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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 4d

New paper published @flissmurtagh.bsky.social Funding for palliative research remains very low: out of total of 18,023 health research awards in 2022, only 136 related to palliative research – just 0.26% of the total £4.2billion awarded. See spcare.bmj.com/content/earl...

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 8d

www.hyms.ac.uk/research/res... @proflizwalker.bsky.social @jonathankoffman.bsky.social

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 8d

Our researchers presented their work at a @universityofhull.bsky.social event held in the @houseoflords.parliament.uk highlighting the need for continued investment in palliative care research and improved access to services across the UK. @flissmurtagh.bsky.social @miriamjohnsonhyms.bsky.social

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 19d

Our large umbrella review of models, components and outcomes of palliative and end-of-life care provided to adults living at home is now out! This includes evidence from 66 systematic reviews! All you want to know about models of care! journals.sagepub.com/doi/full/10....

Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca...

Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...

journals.sagepub.com

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Reposted by Wolfson Palliative Care Research Centre

annhutchinson.bsky.social @annhutchinson.bsky.social · 23d

What is it like to experience exacerbations? How should clinicians talk to people about exacerbations? Read our article to find out... @wolfsonpallcare.bsky.social

BJGP Open @bjgpopen.bsky.social · May 13

COPD | This interview study with patients and carers highlights the importance of plain language (‘flare up’ rather than 'exacerbation') and the lasting effect on patient behaviour of a clinician's response to help-seeking for flare-ups

➡️ doi.org/10.3399/BJGP...

An artist’s impression of how it feels to have a COPD exacerbation developed from descriptions given by participants

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Reposted by Wolfson Palliative Care Research Centre

Stephanie Meddick-Dyson @drstephmeddickd.bsky.social · Jul 2

My absolute pleasure to talk about palliative care in the ICU at this year’s @ics-updates.bsky.social #SOA2025.

It makes me very happy to see how much traction the conversation is getting and the eagerness from both palliative and intensive care to learn and grow.

@wolfsonpallcare.bsky.social

Stephanie presenting at the Intensive Care Society Conference

A picture of Katerina Rusinova, Stephanie Meddick-Dyson, and Sarah Grove who all presented on palliative care in the ICU

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Reposted by Wolfson Palliative Care Research Centre

cw-researching.bsky.social @cw-researching.bsky.social · Jul 21

@wolfsonpallcare.bsky.social

cw-researching.bsky.social @cw-researching.bsky.social · Jul 21

Latest publication from our study of homecare at end of life - and analysis of policy, and the myriad policy gaps #socialcare www.medrxiv.org/content/10.1...

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Reposted by Wolfson Palliative Care Research Centre

cw-researching.bsky.social @cw-researching.bsky.social · Jul 21

@wolfsonpallcare.bsky.social

cw-researching.bsky.social @cw-researching.bsky.social · Jul 15

Our @uniofhull.bsky.social SUPPORTED study of experiences of providing homecare at end-of-life is now available as a pre-print - shorturl.at/tHT7p Thanks to everyone who took part & shared experiences #socialcare

Experiences of delivering social homecare at end-of-life: insights from a qualitative study drawing on multiple perspectives

Social homecare workers (HCWs) play an important role in supporting people with care and support needs who wish to remain at home as they approach end of life. However, the experiences of these HCWs h...

shorturl.at

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Reposted by Wolfson Palliative Care Research Centre

Donna Wakefield @donnawakefield.bsky.social · May 30

Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮

We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social

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Reposted by Wolfson Palliative Care Research Centre

Sunitha Daniel @sunithamd.bsky.social · May 30

Congratulations to Susanne de Wolf-Linder from @wolfsonpallcare.bsky.social one of the best 5 posters at @eapcvzw.bsky.social #EAPC2025 #IPOS-Dem is a valid and reliable outcome measure for assessing and monitoring palliative symptoms and concern for those with dementia @flissmurtagh.bsky.social

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · May 30

Prof of Implementation science Mark Pearson leads EAPCC workshop highlighting need for theoretically-underpinned translation of evidence into practice."Even the best evidence won't implement itself". See www.hyms.ac.uk/postgraduate...

