@mpnrf.bsky.social
Learn about ongoing efforts in #MPNresearch and real-world data at our Feb. 10, 2026, webinar: The Importance of an MPN PROGRESSion Registry™ for Research Progress: Key ASH 2025 Takeaways. Register for this panel discussion today: https://f.mtr.cool/xeeuxnaixn
February 4, 2026 at 11:01 PM
Learn about ongoing efforts in #MPNresearch and real-world data at our Feb. 10, 2026, webinar: The Importance of an MPN PROGRESSion Registry™ for Research Progress: Key ASH 2025 Takeaways. Register for this panel discussion today: https://f.mtr.cool/xeeuxnaixn
Stephanie was just 16 when she was diagnosed with ET, a rare blood cancer. Today, she’s championing MPN research and patient education.
Join her mission this #RareDiseaseMonth.
👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb
#MPN #PatientVoice #SupportResearch #Donate
Join her mission this #RareDiseaseMonth.
👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb
#MPN #PatientVoice #SupportResearch #Donate
February 3, 2026 at 3:02 PM
Stephanie was just 16 when she was diagnosed with ET, a rare blood cancer. Today, she’s championing MPN research and patient education.
Join her mission this #RareDiseaseMonth.
👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb
#MPN #PatientVoice #SupportResearch #Donate
Join her mission this #RareDiseaseMonth.
👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb
#MPN #PatientVoice #SupportResearch #Donate
This observational research study will follow myeloproliferative neoplasm (MPN) patients for 5-10 years. It combines electronic medical records and patient reported outcomes to help researchers better understand MPNs. https://f.mtr.cool/gmrfryflty
January 30, 2026 at 8:01 PM
This observational research study will follow myeloproliferative neoplasm (MPN) patients for 5-10 years. It combines electronic medical records and patient reported outcomes to help researchers better understand MPNs. https://f.mtr.cool/gmrfryflty
The January edition of ‘“Under the Microscope’” hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link: https://goto.mpnresearchfoundation.org/4pFAFKC
January 27, 2026 at 3:01 PM
The January edition of ‘“Under the Microscope’” hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link: https://goto.mpnresearchfoundation.org/4pFAFKC
Global insights matter. Encourage MPN patients to join the 2026 Unmet Needs Assessment and shape future research priorities.
Assessment link: https://www.tfaforms.com/5184100
#MPN #PatientEngagement #RareDisease
Assessment link: https://www.tfaforms.com/5184100
#MPN #PatientEngagement #RareDisease
January 26, 2026 at 4:30 PM
Global insights matter. Encourage MPN patients to join the 2026 Unmet Needs Assessment and shape future research priorities.
Assessment link: https://www.tfaforms.com/5184100
#MPN #PatientEngagement #RareDisease
Assessment link: https://www.tfaforms.com/5184100
#MPN #PatientEngagement #RareDisease
Progress in MPN Therapies!
The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!
#MPNResearch #PV #ClinicalTrials
The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!
#MPNResearch #PV #ClinicalTrials
January 21, 2026 at 4:03 PM
Progress in MPN Therapies!
The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!
#MPNResearch #PV #ClinicalTrials
The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!
#MPNResearch #PV #ClinicalTrials
New year. New opportunity to contribute to future #MPNresearch outcomes.
If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq
If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq
January 14, 2026 at 9:54 PM
New year. New opportunity to contribute to future #MPNresearch outcomes.
If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq
If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq
The 2026 Global MPN Patient Unmet Needs Assessment is open. Help us capture patient voices worldwide. Your network can make a difference. Share widely!
Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR
#MPN #PatientVoice #GlobalHealth #RareDisease
Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR
#MPN #PatientVoice #GlobalHealth #RareDisease
January 12, 2026 at 8:02 PM
The 2026 Global MPN Patient Unmet Needs Assessment is open. Help us capture patient voices worldwide. Your network can make a difference. Share widely!
Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR
#MPN #PatientVoice #GlobalHealth #RareDisease
Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR
#MPN #PatientVoice #GlobalHealth #RareDisease
MPN Research Foundation invites #MPNpatients to participate in the 2026 Global #MPN Patient Unmet Needs Assessment, open now. https://www.tfaforms.com/5184100 prelim results in Summer 2026
Please share widely with international communities to help identify unmet needs worldwide.
Please share widely with international communities to help identify unmet needs worldwide.
January 7, 2026 at 10:01 PM
MPN Research Foundation invites #MPNpatients to participate in the 2026 Global #MPN Patient Unmet Needs Assessment, open now. https://www.tfaforms.com/5184100 prelim results in Summer 2026
Please share widely with international communities to help identify unmet needs worldwide.
Please share widely with international communities to help identify unmet needs worldwide.
The MPN Challenge™ funding cycle is now open. Find further details on eligibility, proposal guidelines, and deadlines. https://goto.mpnresearchfoundation.org/49ixqCH. Proposals are due by March 23, 2026 at 11:59PM CT. #2026MPNChallenge #MPNChallenge #RFA #MPNFundingOpportunity #MPNRF
January 7, 2026 at 12:04 AM
The MPN Challenge™ funding cycle is now open. Find further details on eligibility, proposal guidelines, and deadlines. https://goto.mpnresearchfoundation.org/49ixqCH. Proposals are due by March 23, 2026 at 11:59PM CT. #2026MPNChallenge #MPNChallenge #RFA #MPNFundingOpportunity #MPNRF
Our newest Good Marrow feature shines a light on their resilience and the support systems that can make the journey a little lighter. Because caregivers deserve care, too. Learn more, feel seen, and find support. https://goto.mpnresearchfoundation.org/4pzuxV1
December 22, 2025 at 5:04 PM
Our newest Good Marrow feature shines a light on their resilience and the support systems that can make the journey a little lighter. Because caregivers deserve care, too. Learn more, feel seen, and find support. https://goto.mpnresearchfoundation.org/4pzuxV1
With your help, we can reach our goal of $2 million.
