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Reposted by Ann Forbes

Colin Pidgeon @baldypidge.bsky.social · 7d

Rosie's piece Prisoner of my Heartrate (a digital rendering of her actual ribcage and ❤️) made it to the @ukcovid-19inquiry.bsky.social today in support of Sammie and @longcovidkids.bsky.social .

A group of Long COVID Kids supporters outside the inquiry building holding a banner and placards

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Ann Forbes @aeforbes.bsky.social · 3d

Wishing smiles were cures!!!

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Ann Forbes @aeforbes.bsky.social · 3d

Too germy, too long
Entrapped by expectations
Too loud, too bright, too...

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Ann Forbes @aeforbes.bsky.social · 10d

Monochromatic
Midday meandering moth
Mystic messenger

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Boo-trino Lab @putrinolab.bsky.social · 12d

the world is upside down, the appropriate response to deafening silence in the wake of mass-disabling of our children is to scream at the top of your lungs. That's what Violet was doing on Tuesday. That's not anxiety, that's humanity.
/end

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Miles W. Griffis @mileswgriffis.bsky.social · 15d

NEW: At a UN event today, advocate Violet Affleck gave a short speech on pediatric #LongCOVID. She also talked about how clean air and masking could help address the ongoing COVID-19 pandemic and protect children from the disabling disease.

thesicktimes.org/2025/09/23/v...

Violet Affleck advocates for children with Long COVID, masks, and clean indoor air at United Nations event - The Sick Times

During today’s United Nations (UN) event “Healthy Indoor Air: A Global Call to Action,” advocate Violet Affleck spoke about how clean air and masking are vital tools to address the ongoing COVID-19 pa...

thesicktimes.org

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Ann Forbes @aeforbes.bsky.social · 22d

As an artist, Rosie reflects upon how society responds to people with disabling conditions. The program that accompanies her current exhibition is so well conceived. Please share it!
@betsyladyzhets.bsky.social
@bhanlon15.bsky.social
@edyong209.bsky.social
@valebodi.bsky.social

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Ann Forbes @aeforbes.bsky.social · 22d

I feel like I know Rosie even though an ocean separates us. She is an amazing young woman who acquired Long COVID as a teen. She & her father @baldypidge.bsky.social have been public about her journey.

Colin Pidgeon @baldypidge.bsky.social · 24d

Link to the exhibition brochure is here

docs.google.com/document/d/1...

Finished brouchure.docx

Saturday 13th September - Friday 24th October This exhibition features the work created by Rosie Pidgeon and other children and young people with Long Covid. It is supported by the charity Long Covid ...

docs.google.com

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Colin Pidgeon @baldypidge.bsky.social · 24d

Rosie challenged visitors to contribute to Rona Lisa 2 by thinking of kind things they could say to people with #longcovid #mecfs. They were invited tonwrit on post its and add them to the piece.

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Ann Forbes @aeforbes.bsky.social · 23d

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Colin Pidgeon @baldypidge.bsky.social · 24d

If anyone else would like to add a virtual message to Rosie's piece Rona Lisa 2, please do so.

She is looking for kind or supportive things that an adult or friend can say to someone with an #invisibleillness like #longcovid or #mecfs

Ann Forbes @aeforbes.bsky.social · 24d

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Ann Forbes @aeforbes.bsky.social · 24d

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Ann Forbes @aeforbes.bsky.social · 25d

Colin, your poem that accompanies Rosie's artwork made me cry. Thank you for being vulnerable and sharing! ❤️

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Ann Forbes @aeforbes.bsky.social · 27d

Impressive! The poster are so moving. What a wonderful way to provide agency for youth who are riding the roller coaster of unpredictable symptoms popping up uninvited.

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Ann Forbes @aeforbes.bsky.social · 28d

If only there was an “Undo” command for innate immune system reprogramming.

Ann Forbes @aeforbes.bsky.social · 28d

Your daughter is amazing!❤️

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Ann Forbes @aeforbes.bsky.social · 28d

Can you post a video walk through of the opening?

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Ann Forbes @aeforbes.bsky.social · Sep 4

Fleshy mushy fruit
Serve it with “Green Eggs and Ham”
Or perhaps some Spam

www.theguardian.com/books/booksb...

My favourite book as a kid: Green Eggs and Ham by Dr Seuss

Kicking off a series where writers revisit the book they loved most as a child, Sam Leith returns to a ‘sinister’ classic

www.theguardian.com

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Ann Forbes @aeforbes.bsky.social · Aug 31

"After an episode of PEM, patients may return to their prior cognitive baseline...or decline to a new, lower baseline, suggesting cumulative neurological injury. Conversely, strict avoidance of PEM— ...may allow partial neurological recovery."

valebodi.bsky.social @valebodi.bsky.social · Aug 31

Recent work demonstrates that exercise exceeding the aerobic threshold causes skeletal muscle damage and necrosis in LC patients with #PEM (3). Since the aerobic threshold is pathologically lowered in this group, even minimal daily movements may induce metabolic tissue damage. Necrosis is a

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Ann Forbes @aeforbes.bsky.social · Aug 30

I viewed all of the posters. They are amazing! What was your involvement?

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Megan Ranney MD MPH @meganranney.bsky.social · Aug 19

It is only when we give up hope, that we lose.

Or to quote Victor Frankl: “For the world is in a bad state, but everything will become still worse unless each of us does his best.”

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Boo-trino Lab @putrinolab.bsky.social · Aug 14

Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
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Mount Sinai publishes 1st US guide for infection-linked chronic illnesses - Becker's Hospital Review | Healthcare News & Analysis

New York City-based Mount Sinai Health System has released the country’s first clinical manual for treating infection-associated chronic illnesses, according to an Aug. 13 news release. The clinical ...

www.beckershospitalreview.com

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Ann Forbes @aeforbes.bsky.social · Aug 12

You Pidgeon looks like both a pigeon and a peace dove. This time it shall have a tear in its eye.

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Ann Forbes @aeforbes.bsky.social · Aug 12

While looking up moths, I found this which is a wee bit whimsical!
www.english-heritage.org.uk/siteassets/h...

www.english-heritage.org.uk

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Ann Forbes @aeforbes.bsky.social · Aug 12

Lucky green larvae
Celebrated by Colin
Noticing details

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