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · May 29

LGBTQI+ inclusive palliative care being addressed via audience participation - more important than ever in current times. @eapcc.bsky.social

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Reposted by Wolfson Palliative Care Research Centre

Sunitha Daniel @sunithamd.bsky.social · May 29

Come and visit the team @wolfsonpallcare.bsky.social at @eapcvzw.bsky.social #EAPC2025 and learn more about our work and courses offered MSc , PGcert and PGdiploma in #PalliativeCare #implementationscience @implementsci.bsky.social

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · May 29

@donnawakefield.bsky.social presenting her SR on inequity & inequality in Lung Disease @eapcc.bsky.social

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Reposted by Wolfson Palliative Care Research Centre

Sophie Pask @sophiepask.bsky.social · May 29

#EAPC2025 has crept up and is finally here! Landed in Helsinki yesterday and excited for a jam packed programme. Excited to be with colleagues from all around the globe to consider where we have come from, where we are at, and where we are going with palliative care. @wolfsonpallcare.bsky.social

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Reposted by Wolfson Palliative Care Research Centre

BJGP Open @bjgpopen.bsky.social · May 13

COPD | This interview study with patients and carers highlights the importance of plain language (‘flare up’ rather than 'exacerbation') and the lasting effect on patient behaviour of a clinician's response to help-seeking for flare-ups

➡️ doi.org/10.3399/BJGP...

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Reposted by Wolfson Palliative Care Research Centre

Lucy Selman @lucyselman.bsky.social · May 13

📣 New paper now online @ckj-era.bsky.social: How do patient information documents present dialysis and conservative kidney management? A document analysis.

academic.oup.com/ckj/advance-...

@flissmurtagh.bsky.social @peolcsw.bsky.social @wolfsonpallcare.bsky.social @danafarber.bsky.social

Paper infographic about how patient information documents frame dialysis and conservative kidney management in inaccurate ways.

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · May 15

Early emphasis on symptom management, preparation for exacerbations, and post-exacerbation reviews are practical ways that clinicians can support patients and carers to manage these events better. Read more here:
bjgpopen.org/content/earl...

Exploring patients’ and carers’ experiences, understandings and expectations of COPD exacerbations:an interview study

Background Chronic obstructive pulmonary disease (COPD) exacerbations are clinically significant events that affect millions of people globally. Aim To explore patients’ and carers’ experiences, unde...

bjgpopen.org

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · Apr 24

#YorkshireandHumberPalliativeCareResearchNetwork improving #PC and #EOLC through research, member of public,health or social care practitioner, commissioners, researchers from #Yorkshire and #Humber working on #PC and #EOLC www.hyms.ac.uk/research/res... confirmsubscription.com/h/j/F344C951...

Subscribe to Yorkshire and Humber Palliative Care Research Network

confirmsubscription.com

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · Apr 22

@flissmurtagh.bsky.social delivered the endowed #SamuelGeelecture 2025 @rcphysicians.bsky.social Less medicine and more care #palliativecare in NHS improving #qualityoflife in older age sometimes means less medicine, not more. player.rcp.ac.uk/ee/live/samu... @hyms.ac.uk @uniofhull.bsky.social

Samuel Gee lecture 2025: Less medicine and more care: the role of palliative care in the NHS | RCP Player

RCP Player offers healthcare professionals the latest medical updates through webinars, videos and podcasts. Explore our wide range of resources today.

player.rcp.ac.uk

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · Apr 15

#MarkPearson #GillianJackson #JasonBoland @hyms.ac.uk @universityofhull.bsky.social

Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · Apr 15

New strategy, developed in collaboration with patients, families and hospice staff, improved #delirium care in the four hospice sites with 13% reduction in delirium days following implementation. #DAMPEN_D #YorkshireCancerResearch @miriamjohnsonhyms.bsky.social www.hyms.ac.uk/research/sto...

Study paves the way for improved management of delirium in hospices

A study is leading the way in improving the detection, assessment, management and prevention of delirium in specialist palliative care units.

www.hyms.ac.uk

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Reposted by Wolfson Palliative Care Research Centre

Donna Wakefield @donnawakefield.bsky.social · Apr 8

Nationally data is gathered on quality of cancer care when CURATIVE- screening, access to treatment & outcomes, survival…..

But no agreed measure/monitoring of QUALITY for those with advanced cancer

This feels wrong!

Great talk & discussion by Dr Lesley Henson 👏👏
@wolfsonpallcare.bsky.social

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Reposted by Wolfson Palliative Care Research Centre

Dr Kathryn Mannix @drkathrynmannix.bsky.social · Apr 8

Does your role include care of people towards the end of their lives at home, in hospital or care homes?
This looks good:
my pals at Harlington Hospice invite you to join them for an updates day on 18th June.
Apply here www.harlingtonhospice.org/conference/

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Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · Apr 8

Listen to @miriamjohnsonhyms.bsky.social talk to Dr Kat Ralston in clinical conversation podcast of @rcpedin.bsky.social on PC in #Heartfailure podcasts.rcpe.ac.uk/show/clinica... @hyms.ac.uk

Palliative Care in Heart Failure (17 Mar 2025)

In this episode, Dr Kat Ralston chats with Prof Miriam Johnson about palliative care in heart failure.

podcasts.rcpe.ac.uk

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