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Parkinson's Europe @parkinsonseurope.bsky.social · 17h

🚨 Last chance to have your say in our survey!

We would love to hear from people with Parkinson's (or caregivers on their behalf) about working with Parkinson's.

🇬🇧 buff.ly/y1NvOzk
🇫🇷 buff.ly/xgLmXiT
🇩🇪 buff.ly/XQDGzZW
🇮🇹 buff.ly/ZTv7YFQ

The survey closes at midnight on 12th October.

LAST CHANCE: have your say in our work & Parkinson's survey

Parkinson's Europe @parkinsonseurope.bsky.social · 1d

Finding a job after a Parkinson's diagnosis can be a struggle.

We're so grateful to Toussaint for sharing his story – along with several other PwP – as part of our Welcome in the Workplace campaign. We'd love to hear your experiences as well.

buff.ly/q2svGJR #parkinsons

"Looking for work and finding meaningful employment after diagnosis is very hard, especially as the condition progresses"

"Since April 2024 I have not worked but I feel if matched with the right role and working conditions, I could still work part time two or three days a week... I can say that looking for work and finding meaningful employment after diagnosis is very hard, especially as the condition progresses and more symptoms like dyskinesia are visible. In the past year since being made redundant, I have had five interviews, and have not been successful in any of them." Toussaint Smith, 39, England

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Parkinson's Europe @parkinsonseurope.bsky.social · 2d

🗓️ Join our next webinar on 23 October to find out more about Parkinson's and the workplace.

We'll be hearing from experts about your legal rights, the barriers PwP face in the workplace and ways your employer can help.

👉 Register for the webinar by clicking here buff.ly/MUj0UBq

Webinar: how to thrive at work with Parkinson's

Parkinson's Europe @parkinsonseurope.bsky.social · 3d

We spoke to Richelle Flanagan, a registered dietician with young-onset Parkinson's, about Nutrition PD.

This online programme is packed with meal plans and recipes, videos and downloadable resources to help PwP make positive changes to their diet. @richelleflanagan.bsky.social

🔗 buff.ly/ImhTQQq

Dietitian-approved Nutrition Parkinson's programme could be 'missing piece in Parkinson's care'

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Parkinson's Europe @parkinsonseurope.bsky.social · 4d

We're so proud of our Vice President Gary Boyle for this interview on RTÉ Radio about people in public making assumptions about him due to his #Parkinsons. Have you ever been mistaken for being under the influence of alcohol while out and about? How did you deal with it?
www.rte.ie/radio/radio1...

Disabilities

Callers described how people can make assumptions about disabilities and how it affects their daily lives.

www.rte.ie

Parkinson's Europe @parkinsonseurope.bsky.social · 4d

Today is European Carers Day ❤️

If you care for someone with Parkinson's, it's so important to look after yourself as well. It can be a physical job, so protecting your back health is crucial.

Read our physiotherapist-approved tips on how to keep your back in good shape. buff.ly/pDT53iv

Tips for carers: Looking after your back

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Parkinson's Europe @parkinsonseurope.bsky.social · 7d

Great news! ❤️ Back in June we wrote about @cureparkinsons.org.uk's walking challenge to fundraise & celebrate their 20th anniversary. We've just heard these walking challenges have now raised over £39,500 for #Parkinsons research! 🙌 Find out more about this brilliant campaign: buff.ly/mA4WUpX

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Reposted by Parkinson's Europe

Parkinson's Europe @parkinsonseurope.bsky.social · 8d

How long from your diagnosis did you wait to tell your employer?

Laura is one of several PwP who have shared their experiences of working with Parkinson's for our Welcome in the Workplace campaign.

👉 Click here to read her story: buff.ly/q2svGJR

"I decided to be open about my diagnosis in order to create a more inclusive workplace"

"I decided to be open about my diagnosis around a year after receiving it. I felt I could even bring value and encourage others with any kind of disability to also be open about their condition and how it impacts their life. In order to create a more inclusive workplace environment and even improve working conditions if necessary." Laura Nimante, 33, Riga, Latvia

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Reposted by Parkinson's Europe

World Parkinson Congress @worldpdcongress.bsky.social · 15d

Submissions are open for the WPC International Song Competition. 🎶

The winning song of the WPC Song Competition will be performed by the WPC Choir at the 7th World Parkinson Congress Opening Ceremony.

--> wpc2026.org/songcompetit...

#phoenix #wpc2026 #Parkinsons

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Parkinson's Europe @parkinsonseurope.bsky.social · 8d

How long from your diagnosis did you wait to tell your employer?

Laura is one of several PwP who have shared their experiences of working with Parkinson's for our Welcome in the Workplace campaign.

👉 Click here to read her story: buff.ly/q2svGJR

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Parkinson's Europe @parkinsonseurope.bsky.social · 9d

Know your rights 💪

As part of our Welcome in the Workplace campaign, we spoke to the European Disability Forum's Haydn Hammersley to find out what your rights at work are if you have Parkinson's and other disabilities.

