@mpnrf.bsky.social
With your help, we can reach our goal of $2 million.
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
December 19, 2025 at 3:59 PM
With your help, we can reach our goal of $2 million.
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/
A bold step toward curative MPN treatments.
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
December 18, 2025 at 4:31 PM
A bold step toward curative MPN treatments.
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.
Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/
Big news!
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
December 16, 2025 at 9:01 PM
Big news!
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.
Read online or enjoy the print edition by subscribing to our mailing list.
Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1
The countdown is on! The 2026 MPN Challenge™ opens on January 6, 2026. Two special focus areas: AI/ML-driven discovery and MPL-centered research. Early-career investigators are encouraged to apply!
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
December 15, 2025 at 1:06 PM
The countdown is on! The 2026 MPN Challenge™ opens on January 6, 2026. Two special focus areas: AI/ML-driven discovery and MPL-centered research. Early-career investigators are encouraged to apply!
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch
Jeremy Smith, a lifelong entrepreneur, approached his #MPN diagnosis as a business challenge. “Failure is not an option.” Your donation helps give patients like Jeremy real options. Donate now: https://goto.mpnresearchfoundation.org/48Xj643
December 9, 2025 at 4:04 PM
Jeremy Smith, a lifelong entrepreneur, approached his #MPN diagnosis as a business challenge. “Failure is not an option.” Your donation helps give patients like Jeremy real options. Donate now: https://goto.mpnresearchfoundation.org/48Xj643
72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25
December 9, 2025 at 12:01 AM
72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25
#MPNResearchFoundation presents abstract:abs25-3936 at #ASH25: Patients & caregivers with MPNs still face significant gaps in communication, symptom monitoring, clinical trial awareness, and individualized care, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment
December 8, 2025 at 6:02 PM
#MPNResearchFoundation presents abstract:abs25-3936 at #ASH25: Patients & caregivers with MPNs still face significant gaps in communication, symptom monitoring, clinical trial awareness, and individualized care, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment
At #ASH25, patients and clinicians called for aligning patient-care goals and improving patient-physician communication for polycythemia vera treatment, according to research results from Haymarket Medical Education & #MPNResearchFoundation. See abs25-11724
December 7, 2025 at 2:01 AM
At #ASH25, patients and clinicians called for aligning patient-care goals and improving patient-physician communication for polycythemia vera treatment, according to research results from Haymarket Medical Education & #MPNResearchFoundation. See abs25-11724
At #ASH25, review results from parallel surveys on gaps in patient-centered care for polycythemia vera from patient and clinician respondents. Learn more about this joint research effort from the #MPNResearchFoundation and Haymarket Medical Education via abs25-11724
December 6, 2025 at 2:01 PM
At #ASH25, review results from parallel surveys on gaps in patient-centered care for polycythemia vera from patient and clinician respondents. Learn more about this joint research effort from the #MPNResearchFoundation and Haymarket Medical Education via abs25-11724
We’re stronger together. Your story and data could help us better understand MPNs and change someone’s future. Join the MPN PROGRESSion Registry™ and give back to the MPN community. Enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
#PatientRegistries #MPNprogression #ClinicalResearch
#PatientRegistries #MPNprogression #ClinicalResearch
December 4, 2025 at 9:01 PM
We’re stronger together. Your story and data could help us better understand MPNs and change someone’s future. Join the MPN PROGRESSion Registry™ and give back to the MPN community. Enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
#PatientRegistries #MPNprogression #ClinicalResearch
#PatientRegistries #MPNprogression #ClinicalResearch
Dr. @BrandiReeves1 #MPNChallenge ™ study is uncovering how MPNs damage the kidneys and if interferon-alpha might protect them. Donate today to help make more research like Dr. Reeves' a reality: https://goto.mpnresearchfoundation.org/48Xj643
#MPNResearch #RareDisease #Interferon
#MPNResearch #RareDisease #Interferon
December 3, 2025 at 8:02 PM
Dr. @BrandiReeves1 #MPNChallenge ™ study is uncovering how MPNs damage the kidneys and if interferon-alpha might protect them. Donate today to help make more research like Dr. Reeves' a reality: https://goto.mpnresearchfoundation.org/48Xj643
#MPNResearch #RareDisease #Interferon
#MPNResearch #RareDisease #Interferon
Maddie’s fight with a rare blood cancer inspired her to study molecular biology and join efforts to improve MPN care. This Giving Tuesday, fund #MPNresearch that turns patient stories into breakthroughs. Every discovery starts with hope.
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
December 3, 2025 at 2:09 AM
Maddie’s fight with a rare blood cancer inspired her to study molecular biology and join efforts to improve MPN care. This Giving Tuesday, fund #MPNresearch that turns patient stories into breakthroughs. Every discovery starts with hope.
