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Vaso Totsika @vasototsika.bsky.social · 20d

Harry Roche making a keynote speech at EAMHID 2025 in Ghent. First keynote speaker with an intellectual disability.
Harry says below what needs to happen for people with intellectual disabilities to be fully included. Unfair exclusion from basic rights, opportunities & research.

@mencap.org.uk

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Vaso Totsika @vasototsika.bsky.social · Jul 21

Shocking. Not entirely surprising though. I wonder how many people would continue writing papers if the system stopped counting them as academic ouputs

For Better Science @forbetterscience.bsky.social · Jul 21

"Oviedo-García has documented many more examples, nearly all from MDPI journals"
That's because MDPI publishes peer review reports.
forbetterscience.com/2025/02/12/t...

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Vaso Totsika @vasototsika.bsky.social · May 22

Thanks for your interest. Resources from the project are on @learningdiseng.bsky.social website -link below. Next week or so LDE will also update the page with webinar material
www.learningdisabilityengland.org.uk/no-research-...

‘No research about us without us’ – Learning Disability England

www.learningdisabilityengland.org.uk

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Vaso Totsika @vasototsika.bsky.social · May 20

This is how we moved from academic papers to easy read versions of research evidence. No Research about Us without Us seminar now on how we co-produce health research in intellectual disability
@learningdiseng.bsky.social @amymrussell.bsky.social @debcairns.bsky.social

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Vaso Totsika @vasototsika.bsky.social · May 8

Men's mental health is an increasingly important area - please do consider taking part if you are a man 40-65 years old

Prof Alexandra Pitman @alexandrapitman.bsky.social · May 2

We are recruiting UK-based men aged 40 to 65 years for our @ucl.ac.uk #suicide research study: Men Talking About Suicide. Closes 30/06/25. Funded by a UCL Grand Challenges award. Do please pass on to this invitation &/or click on this link to read more:
redcap.idhs.ucl.ac.uk/surveys/?s=7...

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Vaso Totsika @vasototsika.bsky.social · May 6

We just published a new paper looking at the experiences of mothers when health professionals told them their baby has Down Syndrome.
Mothers were told before, during and after the birth of their baby, sometimes in odd places.
bmcpregnancychildbirth.biomedcentral.com/articles/10....

Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents - BMC Pregnancy and Childbirth

The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal e...

bmcpregnancychildbirth.biomedcentral.com

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Reposted by Vaso Totsika

Journal of Intellectual Disability Research @jidr-wiley.bsky.social · Apr 23

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation

Background Adults with intellectual and/or developmental disabilities are disproportionately excluded from participation in research, consequently increasing disparities experienced by this group. G...

onlinelibrary.wiley.com

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Reposted by Vaso Totsika

Linda Veerman @lindaveerman.bsky.social · Mar 26

🎉Happy to announce that our #RCT paper about the effectiveness of the #sibling serious game 'Broodles' has been published open access! With this game we offer an accessible, early intervention for siblings (6-9 years) of children with disabilities.

See: www.sciencedirect.com/science/arti...

Supporting young siblings of children with intellectual disabilities and/or visual impairments with the serious game ‘Broodles’: A mixed methods randomized controlled trial

Siblings of children with neurodevelopmental conditions experience conflicting emotions and have an increased risk of mental health problems. Several …

www.sciencedirect.com

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Reposted by Vaso Totsika

Journal of Intellectual Disability Research @jidr-wiley.bsky.social · Mar 21

Contraceptive and Pregnancy Decision-Making Autonomy and Health Care Experiences Among Women With Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...

onlinelibrary.wiley.com

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Vaso Totsika @vasototsika.bsky.social · Mar 13

The figures haven't changed in the past few years

Mencap @handle.invalid · Mar 12

1/3 🚨 The latest NHS data shows there are 2,065 people with a learning disability and/or autism in mental health hospitals.

👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA

#HomesNotHospitals #MentalHealthActReform

A purple graphic with a cream icon of a padlock. The white text reads "The latest NHS data shows there are at least 2,065 people with a learning disability and/or autism locked away mental health hospitals."

