Need a good distraction for 1.5 hours this week? Join this amazing group of people tomorrow to learn more about their experiences in #PatientEngagement in research? if you can't join us live, it will be recorded. 👇 @alexhaagaard.bsky.social @francinebu.bsky.social
⭐Webinar reminder! Join us tomorrow, February 5th.
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
February 5, 2025 at 9:11 AM
Today, fab line up! #PxP #PatientEngagement
Reposted by Libby Humphris
🌟 #Lleswyl2025 🎉 The only #inclusive virtual festival by @daringtodream.bsky.social, shining a light on adults with illness in #Wales.
Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
www.eventbrite.co.uk/e/lleswyl-20...
Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
www.eventbrite.co.uk/e/lleswyl-20...
Lleswyl 2025
Daring to Dream's free, fantastic, fun and for everyone wellbeing festival! Livestreamed from 7pm 21st February 2025 from You Tube
www.eventbrite.co.uk
February 3, 2025 at 8:41 AM
🌟 #Lleswyl2025 🎉 The only #inclusive virtual festival by @daringtodream.bsky.social, shining a light on adults with illness in #Wales.
Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
www.eventbrite.co.uk/e/lleswyl-20...
Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
www.eventbrite.co.uk/e/lleswyl-20...
Reposted by Libby Humphris
Well said @hrhcatherinepow.bsky.social - this is exactly what we are saying @daringtodream.bsky.social. Emotional health and skills are being overlooked - we must get better at talking about feelings constructively #emotionalhealth and #emotionalskills matter.
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Kate says emotional skills a priority for healthier society
The Princess of Wales launches a project calling for more emphasis on social and emotional skills.
www.bbc.co.uk
February 2, 2025 at 1:56 PM
Well said @hrhcatherinepow.bsky.social - this is exactly what we are saying @daringtodream.bsky.social. Emotional health and skills are being overlooked - we must get better at talking about feelings constructively #emotionalhealth and #emotionalskills matter.
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Reposted by Libby Humphris
#Lleswyl2025 - how about booking your tickets for a #WatchParty at #WalesMillenniumCentre?
Book to go along with a few friends? have a great night!
www.wmc.org.uk/en/whats-on/...
Book to go along with a few friends? have a great night!
www.wmc.org.uk/en/whats-on/...
Lleswyl Watch Party
Lleswyl 2025: Top musical talent, transported from the festival field to Wales Millennium Centre!<br /><br />
<br /><br />
Lleswyl is Daring to Dream&#039;s free li…
www.wmc.org.uk
January 31, 2025 at 12:27 PM
#Lleswyl2025 - how about booking your tickets for a #WatchParty at #WalesMillenniumCentre?
Book to go along with a few friends? have a great night!
www.wmc.org.uk/en/whats-on/...
Book to go along with a few friends? have a great night!
www.wmc.org.uk/en/whats-on/...
Happy Friday! I'm having a "rest day". I have to be really careful that I don't burn out. It's so tempting to carry on, I'm motivated, my brain is willing but my body needs to rest. If I don't listen to my body then I'll be out of action for weeks. Nurse dog Luna with me, as always. #mecfs #dogsky
January 31, 2025 at 9:54 AM
Reposted by Libby Humphris
Good Morning! Have you heard of #Lleswyl2025?
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
January 24, 2025 at 9:51 AM
Good Morning! Have you heard of #Lleswyl2025?
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
Reposted by Libby Humphris
#Lleswyl2025 #inclusive #talented #diverse #LineUp.
FREE tickets www.eventbrite.co.uk/e/lleswyl-20...
In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
FREE tickets www.eventbrite.co.uk/e/lleswyl-20...
In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
January 26, 2025 at 7:32 PM
#Lleswyl2025 #inclusive #talented #diverse #LineUp.
FREE tickets www.eventbrite.co.uk/e/lleswyl-20...
In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
FREE tickets www.eventbrite.co.uk/e/lleswyl-20...
