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PANS PANDAS UK @panspandasuk.bsky.social · May 29

Join our informative webinar for parents and carers to learn what to expect during the EHC assessment process in the context of PANS or PANDAS

Led by experienced SEN Solicitor Eleanor Wright, in collaboration with SOS!SEN

🔗 Register: panspandasuk.org/wp-content/uploads/2025/05/webinar-guide-1.pdf

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PANS PANDAS UK @panspandasuk.bsky.social · May 22

Current Education reforms could negatively impact children and young people with PANS and PANDAS.

Find out what PANS PANDAS UK are doing to ensure our voices are heard: panspandasuk.org/post/protecting-vulnerable-voices

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PANS PANDAS UK @panspandasuk.bsky.social · May 19

Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education.

PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat

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PANS PANDAS UK @panspandasuk.bsky.social · May 28

Join the @nicecomms.bsky.social Prioritisation board to share your crucial perspective on topics that affect parents, carers and families affected by ill health: www.nice.org.uk/get-involved...

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PANS PANDAS UK @panspandasuk.bsky.social · May 28

PANS, PANDAS and Parliament!

Since 2020, PANS PANDAS UK and our fantastic community have continually driven political awareness about PANS and PANDAS. Learn more about our parliamentary engagement:

panspandasuk.org/post/our-work-in-parliament

Our Work in Parliament - PANS PANDAS UK

Welcome to PANS PANDAS' news blog. This post is titled: Our Work in Parliament

panspandasuk.org

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PANS PANDAS UK @panspandasuk.bsky.social · May 28

Our next teacher training session is on the 11th of June.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation

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PANS PANDAS UK @panspandasuk.bsky.social · May 29

@parentcarerassembly.scot has published a report on "Additional Support for Learning".

You can read the full report here:
www.panspandasuk.org/post/scottish-assembly-report/

Scottish Assembly Report - PANS PANDAS UK

Welcome to PANS PANDAS' news blog. This post is titled: Scottish Assembly Report

www.panspandasuk.org

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PANS PANDAS UK @panspandasuk.bsky.social · Jun 2

Did you know that PANS and PANDAS are medical conditions that affect children or young people in school?

A summary guide for health professionals is available to download: panspandasuk.org/wp-content/uploads/2024/05/A-guide-for-Health-Professionals-Education-and-PANS-PANDAS-DIGITAL-VERSION.pdf

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PANS PANDAS UK @panspandasuk.bsky.social · Jun 3

Calling all paediatric dentistry professionals!

PANS PANDAS UK are speaking at the @bspduk summer event, June 6th.

events.teams.microsoft.com/event/129271...

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PANS PANDAS UK @panspandasuk.bsky.social · Jun 5

Help your family to reconnect following a flare of PANS or PANDAS symptoms.

Vicky Queralt, Clinical Psychologist, suggests a variety of strategies to support everyone affected: panspandasuk.org/wp-content/uploads/2025/05/Reconnecting-2.pdf

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Panda Mama @pandamama2024.bsky.social · May 16

#PANS #PANDAS #ChildHealth #Scotland #CYP @cypcs.bsky.social @epilepsyscotland.bsky.social @snp.org @uofglasgow.bsky.social @heriotwattnews.bsky.social @unistrathclyde.bsky.social @glasgowcaledonian.bsky.social

PANS PANDAS UK @panspandasuk.bsky.social · May 16

PANS PANDAS UK's new webpage for Scotland is now live! Growing our work across the devolved nations is so important for improving the lives of our community across the UK.

Visit panspandasuk.org/post/pans-pandas-uk-launches-scotland-webpage to learn more about our work in Scotland.

PANS PANDAS UK launches Scotland webpage - PANS PANDAS UK

Welcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS UK launches Scotland webpage

panspandasuk.org

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PANS PANDAS UK @panspandasuk.bsky.social · May 5

Two weeks until the next teacher training session on 19th May

See all our upcoming events here: panspandasuk.org/events

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PANS PANDAS UK @panspandasuk.bsky.social · May 6

Did you know that Twinkl offers a wide range of educational resources on PANS and PANDAS?

A big thank you to them for making these valuable materials available.

www.twinkl.co.uk/resource/pans-pandas-information-and-cpd-pack-t-s-1643108429

www.twinkl.co.uk

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PANS PANDAS UK @panspandasuk.bsky.social · May 12

One Week to Go

Our next teacher training session is on 19 May.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation

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PANS PANDAS UK @panspandasuk.bsky.social · May 12

If you've ever felt this way, our Youth Advisory Board is the space for you.

Speak out and be heard today: panspandasuk.org/youth-adviso...

