Donald Thomas, MD
lupusencyclopedia.bsky.social
Donald Thomas, MD
@lupusencyclopedia.bsky.social
Rheumatologist empowering patients with knowledge #lupus #Sjogrens #MCTD #UCTD Tweets are my own. 🏳️‍🌈💜
Pinned
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers, edition 2

⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease.
tinyurl.com/2u5nddcu
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book)
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book) [Thomas Jr., Donald E.] on Amazon.com. *FREE* shipping on qualifying offers. The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers (A Johns Hopkins Press Health Book)
tinyurl.com
🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients!
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
December 2, 2025 at 3:48 PM
Boy! I cannot believe it has been 33 years of continuous rheumatology board certification! ABIM Foundation just sent me this. I think I might know what I am doing by now :-)
November 24, 2025 at 9:53 PM
My kitty
November 19, 2025 at 5:12 PM
rheumnow.com/news/acr-app...

Thanks to lawmakers at least for our Medicare patients! Let's HOPE the wealthy insurance company lobbyists don't pay off lawmakers to have this fail.

Then if it passes... we need this for ALL insurance companies and NOT just CMS (Medicare/Medicaid)
ACR Applauds Bipartisan Support for Prior Authorization Reform Bill | RheumNow
The American College of Rheumatology (ACR) today commended the more than 295 bipartisan, bicameral cosponsors of The Improving Seniors’ Timely Access to Care Act, which, if enacted, would reform the p...
rheumnow.com
November 18, 2025 at 12:40 AM
Reposted by Donald Thomas, MD
😍 I LOVE the @EULAR guidelines for 1st-line therapy for LN! If everyone did this IMMEDIATELY (include a CNI, obinutuzumab, or belimumab) instead of just mycophenolate or CYC with steroids, greater numbers of patients would go into renal remission & fewer to end stage renal disease! #SLE #lupus
November 15, 2025 at 5:48 PM
Thanks Republicans and those Democrats who caved. This is the reality. You do not know what it is like to live pay check to pay check. You are hurting my patients!! These are posts on the lupus subreddit
November 15, 2025 at 11:29 PM
😍 I LOVE the @EULAR guidelines for 1st-line therapy for LN! If everyone did this IMMEDIATELY (include a CNI, obinutuzumab, or belimumab) instead of just mycophenolate or CYC with steroids, greater numbers of patients would go into renal remission & fewer to end stage renal disease! #SLE #lupus
November 15, 2025 at 5:48 PM
I just got a 22 page, 108 question drug prior auth for patient from @expressscripts.bsky.social @bluecrosspa.bsky.social for patient's adalimumab: she has been on for years. We proved she needed this many times in the past. My notes very clearly show how she failed so many and doing great on this.
November 7, 2025 at 8:36 PM
Reposted by Donald Thomas, MD
😍😍Click on "2025 Systemic Lupus Erythematosus Guidelines" here:
rheumatology.org/lupus-guidel...
@ACRheum @ACR_Journals
November 6, 2025 at 11:54 PM
😍😍Click on "2025 Systemic Lupus Erythematosus Guidelines" here:
rheumatology.org/lupus-guidel...
@ACRheum @ACR_Journals
November 6, 2025 at 11:54 PM
Meeting with like-minded people to improve lives of patients at @ACRheum #ACR25 is wonderful #Sjogrens #lupus #SLE
October 28, 2025 at 5:28 PM
A wonderful awards and opening session at #ACR25 by the ⁦‪@ACRheum‬⁩ …. Celebrating better care for our patients…. Dedicated professionals who love our profession and giving to society
October 25, 2025 at 11:04 PM
Private practice rheumatologists: PLEASE: If you do not belong to the ACR, please do.
If you do, please volunteer for committees when the time opens up in a few months.

I just joined the Board of Directors and learned that only 10% of applicants are private practice!

rheumatology.org
October 21, 2025 at 9:40 PM
😍 A cellular therapy that only attacks pathologic B cells in #SLE #lupus and not healthy cells; unlike most CAR-T therapies that target healthy B -cells.

www.biorxiv.org/content/10.1...

Hope for other B-cell driven diseases like #Sjogrens ?

