Vaso Totsika
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vasototsika.bsky.social
Vaso Totsika
@vasototsika.bsky.social
140 followers 86 following 10 posts
Professor of Neurodevelopmental Research, UCL, UK
Editor in Chief Journal of Intellectual Disability Research
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Reposted by Vaso Totsika
jidr-wiley.bsky.social
A reminder that Wiley is recruiting an Editor-in-Chief for the Journal of Intellectual Disability Research. The deadline for applications is 31st October 2025.

onlinelibrary.wiley.com/page/journal...
Journal of Intellectual Disability Research is inviting applications for the role of Editor-in-Chief
onlinelibrary.wiley.com
October 15, 2025 at 8:55 AM
vasototsika.bsky.social
Harry Roche making a keynote speech at EAMHID 2025 in Ghent. First keynote speaker with an intellectual disability.
Harry says below what needs to happen for people with intellectual disabilities to be fully included. Unfair exclusion from basic rights, opportunities & research.

@mencap.org.uk
September 19, 2025 at 7:34 AM
vasototsika.bsky.social
Shocking. Not entirely surprising though. I wonder how many people would continue writing papers if the system stopped counting them as academic ouputs
forbetterscience.bsky.social For Better Science @forbetterscience.bsky.social · Jul 21
"Oviedo-García has documented many more examples, nearly all from MDPI journals"
That's because MDPI publishes peer review reports.
forbetterscience.com/2025/02/12/t...
July 21, 2025 at 2:20 PM
vasototsika.bsky.social
This is how we moved from academic papers to easy read versions of research evidence. No Research about Us without Us seminar now on how we co-produce health research in intellectual disability
@learningdiseng.bsky.social @amymrussell.bsky.social @debcairns.bsky.social
May 20, 2025 at 12:47 PM
vasototsika.bsky.social
Men's mental health is an increasingly important area - please do consider taking part if you are a man 40-65 years old
alexandrapitman.bsky.social Prof Alexandra Pitman @alexandrapitman.bsky.social · May 2
We are recruiting UK-based men aged 40 to 65 years for our @ucl.ac.uk #suicide research study: Men Talking About Suicide. Closes 30/06/25. Funded by a UCL Grand Challenges award. Do please pass on to this invitation &/or click on this link to read more:
redcap.idhs.ucl.ac.uk/surveys/?s=7...
May 8, 2025 at 7:50 AM
vasototsika.bsky.social
We just published a new paper looking at the experiences of mothers when health professionals told them their baby has Down Syndrome.
Mothers were told before, during and after the birth of their baby, sometimes in odd places.
bmcpregnancychildbirth.biomedcentral.com/articles/10....
Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents - BMC Pregnancy and Childbirth
The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal e...
bmcpregnancychildbirth.biomedcentral.com
May 6, 2025 at 11:00 AM
Reposted by Vaso Totsika
jidr-wiley.bsky.social
A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...
A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation
Background Adults with intellectual and/or developmental disabilities are disproportionately excluded from participation in research, consequently increasing disparities experienced by this group. G...
onlinelibrary.wiley.com
April 23, 2025 at 12:16 PM
Reposted by Vaso Totsika
lindaveerman.bsky.social
🎉Happy to announce that our #RCT paper about the effectiveness of the #sibling serious game 'Broodles' has been published open access! With this game we offer an accessible, early intervention for siblings (6-9 years) of children with disabilities.

See: www.sciencedirect.com/science/arti...
Supporting young siblings of children with intellectual disabilities and/or visual impairments with the serious game ‘Broodles’: A mixed methods randomized controlled trial
Siblings of children with neurodevelopmental conditions experience conflicting emotions and have an increased risk of mental health problems. Several …
www.sciencedirect.com
March 26, 2025 at 7:45 PM
Reposted by Vaso Totsika
jidr-wiley.bsky.social
Contraceptive and Pregnancy Decision-Making Autonomy and Health Care Experiences Among Women With Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...
onlinelibrary.wiley.com
March 21, 2025 at 9:51 AM
vasototsika.bsky.social
The figures haven't changed in the past few years
mencap.org.uk Mencap @mencap.org.uk · Mar 12
1/3 🚨 The latest NHS data shows there are 2,065 people with a learning disability and/or autism in mental health hospitals. 
 
👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA
 
#HomesNotHospitals #MentalHealthActReform
A purple graphic with a cream icon of a padlock. The white text reads "The latest NHS data shows there are at least 2,065 people with a learning disability and/or autism locked away mental health hospitals." A purple graphic with a cream icon of a padlock. The white text reads "Within December 2024 8,040 reported uses of restraint in one month e.g. physical, chemical, mechanical restraint and being kept in isolation. Of these, 2,455 were against children (under 18s)." A purple graphic with a cream icon of a padlock. The white and purple text reads "Children in units. The number of children with a learning disability and/or autism in inpatient units is 200." A purple graphic with a cream icon of a padlock. The white and purple text reads "Shut away for too long. The average length of stay for people with a learning disability and/or autism who are currently in impatient units is 4.6 years"
March 13, 2025 at 12:41 PM
Reposted by Vaso Totsika
jidr-wiley.bsky.social
Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...
onlinelibrary.wiley.com
March 6, 2025 at 4:40 PM
Reposted by Vaso Totsika
tricianicoll.bsky.social
I Open My Own Front Door, Do You? Week has been fantastic! 💫

Send us stories of people opening their own front door, why they don’t get to and what you’re doing about it.

Take a look ⬇️
www.gloriouslyordinarylives.co.uk/i-open-my-ow...

@learningdiseng.bsky.social #IOpenMyOwnFrontDoor
Collage of submissions for the I Open My Own Front Door, Do You Week campaign. Collage is a mixture of the photos, videos and quotes received for the campaign.
March 6, 2025 at 12:20 PM
vasototsika.bsky.social
Thank you for having us Michael @academichv.bsky.social. I really enjoyed the conversation and meeting the early minds network members
February 26, 2025 at 8:22 AM
Reposted by Vaso Totsika
nihrspcr.bsky.social
As of 📅Monday 3 March 2025, we will only be engaging via LinkedIn, Bluesky and YouTube.

Join Us:
🦋Bluesky: bit.ly/3CzVk0j
🤝Linked In: bit.ly/439xQdl
🎥YouTube: bit.ly/3WWTihs
📰Subscribe to our newsletter: bit.ly/3WRt68c
As of 📅Monday 3 March 2025, we will only be engaging via LinkedIn, Bluesky and YouTube. Join Us: 🦋Bluesky: https://bit.ly/3CzVk0j 🤝Linked In: https://bit.ly/439xQdl 🎥YouTube: https://bit.ly/3WWTihs 📰Subscribe to our newsletter: bit.ly/3WRt68c
February 17, 2025 at 10:33 AM
Reposted by Vaso Totsika
yonalunsky.bsky.social
Really enjoyed discussing our research on healthcare and autism with @mengchuanlai.bsky.social as part of the new #ICESOntario podcast #Disability #AutRes
icesontario.bsky.social ICES Ontario @icesontario.bsky.social · Feb 12
Autism research is evolving—and so is the conversation. In this episode of In Our VoICES, #ICESOntario scientist Yona Lunsky & CAMH scientist Meng-Chuan Lai explore how the focus has shifted to improving the lives of autistic individuals, especially in health care!
🎧 www.ices.on.ca/podcast/
February 12, 2025 at 5:49 PM
Reposted by Vaso Totsika
learningmet.bsky.social
Please share: new funded PhD opportunity!

Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities

To find out more please follow the link below:

#AcademicSky #FindAPhD #PhD #LearningDisabilitiesResearch
Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University on FindAPhD.com
PhD Project - Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University, listed on FindAPhD.com
www.findaphd.com
January 28, 2025 at 1:35 PM
vasototsika.bsky.social
Nice to see you here @jidr-wiley.bsky.social
jidr-wiley.bsky.social Journal of Intellectual Disability Research @jidr-wiley.bsky.social · Jan 28
Hi!

We will be starting to post content about the Journal of Intellectual Disability Research (JIDR) over the coming weeks.

Please follow us for updates about the latest research published in JIDR, calls for Special Issues, and other journal-related news.
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media.tenor.com
January 28, 2025 at 4:52 PM