Donald Thomas, MD
@lupusencyclopedia.bsky.social
Rheumatologist empowering patients with knowledge #lupus #Sjogrens #MCTD #UCTD Tweets are my own. 🏳️🌈💜
Pinned
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book)
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book) [Thomas Jr., Donald E.] on Amazon.com. *FREE* shipping on qualifying offers. The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book)
tinyurl.com
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers, edition 2
⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
😍 I can't believe it is almost Valentines Day!
www.morethanlupus.com/post/decodin...
From More Than Lupus
www.morethanlupus.com/post/decodin...
From More Than Lupus
Decoding Love with Lupus: How the 5 Love Languages Can Transform Your Relationships
When chronic illness enters a relationship, the language of love can sometimes get lost in translation. Dr. Gary Chapman's "5 Love Languages" theory offers a powerful framework for understanding how ...
www.morethanlupus.com
February 8, 2026 at 9:22 PM
😍 I can't believe it is almost Valentines Day!
www.morethanlupus.com/post/decodin...
From More Than Lupus
www.morethanlupus.com/post/decodin...
From More Than Lupus
⚡️Most #SLE patients will have cutaneous #lupus where it attacks their skin.
CLICK: www.lupusencyclopedia.com/types-of-ras...
I recommend that most lupus patients with cutaneous lupus also see a "medical dermatologist" regularly and especially see them for any unusual, new rash.
CLICK: www.lupusencyclopedia.com/types-of-ras...
I recommend that most lupus patients with cutaneous lupus also see a "medical dermatologist" regularly and especially see them for any unusual, new rash.
Types of Rash in Lupus: A Comprehensive Guide [February 2026 Update]
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
www.lupusencyclopedia.com
February 8, 2026 at 6:33 PM
⚡️Most #SLE patients will have cutaneous #lupus where it attacks their skin.
CLICK: www.lupusencyclopedia.com/types-of-ras...
I recommend that most lupus patients with cutaneous lupus also see a "medical dermatologist" regularly and especially see them for any unusual, new rash.
CLICK: www.lupusencyclopedia.com/types-of-ras...
I recommend that most lupus patients with cutaneous lupus also see a "medical dermatologist" regularly and especially see them for any unusual, new rash.
Reposted by Donald Thomas, MD
😍New AAO recommendations for HCQ screening
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
January 19, 2026 at 10:06 PM
😍New AAO recommendations for HCQ screening
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
😍New AAO recommendations for HCQ screening
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
January 19, 2026 at 10:06 PM
😍New AAO recommendations for HCQ screening
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
👉CLICK: www.aaojournal.org/article/S016...
Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice.
NEW RECOMMENDATION:
OCT plus a wide-pattern fundus autofluorescence (FAF)
👉 I've known for years that chromatin antibodies fluctuate predictably with #SLE #lupus disease activity in some of my patients. Now a study confirms this:
lupus.bmj.com/content/13/1...
lupus.bmj.com/content/13/1...
January 18, 2026 at 11:22 PM
👉 I've known for years that chromatin antibodies fluctuate predictably with #SLE #lupus disease activity in some of my patients. Now a study confirms this:
lupus.bmj.com/content/13/1...
lupus.bmj.com/content/13/1...
💊Study shows adding quinacrine (mepacrine and Atabrine) to hydroxychloroquine, immunosuppressants, steroids improves disease activity and was safe in #SLE #lupus.
Link to "How to Prescribe Quinacrine:
www.lupusencyclopedia.com/quinacrine/
Link to the study:
lupus.bmj.com/content/12/2...
Link to "How to Prescribe Quinacrine:
www.lupusencyclopedia.com/quinacrine/
Link to the study:
lupus.bmj.com/content/12/2...
Quinacrine [January 2026 Update]
This article on quinacrine is one of the most practical & complete sources for doctors & patients on how it is RXd and potential side effects
www.lupusencyclopedia.com
January 18, 2026 at 11:13 PM
💊Study shows adding quinacrine (mepacrine and Atabrine) to hydroxychloroquine, immunosuppressants, steroids improves disease activity and was safe in #SLE #lupus.
