The PSP Association
@pspassociation.bsky.social
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA🧠
Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
Did you miss our Falls and Mobility Management masterclass for patients living with PSP & CBD? Well don’t worry because you can watch the full session back on our YouTube channel. Watch the session in full anytime and share with your colleagues here: ow.ly/VSs250XtntZ #webinars #masterclass
November 27, 2025 at 10:22 AM
Did you miss our Falls and Mobility Management masterclass for patients living with PSP & CBD? Well don’t worry because you can watch the full session back on our YouTube channel. Watch the session in full anytime and share with your colleagues here: ow.ly/VSs250XtntZ #webinars #masterclass
Have you checked out our redesigned, dedicated page for health and social care professionals? We redesigned the page to make it easier for you to access our downloadable guides, previous masterclasses and information. Check out and share our webpage here: ow.ly/7HT650XtmwX #healthcareprofessionals
November 26, 2025 at 10:54 AM
Have you checked out our redesigned, dedicated page for health and social care professionals? We redesigned the page to make it easier for you to access our downloadable guides, previous masterclasses and information. Check out and share our webpage here: ow.ly/7HT650XtmwX #healthcareprofessionals
🎄To help keep PSPA groups providing vital support and connection to people living with PSP & CBD, please dedicate a Christmas bauble and donate to PSPA. Find out more here: ow.ly/eJtc50XtkAg #ChristmasAppeal #BaubleAppeal #Fundraising #ChristmasGiving 🎄
November 25, 2025 at 12:10 PM
🎄To help keep PSPA groups providing vital support and connection to people living with PSP & CBD, please dedicate a Christmas bauble and donate to PSPA. Find out more here: ow.ly/eJtc50XtkAg #ChristmasAppeal #BaubleAppeal #Fundraising #ChristmasGiving 🎄
For this #InternationalMensDay, sign-up to the next meeting of our Men’s Carers Support Group. This monthly online group allows men to connect with other men who are caring for a loved one living with PSP or CBD. Learn more about the next meeting here: ow.ly/vzij50XpQXt #MensMentalHealth
November 19, 2025 at 11:33 AM
For this #InternationalMensDay, sign-up to the next meeting of our Men’s Carers Support Group. This monthly online group allows men to connect with other men who are caring for a loved one living with PSP or CBD. Learn more about the next meeting here: ow.ly/vzij50XpQXt #MensMentalHealth
🎄There’s just over a month to go until Christmas! We have four new festive card designs and some beautiful hummingbird ornament gifts. Purchasing from our shop helps to keep providing vital support to people living with PSP & CBD: ow.ly/q1yk50XpSq6 #ChristmasShop #CharityShop #ChristmasGiving 🎄
November 18, 2025 at 12:35 PM
🎄There’s just over a month to go until Christmas! We have four new festive card designs and some beautiful hummingbird ornament gifts. Purchasing from our shop helps to keep providing vital support to people living with PSP & CBD: ow.ly/q1yk50XpSq6 #ChristmasShop #CharityShop #ChristmasGiving 🎄
This week's #MondayMotivation is our very own Rugby Support Group, led by Group Coordinator Jenny Knight. The group came together for their annual Bake Sale Fundraiser at Wren Hall. With so many delicious treats on offer, the group raised a fantastic £960. Thank you team! #Fundraising
November 17, 2025 at 11:35 AM
This week's #MondayMotivation is our very own Rugby Support Group, led by Group Coordinator Jenny Knight. The group came together for their annual Bake Sale Fundraiser at Wren Hall. With so many delicious treats on offer, the group raised a fantastic £960. Thank you team! #Fundraising
Our Introduction to PSP & CBD guide is now available to download in multiple languages to give you a better understanding of the conditions. Visit our publications page and download our guide in your preferred language - ow.ly/RRbS50Xoj0z
#PSP #CBD #MultilingualSupport #CommunitySupport
#PSP #CBD #MultilingualSupport #CommunitySupport
November 14, 2025 at 1:29 PM
Our Introduction to PSP & CBD guide is now available to download in multiple languages to give you a better understanding of the conditions. Visit our publications page and download our guide in your preferred language - ow.ly/RRbS50Xoj0z
#PSP #CBD #MultilingualSupport #CommunitySupport
#PSP #CBD #MultilingualSupport #CommunitySupport
Support people living with PSP & CBD, by dedicating a bauble to a loved one and donating to PSPA. Your donation will help ensure that nobody living with PSP or CBD, or their families feel alone, especially during the festive season. Read more here ow.ly/3W2750XohQu #ChristmasAppeal #CharityAppeal
November 12, 2025 at 12:13 PM
Support people living with PSP & CBD, by dedicating a bauble to a loved one and donating to PSPA. Your donation will help ensure that nobody living with PSP or CBD, or their families feel alone, especially during the festive season. Read more here ow.ly/3W2750XohQu #ChristmasAppeal #CharityAppeal
Today, we pause to remember.
We honour the courage, sacrifice, and selflessness of those who served — and those who still serve — in the pursuit of peace and freedom. May we never forget their legacy.