🔗 Click the link to have a read of the full interview: buff.ly/R9WtFKS

What are your rights at work when you have Parkinson's?

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Parkinson's Europe @parkinsonseurope.bsky.social · 10d

Today is International Podcast Day 📻

To celebrate, we've rounded up some of our favourite episodes from our Parkinson's Life podcast, where we chat honestly about the topics that impact people with Parkinson's.

👉 Click here to have a read: buff.ly/cE0A3nP
#InternationalPodcastDay

10 of the best Parkinson's Life Podcast episodes for International Podcast Day

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Parkinson's Europe @parkinsonseurope.bsky.social · 11d

📣 Your opinion counts.

There's just under 2 weeks left to have your say in our survey about working with Parkinson's. We'd love to hear about your experiences.

🇬🇧 English - buff.ly/MVCarR1
🇫🇷 Français - buff.ly/2zqlW7L
🇩🇪 Deutsch - buff.ly/yUTTlRS
🇮🇹 Italiano - buff.ly/8TCtVo0

Two weeks left: have your say in our work & Parkinson's survey

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Parkinson's Europe @parkinsonseurope.bsky.social · 14d

🏓 With this year’s tournament now just weeks away, we caught up with Steve Ries to chat about his experience at the World Parkinson’s Table Tennis Championships 2024.

👉 You can read the full interview here in English, French and German: buff.ly/wS3Jhqb

World Table Tennis "We were all winners!"

Parkinson's Europe @parkinsonseurope.bsky.social · 15d

Calling all music lovers 🎶

Gerald Ganglbauer from the Parkinsongs website is hosting the Parkinson's Song Contest 2026 – and wants to hear from you.

Click the link to nominate your favourite song about Parkinson's, as well as have a look at the shortlist so far 🎤 buff.ly/ZRJ0qUa

Parkinsong.org Nominate your favourite Parkinson's song

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Reposted by Parkinson's Europe

Parkinson's Europe @parkinsonseurope.bsky.social · 16d

“We are in a brain health crisis.” 🧠

Neurologists Michael Okun and Ray Dorsey spoke to us about their new book, ‘The Parkinson’s Plan: A New Path to Prevention and Treatment’ and their bold new blueprint for battling the condition.

Find out more here 👉 buff.ly/q8pxD3Q

Image credit: @raydorseymd

Ray Dorsey, Michael Okun and Dr Mark Hyman

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Reposted by Parkinson's Europe

Parkinson's Europe @parkinsonseurope.bsky.social · 17d

Work can feel like a tricky path to navigate when you have Parkinson's, but a diagnosis shouldn't mean having to say goodbye to the career you love.

Being prepared is key, so here are some lesser-known symptoms that might affect your ability to work 👇

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Parkinson's Europe @parkinsonseurope.bsky.social · 16d

“We are in a brain health crisis.” 🧠

Neurologists Michael Okun and Ray Dorsey spoke to us about their new book, ‘The Parkinson’s Plan: A New Path to Prevention and Treatment’ and their bold new blueprint for battling the condition.

Find out more here 👉 buff.ly/q8pxD3Q

Image credit: @raydorseymd

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Parkinson's Europe @parkinsonseurope.bsky.social · 17d

If you want to find out more about what support is available in the workplace and what your workplace rights are, click the link. 🔗 parkinsonseurope.org/welcome-in-t...

Welcome in the Workplace: Parkinson's and your rights at work - Parkinson's Europe

Find out about people with Parkinson's rights at work in Europe, and advice on how to talk to your employer and colleagues about your health.

parkinsonseurope.org

Parkinson's Europe @parkinsonseurope.bsky.social · 17d

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Parkinson's Europe @parkinsonseurope.bsky.social · 17d

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Parkinson's Europe @parkinsonseurope.bsky.social · 17d

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Parkinson's Europe @parkinsonseurope.bsky.social · 17d

Work can feel like a tricky path to navigate when you have Parkinson's, but a diagnosis shouldn't mean having to say goodbye to the career you love.

Being prepared is key, so here are some lesser-known symptoms that might affect your ability to work 👇

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Parkinson's Europe @parkinsonseurope.bsky.social · 18d

🚨 BIG NEWS: today we launch our brand-new campaign, Welcome in the Workplace.

We’re passionate that every person with Parkinson’s has the right to feel welcome and comfortable in their workplace.

Click through to find out more and have your say 🔗 buff.ly/c0Nzgz1

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Reposted by Parkinson's Europe

Parkinson's Europe @parkinsonseurope.bsky.social · 22d

📣 As part of our Welcome in the Workplace campaign, we need to hear from people with Parkinson's (or caregivers talking on their behalf) about their experiences :

🇬🇧 English - buff.ly/MVCarR1
🇫🇷 Français - buff.ly/2zqlW7L
🇩🇪 Deutsch - buff.ly/yUTTlRS
🇮🇹 Italiano - buff.ly/8TCtVo0

Take our new survey about work and Parkinson's

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