Link to "How to Prescribe Quinacrine:
www.lupusencyclopedia.com/quinacrine/
Link to the study:
lupus.bmj.com/content/12/2...
Link to "How to Prescribe Quinacrine:
www.lupusencyclopedia.com/quinacrine/
Link to the study:
lupus.bmj.com/content/12/2...
❤️🔥 #SLE #lupus:
lupus.bmj.com/content/12/2...
Moderate disease activity fullfills at least 1 of the following
Clinical SLEDAI: score between 4 and 8, excluding C3, C4, dsDNA.
Physician Global Assessment: > 1 and up to 2 on a 0–3 scale.
+ NO Severe SLEDAI and non-SLEDAI manifestations.
lupus.bmj.com/content/12/2...
Moderate disease activity fullfills at least 1 of the following
Clinical SLEDAI: score between 4 and 8, excluding C3, C4, dsDNA.
Physician Global Assessment: > 1 and up to 2 on a 0–3 scale.
+ NO Severe SLEDAI and non-SLEDAI manifestations.
January 18, 2026 at 10:49 PM
❤️🔥 #SLE #lupus:
lupus.bmj.com/content/12/2...
Moderate disease activity fullfills at least 1 of the following
Clinical SLEDAI: score between 4 and 8, excluding C3, C4, dsDNA.
Physician Global Assessment: > 1 and up to 2 on a 0–3 scale.
+ NO Severe SLEDAI and non-SLEDAI manifestations.
lupus.bmj.com/content/12/2...
Moderate disease activity fullfills at least 1 of the following
Clinical SLEDAI: score between 4 and 8, excluding C3, C4, dsDNA.
Physician Global Assessment: > 1 and up to 2 on a 0–3 scale.
+ NO Severe SLEDAI and non-SLEDAI manifestations.
👁️ It is Winter time when dry eyes in #Sjogrens #SLE #lupus can worsen. There are many easy tricks to help your dry eyes. If those fail, ask your doctor about the products in the image. See my post here:
www.lupusencyclopedia.com/dry-eyes-and...
www.lupusencyclopedia.com/dry-eyes-and...
January 10, 2026 at 8:00 PM
👁️ It is Winter time when dry eyes in #Sjogrens #SLE #lupus can worsen. There are many easy tricks to help your dry eyes. If those fail, ask your doctor about the products in the image. See my post here:
www.lupusencyclopedia.com/dry-eyes-and...
www.lupusencyclopedia.com/dry-eyes-and...
👉 Winter is the time of year when the air is typically very dry, leading to dry, itchy skin: a common problem for #SLE #lupus #Sjogrens. There are easy tricks to help dry, itchy skin:
www.lupusencyclopedia.com/dry-skin-in-...
www.lupusencyclopedia.com/dry-skin-in-...
Top Dermatologist Tips For Itchy, Dry Skin in Lupus and Sjögren’s [January 2026 Update]
Itchy, dry skin is common in lupus. Many lupus patients also have Sjögren’s disease overlap syndrome that causes dry skin, eyes, and mouth. Read this blog post to learn top dermatologist tips on dry s...
www.lupusencyclopedia.com
January 4, 2026 at 8:03 PM
👉 Winter is the time of year when the air is typically very dry, leading to dry, itchy skin: a common problem for #SLE #lupus #Sjogrens. There are easy tricks to help dry, itchy skin:
www.lupusencyclopedia.com/dry-skin-in-...
www.lupusencyclopedia.com/dry-skin-in-...
January 2, 2026 at 11:22 PM
UCTD explained in easy to understand language: www.lupusencyclopedia.com/uctd/
Undifferentiated Connective Tissue Disease: It Is Real! (Feb 2025 Update)
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
www.lupusencyclopedia.com
December 29, 2025 at 10:12 PM
UCTD explained in easy to understand language: www.lupusencyclopedia.com/uctd/
A New Years blog post by @LupusMore
www.morethanlupus.com/post/looking...
www.morethanlupus.com/post/looking...