#RemembranceDay #LestWeForget #WeRemember
We honour the courage, sacrifice, and selflessness of those who served — and those who still serve — in the pursuit of peace and freedom. May we never forget their legacy.
#RemembranceDay #LestWeForget #WeRemember
November 11, 2025 at 11:53 AM
Today, we pause to remember.
We honour the courage, sacrifice, and selflessness of those who served — and those who still serve — in the pursuit of peace and freedom. May we never forget their legacy.
#RemembranceDay #LestWeForget #WeRemember
We honour the courage, sacrifice, and selflessness of those who served — and those who still serve — in the pursuit of peace and freedom. May we never forget their legacy.
#RemembranceDay #LestWeForget #WeRemember
This Carers Rights Day we want all unpaid carers to know and use their rights
These can help you:
▪️ Access support
▪️ Juggle care and work
▪️ Look after your health and wellbeing
▪️ When the person you care for is coming out of hospital
https://go.carersuk.org/CRD
These can help you:
▪️ Access support
▪️ Juggle care and work
▪️ Look after your health and wellbeing
▪️ When the person you care for is coming out of hospital
https://go.carersuk.org/CRD
October 29, 2025 at 8:46 AM
Laura from Neuro Heroes, spoke to us about the benefits of movements for people living with PSP & CBD, and what to expect from the online exercise classes that Laura and her team run. You can listen to this episode and more: ow.ly/Q0j850XeYmg #Podcast #ListenNow #Spotify #Movement #Support
October 28, 2025 at 10:59 AM
Laura from Neuro Heroes, spoke to us about the benefits of movements for people living with PSP & CBD, and what to expect from the online exercise classes that Laura and her team run. You can listen to this episode and more: ow.ly/Q0j850XeYmg #Podcast #ListenNow #Spotify #Movement #Support
Ferrer have announced they have completed recruitment of 220 patients for the PROSPER Study – a Phase 2 clinical trial in Progressive Supranuclear Palsy (PSP) – ahead of schedule. Read more about it here: ow.ly/yvKB50XgcMG #ProgressiveSupranuclearPalsy #ClinicalTrials #MedicalTrials #Research
October 24, 2025 at 11:52 AM
Ferrer have announced they have completed recruitment of 220 patients for the PROSPER Study – a Phase 2 clinical trial in Progressive Supranuclear Palsy (PSP) – ahead of schedule. Read more about it here: ow.ly/yvKB50XgcMG #ProgressiveSupranuclearPalsy #ClinicalTrials #MedicalTrials #Research
We’re delighted to share our recently launched Introduction to PSP & CBD Guide in multiple languages. The guide is now available in Welsh, Urdu, Spanish and Bengali, making it more accessible. You can learn more and download the guides from our website: ow.ly/hp0t50XbA1m #guides #accessible
October 22, 2025 at 3:18 PM
We’re delighted to share our recently launched Introduction to PSP & CBD Guide in multiple languages. The guide is now available in Welsh, Urdu, Spanish and Bengali, making it more accessible. You can learn more and download the guides from our website: ow.ly/hp0t50XbA1m #guides #accessible
When caring for someone it's as important to take of yourself. One of the best ways to do this is to make sure you’re properly fuelled. Take a look at our handy worksheet that provides helpful tips for cooking whilst caring for a loved one. View and download it from our webpage: ow.ly/QMt750X8w7x
October 21, 2025 at 2:52 PM
When caring for someone it's as important to take of yourself. One of the best ways to do this is to make sure you’re properly fuelled. Take a look at our handy worksheet that provides helpful tips for cooking whilst caring for a loved one. View and download it from our webpage: ow.ly/QMt750X8w7x
A big thank you to #TeamPSPA who recently ran the Royal Parks Half. Our incredible runners have raised over £2,500 with Gift Aid! To take part next year, sign up for the ballot reminder here www.royalparkshalf.com. A limited number of charity places will also be available #RoyalParksHalf
October 17, 2025 at 3:43 PM
A big thank you to #TeamPSPA who recently ran the Royal Parks Half. Our incredible runners have raised over £2,500 with Gift Aid! To take part next year, sign up for the ballot reminder here www.royalparkshalf.com. A limited number of charity places will also be available #RoyalParksHalf
We are extremely grateful to The Medicash Foundation who have awarded £2,000 towards our Helpline - helping people living with PSP and CBD to live their best lives possible with emotional support, helpful information and more! #Donation #Corporate #Helpline #Support
October 16, 2025 at 2:18 PM
We are extremely grateful to The Medicash Foundation who have awarded £2,000 towards our Helpline - helping people living with PSP and CBD to live their best lives possible with emotional support, helpful information and more! #Donation #Corporate #Helpline #Support
PSPA Trustee Jon Garrard will be making a call for life-changing research by sharing his personal story of his dad, Chris, who was diagnosed with PSP and took part in research himself. Find out how to support the appeal on Sunday 19 October at 7.54am and 9.25pm. #Radio4Appeal #RadioAppeal
