@wamesmecfs.bsky.social
December activities for Me Time which is a series of online activities for carers in Wales. See image for details.
tinyurl.com/73aayhwa
tinyurl.com/73aayhwa
November 27, 2025 at 12:54 PM
December activities for Me Time which is a series of online activities for carers in Wales. See image for details.
tinyurl.com/73aayhwa
tinyurl.com/73aayhwa
DRUK asks: How will Chancellor's 3rd benefits crackdown... make a difference? If no. of Disabled ppl is rising, it's as result of recklessly handled pandemic, rising energy & food costs, underfunded HC & drop in living conditions that’s making ppl sicker
tinyurl.com/4der7w44
tinyurl.com/4der7w44
DR UK's Statement on Autumn Budget
tinyurl.com
November 27, 2025 at 12:51 PM
DRUK asks: How will Chancellor's 3rd benefits crackdown... make a difference? If no. of Disabled ppl is rising, it's as result of recklessly handled pandemic, rising energy & food costs, underfunded HC & drop in living conditions that’s making ppl sicker
tinyurl.com/4der7w44
tinyurl.com/4der7w44
B&W lists the range of benefits related measures in the Budget, including VAT on Motability top-ups, an additional 122,000 Work Capability Assessments for existing claimants, benefits uprating at 3.8% and the ending of the two child limit.
tinyurl.com/5dfnafru
tinyurl.com/5dfnafru
Budget benefit highlights
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
tinyurl.com
November 27, 2025 at 12:48 PM
B&W lists the range of benefits related measures in the Budget, including VAT on Motability top-ups, an additional 122,000 Work Capability Assessments for existing claimants, benefits uprating at 3.8% and the ending of the two child limit.
tinyurl.com/5dfnafru
tinyurl.com/5dfnafru
Cort Johnson explores Iwasaki & de Sa’s recent preprint, “A causal link between autoantibodies and neurological symptoms in long COVID,” which emphasized the role that neuroimmune interactions may play in long COVID-19. Iwasaki is also studying autoantibodies in ME/CFS.
tinyurl.com/34xyfrf5
tinyurl.com/34xyfrf5
November 27, 2025 at 12:45 PM
Cort Johnson explores Iwasaki & de Sa’s recent preprint, “A causal link between autoantibodies and neurological symptoms in long COVID,” which emphasized the role that neuroimmune interactions may play in long COVID-19. Iwasaki is also studying autoantibodies in ME/CFS.
tinyurl.com/34xyfrf5
tinyurl.com/34xyfrf5
Hunanreolaeth ME/CFS – Ymunwch â'r Sgwrs!
📷 Dydd Gwener 28 Tach 📷 11:00 YB – 12:30 YH 📷 Zoom
Mae Lleisiau ME Cymru yn eich gwahodd i'n helpu i archwilio:
- Strategaethau ymarferol etc
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
📷 Dydd Gwener 28 Tach 📷 11:00 YB – 12:30 YH 📷 Zoom
Mae Lleisiau ME Cymru yn eich gwahodd i'n helpu i archwilio:
- Strategaethau ymarferol etc
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
ME Voices Wales: ME/CFS Self-management event
Event Timing: Friday 28 November 2025, 11:00am - 12:30pm
Register to attend via Zoom
Do you have questions or thoughts about ME/CFS self-management?
Why is it necessary?
What is it?
Can anyone help?
...
tinyurl.com
November 26, 2025 at 3:09 PM
Hunanreolaeth ME/CFS – Ymunwch â'r Sgwrs!
📷 Dydd Gwener 28 Tach 📷 11:00 YB – 12:30 YH 📷 Zoom
Mae Lleisiau ME Cymru yn eich gwahodd i'n helpu i archwilio:
- Strategaethau ymarferol etc
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
📷 Dydd Gwener 28 Tach 📷 11:00 YB – 12:30 YH 📷 Zoom
Mae Lleisiau ME Cymru yn eich gwahodd i'n helpu i archwilio:
- Strategaethau ymarferol etc
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
ME/CFS Self-Management – Join the Conversation!
📷 Fri 28 Nov 📷 11:00 AM – 12:30 PM 📷 Zoom
ME Voices Wales invites you to help us explore:
- Practical strategies
- NHS support & services
- Via Polls &/or discussion groups
- Register now! tinyurl.com/bwwzfwrz
📷 Fri 28 Nov 📷 11:00 AM – 12:30 PM 📷 Zoom
ME Voices Wales invites you to help us explore:
- Practical strategies
- NHS support & services
- Via Polls &/or discussion groups
- Register now! tinyurl.com/bwwzfwrz
ME Voices Wales: ME/CFS Self-management event
Event Timing: Friday 28 November 2025, 11:00am - 12:30pm
Register to attend via Zoom
Do you have questions or thoughts about ME/CFS self-management?