👉Thanks to Maximilian F. Konig and collaborators!
Precision targeting of autoreactive B cells in systemic lupus erythematosus using anti-9G4 idiotope synthetic immune receptor T cells
Chimeric antigen receptor (CAR)-T cell therapies that broadly target B cells can achieve complete remission in severe systemic lupus erythematosus (SLE) but carry an increased risk of infection and cy...
www.biorxiv.org
October 21, 2025 at 9:06 PM
⚡️Consider loading your patients initially with higher dose HCQ:
✅It works faster
✅✅It is safe
✅✅✅Warn them if they get GI side effects immediately go down to 5 mg/kg/d
🔥One of my favorite parts of the 2025 ACR SLE Management Guidelines!

I have been doing this for over 20 years as a "loading dose": HCQ works faster. This is another steroid-sparing tactic to use in SLE patients.

I do this for 1-3 months initially.
October 21, 2025 at 7:51 PM
🔥One of my favorite parts of the 2025 ACR SLE Management Guidelines!

I have been doing this for over 20 years as a "loading dose": HCQ works faster. This is another steroid-sparing tactic to use in SLE patients.

I do this for 1-3 months initially.
October 20, 2025 at 9:16 PM
FDA approved #obinutuzumab #Gazyva for the treatment of #SLE #lupus nephritis when used with other standard therapies!

Complete renal responses: higher than standard therapies.

Studies show deep tissue B-cell depletion.
October 20, 2025 at 6:22 PM
💵We raised $127,000 for the @ArthritisFdn at the OCT 9 Washington DC Gala! #SLE #lupus and #Sjogrens commonly cause arthritis! Good job to Rebecca Caldwell (CEO), Madeline Martin, MPH (Development Manager), Dr. Herbert S. B. Baraf, MD, FACP, MACR and the entire AF team! #arthritis
October 16, 2025 at 6:18 PM
Exactly 13 years ago I accidentally won this adorable puppy at an auction at the @ArthritisFdn Gala. I was raising my hand to drive up the price. Little did I know … the bidding stopped and I became the shocked owner of this adorable Bichon. Please consider donating to the Arthritis Foundation
October 9, 2025 at 8:32 PM
I visited the Basilique de St. Martin in Liege, built in honor of St. Martin due to St. Martin healing the Bishop of Liege of his #SLE #lupus in 963AD.
youtube.com/watch?v=R67I...
Watch all three episodes. Episode 2 shows the Bishop's sarcophagus replica (1st person in history with lupus)
Church built due to lupus: Basilica Saint Martin (Basilique Saint-Martin Liège), part 2
YouTube video by Lupus Encyclopedia
www.youtube.com
October 9, 2025 at 5:24 PM
Please donate to the Arthritis Foundation Metro DC!

In these trying times of drastic research funding withdrawals from today's administration, science-based advancements are in jeopardy.

CLICK here (then click DONATE), even just a little makes a big difference: my.onecause.com/event/organi...
October 6, 2025 at 9:20 PM
Dry mouth and poor dental health occur much more commonly in #Sjogrens #SLE #lupus. There are many things patients can do to proactively prevent tooth loss and help dry mouth:
www.lupusencyclopedia.com/prevent-earl...
Lupus Can Cause Tooth Decay: How to Prevent Dry Mouth and Cavities (October 2025 Update)
Can lupus cause tooth decay? Learn here to lower your risk of losing teeth from dry mouth. I share tips and tricks to prevent this!
www.lupusencyclopedia.com
October 5, 2025 at 5:51 PM
The App for the @ACRheum Annual Meeting Convergence #ACR25 is available! Cruise the sessions, pick those you are interested in now. It is easy, just hold your finger down a couple of seconds, and it is saved:
rheumatology.org/annual-meeti...
October 1, 2025 at 8:50 PM
SC #Saphnelo meets its primary endpoint. How exciting for patients who find IV infusions too time consuming and difficult! I hope it is approved and available for my patients quickly!

www.astrazeneca-us.com/media/press-...
SAPHNELO self-administration TULIP-SC Phase III trial meets primary endpoint in patients with systemic lupus erythematosus based on an interim analysis
www.astrazeneca-us.com
September 18, 2025 at 12:34 AM
💵 Please help with arthritis research and advocacy. Give to the Arthritis Foundation by helping with their 2025 DC Gala. I'm honored that they named me their Medical Honoree for this year. Click below to give to the @ArthritisFdn ... JOIN my team!

CLICK👉: onecau.se/_c8wu31
September 13, 2025 at 6:27 PM