Long Covid Kids
@longcovidkids.bsky.social
4.8K followers 630 following 840 posts
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
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longcovidkids.bsky.social
👉 Please watch Lives Interrupted to hear directly from young people living with Long Covid. Their voices, with their message, deserve to be heard.
(also on our YouTube)
vm.tiktok.com/ZNdnq5UmG/
#TikTok #CharityFilm #LivesInterrupted
longcovidkids.bsky.social
Ready to take on a challenge? 💪
Find us on @justgiving.bsky.social, @gofundme.com or start your own fundraiser on Instagram or Facebook.

Every penny helps us support children and young people living with Long Covid and related conditions.
#FundraisingFriday

#LongCovidKids
longcovidkids.bsky.social
This #FundraisingFriday we’re asking for your help - set yourself a challenge so we can reach more young people like Simon, who hasn’t been able to attend school since September 2021.

Read Simon’s full story here: www.longcovidkids.org/post/simon-s...

#LongCovidKids #LongCovid #Charity #Children
Simon says the 'better' days are harder - Long Covid Kids Real Life Stories
Simon “Most days he can barely leave the sofa, let alone the house.”The reality is, Simon hasn’t attended school since September 2021; a place where he and 23 other members of his class caught COVID-1...
www.longcovidkids.org
longcovidkids.bsky.social
The Expert Paediatric Long Covid Report requested by the UK COVID Inquiry is now available on our website.

Submitted by Dr Terry Segal and Professor Elizabeth Whittaker

www.longcovidkids.org/uk-covid-inq...

#PaediatricLongCovid #LongCovidKids #LongCovid #ExpertReport #COVIDInquiry
longcovidkids.bsky.social
👉 Please watch Lives Interrupted to hear directly from young people living with Long Covid. Their voices, with their message, deserve to be heard.
(also on our YouTube)
vm.tiktok.com/ZNdnq5UmG/
#TikTok #CharityFilm #LivesInterrupted
longcovidkids.bsky.social
ukhsa.bsky.social
#UKHSAVirusWatch is back, a summary of our weekly winter surveillance report .🦠🧵
This week's data shows an increase in COVID-19 activity, which is circulating at medium levels. Flu activity has also increased, particularly in those aged 15 to 24, but remains at baseline levels.
Graph showing COVID-19 positive tests rising steadily from spring 2025 after a low in early 2025. Data from October 2024 to October 2025, England only. Graph showing flu-positive tests peaking sharply in winter 2024–25 before declining and then beginning to rise again in autumn 2025. Data from October 2024 to October 2025, England only. Graph showing flu-positive tests peaking sharply in winter 2024–25 before declining and then beginning to rise again in autumn 2025. Data from October 2024 to October 2025.
longcovidkids.bsky.social
New research shows children and adolescents face a significantly higher risk of Long Covid after COVID-19 reinfection, while the @ukhsa.bsky.social reports 🦠 activity is rising and circulating at medium levels.
The risks are ongoing we cannot look away.
#LongCovidKids #LongCovid
longcovidkids.bsky.social
The amazing Ruth, Poppy's mum, is running the #ManchesterMarathon for LCK

Poppy says:
'Please sponsor my mum because she’s the only one who understands me and always looks after me even though she’s got lots of other jobs to do.'

www.justgiving.com/page/ruth-ro...

#Running #Runner #Charity
Ruth's fundraiser for Long Covid Kids
Help Ruth Rodgers raise money to support Long Covid Kids
www.justgiving.com
Reposted by Long Covid Kids
ukhsa.bsky.social
#UKHSAVirusWatch is back, a summary of our weekly winter surveillance report .🦠🧵
This week's data shows an increase in COVID-19 activity, which is circulating at medium levels. Flu activity has also increased, particularly in those aged 15 to 24, but remains at baseline levels.
Graph showing COVID-19 positive tests rising steadily from spring 2025 after a low in early 2025. Data from October 2024 to October 2025, England only. Graph showing flu-positive tests peaking sharply in winter 2024–25 before declining and then beginning to rise again in autumn 2025. Data from October 2024 to October 2025, England only. Graph showing flu-positive tests peaking sharply in winter 2024–25 before declining and then beginning to rise again in autumn 2025. Data from October 2024 to October 2025.
longcovidkids.bsky.social
Please help us raise awareness by sharing our film, in collaboration with Combination Dance Company, launched on the first day of the inquiry.

www.youtube.com/watch?v=RNV_...