Why is it necessary?
What is it?
Can anyone help?
...
tinyurl.com
November 26, 2025 at 3:06 PM
ME/CFS Self-Management – Join the Conversation!
📷 Fri 28 Nov 📷 11:00 AM – 12:30 PM 📷 Zoom
ME Voices Wales invites you to help us explore:
- Practical strategies
- NHS support & services
- Via Polls &/or discussion groups
- Register now! tinyurl.com/bwwzfwrz
📷 Fri 28 Nov 📷 11:00 AM – 12:30 PM 📷 Zoom
ME Voices Wales invites you to help us explore:
- Practical strategies
- NHS support & services
- Via Polls &/or discussion groups
- Register now! tinyurl.com/bwwzfwrz
More than a year after developing long COVID Prof Peter Swenson says he's not on an illness journey. "I’m pinned down by it, stuck with it. I feel like I’m getting nowhere." Instead of being on a 'care journey' his healthcare visits feel like "stops on a bad trip".
tinyurl.com/y35kpvea
tinyurl.com/y35kpvea
I have long Covid. Don’t call my chronic disease a ‘journey’
A “journey” is something you choose. No one chooses chronic illness.
tinyurl.com
November 26, 2025 at 2:58 PM
More than a year after developing long COVID Prof Peter Swenson says he's not on an illness journey. "I’m pinned down by it, stuck with it. I feel like I’m getting nowhere." Instead of being on a 'care journey' his healthcare visits feel like "stops on a bad trip".
tinyurl.com/y35kpvea
tinyurl.com/y35kpvea
Dr. Chris Armstrong and Dr. Wenzhong Xiao, two of OMF’s Directors, they talk about what they think is going on in ME/CFS, including differences in producing energy and the dysfunction in the immune and central nervous systems. [18 mins] +Transcript
tinyurl.com/2hfuxc4j
tinyurl.com/2hfuxc4j
An Interview with Chris Armstrong, PhD and Wenzhong Xiao, PhD
In an interview with Dr. Chris Armstrong and Dr. Wenzhong Xiao, two of OMF’s Directors, they talk about what they think is going on in ME/CFS, including differences in producing energy and the immune and central nervous systems being out of balance. All donations to OMF are TRIPLED until December 2, 2025. There’s only ONE WEEK LEFT to triple your impact—act before the match runs out! Donate today!
tinyurl.com
November 26, 2025 at 2:57 PM
Dr. Chris Armstrong and Dr. Wenzhong Xiao, two of OMF’s Directors, they talk about what they think is going on in ME/CFS, including differences in producing energy and the dysfunction in the immune and central nervous systems. [18 mins] +Transcript
tinyurl.com/2hfuxc4j
tinyurl.com/2hfuxc4j
MERUK reports on the reasons Dr Carmen Scheibenbogen believes that autoimmunity may play a role in at least a subset of people with ME/CFS and long COVID. She also names several treatments that show promise.
tinyurl.com/4d5prk8z
tinyurl.com/4d5prk8z
November 26, 2025 at 2:55 PM
MERUK reports on the reasons Dr Carmen Scheibenbogen believes that autoimmunity may play a role in at least a subset of people with ME/CFS and long COVID. She also names several treatments that show promise.
tinyurl.com/4d5prk8z
tinyurl.com/4d5prk8z
Ydych chi'n ‘byw'n dda’ gyda ME?
Oes gennych chi gwestiynau am hunanreolaeth? Ymunwch â Llais ME Cymru i ddysgu mwy a rhannu profiadau (neu dim ond gwrando).
Dydd Gwener 28 Tach @ 11:00 YB – 12:30 YH (gyda seibiant) - Zoom
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
Oes gennych chi gwestiynau am hunanreolaeth? Ymunwch â Llais ME Cymru i ddysgu mwy a rhannu profiadau (neu dim ond gwrando).
Dydd Gwener 28 Tach @ 11:00 YB – 12:30 YH (gyda seibiant) - Zoom
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
ME Voices Wales: ME/CFS Self-management event
Event Timing: Friday 28 November 2025, 11:00am - 12:30pm
Register to attend via Zoom
Do you have questions or thoughts about ME/CFS self-management?
Why is it necessary?
What is it?
Can anyone help?