A purple graphic with a cream icon of a padlock. The white text reads "Within December 2024 8,040 reported uses of restraint in one month e.g. physical, chemical, mechanical restraint and being kept in isolation. Of these, 2,455 were against children (under 18s)."

A purple graphic with a cream icon of a padlock. The white and purple text reads "Children in units. The number of children with a learning disability and/or autism in inpatient units is 200."

A purple graphic with a cream icon of a padlock. The white and purple text reads "Shut away for too long. The average length of stay for people with a learning disability and/or autism who are currently in impatient units is 4.6 years"

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Reposted by Vaso Totsika

Journal of Intellectual Disability Research @jidr-wiley.bsky.social · Mar 6

Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...

onlinelibrary.wiley.com

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Reposted by Vaso Totsika

tricianicoll.bsky.social @tricianicoll.bsky.social · Mar 6

I Open My Own Front Door, Do You? Week has been fantastic! 💫

Send us stories of people opening their own front door, why they don’t get to and what you’re doing about it.

Take a look ⬇️
www.gloriouslyordinarylives.co.uk/i-open-my-ow...

@learningdiseng.bsky.social #IOpenMyOwnFrontDoor

Collage of submissions for the I Open My Own Front Door, Do You Week campaign. Collage is a mixture of the photos, videos and quotes received for the campaign.

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Vaso Totsika @vasototsika.bsky.social · Feb 26

Thank you for having us Michael @academichv.bsky.social. I really enjoyed the conversation and meeting the early minds network members

Mental Health in Development @mhid.org.uk · Feb 20

Watch Me Play! @academichv.bsky.social met with Dr Jenifer Wakelyn and @vasototsika.bsky.social to discuss their research around the Watch Me Play! approach mhid.org.uk/watch-me-pla...

Watch Me Play!: Webinar highlights - Mental Health in Development

Overview of a webinar held by the Supporting Early Minds Network in February 2025 and a link to catch up.

mhid.org.uk

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Reposted by Vaso Totsika

NIHR School for Primary Care Research (SPCR) @nihrspcr.bsky.social · Feb 17

As of 📅Monday 3 March 2025, we will only be engaging via LinkedIn, Bluesky and YouTube.

Join Us:
🦋Bluesky: bit.ly/3CzVk0j
🤝Linked In: bit.ly/439xQdl
🎥YouTube: bit.ly/3WWTihs
📰Subscribe to our newsletter: bit.ly/3WRt68c

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Reposted by Vaso Totsika

Yona Lunsky @yonalunsky.bsky.social · Feb 12

Really enjoyed discussing our research on healthcare and autism with @mengchuanlai.bsky.social as part of the new #ICESOntario podcast #Disability #AutRes

ICES Ontario @icesontario.bsky.social · Feb 12

Autism research is evolving—and so is the conversation. In this episode of In Our VoICES, #ICESOntario scientist Yona Lunsky & CAMH scientist Meng-Chuan Lai explore how the focus has shifted to improving the lives of autistic individuals, especially in health care!
🎧 www.ices.on.ca/podcast/

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Reposted by Vaso Totsika

Learning Disabilities & Autism at Manchester Met @learningmet.bsky.social · Jan 28

Please share: new funded PhD opportunity!

Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities

To find out more please follow the link below:

#AcademicSky #FindAPhD #PhD #LearningDisabilitiesResearch

Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University on FindAPhD.com

PhD Project - Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University, listed on FindAPhD.com

www.findaphd.com

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Vaso Totsika @vasototsika.bsky.social · Jan 28

Nice to see you here @jidr-wiley.bsky.social

Journal of Intellectual Disability Research @jidr-wiley.bsky.social · Jan 28

Hi!

We will be starting to post content about the Journal of Intellectual Disability Research (JIDR) over the coming weeks.

Please follow us for updates about the latest research published in JIDR, calls for Special Issues, and other journal-related news.

a picture of a penguin with the word hello on it

Alt: A picture of a waving cartoon penguin with the word hello on it

media.tenor.com

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