The MND Register is the first comprehensive source of information about people with #MND/#ALS.
We hope that by counting every person with MND, we can learn more about the disease.
Learn more below🔗
mndregister.ac.uk
Thank you to everyone who has signed up; together, we’re building a more inclusive #MND/#ALS research community.
🔗If you haven't joined, sign up below!
ukmndri.org/research/und...
Thank you to everyone who has signed up; together, we’re building a more inclusive #MND/#ALS research community.
🔗If you haven't joined, sign up below!
ukmndri.org/research/und...
By using medicines approved for other conditions, we can overcome barriers in drug development.
Read our blog explaining why we believe repurposed drugs could help us find new treatments for #MND/#ALS.
ukmndri.org/2025/11/13/r...
By using medicines approved for other conditions, we can overcome barriers in drug development.
Read our blog explaining why we believe repurposed drugs could help us find new treatments for #MND/#ALS.
ukmndri.org/2025/11/13/r...
Researchers, clinicians, industry partners, and people affected by #MND/#ALS discussed how the network can drive forward progress in better understanding MND and the development of new treatments.
Researchers, clinicians, industry partners, and people affected by #MND/#ALS discussed how the network can drive forward progress in better understanding MND and the development of new treatments.
Thank you to everyone who joined in person & online!
#MNDresearch #genetics
Thank you to everyone who joined in person & online!
#MNDresearch #genetics
These early changes could hold clues to how the disease starts and how to treat it.
ukmndri.org/2025/10/24/e...
These early changes could hold clues to how the disease starts and how to treat it.
ukmndri.org/2025/10/24/e...
This risk appears temporary, suggesting injury may sometimes be an early consequence of undiagnosed disease.
Read more👇
ukmndri.org/2025/10/21/t...
This risk appears temporary, suggesting injury may sometimes be an early consequence of undiagnosed disease.
Read more👇
ukmndri.org/2025/10/21/t...
His courage in sharing his diagnosis will raise vital awareness.
Our thoughts are with Lewis and his family.
We must find an effective treatment for #ALS/#MND.
www.bbc.co.uk/sport/rugby-...
His courage in sharing his diagnosis will raise vital awareness.
Our thoughts are with Lewis and his family.
We must find an effective treatment for #ALS/#MND.
www.bbc.co.uk/sport/rugby-...
We are committed to doing the same for #MND/#ALS and finding new ways to successfully treat the disease.
www.bbc.co.uk/news/article...
We are committed to doing the same for #MND/#ALS and finding new ways to successfully treat the disease.
www.bbc.co.uk/news/article...
📍 Edinburgh
📅 8–9 October
🔬 Cutting-edge MND/ALS research
🌍 Public sessions on SpeakUnique & Euan’s Guide
euanmacdonaldcentre.org/euan-macdonald-tribute-symposium-2025
📍 Edinburgh
📅 8–9 October
🔬 Cutting-edge MND/ALS research
🌍 Public sessions on SpeakUnique & Euan’s Guide
euanmacdonaldcentre.org/euan-macdonald-tribute-symposium-2025
🔗Read more👇
ukmndri.org/2025/09/04/f...
🔗Read more👇
ukmndri.org/2025/09/04/f...
Read more about the story and why it is so significant below👇
ukmndri.org/2025/09/03/r...
Read more about the story and why it is so significant below👇
ukmndri.org/2025/09/03/r...
Read their article about how the #LongitudePrizeOnALS could be a game-changer for drug discovery in neurodegenerative diseases.
🔗 bit.ly/40Tmmsh
@ammaralchalabi.bsky.social
Read their article about how the #LongitudePrizeOnALS could be a game-changer for drug discovery in neurodegenerative diseases.
🔗 bit.ly/40Tmmsh
@ammaralchalabi.bsky.social
Using machine learning and protein profiling, researchers found 33 proteins that distinguish ALS from other conditions.
ukmndri.org/2025/08/28/2...
Using machine learning and protein profiling, researchers found 33 proteins that distinguish ALS from other conditions.
ukmndri.org/2025/08/28/2...
New research from @ucl.ac.uk shows that NfL levels from capillary samples match those from traditional blood draws, suggesting a more convenient and less invasive way to sample blood.
ukmndri.org/2025/08/20/f...