...
tinyurl.com
November 25, 2025 at 3:26 PM
Ydych chi'n ‘byw'n dda’ gyda ME?
Oes gennych chi gwestiynau am hunanreolaeth? Ymunwch â Llais ME Cymru i ddysgu mwy a rhannu profiadau (neu dim ond gwrando).
Dydd Gwener 28 Tach @ 11:00 YB – 12:30 YH (gyda seibiant) - Zoom
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
Oes gennych chi gwestiynau am hunanreolaeth? Ymunwch â Llais ME Cymru i ddysgu mwy a rhannu profiadau (neu dim ond gwrando).
Dydd Gwener 28 Tach @ 11:00 YB – 12:30 YH (gyda seibiant) - Zoom
- Cofrestrwch nawr!
tinyurl.com/bwwzfwrz
�� ME/CFS Self-Management – Join the Conversation! ��
�� Fri 28 Nov �� 11:00 AM – 12:30 PM �� Online (Zoom)
ME Voices Wales invites you to help us explore:
✔ Practical strategies
✔ NHS support & services
✔ Via Polls &/or discussion groups
�� Register now! tinyurl.com/bwwzfwrz
�� Fri 28 Nov �� 11:00 AM – 12:30 PM �� Online (Zoom)
ME Voices Wales invites you to help us explore:
✔ Practical strategies
✔ NHS support & services
✔ Via Polls &/or discussion groups
�� Register now! tinyurl.com/bwwzfwrz
November 25, 2025 at 3:17 PM
�� ME/CFS Self-Management – Join the Conversation! ��
�� Fri 28 Nov �� 11:00 AM – 12:30 PM �� Online (Zoom)
ME Voices Wales invites you to help us explore:
✔ Practical strategies
✔ NHS support & services
✔ Via Polls &/or discussion groups
�� Register now! tinyurl.com/bwwzfwrz
�� Fri 28 Nov �� 11:00 AM – 12:30 PM �� Online (Zoom)
ME Voices Wales invites you to help us explore:
✔ Practical strategies
✔ NHS support & services
✔ Via Polls &/or discussion groups
�� Register now! tinyurl.com/bwwzfwrz
Hundreds of thousands of vulnerable unpaid carers will have their cases reassessed after a damning official review concluded they had been left with huge debts because of government failure and maladministration.
tinyurl.com/yrmahb7k
tinyurl.com/yrmahb7k
DWP to reassess hundreds of thousands of cases in carer’s allowance scandal
Damning official review finds many unpaid carers left with huge debt because of government failure
tinyurl.com
November 25, 2025 at 10:23 AM
Hundreds of thousands of vulnerable unpaid carers will have their cases reassessed after a damning official review concluded they had been left with huge debts because of government failure and maladministration.
tinyurl.com/yrmahb7k
tinyurl.com/yrmahb7k
Joshua Dibble from the Decode Project gives his perspective on the implications of what they found and next steps. [28 mins] +Transcript
tinyurl.com/5mfp8umv
tinyurl.com/5mfp8umv
Joshua Dibble | Initial Findings from the DecodeME Genomic-wide Association Study
Joshua Dibble from the University of Edinburgh Initial Findings from the DecodeME Genomic-wide Association Study
tinyurl.com
November 25, 2025 at 10:21 AM
Joshua Dibble from the Decode Project gives his perspective on the implications of what they found and next steps. [28 mins] +Transcript
tinyurl.com/5mfp8umv
tinyurl.com/5mfp8umv
A new report has found that a previous UK gov’s cut to ESA caused a rise in poverty & mental health conditions, but had no significant effect on employment rates. A similar cut to Universal Credit (UC), is due, which is allegedly intended to boost employment rates.
tinyurl.com/2bryjcft
tinyurl.com/2bryjcft
Disability benefit cuts cause rise in poverty and mental health issues, not employment rates
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
tinyurl.com
November 25, 2025 at 10:19 AM
A new report has found that a previous UK gov’s cut to ESA caused a rise in poverty & mental health conditions, but had no significant effect on employment rates. A similar cut to Universal Credit (UC), is due, which is allegedly intended to boost employment rates.
tinyurl.com/2bryjcft
tinyurl.com/2bryjcft
Secretary of state for work and pensions Pat McFadden refused to rule-out PIP cuts or rule-in the abolition of the work capability assessment (WCA), in wide ranging discussions with the Commons Work and Pensions committee (WPC) last week.