Looking Ahead: 5 Things to Be Mindful of When Navigating Lupus in 2026
If you are living with a chronic illness like lupus, you know that time is often measured differently. It’s measured in flare-ups and remissions, in appointments and lab results, and in the energy you...
www.morethanlupus.com
December 29, 2025 at 10:08 PM
A New Years blog post by @LupusMore
www.morethanlupus.com/post/looking...
www.morethanlupus.com/post/looking...
Reposted by Donald Thomas, MD
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers, edition 2
⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book)
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book) [Thomas Jr., Donald E.] on Amazon.com. *FREE* shipping on qualifying offers. The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book)
tinyurl.com
February 8, 2025 at 9:48 PM
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers, edition 2
⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
🩸Be proactive when you have #lupus #SLE #Sjogrens. After lab draws, go online to look at results. Look up each abnormal lab to learn more about how they may relate to your situation. ALWAYS ask your doctor as well. "How do these pertain to my situation?":
www.lupusencyclopedia.com/lupus-lab-te...
www.lupusencyclopedia.com/lupus-lab-te...
Lupus Lab Tests Explained: What Blood Tests Mean for Diagnosing and Monitoring Lupus
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
www.lupusencyclopedia.com
December 21, 2025 at 9:02 PM
🩸Be proactive when you have #lupus #SLE #Sjogrens. After lab draws, go online to look at results. Look up each abnormal lab to learn more about how they may relate to your situation. ALWAYS ask your doctor as well. "How do these pertain to my situation?":
www.lupusencyclopedia.com/lupus-lab-te...
www.lupusencyclopedia.com/lupus-lab-te...
❄️ It is that time of the year! Dry, itchy skin!
#SLE #lupus and #Sjogrens patients are especially affected. I updated my dry skin care blog with tips from a dermatologist specializing in dry skin. I updated the recommended soaps:
www.lupusencyclopedia.com/dry-skin-in-...
#SLE #lupus and #Sjogrens patients are especially affected. I updated my dry skin care blog with tips from a dermatologist specializing in dry skin. I updated the recommended soaps:
www.lupusencyclopedia.com/dry-skin-in-...
Top Dermatologist Tips For Itchy, Dry Skin in Lupus and Sjögren’s [December 2025 Update]
Itchy, dry skin is common in lupus. Many lupus patients also have Sjögren’s disease overlap syndrome that causes dry skin, eyes, and mouth. Read this blog post to learn top dermatologist tips on dry s...
www.lupusencyclopedia.com
December 21, 2025 at 7:18 PM
❄️ It is that time of the year! Dry, itchy skin!
#SLE #lupus and #Sjogrens patients are especially affected. I updated my dry skin care blog with tips from a dermatologist specializing in dry skin. I updated the recommended soaps:
www.lupusencyclopedia.com/dry-skin-in-...
#SLE #lupus and #Sjogrens patients are especially affected. I updated my dry skin care blog with tips from a dermatologist specializing in dry skin. I updated the recommended soaps:
www.lupusencyclopedia.com/dry-skin-in-...
👁️ Many #SLE #lupus patients have dry eyes that worsen during Winter. Often, it is due to also having #Sjogrens (occurs in one fourth of SLE patients and most are undiagnosed).
I updated my dry eye care post and included newer and better therapies:
www.lupusencyclopedia.com/dry-eyes-and...
I updated my dry eye care post and included newer and better therapies:
www.lupusencyclopedia.com/dry-eyes-and...
Dry Eyes and Lupus: Eye Doctor Tips and Tricks [December 2025 Update]
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
www.lupusencyclopedia.com
December 21, 2025 at 6:53 PM
👁️ Many #SLE #lupus patients have dry eyes that worsen during Winter. Often, it is due to also having #Sjogrens (occurs in one fourth of SLE patients and most are undiagnosed).
I updated my dry eye care post and included newer and better therapies:
www.lupusencyclopedia.com/dry-eyes-and...
I updated my dry eye care post and included newer and better therapies:
www.lupusencyclopedia.com/dry-eyes-and...
