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MND Education

@mndeducation.bsky.social

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The Education & Information team for the MND Association @mndassoc.bsky.social Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.

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MND Education @mndeducation.bsky.social · Jan 27

Welcome to the MND Association Education and Information page, we provide information to people affected by #MND or #Kennedy's and professionals.

Find more info on our website:

ℹ️Info on MND and Kennedy's: mndassociation.org/support-and-...
ℹ️Info for professionals: mndassociation.org/professionals

Information resources

This section holds our resources and publications about MND and Kennedy's disease.

mndassociation.org

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MND Education @mndeducation.bsky.social · 3d

We've updated our Voice banking infosheet to help HSCPs support people with #MND in preserving their voice for future use

It includes:
✅guidance on message banking
✅recording tips
✅the latest services available, Apple Personal Voice

Find it on👇
mndassociation.org/publications

screenshot of the front page the information sheet "voice banking for motor neurone disease" on a blue background

MND Education @mndeducation.bsky.social · 5d

It's the last week to register for our webinar!

Respiratory physiotherapist Stephanie Mansell will explore @theacprc.bsky.social best practice on how to use LVR bags to help people with #MND with weakened cough

Book before 14 October👉 bit.ly/3KXfOUc

MND Webinar: Lung volume recruitment bags for people with MND - 21/10/25

bit.ly

MND Education @mndeducation.bsky.social · 17d

🚨Bookings for our CoP Networking Day on 7 Oct in Birmingham close on Friday at 9am🚨

Expect:
☑️Expert-led workshops on eating with risks & much more
☑️Equipment demos, including PEG & LVR
☑️Exhibitors

150 HSCPs have already signed up, hurry up and book now!
mndassociation.org/education-ev...

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

mndassociation.org

MND Education @mndeducation.bsky.social · 19d

It's the last week to register for the 2025 CoP Networking Day!

📅7 October
📍Birmingham

Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK

See what guests said about past events and find out more on mndassociation.org/education-ev...

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

mndassociation.org

MND Education @mndeducation.bsky.social · 22d

Did you know that your health service has a responsibility to provide trained interpreters?

Read more about interpreters and translations in 1B - Health information in other languages or formats.

Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder

Cover of the 1B Health information in other languages and formats

MND Education @mndeducation.bsky.social · 23d

Registration for the Annual Stephen Hawking MND Lecture is now open!

📆4 Nov
📍virtual live stream or London (followed by drinks & networking)

It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture

Orange and blue slide with picture of Professor Ammar Al-Chalabi, who'll deliver the Lecture. On the side, the text says "The Annual Stephen Hawking MND Lecture 2025 - The genetics of motor neurone disease: why does genetics matter for people living with MND"

MND Education @mndeducation.bsky.social · 23d

🚨New free online course!

We're thrilled to launch a new course on including adults with capacity and communication challenges in research

You'll explore:
☑️law & ethics in research
☑️capacity & decision-making
☑️adjustments to support participation

Find out more on mndassociation.org/online-courses

Online Courses

Our online learning modules are in depth courses which you can complete around your work commitments.

mndassociation.org

MND Education @mndeducation.bsky.social · 26d

🧠1 week left to register for our free online course for psychologists on using ACT to support people with #MND!

Expect:
✅Exercises to use in your practice
✅Live sessions with @ucl.ac.uk expert Prof Gould
✅Resources for further learning
✅Peer discussions
👉 www.mndassociation.org/online-courses

Course: Supporting people with MND using acceptance and commitment therapy (ACT), starting on 29/09/2025
This 9-week course introduces ACT as a proven and practical intervention to support people with MND. Designed for psychologists, it provides a deep dive into the ACT model, with a focus on its application to the unique challenges faced by people with MND. You may expect to dedicate up to 3 hours per week to the course. The course is divided into weekly modules, combining self-paced learning, interactive live sessions and practical application:
week 1: introduction to MND and ACT
week 2: acceptance, defusion and self as context
week 3: contact with the present moment, values and committed action
week 4: live role-play and discussion
week 5: consistent responding and care conceptualisation, suicide and end of life
week 6: indicators of psychological inflexibility
week 7: live role-play
week 8: adapting ACT for MND and troubleshooting
week 9: live Q&A

MND Education @mndeducation.bsky.social · Sep 10

We look forward to our last Information & Knowledge Exchange of 2025 on 23/09

Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice

Book on mndassociation.org/education-ev...