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
Donate now: https://goto.mpnresearchfoundation.org/48Xj643
Save the Date! The 2026 MPN Challenge™ opens January 6, 2026. This year’s RFA highlights:
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
December 1, 2025 at 9:02 PM
Save the Date! The 2026 MPN Challenge™ opens January 6, 2026. This year’s RFA highlights:
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
👉AI/ML-driven innovation
👉MPL-focused breakthroughs
Junior investigators encouraged to apply!
Stay tuned for details | #2026MPNChallenge #MPNRF
Wondering where your donation goes? It powers bold ideas — like CRISPR to eliminate MPN cells.
🎥 Join us Dec 2 to hear from @TheElfLab, MPNRF CEO Kapila Viges & MPN patients.
🔗 Register: https://goto.mpnresearchfoundation.org/49ng5u2
#GivingTuesday #CRISPR #MPNResearch
🎥 Join us Dec 2 to hear from @TheElfLab, MPNRF CEO Kapila Viges & MPN patients.
🔗 Register: https://goto.mpnresearchfoundation.org/49ng5u2
#GivingTuesday #CRISPR #MPNResearch
November 29, 2025 at 4:02 PM
Wondering where your donation goes? It powers bold ideas — like CRISPR to eliminate MPN cells.
🎥 Join us Dec 2 to hear from @TheElfLab, MPNRF CEO Kapila Viges & MPN patients.
🔗 Register: https://goto.mpnresearchfoundation.org/49ng5u2
#GivingTuesday #CRISPR #MPNResearch
🎥 Join us Dec 2 to hear from @TheElfLab, MPNRF CEO Kapila Viges & MPN patients.
🔗 Register: https://goto.mpnresearchfoundation.org/49ng5u2
#GivingTuesday #CRISPR #MPNResearch
Kyle became a caregiver at 27.
Ten years later, her family is still celebrating milestones together.
💬 What’s one thing you’ve learned from #caregiving?
Reply below to honor the caregivers who make progress possible.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
Ten years later, her family is still celebrating milestones together.
💬 What’s one thing you’ve learned from #caregiving?
Reply below to honor the caregivers who make progress possible.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
November 26, 2025 at 5:03 PM
Kyle became a caregiver at 27.
Ten years later, her family is still celebrating milestones together.
💬 What’s one thing you’ve learned from #caregiving?
Reply below to honor the caregivers who make progress possible.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
Ten years later, her family is still celebrating milestones together.
💬 What’s one thing you’ve learned from #caregiving?
Reply below to honor the caregivers who make progress possible.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
CRISPR could change the future of #MPNtreatment.
🎥 Join our #GivingTuesday, Dec 2, #webinar to see how your #donation powers real breakthroughs.
Can you help us raise $2M for research by year’s end? Register now: https://goto.mpnresearchfoundation.org/49ng5u2
🎥 Join our #GivingTuesday, Dec 2, #webinar to see how your #donation powers real breakthroughs.
Can you help us raise $2M for research by year’s end? Register now: https://goto.mpnresearchfoundation.org/49ng5u2
November 22, 2025 at 6:02 PM
CRISPR could change the future of #MPNtreatment.
🎥 Join our #GivingTuesday, Dec 2, #webinar to see how your #donation powers real breakthroughs.
Can you help us raise $2M for research by year’s end? Register now: https://goto.mpnresearchfoundation.org/49ng5u2
🎥 Join our #GivingTuesday, Dec 2, #webinar to see how your #donation powers real breakthroughs.
Can you help us raise $2M for research by year’s end? Register now: https://goto.mpnresearchfoundation.org/49ng5u2
Today is the day! Join us at 5 PM CT for Clinical Trial Protocol 101.
Learn how YOU can influence clinical trial design.
🎤 Jane Perlmutter, Ph.D., MBA
📅 TODAY Nov. 20 | 5–6 PM CT
🔗 Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials #PatientAdvocacy
Learn how YOU can influence clinical trial design.
🎤 Jane Perlmutter, Ph.D., MBA
📅 TODAY Nov. 20 | 5–6 PM CT
🔗 Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials #PatientAdvocacy
November 20, 2025 at 2:02 PM
Today is the day! Join us at 5 PM CT for Clinical Trial Protocol 101.
Learn how YOU can influence clinical trial design.
🎤 Jane Perlmutter, Ph.D., MBA
📅 TODAY Nov. 20 | 5–6 PM CT
🔗 Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials #PatientAdvocacy
Learn how YOU can influence clinical trial design.