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PANS PANDAS UK @panspandasuk.bsky.social · May 2

The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines

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Danilo Buonsenso @buonsenso.bsky.social · May 1

our center is implementing a translation of our of neuro-immuno-infectious approach for #longcovid and #MECFS to patients with #PANS/PANDAS

patients from all over the world will be accepted, in person and online

for any questions you can freely contact me on my blog
danilobuonsenso.substack.com

Buonsenso&theKids | Danilo Buonsenso, MD, PhD | Substack

Outspoken views on child health, global health and pediatric infectious diseases. Click to read Buonsenso&theKids, by Danilo Buonsenso, MD, PhD, a Substack publication with thousands of subscribers.

danilobuonsenso.substack.com

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Panda Mama @pandamama2024.bsky.social · May 1

Amazing work & huge thanks to medical experts Prof Gupta & Dr Ubhi and @panspandasuk.bsky.social who are leading the way for change for our children. Thank you to MPs attending. If a child in your family has suffered with #Pans #Pandas please contact your MP to ask them to attend future #APPG.

PANS PANDAS UK @panspandasuk.bsky.social · May 1

Our PANS PANDAS APPG met again this year to discuss securing prompt and accurate assessment, diagnosis and treatment on the NHS for everyone affected by PANS and PANDAS.

Find out more, and discover how to get your MP involved: panspandasuk.org/post/pans-pa...

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Becca @beccaw1986.bsky.social · Apr 28

So grateful that my MP @michellescrogham.bsky.social will be at this event. Please consider sharing to ensure these clinicians are heard in parliament on Wednesday @rthonwesstreeting.bsky.social @stephenmorganmp.bsky.social @bphillipsonmp.bsky.social @drrosena.bsky.social @oliviablakemp.bsky.social

PANS PANDAS UK @panspandasuk.bsky.social · Apr 28

Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency.
Find out more: panspandasuk.org/post/pans-pa...

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Panda Mama @pandamama2024.bsky.social · Apr 28

#MentalHealth symptoms can be triggered by physical health, like infections or viruses. Children are our world of course but also our future generation. Let's do all we can to help them. #MPs please attend #appg 30th April. #ChildHealth

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Becca @beccaw1986.bsky.social · Apr 28

@dannychambers.bsky.social @drlukeevans.org.uk @drrosena.bsky.social @stephenmorganmp.bsky.social @annadixonmp.bsky.social @sharonhodgsonmp.bsky.social @chriswebbmp.bsky.social @laylamoran.bsky.social @laurakyrkesmith.bsky.social @sojanjosephmp.bsky.social @libdemdaisy.bsky.social

PANS PANDAS UK @panspandasuk.bsky.social · Apr 28

Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency.
Find out more: panspandasuk.org/post/pans-pa...

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Panda Mama @pandamama2024.bsky.social · Apr 28

#APPG #Westminster 🗓️ 30th April #MPs please consider attending, guidelines are imminent and
children in your constituency need representation.
#NoMoreLostChildren #Pans #Pandas @teamlabouruk.bsky.social @conservatives.bsky.social @sdlp.bsky.social @sdlpwomen.bsky.social @uuponline.bsky.social

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PANS PANDAS UK @panspandasuk.bsky.social · Apr 28

Our next teacher training session is tomorrow.

Date: 29/04
Register now: panspandasuk.org/events/

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education.

#TeacherTraining #PANS #PANDAS #Education #SEN

Training, Events and Support Groups - PANS PANDAS UK

Welcome to PANS PANDAS UK. This is our Training, Events and Support Groups page.

panspandasuk.org

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Panda Mama @pandamama2024.bsky.social · Apr 28

@jostevenslabour.bsky.social @lewisatkinson.bsky.social @jeremycorbyn.bsky.social @allymcgovern.bsky.social @zubirahmed.bsky.social @emmahardymp.bsky.social @sarahhall-labour.bsky.social @labourlewis.bsky.social 🗓️ 30th April APPG please support our children.

PANS PANDAS UK @panspandasuk.bsky.social · Apr 28

Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency.
Find out more: panspandasuk.org/post/pans-pa...

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Panda Mama @pandamama2024.bsky.social · Apr 28

As parents of children who developed #Pans #Pandas which can mimic mental health, as well as OCD, tics etc. we would love for more MPs to know about @panspandasuk.bsky.social please consider attending 30th April APPG panspandasuk.org/post/pans-pa...

PANS PANDAS experts invited to speak at APPG meeting - PANS PANDAS UK

Welcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS experts invited to speak at APPG meeting

panspandasuk.org