New research from @ucl.ac.uk shows that NfL levels from capillary samples match those from traditional blood draws, suggesting a more convenient and less invasive way to sample blood.
ukmndri.org/2025/08/20/f...
#Tofersen is authorised for SOD1 MND, demonstrating the potential of gene-targeted therapies.
UKMNDRI RI partners @sheffielduni.bsky.social & @kingsioppn.bsky.social contributed to the trials.
ukmndri.org/2025/07/31/f...
#Tofersen is authorised for SOD1 MND, demonstrating the potential of gene-targeted therapies.
UKMNDRI RI partners @sheffielduni.bsky.social & @kingsioppn.bsky.social contributed to the trials.
ukmndri.org/2025/07/31/f...
The network will be essential in providing the support and expertise needed to create equitable access to trials for all🔎
Read more 🔗 www.mndassociation.org/media/latest...
The network will be essential in providing the support and expertise needed to create equitable access to trials for all🔎
Read more 🔗 www.mndassociation.org/media/latest...
Read more ⬇️
🔗 ukmndri.org/2025/07/16/r...
This post is part of our Research Snapshot series, powered by Readable Research at @sheffielduni.bsky.social
Read more ⬇️
🔗 ukmndri.org/2025/07/16/r...
This post is part of our Research Snapshot series, powered by Readable Research at @sheffielduni.bsky.social
Our translational research projects aim to find treatments for MND through a national, coordinated approach.
👉 Discover more: ukmndri.org/2025/06/20/f...
Our translational research projects aim to find treatments for MND through a national, coordinated approach.
👉 Discover more: ukmndri.org/2025/06/20/f...
Findings ranged from a new #MND/#ALS incidence and prevalence analysis to clinical characteristics and outcomes.
Read more here⬇️
ukmndri.org/2025/06/04/m...
Findings ranged from a new #MND/#ALS incidence and prevalence analysis to clinical characteristics and outcomes.
Read more here⬇️
ukmndri.org/2025/06/04/m...
The theme is Translating Targets to Therapies.
To register, click below⬇️
www.eventbrite.co.uk/e/ucl-queen-...
The theme is Translating Targets to Therapies.
To register, click below⬇️
www.eventbrite.co.uk/e/ucl-queen-...
But why is it so important?
Find out how this vital resource is helping researchers understand who is affected by #MND/#ALS and why.
📖Read more below. ukmndri.org/2025/05/28/m...
But why is it so important?
Find out how this vital resource is helping researchers understand who is affected by #MND/#ALS and why.
📖Read more below. ukmndri.org/2025/05/28/m...
The MND Register is the first comprehensive source of information about people with #MND/#ALS.
We hope that by counting every person with MND, we can learn more about the disease.
Learn more below🔗
mndregister.ac.uk
The MND Register is the first comprehensive source of information about people with #MND/#ALS.
We hope that by counting every person with MND, we can learn more about the disease.
Learn more below🔗
mndregister.ac.uk
A recent study has uncovered that a breakdown in communication between structures in nerve cells can disrupt their ability to produce energy.
This could potentially lead to new treatment targets for #MND/#ALS
🔎Read more👇
ukmndri.org/2025/05/20/r...
A recent study has uncovered that a breakdown in communication between structures in nerve cells can disrupt their ability to produce energy.
This could potentially lead to new treatment targets for #MND/#ALS
🔎Read more👇
ukmndri.org/2025/05/20/r...
Find out what it means for future research into #MND / #ALS
🔗 ukmndri.org/2025/05/15/uk-mnd-clinical-studies-group-issues-statement-on-mirocals-trial-findings/
Find out what it means for future research into #MND / #ALS
🔗 ukmndri.org/2025/05/15/uk-mnd-clinical-studies-group-issues-statement-on-mirocals-trial-findings/
Our goals:
✅ Accelerate drug discovery
✅ Better understand MND
✅ Support research participation
✅ Coordinate a national strategy
Learn more 👉 ukmndri.org/ourstory
Our goals:
✅ Accelerate drug discovery
✅ Better understand MND
✅ Support research participation
✅ Coordinate a national strategy
Learn more 👉 ukmndri.org/ourstory