🎤 Jane Perlmutter, Ph.D., MBA
📅 TODAY Nov. 20 | 5–6 PM CT
🔗 Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials #PatientAdvocacy
“Excitement.” That’s what Dr. Robert Kralovics feels when new data arrives. His team is reporting that anti-mutCALR antibodies don’t slow MPN cell growth as expected, reshaping how we approach immune-based therapies. Each step forward matters. https://goto.mpnresearchfoundation.org/48Xj643
November 19, 2025 at 4:18 PM
“Excitement.” That’s what Dr. Robert Kralovics feels when new data arrives. His team is reporting that anti-mutCALR antibodies don’t slow MPN cell growth as expected, reshaping how we approach immune-based therapies. Each step forward matters. https://goto.mpnresearchfoundation.org/48Xj643
We’re proud to represent ET, PV & MF patients on the global stage — from MPN Congress to #ASH’s Annual Meeting.
We’re on a mission to raise $2 million for MPN research. Help us finish the year strong.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
We’re on a mission to raise $2 million for MPN research. Help us finish the year strong.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
November 17, 2025 at 6:16 PM
We’re proud to represent ET, PV & MF patients on the global stage — from MPN Congress to #ASH’s Annual Meeting.
We’re on a mission to raise $2 million for MPN research. Help us finish the year strong.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
We’re on a mission to raise $2 million for MPN research. Help us finish the year strong.
Donate today: https://goto.mpnresearchfoundation.org/48Xj643
MPN PROGRESSion Registry™ is OPEN for enrollment! Join the patient-focused research initiative and share your health journey over time. We’re stronger together — individual drops of data can make an ocean of change for MPN research. https://goto.mpnresearchfoundation.org/3VSmaqq
November 5, 2025 at 4:51 PM
MPN PROGRESSion Registry™ is OPEN for enrollment! Join the patient-focused research initiative and share your health journey over time. We’re stronger together — individual drops of data can make an ocean of change for MPN research. https://goto.mpnresearchfoundation.org/3VSmaqq
How does informed consent work for the MPN PROGRESSion Registry™? We provide complete, transparent information on the research risks, benefits, and details, so you can decide what's right for you. Watch the video & enroll today! https://goto.mpnresearchfoundation.org/4hA6OAE
October 30, 2025 at 5:31 PM
How does informed consent work for the MPN PROGRESSion Registry™? We provide complete, transparent information on the research risks, benefits, and details, so you can decide what's right for you. Watch the video & enroll today! https://goto.mpnresearchfoundation.org/4hA6OAE
Ever wondered how clinical trials are designed or how YOU can help shape them?
Join our free webinar: Clinical Trial Protocol 101
🗓 Nov 20 | 🕔 5–6pm CT
🎙 Jane Perlmutter, Ph.D., MBA
✅ Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials
Join our free webinar: Clinical Trial Protocol 101
🗓 Nov 20 | 🕔 5–6pm CT
🎙 Jane Perlmutter, Ph.D., MBA
✅ Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials
October 28, 2025 at 3:03 PM
Ever wondered how clinical trials are designed or how YOU can help shape them?
Join our free webinar: Clinical Trial Protocol 101
🗓 Nov 20 | 🕔 5–6pm CT
🎙 Jane Perlmutter, Ph.D., MBA
✅ Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials
Join our free webinar: Clinical Trial Protocol 101
🗓 Nov 20 | 🕔 5–6pm CT
🎙 Jane Perlmutter, Ph.D., MBA
✅ Register now: https://goto.mpnresearchfoundation.org/48KyxMQ
#MPNPathways #ClinicalTrials
MPN PROGRESSion Registry™ is OPEN!
18 or older? Live in the US? Ever been diagnosed with an MPN? Enroll in our new patient-focused study, that collects patient health data over time to expand our understanding of MPNs. Learn more and enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
18 or older? Live in the US? Ever been diagnosed with an MPN? Enroll in our new patient-focused study, that collects patient health data over time to expand our understanding of MPNs. Learn more and enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
October 27, 2025 at 6:06 PM
MPN PROGRESSion Registry™ is OPEN!
18 or older? Live in the US? Ever been diagnosed with an MPN? Enroll in our new patient-focused study, that collects patient health data over time to expand our understanding of MPNs. Learn more and enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
18 or older? Live in the US? Ever been diagnosed with an MPN? Enroll in our new patient-focused study, that collects patient health data over time to expand our understanding of MPNs. Learn more and enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
MPN PROGRESSion Registry™ is almost here! Can it be trusted with your data? YES! The Registry has rigorous oversight. All data is highly secure, HIPAA compliant, meets @NIH standards for privacy & confidentiality, and no identifying information will ever be shared for research.
October 7, 2025 at 10:28 PM
MPN PROGRESSion Registry™ is almost here! Can it be trusted with your data? YES! The Registry has rigorous oversight. All data is highly secure, HIPAA compliant, meets @NIH standards for privacy & confidentiality, and no identifying information will ever be shared for research.