#COVIDInquiry #Children #Health #Education
#Inclusion #SEND
Lives Interrupted: The Voices of Young People with Long Covid | UK COVID Inquiry | Combination Dance
YouTube video by Long Covid Kids
www.youtube.com
longcovidkids.bsky.social
accountable and meaningful.
We’ll keep updating you as the Inquiry progresses, and we remain committed to ensuring that the lessons and answers that truly matter to you are not lost.
Thank you for your patience, your trust, and your continued support.
LCK Team
#LongCovidKids #LongCovid #Children
longcovidkids.bsky.social
to disappointment and frustration among our members, feelings we share.
Please be assured that we continue to press for the key issues that matter most to our members, and the wider community, to be heard. Your voices, experiences, and determination are what keep this process
longcovidkids.bsky.social
raised, or may only be addressed in a later module.
During the earlier modules, we were advised that Module 8 would provide an opportunity to raise some of the questions and concerns we had submitted. Unfortunately, this has not been the case so far, which has understandably led
longcovidkids.bsky.social
ultimately up to the Inquiry team to decide which questions to put to witnesses, and how to frame them. They prioritise what they see as most relevant to the specific module being examined at that stage. Sometimes this means that issues we see as vital may not yet have been
longcovidkids.bsky.social
As a core participant, our role allows us to:
Submit written questions or topics we believe should be explored.
Provide evidence, statements, and analysis to support those questions.
Receive advance disclosure of evidence.
Make opening and closing statements.
However, it is
longcovidkids.bsky.social
(the Inquiry’s own legal team), under the direction of the Chair, Baroness Hallett. This means that neither core participants nor members of the public can directly ask questions during the hearings unless granted permission.
longcovidkids.bsky.social
wanted to explain a bit about how the Inquiry process works, so it’s clearer why this is happening and what we’re doing about it.
The Inquiry is a statutory process, which means it operates under strict legal rules. The questioning of witnesses is led by Counsel to the Inquiry
longcovidkids.bsky.social
🧵Understanding How the UK COVID Inquiry
Handles Questions

We know that many of you are feeling frustrated that some of the key questions we hoped would be asked in the Covid Inquiry haven’t yet been put to witnesses. We completely understand and we share that frustration.
We
longcovidkids.bsky.social
My main aim with this piece it to highlight the difficulties I face with this illness and how I will never allow it to defeat me. Always keeping positive.’

Learn more about the project in Katie’s #blog:

www.longcovidkids.org/post/self-ex...
longcovidkids.bsky.social
by using colourful colours and positive images. I also have used parts of medication packaging. I have also tried to convey multiple emotions throughout.

#LongCovid #LongCovidKids
longcovidkids.bsky.social
#LongCovidStars
🌟✨ From the artist: BMD

‘I included 2 words which describe my experience with Long Covid, as they are the most prominent. However, I wished to put a positive spin on things. Mainly because I always wish to look on the positive side of things. I did this
Reposted by Long Covid Kids
uoftcovidrehab.bsky.social
New Event: Join us for the Fireside Chat: Deep dive into activity, movement, PESE and PEM in the context of Long COVID and Infection-Associated Chronic Conditions. Visit our website for more information and to register! tinyurl.com/33hd3r2a
@drjillcameron.bsky.social @kellyobrien25.bsky.social
Reposted by Long Covid Kids
nisreenalwan.bsky.social
We're inviting people who've engaged with the SLCC webtool (long-covid-care.org.uk) to take part in its evaluation to help us improve the tool &make it more relevant& helpful to pw #LongCovid. This involves a short survey(10-15m)& potentially interview(if interested)
For more info: shorturl.at/ADoh0
longcovidkids.bsky.social
‘Our children are owed a significant debt by this country - a debt that demands urgent action to address the impacts of the COVID-19 pandemic and ongoing educational neglect.’

morningstaronline.co.uk/article/debt...

#Education