Lowest in NE
Highest in South #SLE #lupus
journals.sagepub.com/doi/10.1191/...
pubmed.ncbi.nlm.nih.gov/39936240/
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
journals.sagepub.com/doi/10.1191/...
pubmed.ncbi.nlm.nih.gov/39936240/
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
Highest in South #SLE #lupus
journals.sagepub.com/doi/10.1191/...
pubmed.ncbi.nlm.nih.gov/39936240/
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
journals.sagepub.com/doi/10.1191/...
pubmed.ncbi.nlm.nih.gov/39936240/
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
December 20, 2025 at 11:10 PM
😍A study shows that structured exercise and dietary changes improved energy and quality of life in #SLE #lupus .
journals.sagepub.com/doi/epub/10....
- three 40-minute home-based regimens per week
- exercises aimed at large muscles
- Mindful eating
- Eat unprocessed or minimally processed foods
journals.sagepub.com/doi/epub/10....
- three 40-minute home-based regimens per week
- exercises aimed at large muscles
- Mindful eating
- Eat unprocessed or minimally processed foods
December 20, 2025 at 10:41 PM
😍A study shows that structured exercise and dietary changes improved energy and quality of life in #SLE #lupus .
journals.sagepub.com/doi/epub/10....
- three 40-minute home-based regimens per week
- exercises aimed at large muscles
- Mindful eating
- Eat unprocessed or minimally processed foods
journals.sagepub.com/doi/epub/10....
- three 40-minute home-based regimens per week
- exercises aimed at large muscles
- Mindful eating
- Eat unprocessed or minimally processed foods
Reposted by Donald Thomas, MD
🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients!
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
December 2, 2025 at 3:48 PM
🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients!
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
Dooren surprisingly showed that anti-Smith and RNP were reduced in tandem with antidsDNA. The fluctuations were not statistically significant, but numerically, they fluctuated with disease activity. I just checked a patient: her Smith DID as well.
acrjournals.onlinelibrary.wiley.com/doi/epdf/10....
acrjournals.onlinelibrary.wiley.com/doi/epdf/10....
December 20, 2025 at 10:13 PM
Dooren surprisingly showed that anti-Smith and RNP were reduced in tandem with antidsDNA. The fluctuations were not statistically significant, but numerically, they fluctuated with disease activity. I just checked a patient: her Smith DID as well.
acrjournals.onlinelibrary.wiley.com/doi/epdf/10....
acrjournals.onlinelibrary.wiley.com/doi/epdf/10....
My Aunt’s cat, Molly, is a fan of my book but I don’t think she realizes it is upside down
December 20, 2025 at 8:34 PM
My Aunt’s cat, Molly, is a fan of my book but I don’t think she realizes it is upside down
This is my Aunt Nikki who I dedicated my 2nd edition of The Lupus Encyclopedia. She means a lot to me and I love her very much. Of course she is spoiling me with delicious food. Where would we be without those who love and believing us?
December 20, 2025 at 8:31 PM
This is my Aunt Nikki who I dedicated my 2nd edition of The Lupus Encyclopedia. She means a lot to me and I love her very much. Of course she is spoiling me with delicious food. Where would we be without those who love and believing us?
Highly recommended: Michelle Miranda, Life Coach. Living well with chronic illness is about much more than taking medicines and seeing doctors: www.michellemirandalpc.com
Michelle Miranda
www.michellemirandalpc.com
December 16, 2025 at 8:37 PM
Highly recommended: Michelle Miranda, Life Coach. Living well with chronic illness is about much more than taking medicines and seeing doctors: www.michellemirandalpc.com
🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients!
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
December 2, 2025 at 3:48 PM
🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients!
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
Boy! I cannot believe it has been 33 years of continuous rheumatology board certification! ABIM Foundation just sent me this. I think I might know what I am doing by now :-)
November 24, 2025 at 9:53 PM
Boy! I cannot believe it has been 33 years of continuous rheumatology board certification! ABIM Foundation just sent me this. I think I might know what I am doing by now :-)