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mileswgriffis.bsky.social
Miles W. Griffis
@mileswgriffis.bsky.social
5.6K followers 560 following 410 posts
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
[email protected] #LongCOVID
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Reposted by Miles W. Griffis
levin.bsky.social
I just gave as part of this match. I tell you the sick times saves lives. It is the best new source on the ongoing pandemic
thesicktimes.org The Sick Times @thesicktimes.org · 24d
We're kicking off our biggest fundraiser of the year by participating in NewsMatch, a national campaign to support newsrooms across the US run by the Institute for Nonprofit News.

We need your help to keep telling #LongCOVID stories. Will you donate today? the-sick-times.fundjournalism.org/donate/
ID 1: Purple background with white text reads: Your support powers every Long COVID story we tell. DONATE TODAY. The Sick Times + NewsMatch. ID 2: Purple background with white text reads: New donations (followed by a thermometer reaching $60K). New monthly supporters (followed by a thermometer reaching 200). Until December 31, NewsMatch and the Philanthropic Access Partner Fund will match new donations from our readers, up to $1,000 a person! At the bottom is a graphic showing how financial impact is doubled. ID 3: Purple background with white text reads: In spring 2024, we were lucky to receive a grant that has funded much of our work over the last two years. But that grant concludes this fall. We’ll be honest: we really need more reader support to help keep operating in 2026. The Sick Times + NewsMatch. ID 5: Purple background with white text reads: Other ways to support us. We understand that many people in our community aren’t able to donate. This is why we’ll never have a paywall — our stories will always be completely free to read. If you aren’t in a position to donate yourself, here are a few ways you can help: Share this email/this post with a friend/family member Tell us why you find our work valuable Send us any ideas you have for potential funding sources / connect us with potential funders
November 24, 2025 at 11:23 PM
mileswgriffis.bsky.social
Glad to see this @wired.com guide on high quality masks! A KN95 can help protect you and your loved ones from COVID-19 and other airborne viruses, especially during this busy travel season. I only wish Wired wrote about the pandemic in the present tense 🙏😷

www.wired.com/story/best-d...
15 Good N95, KF94, and KN95 Face Masks to Buy Right Now
Flu season is here. These are the best disposable face coverings we’ve tested—and where you can find them.
www.wired.com
November 25, 2025 at 2:18 AM
Reposted by Miles W. Griffis
motherjones.com
RFK Jr. promised to take on plastic. Now he’s part of an administration embracing it.
RFK Jr. promised to take on plastic. Now he's part of an administration embracing it.
Plastic is everywhere—including in us.
www.motherjones.com
November 25, 2025 at 1:00 AM
Reposted by Miles W. Griffis
bhanlon15.bsky.social
'RECOVER-TLC invites public comments on upcoming clinical trials'

'Patients, caregivers, advocates, healthcare providers, and researchers can sign up to provide feedback on RECOVER-TLC’s plans to study potential Long COVID treatments.'

recovercovid.org/news/recover...
RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
recovercovid.org
November 23, 2025 at 2:45 PM
Reposted by Miles W. Griffis
thesicktimes.org
🔬 New study identifies Epstein-Barr virus as potential trigger of the autoimmune disease systemic lupus erythematosus

💊 COMBAT-LC clinical trial to test combo of Pemgarda and Paxlovid

💉 INTERRUPT-LC clinical trial to test bladder cancer drug Anktiva

#LongCOVID research updates: bit.ly/48480JP
A photograph taken through a microscope shows human cells containing Epstein-Barr virus. The image has a black background with bright blues and greens.. The text reads, "The Sick Times. Long COVID research updates. A new study identifies Epstein-Barr virus a potential trigger of the autoimmune disease systemic lupus erythematosus. COMBAT-LC clinical trial plans to test the combination of the monoclonal antibody, Pemgarda, with the antiviral Paxlovid. INTERRUPT-LC clinical trial will test the bladder cancer drug, Anktiva." A new mechanistic study in Science Translational Medicine identifies Epstein-Barr virus (EBV) as a potential trigger of the autoimmune disease systemic lupus erythematosus. Past research has shown that EBV may drive multiple sclerosis, as well as play a role in Long COVID and ME. Using advanced techniques and cell cultures, the authors discovered that EBV can convert B cells, a type of white blood cell vital to the immune system, into tyrants that reprogram other immune cells to attack tissues in the body. “This is the single most impactful finding to emerge from my lab in my entire career,” said one of the authors in a press release. “We think it applies to 100% of lupus cases.” During the PolyBio Fall 2025 Symposium, researcher Michael Peluso of the University of San Francisco, California (UCSF) shared updates on two upcoming trials. One potential trial that is not yet fully funded, called COMBAT-LC, plans to test the combination of the monoclonal antibody, Pemgarda, with the antiviral Paxlovid. A case series was recently published showing improvements in three people with Long COVID who tried the infusion Pemgarda, adding more evidence to suggest clinical trials should test the drug and other monoclonal antibodies. Peluso also gave more details on a second trial, INTERRUPT-LC, which will test the bladder cancer drug, Anktiva. The small phase two trial plans to include 20 participants with Long COVID at UCSF, who will receive two doses of the infusion to test it for safety and tolerability in people with the disease. (Note: a separate study we’ve covered in the past is also testing Anktiva for Long COVID, in another phase two trial in El Segundo, California.) UCSF Study contact: Emily Fehrman, Emily.Fehrman2@ucsf.edu
November 21, 2025 at 3:53 PM
Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:02 PM
Reposted by Miles W. Griffis
spichaksimon.bsky.social
Four in five exercise trials of Long COVID don't even mention post-exertional malaise anywhere in the trial registration.

