NF Bot
@nfbot.bsky.social
NF Bot looking to publish any news, pubmed articles, NF Events, Reddit posts and Bluesky posts.
Please let me know if something doesn't look right.
Please let me know if something doesn't look right.
Navigating uneven ground with NF2 can be surprisingly demanding, because the condition often affects balance, coordination, muscle strength, and sensation
NF2 requires a level of adaptability most people never have to develop. You’re constantly recalibrating
#
NF2 requires a level of adaptability most people never have to develop. You’re constantly recalibrating
#
Navigating uneven ground with NF2 can be surprisingly demanding, because the condition often affects balance, coordination, muscle strength, and sensation
NF2 requires a level of adaptability most people never have to develop. You’re constantly recalibrating
#
News update via NF Bot
bsky.app
January 20, 2026 at 10:39 AM
Navigating uneven ground with NF2 can be surprisingly demanding, because the condition often affects balance, coordination, muscle strength, and sensation
NF2 requires a level of adaptability most people never have to develop. You’re constantly recalibrating
#
NF2 requires a level of adaptability most people never have to develop. You’re constantly recalibrating
#
It's a hard decision about having kids.
It's a hard decision about having kids.
News update via NF Bot
www.reddit.com
January 20, 2026 at 1:39 AM
It's a hard decision about having kids.
Do you work out even though your nf is in the way?
Do you work out even though your nf is in the way?
News update via NF Bot
www.reddit.com
January 20, 2026 at 12:39 AM
Do you work out even though your nf is in the way?
My life with NF1/ Plexifrom Neurofibroma
My life with NF1/ Plexifrom Neurofibroma
News update via NF Bot
www.reddit.com
January 19, 2026 at 10:39 PM
My life with NF1/ Plexifrom Neurofibroma
meeting s/o’s
meeting s/o’s
News update via NF Bot
www.reddit.com
January 19, 2026 at 2:39 PM
meeting s/o’s
20m nf1 patient lump on testicle
20m nf1 patient lump on testicle
News update via NF Bot
www.reddit.com
January 19, 2026 at 2:39 PM
20m nf1 patient lump on testicle
Original: Gutierrez, [email protected] et al. found that local injection of the small peptide GsMTx-4, a blocker of mechanosensitive ion channels, could be a potential therapy for painful tumors in the context of schwannomatosis
FREE: www.jpain.or
FREE: www.jpain.or
Original: Gutierrez, [email protected] et al. found that local injection of the small peptide GsMTx-4, a blocker of mechanosensitive ion channels, could be a potential therapy for painful tumors in the context of schwannomatosis
FREE: www.jpain.or
News update via NF Bot
bsky.app
January 19, 2026 at 1:39 PM
Original: Gutierrez, [email protected] et al. found that local injection of the small peptide GsMTx-4, a blocker of mechanosensitive ion channels, could be a potential therapy for painful tumors in the context of schwannomatosis
FREE: www.jpain.or
FREE: www.jpain.or
Meet the individuals living with NF2
Raising awareness sharing her story today we meet Claudia. from Italy.
"I inherited NF2 from my father & my 7 year old daughter inherited it from me. I hope with all my heart that the research continues"
#endNF2 #NF2awaren
Raising awareness sharing her story today we meet Claudia. from Italy.
"I inherited NF2 from my father & my 7 year old daughter inherited it from me. I hope with all my heart that the research continues"
#endNF2 #NF2awaren
Meet the individuals living with NF2
Raising awareness sharing her story today we meet Claudia. from Italy.
"I inherited NF2 from my father & my 7 year old daughter inherited it from me. I hope with all my heart that the research continues"
#endNF2 #NF2awaren
News update via NF Bot
bsky.app
January 19, 2026 at 11:39 AM
Meet the individuals living with NF2
Raising awareness sharing her story today we meet Claudia. from Italy.
"I inherited NF2 from my father & my 7 year old daughter inherited it from me. I hope with all my heart that the research continues"
#endNF2 #NF2awaren
Raising awareness sharing her story today we meet Claudia. from Italy.
