Liposarcoma Support Network
@liposarcomasupport.bsky.social
LSN provides education, resources, support for patients & caregivers. Program of The Life Raft Group.
www.liposarcomasupport.org
www.liposarcomasupport.org
Hope begins with the people living this journey. Their words remind us why hope matters.
Donate today: bit.ly/HolidayHope2...
#HopeForTheHolidays #GivingTuesday #liposarcoma
Donate today: bit.ly/HolidayHope2...
#HopeForTheHolidays #GivingTuesday #liposarcoma
December 2, 2025 at 2:28 PM
Hope begins with the people living this journey. Their words remind us why hope matters.
Donate today: bit.ly/HolidayHope2...
#HopeForTheHolidays #GivingTuesday #liposarcoma
Donate today: bit.ly/HolidayHope2...
#HopeForTheHolidays #GivingTuesday #liposarcoma
Sholeh was given 18 months to live when she was diagnosed with DDLPS in 2020. Today, thanks to brigimadlin, she is still enjoying life. Keep brigimadlin available to DDLPS patients, sign the petition: brigimadlinpetition.org #SaveBrigimadlin #Liposarcoma #DDLPS #PatientVoices
December 1, 2025 at 6:11 PM
Sholeh was given 18 months to live when she was diagnosed with DDLPS in 2020. Today, thanks to brigimadlin, she is still enjoying life. Keep brigimadlin available to DDLPS patients, sign the petition: brigimadlinpetition.org #SaveBrigimadlin #Liposarcoma #DDLPS #PatientVoices
Trial investigator Dr. Xiaolan Feng shares her thoughts on further development for brigimadlin for #DDLPS patients. Save brigimadlin. Sign the petition:
brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #Liposarcoma #DDLPS #PatientVoices
@boehringerglobal.bsky.social
brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #Liposarcoma #DDLPS #PatientVoices
@boehringerglobal.bsky.social
November 26, 2025 at 2:15 PM
Trial investigator Dr. Xiaolan Feng shares her thoughts on further development for brigimadlin for #DDLPS patients. Save brigimadlin. Sign the petition:
brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #Liposarcoma #DDLPS #PatientVoices
@boehringerglobal.bsky.social
brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #Liposarcoma #DDLPS #PatientVoices
@boehringerglobal.bsky.social
Executive Director Sara Rothschild is representing the Liposarcoma Support Network at the #CTOS2025 Annual Meeting, connecting with leading sarcoma experts and highlighting our growing advocacy and research initiatives.
November 14, 2025 at 6:36 PM
Executive Director Sara Rothschild is representing the Liposarcoma Support Network at the #CTOS2025 Annual Meeting, connecting with leading sarcoma experts and highlighting our growing advocacy and research initiatives.
LSN is at #CTOS2025! Visit the Patient Advocacy Lounge to see our poster highlighting the global patient campaign urging @boehringerglobal.bsky.social to continue development of brigimadlin for sarcoma patients. #liposarcoma #SaveBrigimadlin #SignThePetition brigimadlinpetition.org
November 13, 2025 at 1:48 PM
LSN is at #CTOS2025! Visit the Patient Advocacy Lounge to see our poster highlighting the global patient campaign urging @boehringerglobal.bsky.social to continue development of brigimadlin for sarcoma patients. #liposarcoma #SaveBrigimadlin #SignThePetition brigimadlinpetition.org
Sarah’s story shows what’s possible: Brigimadlin helped her more than any other treatment. Let’s make sure every patient can access this life-changing option. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #liposarcoma
November 12, 2025 at 3:36 PM
Sarah’s story shows what’s possible: Brigimadlin helped her more than any other treatment. Let’s make sure every patient can access this life-changing option. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #liposarcoma
We've reached almost 2000 signatures! The LSN team met with BI and they still won't reconsider their position on brigimadlin. We will not back down until there is a conclusion that serves our patients. Sign the petition, tag Boehringer Ingelheim and share the petition. www.brigimadlinpetition.org
November 10, 2025 at 3:58 PM
We've reached almost 2000 signatures! The LSN team met with BI and they still won't reconsider their position on brigimadlin. We will not back down until there is a conclusion that serves our patients. Sign the petition, tag Boehringer Ingelheim and share the petition. www.brigimadlinpetition.org
Catch the recording of Professor Jean-Yves Blay’s presentation on the largest #liposarcoma study to date! The session revealed key insights into subtypes, outcomes, and specialized care. Watch here: bit.ly/LipoInsights... #LIPOeducation #NETSARC