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

mndassociation.org

MND Education @mndeducation.bsky.social · Sep 9

If someone with #MND experiences an incident, they may need to call 999. It's vital that emergency care staff understand their unique needs.

Check out our webpage to support safe, informed care. It includes a dedicated guide developed with
@paramedicsuk.bsky.social: www.mndassociation.org/acute

For acute, urgent and emergency care staff

Our information for professionals in acute, urgent and emergency care is designed to give succinct guidance on actions to take and things to consider when treating someone with the condition.

www.mndassociation.org

MND Education @mndeducation.bsky.social · Sep 5

It's #InternationalCharityDay !

Take a look at our range of resources for people living with and affected by MND and Kennedy's disease mndassociation.org/careinfo

And all of our resources for health and social care professionals www.mndassociation.org/professionals

Information for people with or affected by MND

If you are living with or affected by MND, or Kennedy's disease, most of our information resources can be downloaded, using the options below.

mndassociation.org

MND Education @mndeducation.bsky.social · Sep 3

Register now for our next workshop Nutritional management of people with #MND: from adapted cutlery to tube feeding, everyone has a role!

🗓️24/09 in Bristol

Ask questions to experts, review real case studies & practice equipment. Book before 10/09 on bit.ly/Dietetics-Wo...!

MND dietetics workshop programme:
10:00–10:30 The importance of diet and nutrition in MND: You'll be introduced to current research in this important area
10:30–11:00 Nutritional screening and monitoring: you'll hear about the risk factors in MND and learn about the ways in which people are screened to monitor their nutritional status
11:15–12:45 Nutritional management and options: This session takes a look at managing dysphagia and the ways in which nutrition can be maintained from oral nutrition techniques through to gastrostomy placement
1:15–1:45 Supporting people living with MND to make informed decisions about
gastrostomy: This session will provide an outline of how to effectively steer people through the challenging decision about having a gastrostomy tube
1:45–2:45 Hands on! you will have the opportunity to take part in practical sessions and discuss various aspects of nutrition
3:003:45 Case studies: you'll use case studies to engage in problem solving with fellow attendees

MND Education @mndeducation.bsky.social · Sep 3

The next run of our free online course Multidisciplinary working-making it effective for #MND starts on 15 Sept!

Designed to help HSCPs explore how to provide multidisciplinary care, it can be completed in your own time over 9 weeks

Register on mndassociation.org/online-courses

Image on the MND Online Course: Multidisciplinary working-making it effective for MND.
"It has given me the knowledge of how other MDT members work and what support they provide. I want to be able to provide the people I care for with the correct information." -quote from a participant
The course can help HSCPs collaborate to provide multidisciplinary, person-centred care. It includes supporting resources, learning activities and forums to exchange ideas with fellow participants. Next course starts on 15 September and can be completed at your own pace for free. Over 200 people completed the course since its launch in 2021. They've said: "I liked the variety of resources available and they will be useful moving forward" "I found the course very interesting and will certainly apply the knowledge I've gained" "I enjoyed learning from everyone, especially as we were from different area" "I now feel more confident approaching the MDT"
Learn more about MDT working: www.mndassociation.org/mdt

MND Education @mndeducation.bsky.social · Sep 1

We're thrilled to announce we added a new webinar to our calendar of events!

Join us on 21 October to explore the physiology behind lung recruitment bags for people with #MND, evidence for their use & @theacprc.bsky.social's technical standards

Book now on mndassociation.org/education-ev...!