In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
Nurse Dog Luna is never far from where I am, today she is snoozing under my desk. This afternoon I've been busy working on a few upcoming presentations. I was dreading another week of January, but an inspiring talk from @drmattmorgan.bsky.social has started this week off perfectly 💪 #PatientVoice
January 27, 2025 at 3:30 PM
Nurse Dog Luna is never far from where I am, today she is snoozing under my desk. This afternoon I've been busy working on a few upcoming presentations. I was dreading another week of January, but an inspiring talk from @drmattmorgan.bsky.social has started this week off perfectly 💪 #PatientVoice
Reposted by Libby Humphris
Lotta new folks here so I guess it's a good time to plug this webinar!
If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.
📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration
#PatientEngagement #PxP
📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration
#PatientEngagement #PxP
January 26, 2025 at 3:39 PM
Lotta new folks here so I guess it's a good time to plug this webinar!
If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
Looking forward to #Lleswyl2025 next month. Tickets are FREE! #emotionalhealth #raisingawareness #chronicillness #maketimetotalk
Good Morning! Have you heard of #Lleswyl2025?
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
January 26, 2025 at 10:21 AM
Looking forward to #Lleswyl2025 next month. Tickets are FREE! #emotionalhealth #raisingawareness #chronicillness #maketimetotalk
Reposted by Libby Humphris
Digital tools should make healthcare more efficient and accessible, but do they make everyone’s lives easier?
Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?'
When: 3 Feb 2025, 18:30-20:00
Where: City Hall, Bristol
Free tickets: tinyurl.com/2pyn8w4b
Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?'
When: 3 Feb 2025, 18:30-20:00
Where: City Hall, Bristol
Free tickets: tinyurl.com/2pyn8w4b
Healthcare in the digital age: A new era of inequality?
We are delighted to welcome Professor Trish Greenhalgh to give the eleventh annual Elizabeth Blackwell lecture, Bristol on 3 February 2025.
tinyurl.com
January 22, 2025 at 2:39 PM
Digital tools should make healthcare more efficient and accessible, but do they make everyone’s lives easier?
Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?'
When: 3 Feb 2025, 18:30-20:00
Where: City Hall, Bristol
Free tickets: tinyurl.com/2pyn8w4b
Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?'
When: 3 Feb 2025, 18:30-20:00
Where: City Hall, Bristol
Free tickets: tinyurl.com/2pyn8w4b
Thank you for writing this Lucy, it sums up perfectly how important the online community is when you are disabled. I'm so grateful to have social media bring us all together ❤️
I wrote about the very special ways that disabled people - even those who hardly know each other IRL - show up for each other online
It's also kind of a love letter to the disabled women in my life
lucywebster.substack.com/p/were-here-...
It's also kind of a love letter to the disabled women in my life
lucywebster.substack.com/p/were-here-...
'We're here. I love you'
The real life magic of community
lucywebster.substack.com
January 26, 2025 at 1:35 AM
Thank you for writing this Lucy, it sums up perfectly how important the online community is when you are disabled. I'm so grateful to have social media bring us all together ❤️
Reposted by Libby Humphris
Want to find out more about the history of disability activism in the UK and what we need to do now?
Well I have a book for that!
Ramping Up Rights is out July 3rd with @hurstpublishers.bsky.social
Preorder here: www.hurstpublishers.com/book/ramping...
Well I have a book for that!
Ramping Up Rights is out July 3rd with @hurstpublishers.bsky.social
Preorder here: www.hurstpublishers.com/book/ramping...
Ramping Up Rights | Hurst Publishers
A vivid history of the 100-year battle for British disability rights, spotlighting enraging injustices and inspiring campaigns, past and present: this fight isn’t over.
www.hurstpublishers.com
January 25, 2025 at 6:45 PM
Want to find out more about the history of disability activism in the UK and what we need to do now?
Well I have a book for that!
Ramping Up Rights is out July 3rd with @hurstpublishers.bsky.social
Preorder here: www.hurstpublishers.com/book/ramping...
Well I have a book for that!
Ramping Up Rights is out July 3rd with @hurstpublishers.bsky.social
Preorder here: www.hurstpublishers.com/book/ramping...