Latest for @thesicktimes.org diving into the problems with these trials.

thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 2:33 PM
Reposted by Miles W. Griffis
longcovidsos.bsky.social
The Inquiry report states that by October 2020 the government was sufficiently well aware of the scale and severity of #LongCovid and should have incorporated the risk of LC into decision making, as well as communicated the risk of long term sequelae to the public.

They failed us.
November 20, 2025 at 9:09 PM
mileswgriffis.bsky.social
“Protect the dolls” also means acknowledging Long COVID and protecting your community from it 🏳️‍⚧️😷
thesicktimes.org The Sick Times @thesicktimes.org · 5d
Did you know that trans people are more likely to report having Long COVID than cis people are?

On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people.

Created with @longcovidjustice.org

longcovidjustice.org/lc-in-trans-people
A purple and teal ombre background has large blue title text that says: “Long COVID Trans People: Navigating Across Gender Clinics and Long COVID Care.” Below this is an illustration of a trans person with brown chair and short pink hair and pink high heels, sitting in a purple wheelchair with a big glowing pink heart in their arms. The footer reads, "Long COVID Essentials, www.tiny.cc/LCE. A series by The Sick Times x Long COVID Justice." Aqua and purple gradient background with white text boxes and black text that says: “Trans people are more likely to report having Long COVID than cis people are. According to one survey, over 27% of trans adults reported ever experiencing Long COVID as of September 2024, compared to 14% of cis men and 22% of cis women.” There is a graphic showing bars of various lengths to represent these percentages. Additional text says: “More research is needed. Some advocates suggest lower income and less access to healthcare among trans people could contribute to this pattern.” The footer reads, "Long COVID Essentials, www.tiny.cc/LCE.“ Aqua and purple gradient background is titled, “Options for talking to providers, continued.” Below this, a white text box has black text that says: “You can also request a referral to a Long COVID clinic, or another specialist who understands and sees people with Long COVID and related diseases. If possible, ask people in your community about recommendations for these providers. Note that not all Long COVID clinics are familiar with treating trans people.” Below this a green organic shape has black text that says: “Directories of Long COVID clinics, COVID-informed doctors, and more: Additional text includes the link to the webpage: “longcovidjustice.org/connect” The footer reads, "Long COVID Essentials, www.tiny.cc/LCE." Aqua and purple gradient background is titled, “Look out for more research.” Below this, a white text box has black text that says: “Some research suggests that sex hormones could influence the body’s immune response, which might affect the severity or symptoms of Long COVID. For example, one preprint (not yet peer reviewed) found that people with lower levels of testosterone were more likely to have worse Long COVID symptoms. This article includes more info about sex hormones and the immune system. More research is needed to better understand why trans people may be more at risk for Long COVID and to develop treatments.” The footer reads, "Long COVID Essentials, www.tiny.cc/LCE."
November 20, 2025 at 6:19 PM
Reposted by Miles W. Griffis
heatherhogan.bsky.social
If you're over legacy media, I've got great news! You can donate to our non-profit newsroom at @thesicktimes.org to help us keep investigating injustices, challenging powerful institutions, and offering a platform for those affected by the #LongCOVID crisis. the-sick-times.fundjournalism.org/donate/
On the left, a photo of a lesbian in a KN95 respirator with puppies on it, thick black glasses, a flannel shirt, and a bunch of New York Liberty gear. On the right, white text on a purple background reads, "I got COVID-19 and then Long COVID in March 2020 in the first wave in New York. It was the scariest, hardest, loneliest experience of my life. The Sick Times made me realize I wasn’t alone in the fight to be seen, understood, and treated with respect."
November 20, 2025 at 4:44 PM
Reposted by Miles W. Griffis
whetmoser.com
“The new version reveals that many of the authors and reviewers have been outspoken critics of gender-affirming care, are affiliated with anti-LGBTQ+ groups, and have little-to-no experience providing clinical care for young trans people.”
November 20, 2025 at 4:10 AM
Reposted by Miles W. Griffis
effies.bsky.social
I've written about how RFK Jr is a menace to health. Here's yet another thing on his and Trump's watch. A lot of people are going to die because of this.

arstechnica.com/health/2025/...
Trump admin axed 383 active clinical trials, dumping over 74K participants
It’s a “violation of foundational ethical principles of human participant research.”…
arstechnica.com
November 19, 2025 at 12:40 AM
mileswgriffis.bsky.social
If you want to support independent journalism that reports on #LongCOVID & the ongoing pandemic, donate to @thesicktimes.org!

Unlike many mainstream outlets, we follow the science on COVID & highlight overlooked voices. If that resonates, donate here:

the-sick-times.fundjournalism.org/donate/
Join | The Sick Times
The Sick Times is supported by people like you. Support The Sick Times today.
the-sick-times.fundjournalism.org
November 19, 2025 at 5:44 PM
Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
Meeting info: academicmedicaleducation.com/programs/3rd...
I believe Long COVID community members can still register to watch virtually at a very discounted rate.
3rd Long COVID International Conference 2025
Hybrid event focusing on Long COVID, COVID-19, Long COVID. 2025-11-19 to 2025-11-20 in Boston
academicmedicaleducation.com
November 19, 2025 at 3:44 PM
Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
Today & tomorrow, @mileswgriffis.bsky.social & I are remotely watching the Long COVID International Conference. We aren't doing a full live blog as some researchers are sharing preliminary data, but will have an article up at @thesicktimes.org in the coming days with highlights from the meeting.
November 19, 2025 at 3:42 PM
Reposted by Miles W. Griffis
erininthemorning.com
Fuck this dude. Literally making excuses for murdering and dismembering a journalist in an embassy.
atrupar.com Aaron Rupar @atrupar.com · 6d
Trump suggests Khashoggi had it coming: "You're mentioning someone that was extremely controversial. A lot of people didn't like that gentleman that you're talking about. Whether you like him or didn't like him, things happen. But he knew nothing about it. You don't have to embarrass our guest."
November 18, 2025 at 8:01 PM
mileswgriffis.bsky.social
An honest, heartwarming, and full of laughs tribute to Alice Wong by @thrasherxy.bsky.social.

"giving pleasure, joy, affirmation and care to people you only meet once—or who you might never meet all, such as all the Palestinians Alice cared for these last two years—is the very meaning of love."
November 17, 2025 at 10:14 PM
mileswgriffis.bsky.social
"Her radicalism was nowhere more apparent than in her commitment to a free Palestine and her understanding of Palestinian liberation and the liberation of all people struggling to survive war, occupation, colonization and genocide as at the heart of disability justice."

substack.com/home/post/p-...
Alice Wong was Crips for eSims for Gaza, and Everything to Us
by Jane Shi and Leah Lakshmi Piepzna-Samarasinha
substack.com
November 17, 2025 at 9:37 PM
Reposted by Miles W. Griffis
chromatowski.bsky.social
I especially appreciated that Miles’s obituary recorded how much Alice did for people with Long Covid.
November 17, 2025 at 7:22 AM
Reposted by Miles W. Griffis
adamumak.bsky.social
Hi, folks. I wrote about my buddy @leslieleeiii.bsky.social. He had #LongCOVID and passed away this week. Thanks for reading. adamumak.medium.com/leslie-lee-i...
Leslie Lee III: Funeral for a Friend
Explaining the one important lesson that he wanted you to learn.
adamumak.medium.com
November 15, 2025 at 9:54 PM
Reposted by Miles W. Griffis
juliametraux.bsky.social
This is a great obit, and I appreciated Alice’s fight for Palestinians in Gaza being highlighted. I also want to give a shout out to Miles for asking permission to cite my post when technically you don’t have to do that re media law but still an ethical thing to do.
November 16, 2025 at 10:38 PM
Reposted by Miles W. Griffis
thrasherxy.bsky.social
Obit from @thesicktimes.org by Alice’s friend @mileswgriffis.bsky.social thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 16, 2025 at 6:01 AM
Reposted by Miles W. Griffis
broadwaybabyto.bsky.social
Alice Wong helped me accept my disabilities.

She taught me there’s no social justice without disability justice.

She encouraged me to start The Disabled Ginger and was a friend & mentor.

She won’t be forgotten.

Don’t let the bastards grind you down:

www.disabledginger.com/p/thank-you-...
Thank You Alice Wong
Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.
www.disabledginger.com
November 16, 2025 at 12:16 AM
Reposted by Miles W. Griffis
janehu.bsky.social
Alice Wong was a luminary, and her light will shine on for many years to come. this is a beautiful tribute from @thesicktimes.org co-founder @mileswgriffis.bsky.social
November 16, 2025 at 1:08 AM
Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
"Alice supported and took many people with Long COVID under her wing — I was honored to call her a colleague and friend."

@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 16, 2025 at 12:09 AM