Why Effort Preference Misses the Mark.
It is not about motivation- it’s about biology. @nature.com
Even minor exertion can lead to #PEM.
conta.cc/4mM0B5C
#MECFS #C_Scheibenbogen #Huisarts_Vink
@sunsopeningband.bsky.social @marydimmock.bsky.social @davetuller1.bsky.social @openmedf.bsky.social

Milestone moment for ME/CFS awareness!
The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators.

Read more: https://bit.ly/46P31vP
#MECFS #ACSM @acsm1954.bsky.social

As we approach the end of 2024, @workwellfoundation.bsky.social invites you to consider making a tax-deductible gift to support our #science. Our work has never been more critical as we better understand the similarities between #LongCOVID & #MECFS. #PEM #PESE Read more: www.givesignup.org/g/bam466

Happy Holidays from all of us @workwellfoundation.bsky.social
#HappyHolidays #MECFS #LongCOVID #MillionsMissing #HOPE #pwME #pwLC #PEM #PESE #POTS #Lyme #Fibro #CPET #HRM #StopRestPace #StopGET #Education #Disabilty #DoNoHarm #nonprofit #science @lasnow.bsky.social @sunsopeningband.bsky.social

@workwellfoundation.bsky.social Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3ZdaYac #MECFS #LongCOVID #PESE @sunsopeningband.bsky.social

Workwell Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3ZdaYac #MECFS #LongCOVID #PEM #PESE @workwellfoundation.bsky.social @sunsopeningband.bsky.social

No fancy fundraising, but this #GivingTuesday, please consider my friends at the Workwell Foundation. We’re trying pull back the veil on mysterious conditions to uncover helpful and accessible strategies that works for people with ME/CFS, Long Covid, and related conditions.

Thanks for considering.

In honor of International Day of Person with Disability. Workwell continues to provide resources and #hope to people with #MECFS and #LongCOVID and other #fatigue related illnesses.
Read More: www.givesignup.org/g/bam466
#GivingTuesday #IDPwD24 #Disability #nonprofit @workwellfoundation.bsky.social

Hey, cool! The predictive basis for the model for biometric pacing we’ve been working on for almost the past 20 years at @workwellfoundation.bsky.social and that we shared early on with the kind folks at Visible seems to hold up well within a large dataset. Replication needed but good to see.

@sunsopeningband.bsky.social and @workwellfoundation.bsky.social are amazing!

I can’t speak to visible but it seems they are too

Workwell hopes to grow the ranks of clinicians who understand #MECFS and #LongCOVID and who can help meet the challenging needs of these underserved patient populations.
Read more: conta.cc/3AHuToq
#CyberMonday #MillionsMissing #pwME #pwLC #PEM #Education #MedBridge @workwellfoundation.bsky.social

#WorkwellFoundation appreciates you. It is our patients, physicians, attorneys and colleagues, who enable us to provide #disability services which drives #research and continued #education. We are blessed to have your support. #MECFS #LongCOVID #HOPE #LASnow #nonprofit #Science #HappyThanksgiving

Quoting to amplify. Thanks for your work on this and for taking the time to speak with me about it, @spichaksimon.bsky.social. Needless to say, these evidence-based guidelines…are neither evidence based nor soundly worded guidance. @longcovidphysio.bsky.social @workwellfoundation.bsky.social

🌟 Exciting News! 🌟
We have some exciting updates to share! We've launched a brand-new Facebook page to bring you even more amazing content and updates!

👉Click this link to visit our new and improved Facebook page! www.facebook.com/workwellfoundationorg

We'd love for you to follow us.
Thank you!

#WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3TP6enm
#MECFS #LongCOVID #DoNoHarm #WorkwellFoundation

@4WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3SQeJj8#MECF...

Tagging orgs here 🦋. Add any I've missed! And others you'd like @hankgreen.bsky.social @johngreensbluesky.bsky.social to know! @meactnet.bsky.social @openmedf.bsky.social @polybiorf.bsky.social @patientled.bsky.social @renegaderesearch.bsky.social @rthm.bsky.social @workwellfoundation.bsky.social

This weekend in these cruel waves my spirit is holding on to the lifebuoy studies & genuinely caring work of @workwellfoundation.bsky.social @sunsopeningband.bsky.social @physiosforme.bsky.social @longcovidphysio.bsky.social , actual experts on exercise/exertion & #ME #PEM #PENE

"Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and #longCOVID" by @workwellfoundation.bsky.social

From the AMMES November 2024 Newsletter

workwellfoundation.org/pacing-with-...

#MyalgicEncephalomyelitis #MEcfs #CFS #PwME @sunsopeningband.bsky.social

@4WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3SQeJj8#MECF...

Workwell teams up with STAT Health

Our research aims to understand whether cerebral blood flow is reduced during post-exertional malaise (PEM) and if this metric helps explain the worsened orthostatic symptoms many report while in PEM. 

Check out our new blog on this exciting collaboration!