"I inherited NF2 from my father & my 7 year old daughter inherited it from me. I hope with all my heart that the research continues"
#endNF2 #NF2awaren
I wanna do this ngl.
NF1 is what I was diagnosed with at a young age and I want to contribute to raising money by walking. Since I take Maple for walks now or go to the dog park and do laps in the small dog fenced area and I can choose how many I want to do
NF1 is what I was diagnosed with at a young age and I want to contribute to raising money by walking. Since I take Maple for walks now or go to the dog park and do laps in the small dog fenced area and I can choose how many I want to do
I wanna do this ngl.
NF1 is what I was diagnosed with at a young age and I want to contribute to raising money by walking. Since I take Maple for walks now or go to the dog park and do laps in the small dog fenced area and I can choose how many I want to do
News update via NF Bot
bsky.app
January 19, 2026 at 2:39 AM
I wanna do this ngl.
NF1 is what I was diagnosed with at a young age and I want to contribute to raising money by walking. Since I take Maple for walks now or go to the dog park and do laps in the small dog fenced area and I can choose how many I want to do
NF1 is what I was diagnosed with at a young age and I want to contribute to raising money by walking. Since I take Maple for walks now or go to the dog park and do laps in the small dog fenced area and I can choose how many I want to do
A Clinical Trial to Evaluate the Tolerability and Pharmacokinetics of TQ-B3234 in Patients With Type I Neurofibromatosis - ClinicalTrials.gov
A Clinical Trial to Evaluate the Tolerability and Pharmacokinetics of TQ-B3234 in Patients With Type I Neurofibromatosis - ClinicalTrials.gov
News update via NF Bot
news.google.com
January 19, 2026 at 12:39 AM
A Clinical Trial to Evaluate the Tolerability and Pharmacokinetics of TQ-B3234 in Patients With Type I Neurofibromatosis - ClinicalTrials.gov
Study Details | NCT02728388 | Photodynamic Therapy for Benign Dermal Neurofibromas- Phase II - ClinicalTrials.gov
Study Details | NCT02728388 | Photodynamic Therapy for Benign Dermal Neurofibromas- Phase II - ClinicalTrials.gov
News update via NF Bot
news.google.com
January 19, 2026 at 12:39 AM
Study Details | NCT02728388 | Photodynamic Therapy for Benign Dermal Neurofibromas- Phase II - ClinicalTrials.gov
Study Details | NCT05581511 | Natural History Study of Cutaneous Neurofibromas in People With NF1 - ClinicalTrials.gov
Study Details | NCT05581511 | Natural History Study of Cutaneous Neurofibromas in People With NF1 - ClinicalTrials.gov
News update via NF Bot
news.google.com
January 18, 2026 at 11:39 PM
Study Details | NCT05581511 | Natural History Study of Cutaneous Neurofibromas in People With NF1 - ClinicalTrials.gov
HL-085 in Adults With Neurofibromatosis Type 1 (NF1) and Inoperable Plexiform Neurofibromas - ClinicalTrials.gov
HL-085 in Adults With Neurofibromatosis Type 1 (NF1) and Inoperable Plexiform Neurofibromas - ClinicalTrials.gov
News update via NF Bot
news.google.com
January 18, 2026 at 11:39 PM
HL-085 in Adults With Neurofibromatosis Type 1 (NF1) and Inoperable Plexiform Neurofibromas - ClinicalTrials.gov
Phase I Study Evaluating Combination Therapy With the Receptor Tyrosine Kinase Inhibitor PLX3397 and Sirolimus in Patients With - cdn.clinicaltrials.gov
Phase I Study Evaluating Combination Therapy With the Receptor Tyrosine Kinase Inhibitor PLX3397 and Sirolimus in Patients With - cdn.clinicaltrials.gov
News update via NF Bot
news.google.com
January 18, 2026 at 8:39 PM
Phase I Study Evaluating Combination Therapy With the Receptor Tyrosine Kinase Inhibitor PLX3397 and Sirolimus in Patients With - cdn.clinicaltrials.gov