tinyurl.com/3bdavymc
tinyurl.com/3bdavymc
McFadden refuses to rule-out PIP cuts or rule-in WCA abolition
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
tinyurl.com
November 25, 2025 at 10:17 AM
Secretary of state for work and pensions Pat McFadden refused to rule-out PIP cuts or rule-in the abolition of the work capability assessment (WCA), in wide ranging discussions with the Commons Work and Pensions committee (WPC) last week.
tinyurl.com/3bdavymc
tinyurl.com/3bdavymc
OMF briefly explains what a biomarker is and that researchers are working towards identifying robust biomarkers that can identify ME/CFS and differentiate it from other diseases that look like it in the clinic.
tinyurl.com/4yna59wb
tinyurl.com/4yna59wb
Biomarker - Open Medicine Foundation
Learn more about BioQuest, a large-scale biomarker project aiming to find a unique biomarker signature for ME/CFS.
tinyurl.com
November 25, 2025 at 10:15 AM
OMF briefly explains what a biomarker is and that researchers are working towards identifying robust biomarkers that can identify ME/CFS and differentiate it from other diseases that look like it in the clinic.
tinyurl.com/4yna59wb
tinyurl.com/4yna59wb
A moving 4 min video trailer about severe ME. The producers are raising funds to make a full length documentary with contributions by patients, carers & experts. "The marginalization of ME/CFS patients stands as one of the most consequential public health failures of our time."
tinyurl.com/47fbdcsf
tinyurl.com/47fbdcsf
Donate to The First Feature-Length Documentary on ME CFS & Long COVID, organized by Stephen Fortuna
It has been nearly six years since the onset of the COVID-19 … Stephen Fortuna needs your support for The First Feature-Length Documentary on ME CFS & Long COVID
tinyurl.com
November 25, 2025 at 10:13 AM
A moving 4 min video trailer about severe ME. The producers are raising funds to make a full length documentary with contributions by patients, carers & experts. "The marginalization of ME/CFS patients stands as one of the most consequential public health failures of our time."
tinyurl.com/47fbdcsf
tinyurl.com/47fbdcsf
New with Easyfundraising. - You can now raise donations in-store
1. Get the app
2. Add your bank card(s) to your app
3. Shop in person at participating stores. Pay using your card or Apple/Google Pay, & you can raise free donations for WAMES over the Christmas shopping period!
tinyurl.com/3kbdvtpc
1. Get the app
2. Add your bank card(s) to your app
3. Shop in person at participating stores. Pay using your card or Apple/Google Pay, & you can raise free donations for WAMES over the Christmas shopping period!
tinyurl.com/3kbdvtpc
In-Store Donations | easyfundraising
Raise free donations for your cause when you shop in person at selected stores.
tinyurl.com
November 24, 2025 at 11:01 AM
New with Easyfundraising. - You can now raise donations in-store
1. Get the app
2. Add your bank card(s) to your app
3. Shop in person at participating stores. Pay using your card or Apple/Google Pay, & you can raise free donations for WAMES over the Christmas shopping period!
tinyurl.com/3kbdvtpc
1. Get the app
2. Add your bank card(s) to your app
3. Shop in person at participating stores. Pay using your card or Apple/Google Pay, & you can raise free donations for WAMES over the Christmas shopping period!
tinyurl.com/3kbdvtpc
Dr Francisco Westermeier's team has found that ME/CFS affects the cardiometabolic health of women differently from how it affects the health of men and suggests that antioxidants may help men with ME/CFS more than women with ME/CFS.
tinyurl.com/5ddkjuc3
tinyurl.com/5ddkjuc3
Solve-Funded Study Finds Posture and Sex Affect Cardiometabolic Health in People with ME/CFS - Solve ME/CFS Initiative
Results from a Solve Ramsay Research Grant-funded study suggest that sex and posture significantly influence cardiometabolic health in ME/CFS and that antioxidant treatments for ME/CFS may help men mo...
tinyurl.com
November 24, 2025 at 10:52 AM
Dr Francisco Westermeier's team has found that ME/CFS affects the cardiometabolic health of women differently from how it affects the health of men and suggests that antioxidants may help men with ME/CFS more than women with ME/CFS.
tinyurl.com/5ddkjuc3
tinyurl.com/5ddkjuc3
The BMA reports on the COVID inquiry's catastrophic failure to manage the pandemic. They agree there is a need for future pandemic preparedness plans but public health systems must also be restored and healthcare staff's experiences, including those with LC, learned from.
tinyurl.com/4m5r4vrw
tinyurl.com/4m5r4vrw
Covid 19 Inquiry report reveals Government’s catastrophic failure to manage the pandemic, says BMA - BMA media centre - BMA
Press release by the BMA.
