Author | Lightnews

Zia Zebra

Zia Zebra

@nmraredisease.bsky.social

19 followers 36 following 78 posts

🦓 Digital source for New Mexico Rare Disease Community. 🌐 www.nmraredisease.org #NMRareDisease #NMRare #Showyourstripes #ziazebras

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Zia Zebra @nmraredisease.bsky.social · 22h

🦓 Many people affected by #raredisease also suffer from #invisibledisabilities in #NewMexico.

This week, it's important not only to #seetheinvisible but also to hear it!

#RDAC #patientadvocacy
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 2d

🦓 #RareDisease sounds scary, but it doesn't have to be!👻

🦓 Join our community and make a difference in #NewMexico today!

📣 New Mexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 4d

🦓Access to specialists in #NewMexico is challenging along with quality care.

#NM has many rural and underserved areas; specialists may be far away with long wait times to be seen.

#NM needs healthcare revolution!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 7d

🦓 Hope everyone enjoyed the #NewMexico #balloonfiesta.

📣 Now that it's over, let’s use this moment to share our voices, connect, and support one another.

💛 We need everyone's help improving healthcare!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 10d

🦓 Together, we can make #raredisease *seen* and *heard* — not just in here, but everywhere!

📄 Help us create a #RDAC by joining us and sharing your voice to improve #healthcare in #NewMexico!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebra

Zia Zebra @nmraredisease.bsky.social · 13d

🦓 Let’s Lift Each Other Up!🎈

Just like every #Balloon in the sky is unique, so is every person impacted by a rare disease.

Join us in #advocating for change in #NewMexico #Healthcare!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 17d

🦓 NMRD is raising awareness in #NewMexico one balloon at a time!🎈

Join us today to continue improving #healthcare for all New Mexicans!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 19d

🦓 Enjoy the cooler temperatures and celebrate #raredisease along with the #NewMexico #balloonfiesta! 🎈

#RDAC #UNM
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 22d

🦓The #NewMexico Balloon Fiesta starts soon drawing nearly a million visitors from around the world, making it another platform to shine a light on #rarediseases and amplify local our voices...
🎈
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 24d

🦓 Today is #rarecancerday!
More than 1 in 4 cancers diagnosed are rare; all childhood cancers are.

Finding treatment in #NewMexico is a challenge for many.

Join us and let's improve healthcare!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · 27d

🦓 #raredisease day 2026 is coming!

🫵We need every #newmexican not only to come celebrate #rarediseaseday with us but also to help advocate for healthcare changes in the state desperately needs!

#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 24

🦓 Having a #raredisease and being involved in social groups may help with getting numerous challenges addressed; it's also good for networking and connecting with others.
#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 20

🦓 To anyone living with a rare condition: it’s okay to move at your own pace.

🍃 Even the leaves don’t all fall at once...
#NewMexico #RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 16

🦓 Living with a rare disease is not easy and it's important to take time to celebrate the small wins every day.
#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 13

🦓 #Raredisease can happen to anyone at any time.
Enjoy the little things in life like the #NewMexico state fair, it only happens once a year for a short time...

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 10

🦓 New Mexico Rare Disease is a community-focused organization that aims to improve awareness and access to healthcare for those affected by #rarediseases.

Let's have a howling good time and improve #NewMexico for all!

#RDAC
#nmleg #nmpol
#nmrare #nmraredisease #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 7

🦓 Living with a rare disease means seasons don’t always follow the calendar — some days are long winters, others are quiet springs.
But autumn in #NewMexico?
A gift to never take for granted!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 4

🦓 Consistently ranking low for access to medical care.
Reports estimate thousands of doctors and nurses are needed.
Many rare disease patients live in rural areas with limited specialist coverage... #RDAC
#NEWMEXICO
#nmleg #nmpol #nmrare #nmraredisease #raredisease #ziazebras

Zia Zebra @nmraredisease.bsky.social · Sep 1

🦓 Happy #LaborDay!

#labordayweekend2025
#RDAC #NEWMEXICO #UNM
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Aug 28

🦓 We had an amazing time together for this year's #RareDiseaseDay!

🎉 Hope to see you for #rarediseaseday 2026 in February!🎊

#RDAC #NEWMEXICO #UNM
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Aug 25

🦓 Rare disease is everywhere despite the name.

1🦓 in 10🐎 people have a rare disease and so many don't have treatment... yet.

🌶 Help us improve #NewMexico's healthcare.

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Aug 22

🦓 Do you #support #RareDisease?
Join us in making a difference!

#NewMexico #RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Aug 18

🦓 #DidYouKnow

1 in 10 Americas are affected by rare diseases, and most don't even have treatment!

#NewMexico needs a #RDAC!

#rarediseasenm #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Aug 13

🦓 Help us make #raredisease easier to diagnose and treat for all #patients, #doctors and #advocates in #NewMexico.

#rarediseasenm #nmpol
#RDAC #nmrare #nmraredisease #showyourstripes #ziazebras

Zia Zebra @nmraredisease.bsky.social · Aug 10

🦓 “When you hear hoof beats, look for horses, not zebras” is a common expression in medical education.

🐎 Attributed to Dr. Theodore Woodward, a professor at the U of MD 1940's.

#NewMexico #RDAC #nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras