Simon Etkind
@simonnoahetkind.bsky.social
230 followers 260 following 14 posts
Palliative care clinical-academic. Uncertain about uncertainty
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simonnoahetkind.bsky.social
I'm honoured to be speaking at the @stclarehospice.bsky.social Hospice Palliative Care Conference on Friday 10th October.

This year's theme is 'The future of end of life care' & I'll be talking about how we can deliver more equitable #EndOfLifeCare by changing our approach to future uncertainties
Reposted by Simon Etkind
pcucambridge.bsky.social
Bella Madden, our public research partner, shares a heartfelt poem on anticipatory injectable medications in end-of-life care. The poem accompanies a new research paper exploring family carers experiences with these practices.

youtu.be/fHoAaiPG6C8

Read more:

doi.org/10.1177/1744...
Bella Madden's poem on anticipatory injectable medications in end-of-life care
YouTube video by Primary Care Unit, University of Cambridge
youtu.be
Reposted by Simon Etkind
annaalexandrova.bsky.social
This personal piece by Robbie puts his writings on attachment theory in context of his life n parenting. It is heartbreakingly matter of fact about what he's been through. But the analytic upshot is that attachment theory has clear implications in this more extreme situation too. A pleasure to read.
Reposted by Simon Etkind
eapcvzw.bsky.social
‘This presents a difficult dilemma for clinicians: should they always provide explicit information, even when it may go against patients’ or families’ wishes?’ This week’s #EAPCblog explores this complex topic eapcnet.wordpress.com/2025/07/15/p...
Page not found | EAPC Blog
The blog of the European Association for Palliative Care
eapcnet.wordpress.com
simonnoahetkind.bsky.social
Our prognostic uncertainty communication study is out, see here for details! Please share with colleagues who may find this useful @rcphysicians.bsky.social apmposts.bsky.social @acutemedicine.bsky.social @gerisoc.bsky.social
pcucambridge.bsky.social
New guidance helps clinicians talk about uncertain prognoses with older adults facing complex health needs.

Co-designed by researchers & patients, the recommendations aim to improve care of people in uncertain health circumstances.

Read more below:

www.phpc.cam.ac.uk/news/cambrid...
Dr Simon Noah Etkind said, "By using these strategies in practice, healthcare providers can better support patients and their families in making informed decisions amidst the unpredictability of complex health trajectories".
Reposted by Simon Etkind
goodgrieffest.bsky.social
Stephanie Meddick-Dyson (@drstephmeddickd.bsky.social) is inviting people to share their experiences of care in the Intensive Care Unit through focus groups or interviews. Please see the flyer or get in touch with Stephanie for more details
A flyer for Stephanie's study. For more information, visit: https://brave-icu.my.canva.site/#patient-and-family-focus-groups
simonnoahetkind.bsky.social
What does good look like in situations of uncertainty from serious illness? Rachel Chen presenting her framework of desired outcomes #EAPC2025

Finding security in uncertainty together is the key
Reposted by Simon Etkind
donnawakefield.bsky.social
Sharing the results of this important study at #EAPC2025:
Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts?

Led by @annefinucane.bsky.social
-with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social

Funded by @mariecurieeolc.bsky.social
simonnoahetkind.bsky.social
Multimorbidity drives outpatient service use and is every specialties' business. We need more realistic conversations and better communication. Great presentation
@spbowers.bsky.social #EAPC2025. Any data on acute care use?
simonnoahetkind.bsky.social
New and extended roles in end of life care: @drbenbowers.bsky.social presenting his study of UK community nurses post-pandemic experiences @arceastofengland.bsky.social @pcucambridge.bsky.social #EAPC2025
Reposted by Simon Etkind
catrionamayland.bsky.social
#EAPC2025 kicks off with a plenary on #ILD. #Opioids good for #cough, potentially for exertional dyspnoea and use at the very end-of-life - but not for chronic breathlessness. @eapcvzw.bsky.social
simonnoahetkind.bsky.social
Really pleased to see this work from my clinical lectureship published
@nihr.bsky.social @cam.ac.uk @cuh.nhs.uk
simonnoahetkind.bsky.social
Parallel planning for multiple future possibilities can help to map out the bounds of uncertainty.

People with multiple serious illnesses often face an uncertain future, and most people want to have open conversations about it, so its important to have a guide to support these conversations
simonnoahetkind.bsky.social
We've co-designed practice recommendations for communicating prognostic uncertainties in advanced multimorbidity.

See here for the paper: rdcu.be/enwFr

@pcucambridge.bsky.social
@rcphysicians.bsky.social @gerisoc.bsky.social
@apmposts.bsky.social @arceastofengland.bsky.social
a description of recommendations for communicating about uncertainty
Reposted by Simon Etkind
jonathankoffman.bsky.social
Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...
Reposted by Simon Etkind
jonathankoffman.bsky.social
Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.
Reposted by Simon Etkind
drbenbowers.bsky.social
Community nurses based in the UK? Please help us evidence how much of your work involves end of life care.

Take part in our 10-min max survey study here:
cambridge.eu.qualtrics.com/jfe/form/SV_...

@theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social
NOTICE Survey
NOTICE Survey
cambridge.eu.qualtrics.com
Reposted by Simon Etkind
drkathrynmannix.bsky.social
It's #DyingMattersWeek

We're all going to do it. Shouldn't we get our minds around what to expect?

Here's a 3 min guide. If you like it, please share it.

bit.ly/TheosDFB
Dying for Beginners | Dr Kathryn Mannix
In modern British society, death is out of sight and behind closed doors. Many of us lack direct exposure to the dying process - with all sorts of potential emotional and spiritual consequences for how we grieve our loved ones, as well as how we prepare for our own deaths. What does the dying process actually look like? A short animation by Emily Downe, and voiced by Dr Kathryn Mannix which guides you gently on a step by step journey through the process of dying. Acclaimed author, speaker and former palliative care physician Dr Kathryn Mannix has spent her medical career working with people who have incurable, advanced illnesses. The author of two Sunday Times Bestsellers – With The End in Mind and Listen, Dr Mannix is on a mission to reclaim the public’s understanding of dying. CREDITS Written and voiced by Dr Kathryn Mannix Directed and designed by Emily Downe Animated by Martha Halliday Music and sound by Jan Willem de With Produced by Theos with thanks to The Fetzer institute Find out more about Theos' work in the area of death, dying and the afterlife here: https://www.theosthinktank.co.uk/dying-for-beginners-theos-work-on-death-dying-and-the-afterlife ***** Like what you see? Be sure to sign up to the Theos monthly newsletter to stay up-to-date with all our content, research and events: https://confirmsubscription.com/h/d/E9E17CAB71AC7464 CONNECT WITH THEOS Twitter: https://twitter.com/Theosthinktank Facebook: https://www.facebook.com/theosthinktank LinkedIn: https://www.linkedin.com/company/theos---the-think-tank/ Website: https://www.theosthinktank.co.uk/ CHECK OUT OUR PODCASTS The Sacred: https://podcasts.apple.com/gb/podcast/the-sacred/id1326888108 Reading Our Times: https://podcasts.apple.com/gb/podcast/reading-our-times/id1530952185
bit.ly
Reposted by Simon Etkind
drbenbowers.bsky.social
Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred?

Please help with our short anonymous survey
& share widely with colleagues 🙂

Take part here:
cambridge.eu.qualtrics.com/jfe/form/SV_...

@crystaloldman.bsky.social @theqicn.bsky.social
Reposted by Simon Etkind
katherinesleeman.bsky.social
Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social

www.sciencedirect.com/science/arti...
Reposted by Simon Etkind
jkdhesi.bsky.social
Yup, this is why we need to respond to Sir Chris Whittys survey request about medical training for the future. We must plan for a workforce who can deliver healthcare aligned to needs of patients, the majority of which have MLTC. Similar, of course, for nursing/AHP @gerisoc.bsky.social
Reposted by Simon Etkind
drbenbowers.bsky.social
🚨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social

Pls Share. Our paper: bjgp.org/content/earl...

@theqicn.bsky.social @crystaloldman.bsky.social
Reposted by Simon Etkind
pcucambridge.bsky.social
Researchers from the University of Cambridge have found that community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue and workforce diversification.

Read more:

www.phpc.cam.ac.uk/news/how-do-...
Reposted by Simon Etkind
mariecurieeolc.bsky.social
Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help?

The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