October 15, 2025 at 10:52 AM
PSPA Trustee Jon Garrard will be making a call for life-changing research by sharing his personal story of his dad, Chris, who was diagnosed with PSP and took part in research himself. Find out how to support the appeal on Sunday 19 October at 7.54am and 9.25pm. #Radio4Appeal #RadioAppeal
Last year we encouraged people living with PSP & CBD to take part in the Neuro Alliance My Neuro Survey and we have now shared the results in our latest edition of PSPA Matters. You can read the full article on pages 30-31 here issuu.com/pspacharity/... #research #results #survey
October 14, 2025 at 10:34 AM
Last year we encouraged people living with PSP & CBD to take part in the Neuro Alliance My Neuro Survey and we have now shared the results in our latest edition of PSPA Matters. You can read the full article on pages 30-31 here issuu.com/pspacharity/... #research #results #survey
On #GiftAidAwarenessDay, we want to say a BIG THANK YOU to all our donors and fundraisers who #TickTheBox. You help us to help so many more! Every year, charities miss out on £560m in unclaimed Gift Aid tax relief. Help us claim more and do more. #GiftAid
October 9, 2025 at 10:09 AM
On #GiftAidAwarenessDay, we want to say a BIG THANK YOU to all our donors and fundraisers who #TickTheBox. You help us to help so many more! Every year, charities miss out on £560m in unclaimed Gift Aid tax relief. Help us claim more and do more. #GiftAid
We have so many helpful and enlightening articles in our latest edition of PSPA Matters. From a sneak peek at our BBC Radio 4 Appeal, to supporting the new generation of research, to personal experiences. There’s so much to read, so grab a cuppa, take a break and check it out: ow.ly/MZIt50X3Ikv
October 8, 2025 at 3:41 PM
We have so many helpful and enlightening articles in our latest edition of PSPA Matters. From a sneak peek at our BBC Radio 4 Appeal, to supporting the new generation of research, to personal experiences. There’s so much to read, so grab a cuppa, take a break and check it out: ow.ly/MZIt50X3Ikv
Listen to the @moversand6 podcast about Parkinsonism, that features our CEO Rebecca Packwood, and supporter Lisa Rodrigues who has CBD. The pair discussed the rare, neurological conditions PSP & CBD with the team and how PSPA can support. Listen here ow.ly/uCZl50X3uM5 #podcasts #listennow #spotify
October 7, 2025 at 8:48 AM
Listen to the @moversand6 podcast about Parkinsonism, that features our CEO Rebecca Packwood, and supporter Lisa Rodrigues who has CBD. The pair discussed the rare, neurological conditions PSP & CBD with the team and how PSPA can support. Listen here ow.ly/uCZl50X3uM5 #podcasts #listennow #spotify
Our Helpline Care Navigators, Cathy and Kaysha, are excited to be at the PDNSA (Parkinson’s Disease Nurse Specialist Association) Annual Conference at the @uni-of-warwick.bsky.social to connect with more healthcare professionals and share more about what PSPA does. Stop by and say hi 👋 #conference
October 2, 2025 at 8:45 AM
Our Helpline Care Navigators, Cathy and Kaysha, are excited to be at the PDNSA (Parkinson’s Disease Nurse Specialist Association) Annual Conference at the @uni-of-warwick.bsky.social to connect with more healthcare professionals and share more about what PSPA does. Stop by and say hi 👋 #conference
Watch our 'It Could Be CBD' animation which is voiced by Professor Huw Morris and include the most common symptoms of Corticobasal Degeneration (CBD) and how to support patients who are diagnosed with it. Watch the full video on our website or YouTube: ow.ly/nN2N50X0h7h
#corticobasaldegeneration
#corticobasaldegeneration
October 1, 2025 at 3:29 PM
Watch our 'It Could Be CBD' animation which is voiced by Professor Huw Morris and include the most common symptoms of Corticobasal Degeneration (CBD) and how to support patients who are diagnosed with it. Watch the full video on our website or YouTube: ow.ly/nN2N50X0h7h
#corticobasaldegeneration
#corticobasaldegeneration
Reposted by The PSP Association
Who’s Moving: @solacewomensaid.bsky.social, @pspassociation.bsky.social, @ciofundraising.bsky.social, @charitydebra.bsky.social and more
Who’s Moving: Mermaids, Solace, Arts Emergency and more
In this fortnightly column, Civil Society looks at people moving roles in the UK charity sector…
www.civilsociety.co.uk
September 29, 2025 at 9:47 AM
Who’s Moving: @solacewomensaid.bsky.social, @pspassociation.bsky.social, @ciofundraising.bsky.social, @charitydebra.bsky.social and more
New Frontier Economics report, commissioned by @amrc-uk.bsky.social & @wellcometrust.bsky.social, showcases the many benefits of non-commercial clinical research. It reveals the ‘triple dividend’ this research brings to the UK: unlocking growth, supporting the NHS and improving lives bit.ly/3KrW7nf
September 26, 2025 at 12:01 PM
New Frontier Economics report, commissioned by @amrc-uk.bsky.social & @wellcometrust.bsky.social, showcases the many benefits of non-commercial clinical research. It reveals the ‘triple dividend’ this research brings to the UK: unlocking growth, supporting the NHS and improving lives bit.ly/3KrW7nf