The Life Raft Group - GIST Support
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support
@liferaftgroup.bsky.social
49 followers 33 following 170 posts
Enhancing survival and quality of life for people living with GIST and other rare diseases through patient-powered research, education and empowerment and global advocacy efforts. https://liferaftgroup.org/ liferaftgroup.org/donate
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 7h
What if doctors could track GIST progression through a simple blood test? Find out how #ctDNA is transforming patient care with Dr. Jonathan Trent and Denisse Evans on November 10 at 2:00 PM ET in the #INSIGHTStudy session. bit.ly/ctDNA-INSIGHT #GISTEducation
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 1d
Get ready to go all in! Texas Hold’em is coming to #Oakland NJ. Cards, competition, and a cause you can’t miss! Sign up now: bit.ly/LRGPoker2025
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 2d
Join the fight to keep brigimadlin in development for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 7d
Join Dr. Jonathan Trent & the LRG's Denisse Evans Nov. 10 @ 2PM ET to learn how #ctDNA can monitor mutations, track disease progression, and guide real-time treatment for #GIST patients. bit.ly/ctDNA-INSIGHT #GISTEducation #INSIGHT
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 8d
The #NewHorizonsGIST Global Advocate Academy brings global voices together to tackle barriers in #GIST care & policy. Special thanks to Sachin Sarcoma Society, Patvocates, and Catalyst Consulting Group for sharing their expertise with the greater community. bit.ly/GlobalAdvoca...
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 9d
The day has come! Rachel LoCurto goes Over the Edge for GIST patients!
Stay tuned for more video and photos. #GISTAwareness
Donate: bit.ly/LRG-A-RLoCurto
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 10d
Rachel goes over the edge tomorrow at 1:30! Stay tuned for updates & donate today. bit.ly/LRG-A-RLoCurto
#rappelling #GISTAwareness #LRGAthletes #GISTstrong #NJEvents #PledgeTheEdge
liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 14d
What about- Did you know? There is an Expanded Access Program that gives advanced GIST patients who’ve progressed on imatinib access to #bezuclastinib + #sunitinib. For more information: bit.ly/CB-EAP
#EAP #GISTEducation #ExpandedAccessProgram #clinicaltrials
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 14d
Just 5 days to go! Our VP Rachel is gearing up for #PledgeTheEdge on October 15 in Atlantic City to raise support for the GIST community. Be part of her journey and make an impact: bit.ly/LRG-A-RLoCurto
#GISTstrong #LRGAthletes #ThrivingTogether
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 16d
Learn about the different parts of Medicare, Medigap, and Medicare Advantage from Triage Cancer, tomorrow at 1pm ET. #healthcare #medicare #openenrollment bit.ly/M-Part1
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 17d
Calling all international GIST patients and caregivers! Take 5 minutes to share your journey and help us improve resources and services for the global GIST community. Take survey: bit.ly/GlobalPatien...
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 18d
Another #LRGAthlete powers through raising awareness and funds for GIST research! bit.ly/LRG-A-EChen #GISTawareness #SwimAcrossAmerica2025
#DallasOpenWaterSwim
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 21d
Did you know patients can sometimes access medicines before they’re approved? It’s called an Expanded Access Program (EAP) — and it can be life-changing for people living with rare or advanced diseases.
#EAP #GISTeducation #clinicaltrials
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 24d
The Life Raft Group pledges to fight for all rare tumor patients. We are more alike than different and we can go further together. #RareCancerDay #DesmoidTumorAwarenessMonth
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The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 25d
Highlights from the GIST Day of Learning Boston held this past weekend. #GDOL #GISTeducation #ThrivingTogether @danafarber.bsky.social
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The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 24
There’s still time to make plans for #GDOL Boston on September 27! Save your spot today: bit.ly/GDOLBoston #GISTDayofLearning #GISTEducation #ThrivingTogether #Boston
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The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 23
Calling all international GIST patients and caregivers! Take 5 minutes to share your journey and help us improve resources and services for the global GIST community. Take survey: bit.ly/GlobalPatien...
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 22
See more of her adventure: bit.ly/PowerHikeKudo #LRGAthletes #thrivingtogether #GISTawareness #PatientFundraiser #milestones
bit.ly/PowerHikeKudo
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The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 22
Natalie took on a mountain to raise awareness & funds for the GIST community. With your encouragement, she raised over $11K and completed a marathon hike of 29 miles in the Wasatch Range near Park City, #Utah.
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The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 22
Megan, our September Patient of the Month, shares how the right support and care can turn a scary diagnosis into hope and strength. Read more: bit.ly/POMSep2025 #patientofthemonth #patientstory #ThrivingTogether
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The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 19
Natalie’s Power Hike is happening September 20th! Let’s support her hike, celebrate resilience, and raise awareness together. bit.ly/PowerHikeKudo #GISTAwareness #GISTcommunity #GISTsupport
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 17
On September 20th, cheer on Natalie’s Power Hike in Utah — a journey of strength, hope, and community. Every step makes a difference. bit.ly/PowerHikeKudo #GISTAwareness #GISTcommunity #GISTsupport
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 17
No more waitlist! We have a bigger event space so more seats are now available for #GDOL Boston on September 27! Register today: bit.ly/GDOLBoston #GistDayofLearning #GISTEducation #ThrivingTogether #Boston
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 15
The LRG Team & @uclahealth.org hosted an unforgettable GDOL Los Angeles this weekend! Thank you to everyone who came together-patients, caregivers, doctors, researchers to share knowledge, build connections, & strengthen our community. 💙 #GDOL #PatientVoices #thrivingtogether #GISTEducation
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support @liferaftgroup.bsky.social · Sep 12
Follow & support Natalie's marathon hike on Sept 20th! bit.ly/PowerHikeKudo

#LRGAthletes #marathon #fundraising #fitnesschallenge #utah
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