New webinar for MND professionals: Lung volume recruitment (LVR) bags for people with MND
Date: 21 October 2025
Time: 2-3pm
By the end of the session, you will have:
- a better understanding of what LVR bags are and the physiology behind them
- an increased awareness of the evidence base for LVR bags
- an understanding of the Association of Chartered Physiotherapists in Respiratory Care (ACPRC) technical standards and how to assemble an LVR kit

Speaker: Stephanie Mansell MSc BSc (Hons) MCSP, Consultant Physiotherapist, NIHR Doctoral Research Fellow, Honorary Research Fellow - Royal Free NHS Foundation Trust, University College London

Find more details and book for free on www.mndassociation.org/education-events

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MND Education @mndeducation.bsky.social · Aug 27

Last week to access our EARLYBIRD rate for the 2025 Community of Practice Networking Event!⌛️

Supporting choice and control for people with #MND

🗓️7 October
📍Birmingham
📝www.mndassociation.org/education-events

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

www.mndassociation.org

MND Education @mndeducation.bsky.social · Aug 15

What is Genetic testing? 🧬

Our animation provides guidance about genetic testing to identify changed genes known to play a part in MND.

Find our full range of animations at: www.mndassociation.org/support-and-...

MND Education @mndeducation.bsky.social · Aug 14

The day will start with a speech by @bd365.bsky.social followed by a self-care session led by Dr Emily Mayberry & Dr Rachel Woolrich

HSCPs will then attend expert-led workshops of their choice on topics like eating with risks, get hands-on with equipment eg PEG insertion & meet with demonstrators

MND Education @mndeducation.bsky.social · Aug 14

Only two weeks left to access our EARLYBIRD rate for the 2025 Community of Practice Networking Event!

🔍Supporting choice and control for people with #MND
🗓️7 Oct
📍Birmingham
📝 mndassociation.org/education-ev...

Come connect with over 200 HSCPs from UK to share challenges & solutions

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

mndassociation.org

MND Education @mndeducation.bsky.social · Aug 13

Sign up before 26/08 for our workshop Cognitive & behavioural symptoms in #MND: beyond the motor cortex!

Prof Eneida Mioshi will deliver a programme of activities designed to help you build practical skills

This is a single-date-only event, book now!
bit.ly/cognition-in...

Workshop: cognitive deficits and behavioural symptoms in MND

09:30 – 9:45 Registration and coffee
09:45 – 10:00 Welcome and introduction of the day
– aims and objectives
10:00 – 10:45 ‘I thought MND only caused motor problems, what’s
happening to us?’
10:45 – 11:00 Comfort break
11:00 – 11:30 Cognitive and behavioural symptoms in MND: the
international ALSFTD diagnostic criteria
11:30 – 12.30 Practical session:
observing, noticing, naming symptoms, depressions?
12:30 – 1:00 Lunch
1:00 – 1:45 I don’t have much time: which tools can I use to detect
cognitive and behavioural symptoms? What if the family
gets upset that we’re doing these assessments?
1:45 – 2:30 Practical session:
bringing it all together – assessments, interpretation
2:30 – 2:45 Comfort break
2:45 – 3:45 Case studies and panel discussions
3:45 – 4:00 Evaluations and close

MND Education @mndeducation.bsky.social · Aug 12

We're thrilled to launch a new, free online course, designed to train psychologists in Acceptance and Commitment Therapy -proven to improve quality of life in #MND

It includes self-paced modules & live sessions by Prof Gould from @ucl.ac.uk

Learn more & register👇
mndassociation.org/online-courses

New online course for MND professionals: Using Acceptance and Commitment Therapy (ACT) to support people with MND

Start date: 29 September 2025
Location: Online
Cost: Free
To register your interest:

Email education@mndassociation.org with:
-your full name
-job title
-details of your professional registration as a psychologist.

This course is only open to registered psychologists.

Find more details and register your interest on: www.mndassociation.org/online-courses

MND Education @mndeducation.bsky.social · Aug 8

Our revised guide for care workers is now back in stock!

You can order your printed copy for free directly from the MNDA Care Admin Team via:

☎️01604 611812 or 611685
📧[email protected]

MND Education @mndeducation.bsky.social · Jul 17

Our new guide for care workers is now out!

Reviewed with MND experts, it offers specialist & practical advice to assist people with #MND, including on handling emergencies, safeguarding and personal care

Visit www.mndassociation.org/propublications to view the guide and leave us feedback!

The background is a wooden tile, with a quote from an MND expert working in home care organisations, reading: "MND is different for each individual, in terms of how they experience their symptoms, what help they need and how you can support them. This guide provides all those answers and I know those who read it will get comfort from doing so - after all, we always want to ensure we are doing our very best to provide person-centred, safe care."
Underneath the quote, there is a picture of the cover of the new booklet "Caring for a person with MND: a guide for care workers" on the left, which is slightly overlapping on the right with another picture of section two of the booklet, A care worker's toolkit.

MND Education @mndeducation.bsky.social · Aug 7

We can't wait for our next #MND workshop!

Prof Eneida Mioshi will explore how to manage cognitive & behavioural symptoms in practice, including how to interpret assessments and diagnostic criteria

This is a single-date-only event, don't miss out & book now! mndassociation.org/education-ev...

Workshops for MND professionals: Cognitive deficits and behavioural symptoms in MND: beyond the motor cortex
Date: 9 September 2025
Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London, N1 9RL
Time: 9.30am - 4pm
By the end of the day, participants will have learned:

-the impact of cognitive and behavioural symptoms on the patient
-the impact cognitive and behavioural symptoms on the family and how they can change relationships
-research in this area
-the international ALSFTD diagnostic criteria
-the differences between behavioural symptoms and mental health issues in MND
-how to use clinical assessments to use in practice
-how to make interpretations of the assessments, in combination with clinical reasoning, and the above learning points

Speaker: Professor Eneida Mioshi, University of East Anglia
Find more details and register on www.mndassociation.org/education-events

This is a single-date-only event, don’t miss your chance

MND Education @mndeducation.bsky.social · Aug 6

Preventing malnutrition & weight loss is vital for the care & quality of life of people with #MND

Our workshops help HSCPs build skills through case studies, equipment practice & expert-led discussions

Register for our new date:
🗓️24/09
📍Bristol
📝http://mndassociation.org/education-events

MND workshop: The nutritional management of people with MND
Date: 24 September
Location: Aztec Hotel & Spa, Aztec West, Almondsbury, Bristol, BS32 4TS
Learning goals:
- the impact of nutritional status on the outcomes of people with MND
- how to identify and monitor the nutritional status of people with MND, including malnutrition screening
- the nutrition support interventions available to prevent or resolve malnutrition including oral and enteral nutrition options
- the dysphagia management of people with MND
- how to support people with MND to make informed decisions about the option to have a gastrostomy
- the management of people with MND on enteral nutrition
- how to apply the above in real-world practice.
"It was a very informative event. There were fantastic speakers with real-life experiences, and I valued the opportunities to ask questions." - quote from a previous attendant
Find more details and book on www.mndassociation.org/education-events

MND Education @mndeducation.bsky.social · Aug 6

The clock is ticking!⏰

Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event

Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND

Learn more on www.mndassociation.org/education-events

MND Education @mndeducation.bsky.social · Jul 30

Working closely with HSCPs is crucial to shape resources that truly support people with #MND and ensure our materials are relevant & practical

That's why your feedback always matters

If you want to help or have comments on our resources, email [email protected]

Photo of some of our publications with a purple text box above, containing a quote from an MND professional collaborating in the review of our resources. The quote reads: "It’s been wonderful to have a contribution to the publication and apply knowledge and skills from 15 years’ experience in the sector"