tinyurl.com
November 24, 2025 at 10:50 AM
The BMA reports on the COVID inquiry's catastrophic failure to manage the pandemic. They agree there is a need for future pandemic preparedness plans but public health systems must also be restored and healthcare staff's experiences, including those with LC, learned from.
tinyurl.com/4m5r4vrw
tinyurl.com/4m5r4vrw
Dr Jonas Bergquist & Dr Alain Moreau discuss their main ideas behind ME/CFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed. [23 mins] +Transcript
tinyurl.com/59hjxjjs
tinyurl.com/59hjxjjs
An Interview with Dr. Bergquist and Dr. Moreau: From Genes to Proteins to Neuroinflammation
In this interview, Jonas Bergquist, MD, PhD, and Alain Moreau, PhD, two of OMF’s Directors, discuss their main ideas behind ME/CFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed. Every dollar fuels groundbreaking research to find life-changing answers. All donations to OMF are tripled from November 1 through December 2, 2025.
tinyurl.com
November 24, 2025 at 10:49 AM
Dr Jonas Bergquist & Dr Alain Moreau discuss their main ideas behind ME/CFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed. [23 mins] +Transcript
tinyurl.com/59hjxjjs
tinyurl.com/59hjxjjs
Please vote for us. Help us be one of the 120 charities who win £1,000 over 12 days leading up to Christmas with Movement for Good. Please spread the word as the more nominations we have the more chance we have of winning. Thank you. Charity number 1144534
tinyurl.com/mrxmec9t
tinyurl.com/mrxmec9t
November 21, 2025 at 1:02 PM
Please vote for us. Help us be one of the 120 charities who win £1,000 over 12 days leading up to Christmas with Movement for Good. Please spread the word as the more nominations we have the more chance we have of winning. Thank you. Charity number 1144534
tinyurl.com/mrxmec9t
tinyurl.com/mrxmec9t
Sian Leary explains how Patient and Public Involvement worked within the world's largest ME/CFS study, DecodeME, improving the relevance of research for pwme. [7 mins] +Transcript
tinyurl.com/ye26s6rj
tinyurl.com/ye26s6rj
Building Gold Standard Patient and Public Involvement - DecodeME Conference Presentation
Learn how Patient and Public Involvement worked within the world's largest ME/CFS study - DecodeME, presented at The International Conference on Clinical and Scientific Advances on ME and long Covid in Porto, Portugal. Sian, an Action for ME staff member who is also a member of the PPI steering group for DecodeME and PPI Coordinator for the PRIME project, presented about DecodeME PPI as part of the 'Patient Advocacy Panel' session, November 12th 2025. Find out more about the conference: https://aliancamillionsmissing.org/2-conferencia/en/ Read more about the PRIME project: https://megenetics.org.uk/our-projects/prime/
tinyurl.com
November 21, 2025 at 12:58 PM
Sian Leary explains how Patient and Public Involvement worked within the world's largest ME/CFS study, DecodeME, improving the relevance of research for pwme. [7 mins] +Transcript
tinyurl.com/ye26s6rj
tinyurl.com/ye26s6rj
Physios for ME invite healthcare professionals around the world with Long COVID (with post-exertional malaise) and/or ME/CFS to take part in a survey to share their experiences of illness. Closing date 31 December 202, 6pm.
tinyurl.com/8erj4e96
tinyurl.com/8erj4e96
hcps with ME survey | Physiosforme
tinyurl.com
November 21, 2025 at 12:57 PM
Physios for ME invite healthcare professionals around the world with Long COVID (with post-exertional malaise) and/or ME/CFS to take part in a survey to share their experiences of illness. Closing date 31 December 202, 6pm.
tinyurl.com/8erj4e96
tinyurl.com/8erj4e96
Dr David Systrom from Harvard University talks about treating ME/CFS and Long COVID as organic diseases with repurposed medications. [19 mins] +Transcript
tinyurl.com/5bdaydpd
tinyurl.com/5bdaydpd
David Systrom, MD | Treating ME/CFS and Long COVID as organic diseases with repurposed medications
David Systrom, MD, Harvard University Treating ME/CFS and Long COVID as organic diseases with repurposed medications
tinyurl.com
November 21, 2025 at 12:55 PM
Dr David Systrom from Harvard University talks about treating ME/CFS and Long COVID as organic diseases with repurposed medications. [19 mins] +Transcript
tinyurl.com/5bdaydpd
tinyurl.com/5bdaydpd