November 6, 2025 at 3:53 PM
Catch the recording of Professor Jean-Yves Blay’s presentation on the largest #liposarcoma study to date! The session revealed key insights into subtypes, outcomes, and specialized care. Watch here: bit.ly/LipoInsights... #LIPOeducation #NETSARC
Liposarcoma Uncovered Webinar starts in one hour! Join Professor Jean-Yves Blay to hear the latest research and connect with the lipo community. Join here: bit.ly/LipoInsights... #NETSARC #LIPOeducation
November 4, 2025 at 3:41 PM
Liposarcoma Uncovered Webinar starts in one hour! Join Professor Jean-Yves Blay to hear the latest research and connect with the lipo community. Join here: bit.ly/LipoInsights... #NETSARC #LIPOeducation
Sarcoma oncologists have seen lives extended on brigimadlin. Keep the hope alive for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #PatientVoices #Liposarcoma
November 2, 2025 at 2:38 PM
Sarcoma oncologists have seen lives extended on brigimadlin. Keep the hope alive for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #PatientVoices #Liposarcoma
Discover the latest liposarcoma findings from the NETSARC+ registry and connect with the community. Join Professor Jean-Yves Blay for Liposarcoma Uncovered. Reserve your spot: bit.ly/LipoInsights
#Liposarcoma #NETSARC #LIPOeducation
#Liposarcoma #NETSARC #LIPOeducation
October 31, 2025 at 2:17 PM
Discover the latest liposarcoma findings from the NETSARC+ registry and connect with the community. Join Professor Jean-Yves Blay for Liposarcoma Uncovered. Reserve your spot: bit.ly/LipoInsights
#Liposarcoma #NETSARC #LIPOeducation
#Liposarcoma #NETSARC #LIPOeducation
Don’t let Ray’s death be in vain - Urge Boehringer Ingelheim to continue developing brigimadlin and keep hope alive for the DDLPS community. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin
October 28, 2025 at 4:37 PM
Don’t let Ray’s death be in vain - Urge Boehringer Ingelheim to continue developing brigimadlin and keep hope alive for the DDLPS community. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin
Give DDLPS patients a fighting chance. Brigimadlin is hope. Sign the petition: brigimadlinpetition.org
#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices @boehringerglobal.bsky.social
#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices @boehringerglobal.bsky.social
Save Brigimadlin. Save Lives.
Add your voice—sign and share the brigimadlin petition. Every signature brings hope. Patients need brigimadlin. Sign and share to show your support. Unite for rare cancer patients—sign the brigimadlin...
brigimadlinpetition.org
October 24, 2025 at 7:39 PM
Give DDLPS patients a fighting chance. Brigimadlin is hope. Sign the petition: brigimadlinpetition.org
#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices @boehringerglobal.bsky.social
#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices @boehringerglobal.bsky.social
Join Professor Jean-Yves Blay for ‘Liposarcoma Uncovered’ and learn the latest from over 11K+ patients in the NETSARC+ registry. Discover insights on subtypes, prognosis, and specialized care. bit.ly/LipoInsights
#Liposarcoma #NETSARC #LIPOeducation
#Liposarcoma #NETSARC #LIPOeducation
October 21, 2025 at 2:38 PM
Join Professor Jean-Yves Blay for ‘Liposarcoma Uncovered’ and learn the latest from over 11K+ patients in the NETSARC+ registry. Discover insights on subtypes, prognosis, and specialized care. bit.ly/LipoInsights
#Liposarcoma #NETSARC #LIPOeducation
#Liposarcoma #NETSARC #LIPOeducation
Sign the petition today: www.brigimadlinpetition.org
When you live with a rare cancer, every promising treatment represents hope. For patients with dedifferentiated liposarcoma, that hope was brigimadlin - treatment that showed real results.
@boehringerglobal.bsky.social
When you live with a rare cancer, every promising treatment represents hope. For patients with dedifferentiated liposarcoma, that hope was brigimadlin - treatment that showed real results.
@boehringerglobal.bsky.social
October 16, 2025 at 6:05 PM
Sign the petition today: www.brigimadlinpetition.org
When you live with a rare cancer, every promising treatment represents hope. For patients with dedifferentiated liposarcoma, that hope was brigimadlin - treatment that showed real results.
@boehringerglobal.bsky.social
When you live with a rare cancer, every promising treatment represents hope. For patients with dedifferentiated liposarcoma, that hope was brigimadlin - treatment that showed real results.
