OpenNotes
@opennotes.org
490 followers 810 following 100 posts
🚀 Sharing the story of healthcare, one open note at a time. 🌐 Transparency, trust, and teamwork in healthcare. 📖 Advocates for patient access to their medical records. 💡 #OpenNotes | 🩺 #MedSky | 🌟 Join the movement for open healthcare conversations!
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opennotes.org
Are you a clinician who shares your notes? ✔️
A patient who reads notes? ✔️
A researcher who studies transparency in clinical documentation? ✔️
Let us know so we can add you to the #OpenNotes starter pack! 💥

#medsky

#btsm

#cansky

go.bsky.app/FYLhysC
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opennotes.org
Join DiMe, Google, and leading experts for the launch of The Playbook: Implementing AI in Healthcare, a practical guide designed to help health systems adopt AI responsibly and effectively.

🚨 Launch webinar TODAY at 11am ET: zoom.us/webinar/regi...
opennotes.org
We are proud to be a partner on The Playbook: Implementing AI in Healthcare, launching October 8!

📅 Wednesday, October 8 | 11:00 am ET

🔗 Register for the launch webinar with Danton Char, Abhishek Khowala,Jen McKay, MD MS and @gracecordovano.bsky.social: zoom.us/webinar/regi...

#PatientsUseAI
opennotes.org
"The evidence shows that the more a patient gets involved in their own care, the better the outcomes,” Tom Delbanco told @wsj.com.

Read more on DIY health trends such as wearables and AI from experts like @hugooc.bsky.social @annawexler.bsky.social

lnkd.in/e9cSRzvk

#MedSky #PatientsUseAI #MedAI
Patients Are Diagnosing Themselves With Home Tests, Devices and Chatbots
Patients increasingly take on their own healthcare amid long waits for doctors’ appointments and a rise in self-care options
www.wsj.com
opennotes.org
If you've known OpenNotes since the beginning, you know Tom Delbanco, MD.

For 55 years, he has been transforming primary care.

Register for his upcoming Grand Rounds Lecture: bit.ly/46HXlT2

📅 Thursday, October 16th
⏰ 8am to 9am Eastern
📽️ Recording available
🎟️ Free

#MedSky #WhyInformatics
opennotes.org
If you're a chronic patient, you've probably had the experience of updating your medication list again and again.

This #WorldPharmacistDay, read about how open notes help patients manage medications and keep these med lists up to date.

www.acpjournals.org/doi/10.7326/...

#MedSky #WhyInformatics
opennotes.org
This study asks: how do psychiatrists and psychologists adapt their language and documentation practices after implementing open notes?

Some are removing jargon and using open notes as a digital therapeutic tool.

Read what else they're doing: www.jmir.org/2025/1/e72667/

#MedSky #WhyInformatics
opennotes.org
This study asks: how do psychiatrists and psychologists adapt their language and documentation practices after implementing open notes?

Some are removing jargon and using open notes as a digital therapeutic tool.

Read what else they're doing: www.jmir.org/2025/1/e72667/

#MedSky #WhyInformatics
Changes in Documentation After Implementing Open Notes in Mental Health Care: Pre-Post Mixed Methods Study
Background: The practice of providing patients with digital access to clinical narrative documentation by health care professionals (HCPs) is known as open notes. In mental health care, this innovatio...
www.jmir.org
opennotes.org
About how many patients are using AI to receive health information?
1️⃣ Approximately 1 in 7 adults over 50 according to University of Michigan
2️⃣ Around 1 in 4 adults under age 30 according to @kff.org

Read more from @thelizarmy.bsky.social in @npr.org: www.npr.org/sections/sho...

#PatientsUseAI
Running your lab results by ChatGPT? Here's what to keep in mind
While patients wait to hear back from their doctors about test results, many turn to AI assistants for answers. There are issues with privacy and accuracy.
www.npr.org
opennotes.org
Spiritual care is an important part of healthcare.

A chaplain has a unique relationship with an oncology patient.

Read some recommendations in
@springernature.com for chaplains when it comes to recording open notes (paywalled 🔒): link.springer.com/article/10.1...

#MedSky #Cansky #BTSM #Patient
opennotes.org
"Helping people identify as caregivers/care partners needs to be integrated into our health systems."

Geri Baumblatt echoes Coalition for Care Partners' call: care partners should formally enroll in shared access to the patient portal.

