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liveutifree.bsky.social
LUF
@liveutifree.bsky.social
41 followers 18 following 53 posts
Patient research organization specializing in: 🧬 Underserved and under-diagnosed female health issues 💊 Clinical trial recruitment 🔬 Research design, ethics, logistics 👥 PPIE Our links: liveutifree.com/faq
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Wherever you are in the world, you're invited to participate in this new study! UK researchers want to hear from patients about the real-life impact of recurrent or chronic UTIs.

https://docs.google.com/forms/d/e/1FAIpQLSff9t2AnV5K8lPt7aswowVxHWKNSycVIWCUplf7W7hzpwch6Q/viewform
Listen to our latest podcast episode where Professor Chris Harding explores the new VESPER clinical trial, a landmark study for people with recurrent urinary tract infections who haven’t improved with first-line prevention.
https://open.spotify.com/episode/595rpADSDonOrbqzzwFpny
A study for a new UTI vaccine is currently looking for volunteers. Participants will be randomly assigned to a study group and researchers will track their health outcomes over a 14 month period. Learn more here: https://liveutifree.com/uti-vaccine-clinical-trial/
Could phages in your own urine shape future UTI treatment? Esme Brinsden @phagecollection.bsky.social joined us for an interview to share insights about The Phage Collection Project and how you can get involved. Watch now: https://youtu.be/sLZ498LegBA

#phagetherapy #liveutifree
Listen to our latest podcast episode where Amanda Burkardt and Dr. Mayukh Das share their novel approach to eliminating UTI-causing bacteria, with phage therapy. 

https://open.spotify.com/show/1jdS4IhxYq3PFQkadeWDL5
Listen to our latest podcast episode where Dr. Lindsay Burnett talks about the complex relationship between pelvic floor disorders, the urinary microbiome, and recurrent UTI symptoms. Check it out now: 

https://open.spotify.com/episode/0RC6Muntjr4h4aVimGK330?si=3fe85f88c44c4d0f
Biotia has launched a new UTI diagnostic, now available in all US states. Read more about Biotia-ID Urine, how to order, and how their telehealth service can support the process: https://liveutifree.com/telehealth-for-uti
Which UTI supplements do patients find most helpful? Julia Anditsch and Melissa Kramer discuss their experiences with UTI, and what patients in the communities they've built say about UTI supplements. Watch now: https://youtu.be/c-4YhBslZt8

#UTISky #iveutifree #bladdersmatter #utisupplements
Research on UTI prevention is happening! A clinical trial for a potential new UTI vaccine is underway. The study will assess its efficacy and safety over one year. Learn more about eligibility and how to join here: https://liveutifree.com/uti-vaccine-clinical-trial
Listen to our latest podcast episode where Dr. Nick Parkinson shares how his ground breaking DNA‑based test compares to traditional culture and PCR methods. Check it out now: 

https://open.spotify.com/episode/1TTX53CGU3DTIQuOjsTB9O
Listen to our latest podcast episode with Dr. Carley Akehurst, with guest host Jess Price. Together, they explore how a new patient-developed resource can transform clinical conversations. Check it out now: https://open.spotify.com/episode/5vuIRHjHM8Ybmd89a1l9iP?si=yougtBDxQ1GGfeY6SUtHGw
Are there phages in your urine that could help shape the future of UTI treatment? @phagecollection.bsky.social is empowering citizen scientists to advance phage therapy research and combat AMR. Submit your questions for our upcoming interview with Esme Brinsden, the project coordinator.
Why isn't chronic UTI taken more seriously, and what can we do about it? Deirdre Pinto from @chronicutiaus.bsky.social‬ shares learnings from running a patient advocacy organization. Watch now: https://youtu.be/pSS_rdicT-k

@chronicutiaus.bsky.social 
#UTISky #iveutifree #bladdersmatter #utitesting
The VESPER recurrent UTI prevention trial is seeking participants in the UK. Please share to help us reach people living with recurrent UTI. Learn more: https://liveutifree.com/vesper-trial/
Listen to our latest podcast episode with Dr. Nicholas Sanford, about molecular testing, UTI diagnostics, biofilms, and partner testing. Check it out now: https://open.spotify.com/episode/0a0lZMEntJ2is7I2Y4NHjO?si=db53cb4324cb47b8
Watch our new interview with Dr. Philippe Zimmern as he discusses research into the long-term outcomes of bladder fulguration for recurrent UTI, and which patients might benefit most: https://youtu.be/8lJ8Xz0T0eQ

#UTISky #iveutifree #bladdersmatter #chronicuti #recurrentuti #patientadvocacy
Watch our new interview with Dr. Philippe Zimmern as he discusses research into new options for bladder instillation, and how the urinary microbiome changes after menopause: https://youtu.be/3uHZN1fqWAQ.
Have you had recurrent UTIs during pregnancy? If you’re in the UK, currently pregnant or were in the past 12 months, and have experienced chronic or recurrent UTIs in pregnancy, we’d love to hear from you for a new research study https://qualtricsxmt8c5x72yq.qualtrics.com/jfe/form/SV_7QZKQmPYDsib1em
Listen to our latest podcast episode with Beverley Sarstedt, about the complexities of food sensitivities, microbiome health, histamine overload, and antibiotic use, offering hope to those navigating urinary symptoms: https://open.spotify.com/episode/2fRUJsL6yn2Vm2w7e2Qn86?si=b3YNcsf3QeiCPo_oTMyQrQ
Did you know that @chronicutiaus.bsky.social is the only national patient advocacy organization dedicated to urinary tract infection (UTI) in Australia? Deirdre Pinto, on the orgs co-founders, will be joining us soon for an interview! Submit your questions!
Help share this important national campaign!
Chronic UTI Australia has launched a national campaign to take action on chronic UTI. We are calling for urgent change in how chronic UTI is recognised, diagnosed & treated. Help us spread the word! #ChronicUTI
www.youtube.com/watch?v=4nuO...
UTI Awareness Campaign 2025
YouTube video by ChronicUTI Australia
www.youtube.com
Could treatments administered directly into the bladder be effective for recurrent UTI prevention? You can now join a clinical trial that aims to find out. Learn more: https://liveutifree.com/vesper-trial/
Work with us while completing a PhD in Psychology! We're still seeking candidates for this position in women's health research. Advert details are here (although it says it is closed, admissions are re-opening soon!): www.jobs.ac.uk/job/DMW524/p...
PhD Studentship in Psychology at University of Reading
Explore a PhD Studentship in Psychology. Apply today and discover more PhD opportunities at jobs.ac.uk.
www.jobs.ac.uk
We're seeking participants who experience recurrent UTIs (and their long-term partners) for a study on UTI and sexual wellbeing. Help us shape future support and intervention strategies. Share or learn more here: https://uor-redcap.reading.ac.uk/surveys/?s=34YHAXMTMH9MMDP4
Do you have research in women’s pelvic health you’d like to share with the patient community? We’d love to interview you, too! Patients have many questions about the science behind all things pelvic health and you can help answer them.
Watch our new interview with @henryschreiber.bsky.social as he discusses the complex connections between the gut microbiota, the bladder and the brain, and why UTIs are often associated with neurological symptoms.: https://youtu.be/J6X_LLq5i-U