@boehringerglobal.bsky.social
Recording Available! Experts from the Duke Sarcoma Center discuss #MyxoidLiposarcoma , covering pathology, surgery, radiation, and treatment. Watch now: bit.ly/MyxoidLSN #Liposarcoma #SarcomaAwareness #LIPOeducation @dukecancer.bsky.social
October 14, 2025 at 2:38 PM
Recording Available! Experts from the Duke Sarcoma Center discuss #MyxoidLiposarcoma , covering pathology, surgery, radiation, and treatment. Watch now: bit.ly/MyxoidLSN #Liposarcoma #SarcomaAwareness #LIPOeducation @dukecancer.bsky.social
Learn about the different parts of Medicare, Medigap, and Medicare Advantage from Triage Cancer, tomorrow at 1pm ET. #healthcare #medicare #openenrollment bit.ly/M-Part1
October 8, 2025 at 7:50 PM
Learn about the different parts of Medicare, Medigap, and Medicare Advantage from Triage Cancer, tomorrow at 1pm ET. #healthcare #medicare #openenrollment bit.ly/M-Part1
Support rare cancer patients through awareness and funding #RareCancerDay bit.ly/DONATE-LSN
September 30, 2025 at 6:49 PM
Support rare cancer patients through awareness and funding #RareCancerDay bit.ly/DONATE-LSN
Learn from top Duke Cancer Institute experts about treatment and management of this rare sarcoma + live Q&A. bit.ly/MyxoidLiposa... #MyxoidLiposarcoma #LIPOeducation #Liposarcoma
@dukecancer.bsky.social
@dukecancer.bsky.social
September 22, 2025 at 2:28 PM
Learn from top Duke Cancer Institute experts about treatment and management of this rare sarcoma + live Q&A. bit.ly/MyxoidLiposa... #MyxoidLiposarcoma #LIPOeducation #Liposarcoma
@dukecancer.bsky.social
@dukecancer.bsky.social
Ready to dive deep into #MyxoidLiposarcoma? Join Duke Sarcoma Center for an expert-led discussion on this rare and unique subtype of sarcoma. bit.ly/MyxoidLiposa... #Liposarcoma #LIPOeducation
@dukecancer.bsky.social
@dukecancer.bsky.social
September 16, 2025 at 1:01 PM
Ready to dive deep into #MyxoidLiposarcoma? Join Duke Sarcoma Center for an expert-led discussion on this rare and unique subtype of sarcoma. bit.ly/MyxoidLiposa... #Liposarcoma #LIPOeducation
@dukecancer.bsky.social
@dukecancer.bsky.social
Join @dukecancer.bsky.social (Duke Sarcoma Center) experts on Sept 29, 12:30 PM ET for “Myxoid Liposarcoma: Insights Into A Unique Sarcoma.” Learn about pathology, surgery, radiation & treatments for this rare sarcoma subtype. bit.ly/MyxoidLiposarcoma #MyxoidLiposarcoma #LIPOeducation #liposarcoma
September 5, 2025 at 4:45 PM
Join @dukecancer.bsky.social (Duke Sarcoma Center) experts on Sept 29, 12:30 PM ET for “Myxoid Liposarcoma: Insights Into A Unique Sarcoma.” Learn about pathology, surgery, radiation & treatments for this rare sarcoma subtype. bit.ly/MyxoidLiposarcoma #MyxoidLiposarcoma #LIPOeducation #liposarcoma
We’re making an end-of-summer splash for liposarcoma research! For August your donation will be matched to raise critical funds for research. Don’t miss this chance for your $$ to make twice the impact! bit.ly/LSN-SummerSp... #LIPOresearch #donate #SummerSplash
August 20, 2025 at 2:17 PM
We’re making an end-of-summer splash for liposarcoma research! For August your donation will be matched to raise critical funds for research. Don’t miss this chance for your $$ to make twice the impact! bit.ly/LSN-SummerSp... #LIPOresearch #donate #SummerSplash
Recording available! Watch now ‘Making Cents of Caregiving’—our latest session helps you manage the financial side of #caregiving. bit.ly/LSNcaregivin... #caregiversupport #caregiver #LIPOeducation
August 18, 2025 at 2:25 PM
Recording available! Watch now ‘Making Cents of Caregiving’—our latest session helps you manage the financial side of #caregiving. bit.ly/LSNcaregivin... #caregiversupport #caregiver #LIPOeducation
Join Duke Sarcoma Center experts on Sept 29, 12:30 PM ET for “Myxoid Liposarcoma: Insights Into A Unique Sarcoma.” Learn about pathology, surgery, radiation, and treatments for this rare sarcoma subtype. bit.ly/MyxoidLiposa... #MyxoidLiposarcoma #LIPOeducation #Liposarcoma
August 15, 2025 at 2:36 PM
Join Duke Sarcoma Center experts on Sept 29, 12:30 PM ET for “Myxoid Liposarcoma: Insights Into A Unique Sarcoma.” Learn about pathology, surgery, radiation, and treatments for this rare sarcoma subtype. bit.ly/MyxoidLiposa... #MyxoidLiposarcoma #LIPOeducation #Liposarcoma
Caregiving & finances made simple! Join Making Cents of Caregiving with Al Berg on Aug 12, 12 PM ET for tips to plan and manage your loved one’s care. bit.ly/Caregiving-W... #Liposarcoma #LIPOsupport #Caregiving
August 8, 2025 at 2:21 PM
Caregiving & finances made simple! Join Making Cents of Caregiving with Al Berg on Aug 12, 12 PM ET for tips to plan and manage your loved one’s care. bit.ly/Caregiving-W... #Liposarcoma #LIPOsupport #Caregiving