Film industry needs to stop seeing disability as a risk – A Different Man star - MSN
Film industry needs to stop seeing disability as a risk – A Different Man star - MSN
News update via NF Bot
news.google.com
January 18, 2026 at 7:39 PM
Film industry needs to stop seeing disability as a risk – A Different Man star - MSN
Film industry needs to stop seeing disability as a risk – A Different Man star - MSN
Film industry needs to stop seeing disability as a risk – A Different Man star - MSN
News update via NF Bot
news.google.com
January 18, 2026 at 5:39 PM
Film industry needs to stop seeing disability as a risk – A Different Man star - MSN
Continuing our knowledge today,
All about Hearing loss tumours
photo credit NF2 Information & Services
#endNF2 #NF2awareness #NF2schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis
All about Hearing loss tumours
photo credit NF2 Information & Services
#endNF2 #NF2awareness #NF2schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis
Continuing our knowledge today,
All about Hearing loss tumours
photo credit NF2 Information & Services
#endNF2 #NF2awareness #NF2schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis
News update via NF Bot
bsky.app
January 18, 2026 at 3:39 PM
Continuing our knowledge today,
All about Hearing loss tumours
photo credit NF2 Information & Services
#endNF2 #NF2awareness #NF2schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis
All about Hearing loss tumours
photo credit NF2 Information & Services
#endNF2 #NF2awareness #NF2schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis
NF1, laid off, and loss of interest in life
NF1, laid off, and loss of interest in life
News update via NF Bot
www.reddit.com
January 18, 2026 at 8:39 AM
NF1, laid off, and loss of interest in life
Sugar intake
Sugar intake
News update via NF Bot
www.reddit.com
January 18, 2026 at 8:39 AM
Sugar intake
NF1 and teeth
NF1 and teeth
News update via NF Bot
www.reddit.com
January 18, 2026 at 12:39 AM
NF1 and teeth
NF2-Related Schwannomatosis Clinical Presentation: History, Physical Examination - Medscape eMedicine
NF2-Related Schwannomatosis Clinical Presentation: History, Physical Examination - Medscape eMedicine
News update via NF Bot
news.google.com
January 17, 2026 at 7:39 PM
NF2-Related Schwannomatosis Clinical Presentation: History, Physical Examination - Medscape eMedicine
You guys, I’m scared.
You guys, I’m scared.
News update via NF Bot
www.reddit.com
January 17, 2026 at 6:39 PM
You guys, I’m scared.
Thats NF2, all those tumour types
1. Vestibular Schwannomas
The hallmark tumour of NF2
2. Meningiomas
Tumours of the meninges
3. Schwannomas (Non‑vestibular)
Tumours of Schwann cells
4. Ependymomas
Tumours arising from ependymal cells
#endNF2 #NF2awareness #S
1. Vestibular Schwannomas
The hallmark tumour of NF2
2. Meningiomas
Tumours of the meninges
3. Schwannomas (Non‑vestibular)
Tumours of Schwann cells
4. Ependymomas
Tumours arising from ependymal cells
#endNF2 #NF2awareness #S
Thats NF2, all those tumour types
1. Vestibular Schwannomas
The hallmark tumour of NF2
2. Meningiomas
Tumours of the meninges
3. Schwannomas (Non‑vestibular)
Tumours of Schwann cells
4. Ependymomas
Tumours arising from ependymal cells
#endNF2 #NF2awareness #S
News update via NF Bot
bsky.app
January 17, 2026 at 2:39 PM
Thats NF2, all those tumour types
1. Vestibular Schwannomas
The hallmark tumour of NF2
2. Meningiomas
Tumours of the meninges
3. Schwannomas (Non‑vestibular)
Tumours of Schwann cells
4. Ependymomas
Tumours arising from ependymal cells
#endNF2 #NF2awareness #S
1. Vestibular Schwannomas
The hallmark tumour of NF2
2. Meningiomas
Tumours of the meninges
3. Schwannomas (Non‑vestibular)
Tumours of Schwann cells
4. Ependymomas
Tumours arising from ependymal cells
#endNF2 #NF2awareness #S