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Whitney Dafoe

@whitneydafoe.bsky.social

2.3K followers 3 following 120 posts

Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊

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Whitney Dafoe @whitneydafoe.bsky.social · Jan 29

✏️ My ME/CFS Blog:
www.whitneydafoe.com/mecfs
❓What is ME/CFS?
www.whitneydafoe.com/mecfs/whatis...
👤 My Story:
www.whitneydafoe.com/mecfs/mystory
📄 ME/CFS Resources:
www.whitneydafoe.com/mecfs/resour...
🙏 Donate to ME/CFS Research:
www.whitneydafoe.com/donate

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Whitney Dafoe @whitneydafoe.bsky.social · 7d

😭😭😭 I’m sorry 💙💙🙏

Whitney Dafoe @whitneydafoe.bsky.social · 7d

😊💙💙💙

Whitney Dafoe @whitneydafoe.bsky.social · 7d

The *official* ME/CFS Food Pyramid! Your path to better health and a brighter tomorrow, running over green hilltops with the wind in your hair, flying kites with loved ones, everyone laughing, bullshit, bullshit, bullshit 😘😉

💙 Whitney

#mecfs #LongCovid #ChronicIllness

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Whitney Dafoe @whitneydafoe.bsky.social · 8d

No worries I was just curious. 💙💙💙

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Whitney Dafoe @whitneydafoe.bsky.social · 9d

I’m so sorry Donia. My thoughts are with you 💙💙💙😭

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Whitney Dafoe @whitneydafoe.bsky.social · 9d

Wait what other thread where there’s an antagonist involving me?

Whitney Dafoe @whitneydafoe.bsky.social · 9d

I got the email. Sorry having a severe immune reaction to a med. Not doing well. Love and thanks for the heads up from the community 💙🙏

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Whitney Dafoe @whitneydafoe.bsky.social · 9d

My feelers are hurt 😞 jk 💙💙💙

Reposted by Whitney Dafoe

valebodi.bsky.social @valebodi.bsky.social · 10d

The True Horror Of #ME/CFS
By @whitneydafoe.bsky.social

The True Horror Of ME/CFS

www.whitneydafoe.com

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Whitney Dafoe @whitneydafoe.bsky.social · 17d

Raise your hand if you woke up feeling like an animal hit by a truck, hyperventilating on the side of the road 🙋

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Whitney Dafoe @whitneydafoe.bsky.social · 18d

God grant me the serenity to accept the loss of my entire life,
The strength to not have strength,
And the wisdom to know when to lay down and hold the fuck still.

The ME/CFS Prayer. 💙 Whitney

#MECFS #LongCovid

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Whitney Dafoe @whitneydafoe.bsky.social · Sep 1

Think back in history at some of the things we consider the greatest human creations or ideas or achievements. There are things just like that stuck in the minds of #MECFS patients all over the world right now that we will never see without a cure. So much trapped beauty. 💔

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Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

💙💙💙

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

💙💙💙

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

Thank you ☺️ 💙💙💙

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

💙💙💙🙏

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

💙💙💙

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

💙💙💙💪

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Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

I’m proud to know you too Sarah. I really admire you. 💙

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

I absolutely love my bedjet it feels so good and ended night sweats for me. The moment it turns off my bed feels so clammy without that air under the covers. Feel free to ask me any questions. And no I’m not getting paid for this 😜

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

…The spontaneity that healthy people show so clearly is at once a refreshing reminder of what life is supposed to be like, but also a shocking and profoundly sad reminder of what my life is like…

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Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

My Jtube broke and I have to go to the hospital and I’m feeling stressed...
It is so hard seeing the real world and feeling it and then coming back to my room and closing all the doors...

Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

Remembering What Real Life Is Like

My Jtube broke finally and I have to go to the hospital tomorrow and I’m feeling stressed...It is so hard seeing the real world and really feeling it and then coming back to my room and closing all th...

www.whitneydafoe.com

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Whitney Dafoe @whitneydafoe.bsky.social · Aug 11

And we can't just have a nervous breakdown and fall apart - our energy is so low that would mean no self care. We cannot fall apart. Every single day we have to summon strength to continue that most people don't even know exists within them - or maybe doesn't.

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Whitney Dafoe @whitneydafoe.bsky.social · Aug 11

When a healthy person's hopes and dreams are crushed, they often fall apart.

ME/CFS patient's hopes and dreams are crushed over and over again. Every. Single. Day.

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#SevereMEAwarenessDay #SevereMEDay #MECFS

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Whitney Dafoe @whitneydafoe.bsky.social · Aug 7

💙💙💙🙏