Read more: www.healthliteracysolutions.org/blogs/iha-st...
Lost in the Fog of Caregiving
As our population ages, more and more people help a parent, partner, adult sibling or friend with their health and care. Yet, we don’t usually think of ourselves as caregivers. That may not sound seri...
www.healthliteracysolutions.org
opennotes.org
FUNDING ANNOUNCEMENT 📣

NIH's National Library of Medicine has awarded BIDMC $1.5 million.

Sigall Bell, MD and Adam Rodman, MD, MPH, FACP will use the award to study a large language model (LLM)-driven chatbot.

Learn more about HealthCoach: www.opennotes.org/news/opennot...

#MedSky #AI #Health
opennotes.org
How might we help the care partners of pediatric patients during their child's hospitalization?

This intervention has the potential to mitigate safety risks and improve care without increasing care partner anxiety.

Read more: shmpublications.onlinelibrary.wiley.com/doi/10.1002/...

#medsky
opennotes.org
What happens when bad news arrives via a cancer patient's portal at 5pm on a Friday?

This article investigates the concerns of palliative care and oncology clinicians when it comes to open notes. Hint: they differ by specialty.

Read on: www.sciencedirect.com/science/arti...

#MedSky #CanSky #BTSM
Reposted by OpenNotes
opennotes.org
It's @thelizarmy.bsky.social's first day back at school!

Liz Salmi, AS, has first-authored and co-authored 30 peer reviewed articles in prominent journals like @jama.com and @jmirpub.bsky.social

We can't wait to see what Liz does next as a pioneering patient-researcher.

#MedSky #BTSM #CanSky
thelizarmy.bsky.social
After 18 years away (thanks, #braincancer), I'm going back to school! My major has now changed from Communications to Cognitive Science. Wish me luck!

TL;DR: I'll still be working 2 days/week with @opennotes.org, and going to school full time.

Details: www.thelizarmy.com/blog/im-goin...
Reposted by OpenNotes
opennotes.org
Dogs make the best care partners. But they might not be so helpful when given patient portal proxy access. 🐾

Happy #InternationalDogDay! Here's to our team's loyal companions through it all.

Left to right: Brandi and Claudia, Poppy, Jason and Bruno

#MedSky #NationalDogDay #DogDay #Dog #Dogs
opennotes.org
It's @thelizarmy.bsky.social's first day back at school!

Liz Salmi, AS, has first-authored and co-authored 30 peer reviewed articles in prominent journals like @jama.com and @jmirpub.bsky.social

We can't wait to see what Liz does next as a pioneering patient-researcher.

#MedSky #BTSM #CanSky
thelizarmy.bsky.social
After 18 years away (thanks, #braincancer), I'm going back to school! My major has now changed from Communications to Cognitive Science. Wish me luck!

TL;DR: I'll still be working 2 days/week with @opennotes.org, and going to school full time.

Details: www.thelizarmy.com/blog/im-goin...
opennotes.org
Are people looking at their patient portals when hospitalized?

People who were older, Black, male, non‐English speaking, covered by Medicaid, or from out‐of‐state were less likely to have an active patient portal account.

#MedSky #PatientEngagement

Read more: pubmed.ncbi.nlm.nih.gov/40474464/
opennotes.org
🚨 New OpenNotes research from Germany!

#PatientsUseAI to understand their open notes in between appointments.

New research alliances are forming internationally to study patient use of AI and make recommendations.

Read more: www.the-mind.org/the-mind/iss...

#MedSky #Medicine #PatientEngagement
opennotes.org
It's hard to get patients and care partners sharing access to the portal... but there are some new recommendations in the latest research.

Read the Coalition for Care Partners' latest issue brief: publichealth.jhu.edu/sites/defaul...

#CarePartners #MedSky #PatientOutcomes
opennotes.org
In 2020, more than 50 million patients in the U.S. and Canada gained access to their notes.

In 2021, the Cures Act went into effect and the concept of open notes became the “law of the land.”

Read more about our history: www.opennotes.org

#MedSky #CanSky #PatientEngagement #PatientExperience
opennotes.org
In 2016, @cait-desroches.bsky.social joined OpenNotes as our first Executive Director.

That same year, 10 million Americans were able to choose to read their medical notes online.

Read more of our history: www.opennotes.org/history/

#medsky #patientexperience #patientengagement #patients #cansky
opennotes.org
In the first published OpenNotes study, few patients were worried or confused by their notes.

In 2012, health systems made plans to adopt open notes.

In 2013, the VA adopted open notes as well.

Read more of our history: www.opennotes.org/history/

#medsky #patientexperience #patientengagement