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
December 19, 2025 at 3:59 PM
With your help, we can reach our goal of $2 million.
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
A bold step toward curative MPN treatments.
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
December 18, 2025 at 4:31 PM
A bold step toward curative MPN treatments.
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
Big news!
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
December 16, 2025 at 9:01 PM
Big news!
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
The countdown is on! The 2026 MPN Challenge™ opens on January 6, 2026. Two special focus areas: AI/ML-driven discovery and MPL-centered research. Early-career investigators are encouraged to apply!
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
December 15, 2025 at 1:06 PM
The countdown is on! The 2026 MPN Challenge™ opens on January 6, 2026. Two special focus areas: AI/ML-driven discovery and MPL-centered research. Early-career investigators are encouraged to apply!
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
Jeremy Smith, a lifelong entrepreneur, approached his #MPN diagnosis as a business challenge. “Failure is not an option.” Your donation helps give patients like Jeremy real options. Donate now: https://goto.mpnresearchfoundation.org/48Xj643
December 9, 2025 at 4:04 PM
Jeremy Smith, a lifelong entrepreneur, approached his #MPN diagnosis as a business challenge. “Failure is not an option.” Your donation helps give patients like Jeremy real options. Donate now: https://goto.mpnresearchfoundation.org/48Xj643
72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25
December 9, 2025 at 12:01 AM
72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25
#MPNResearchFoundation presents abstract:abs25-3936 at #ASH25: Patients & caregivers with MPNs still face significant gaps in communication, symptom monitoring, clinical trial awareness, and individualized care, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment
December 8, 2025 at 6:02 PM
#MPNResearchFoundation presents abstract:abs25-3936 at #ASH25: Patients & caregivers with MPNs still face significant gaps in communication, symptom monitoring, clinical trial awareness, and individualized care, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment
At #ASH25, patients and clinicians called for aligning patient-care goals and improving patient-physician communication for polycythemia vera treatment, according to research results from Haymarket Medical Education & #MPNResearchFoundation. See abs25-11724
December 7, 2025 at 2:01 AM
At #ASH25, patients and clinicians called for aligning patient-care goals and improving patient-physician communication for polycythemia vera treatment, according to research results from Haymarket Medical Education & #MPNResearchFoundation. See abs25-11724
At #ASH25, review results from parallel surveys on gaps in patient-centered care for polycythemia vera from patient and clinician respondents. Learn more about this joint research effort from the #MPNResearchFoundation and Haymarket Medical Education via abs25-11724
December 6, 2025 at 2:01 PM
At #ASH25, review results from parallel surveys on gaps in patient-centered care for polycythemia vera from patient and clinician respondents. Learn more about this joint research effort from the #MPNResearchFoundation and Haymarket Medical Education via abs25-11724
We’re stronger together. Your story and data could help us better understand MPNs and change someone’s future. Join the MPN PROGRESSion Registry™ and give back to the MPN community. Enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
#PatientRegistries #MPNprogression #ClinicalResearch
#PatientRegistries #MPNprogression #ClinicalResearch
December 4, 2025 at 9:01 PM
We’re stronger together. Your story and data could help us better understand MPNs and change someone’s future. Join the MPN PROGRESSion Registry™ and give back to the MPN community. Enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
#PatientRegistries #MPNprogression #ClinicalResearch
#PatientRegistries #MPNprogression #ClinicalResearch
Dr. @BrandiReeves1 #MPNChallenge ™ study is uncovering how MPNs damage the kidneys and if interferon-alpha might protect them. Donate today to help make more research like Dr. Reeves' a reality: https://goto.mpnresearchfoundation.org/48Xj643
#MPNResearch #RareDisease #Interferon
#MPNResearch #RareDisease #Interferon
December 3, 2025 at 8:02 PM
Dr. @BrandiReeves1 #MPNChallenge ™ study is uncovering how MPNs damage the kidneys and if interferon-alpha might protect them. Donate today to help make more research like Dr. Reeves' a reality: https://goto.mpnresearchfoundation.org/48Xj643
#MPNResearch #RareDisease #Interferon
#MPNResearch #RareDisease #Interferon
Maddie’s fight with a rare blood cancer inspired her to study molecular biology and join efforts to improve MPN care. This Giving Tuesday, fund #MPNresearch that turns patient stories into breakthroughs. Every discovery starts with hope.
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
December 3, 2025 at 2:09 AM
Maddie’s fight with a rare blood cancer inspired her to study molecular biology and join efforts to improve MPN care. This Giving Tuesday, fund #MPNresearch that turns patient stories into breakthroughs. Every discovery starts with hope.
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
Save the Date! The 2026 MPN Challenge™ opens January 6, 2026. This year’s RFA highlights:
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
December 1, 2025 at 9:02 PM
Save the Date! The 2026 MPN Challenge™ opens January 6, 2026. This year’s RFA highlights:
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF