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Billy Hanlon @bhanlon15.bsky.social · 4h

Nature: 'First proposed blood test for chronic fatigue syndrome: what scientists think'

'A blood test has achieved 96% accuracy in diagnosing the condition in a small study of individuals. What does the test detect, and is it a biomarker of the condition?'

www.nature.com/articles/d41...

First proposed blood test for chronic fatigue syndrome: what scientists think

A blood test has achieved 96% accuracy in diagnosing the condition in a small study of individuals. What does the test detect, and is it a biomarker of the condition?

www.nature.com

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valebodi.bsky.social @valebodi.bsky.social · 9h

“Well said! It’s not rest, a strange feeling to never or rarely feel rejuvenated. Like a permanent sick “rest” without recharging and feeling rested. Very unnatural & not a full life. It’s actual torture in a sense. Limited life force. People will never understand.”

#ME/CFS #pwME

valebodi.bsky.social @valebodi.bsky.social · 16h

When “Rest” does not feel like an accurate term (in regard to #ME/CFS)

To me, rest has a positive connotation. My idea of resting when I was healthy was taking a long hot shower, taking a bubble bath, having a spa day, lounging on the beach, reading a book, or binge watching a tv series in bed.

From the cfs community on Reddit

Explore this post and more from the cfs community

www.reddit.com

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Alex @admiringbog.bsky.social · 1d

I’ve learnt an incredible amount about #ME/CFS from social media.

Conrad Hackett @conradhackett.bsky.social · 1d

Has anything great happened in your life because of social media?

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valebodi.bsky.social @valebodi.bsky.social · 16h

When “Rest” does not feel like an accurate term (in regard to #ME/CFS)

To me, rest has a positive connotation. My idea of resting when I was healthy was taking a long hot shower, taking a bubble bath, having a spa day, lounging on the beach, reading a book, or binge watching a tv series in bed.

From the cfs community on Reddit

Explore this post and more from the cfs community

www.reddit.com

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Billy Hanlon @bhanlon15.bsky.social · 10h

H/T @meactnet.bsky.social

Billy Hanlon @bhanlon15.bsky.social · 10h

MedPage Today: 'Medicaid Work Requirements Will Devastate People With Invisible Disabilities'

— ME/CFS and long COVID patients must qualify as "medically frail"

by Laurie Jones

www.medpagetoday.com/opinion/seco...

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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Reposted by Billy Hanlon

Wilhelmina Jenkins @wilhelminaj.bsky.social · 1d

An excellent article by Laurie Jones, executive director of @meaction-mi.bsky.social, about the difficulties that proposed Medicaid work requirements would cause the ME/CFS community.

MedPage Today @medpagetoday.com · 1d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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Reposted by Billy Hanlon

MedPage Today @medpagetoday.com · 1d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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Reposted by Billy Hanlon

#MEAction Network @meactnet.bsky.social · 11h

@meactnet.bsky.social's Executive Director, Laurie Jones, wrote a op-ed about the medicaid work requirements that was recently published in MedPage Today!

Thank a look below!👇

MedPage Today @medpagetoday.com · 1d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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Billy Hanlon @bhanlon15.bsky.social · 11h

10/9/25, ACP WA Chapter Long COVID Interest Group: 'Long COVID and POTS: Recognition and Management with Dr. Nisha Viswanathan and Dr. Daniel Puneky'

'Nisha Viswanathan, MD Works with medically complex patients..Director of the UCLA Long COVID program'

www.youtube.com/feed/subscri...

YouTube

Share your videos with friends, family, and the world

www.youtube.com

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Sue Poncin @poncin-sue.bsky.social · 15h

“Over a 3-year follow-up, individuals with C19 infection had significantly higher risks of developing HPV-related cancers compared to those without:
67% increase cervical cancer
131% vaginal cancer
98% vulvar cancer
92% anal cancer
78% in oropharyngeal cancer.”

Still think it’s ’just a cold’?

Dr Noor Bari @njbbari3.bsky.social · 22h

pubmed.ncbi.nlm.nih.gov/40813533/ 🧐

SARS-CoV-2 infection heightens the risk of developing HPV-related carcinoma in situ and cancer - PubMed

SARS-CoV-2 infection is associated with elevated risks of HPV-related carcinoma in situ and cancer, irrespective of age or race. The findings underscore the importance of understanding the interplay b...

pubmed.ncbi.nlm.nih.gov

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Billy Hanlon @bhanlon15.bsky.social · 11h

3/13/25, Break Away Podcast: “Story Lab: How do you challenge misconceptions about Long COVID?”

“In this Story Lab episode..Armani Guerra shares his journey advocating for and fighting misconceptions about an illness that still doesn't have a cure”

podcasts.apple.com/us/podcast/s...

Story Lab: How do you Challenge Misconceptions about Long COVID?

Podcast Episode · Break Away: Leadership For A Sound Mind And Body · 03/13/2025 · 34m

podcasts.apple.com

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Billy Hanlon @bhanlon15.bsky.social · 11h

6/17/24, WTF Nation Radio: 'The Monday Edition'

'The Monday Edition is back - talking about Long Covid tonight with our guest Armani Guerra'

www.youtube.com/watch?v=xAQv...

The Monday Edition - 17 June 2024

YouTube video by WTF Nation Radio

www.youtube.com

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Reposted by Billy Hanlon

Whole Human Mama | Graeme Seabrook @graeme.blacksky.app · 8d

THIS IS AMAZING NEWS
For LC folks like me who have been gaslit so much about brain fog that I sometimes even do it to myself - this is huge.

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 8d

Scientists Finally Reveal Biological Basis of Long COVID Brain Fog.

Patients with brain fog may have disrupted AMPA receptor (AMPAR) expression—key molecules for memory and learning. Imaging of Long COVID patients showed elevated AMPAR density tied to more severe cognitive impairment.

Scientists Finally Reveal Biological Basis of Long COVID Brain Fog

Researchers employed a specialized brain imaging technique to identify a potential biomarker and therapeutic target for Long COVID. More than four years after the onset of the COVID-19 pandemic, scien...

scitechdaily.com

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Reposted by Billy Hanlon

Nikkie Gallant @nikkiegallant.bsky.social · Jun 22

Do any of y’all get the feeling like your brain (or something) is literally swelling when you think? It’s like, a pressure. I get it more on the bad days, or when I’m crashing.

No idea what the mechanism is. Blood flow? 🤷🏻‍♀️
#LongCovid #MECFS

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Billy Hanlon @bhanlon15.bsky.social · 12h

Female First: 'Scientists create first accurate blood test for chronic fatigue syndrome'

'The test..showed 92% sensitivity and 98% specificity. The team examined 47 patients with severe ME/CFS and compared results to 61 healthy individuals.'

www.femalefirst.co.uk/lifestyle/sc...

Scientists create first accurate blood test for chronic fatigue syndrome

Scientists say they have developed the worlds first accurate blood test to diagnose myalgic encephalomyelitis, also known as chronic fatigue syndrome MECFS.

www.femalefirst.co.uk

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Billy Hanlon @bhanlon15.bsky.social · 12h

GBN: 'World-first blood test could correctly identify chronic fatigue syndrome in 92% of patients'

'The test could be a game-changer for patients who often struggle for years to get a proper diagnosis'

www.gbnews.com/health/chron...

World-first blood test could correctly identify chronic fatigue syndrome in 92% of patients

The test could be a game-changer for patients who often struggle for years to get a proper diagnosis

www.gbnews.com

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Julia Métraux @juliametraux.bsky.social · 14h

I interviewed @tcfdotorg.bsky.social fellow and former Obama health official Jeanne Lambrew at @motherjones.com about the issue central to the government shutdown—Affordable Care Act tax credits are expiring, which will lead to health insurance rates to skyrocket. www.motherjones.com/politics/202...

Brace for the largest-ever spike in health insurance premiums

The GOP's backdoor plan to gut Obamacare: Kill the tax credits.

www.motherjones.com

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Dale Ryder @kryton3298.bsky.social · 2d

NIH RECOVER patient representative Ann Wallace, Ph.D. (@annwallace409), and MaskTogetherAmerica’s founding member Becky Ancira Robertson (@beckyancirar). We look forward to learning together, sharing resources, and supporting each other.

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Dale Ryder @kryton3298.bsky.social · 2d

masktogetheramerica
Save the date for the first forum of the #MaskTogetherAmerica Long COVlD Defense Series featuring 5 virtual Q&A sessions!
On Friday, November 7, from 5:00 to 8:30 pm Eastern, join patients, doctors, and their allies fighting against
Please register to join: bit.ly/Join_LCDefen...

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Reposted by Billy Hanlon

Ella Inez @ellainez.bsky.social · 12d

Oxaloacetate for ME/CFS, does it help? I'm hoping it either works brilliantly or not at all because £400 a bottle is insane.

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Billy Hanlon @bhanlon15.bsky.social · 13h

Technology Networks: 'Blood Test Diagnoses Chronic Fatigue Syndrome With 96% Accuracy'

'With 96 percent accuracy, a new blood test offers hope for those living with chronic fatigue syndrome.'

www.technologynetworks.com/tn/news/bloo...

Blood Test Diagnoses Chronic Fatigue Syndrome With 96% Accuracy

Scientists at the University of East Anglia and Oxford Biodynamics have developed a highly accurate blood test to diagnose Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (ME/CFS).

www.technologynetworks.com

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 15h

OK so I read through this study, and here are my conclusions:
- What a cool tech to examine epigenetic factors so closely!
- This is a small study
- This only differentiates severe-presenting patients from healthy controls; hasn't been used to diagnose ME/CFS *versus* other inflammatory illness. 🧪

Billy Hanlon @bhanlon15.bsky.social · 1d

Open Access Government: 'UEA develops blood test for ME/CFS with 96% accuracy'

'A groundbreaking blood test from UEA can diagnose ME/CFS with 96% accuracy, offering hope for patients and new insights into chronic fatigue syndrome'

www.openaccessgovernment.org/uea-develops...

UEA develops blood test for ME/CFS with 96% accuracy

A blood test from UEA can diagnose ME/CFS with 96% accuracy, offering hope for patients and new insights into chronic fatigue syndrome

www.openaccessgovernment.org

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Reposted by Billy Hanlon

Fred Rossi @darthfoo.bsky.social · 14d

Life with #LongCovid #MECFS #ChronicIllness #Disability

open.substack.com/pub/centerle...

When Your Body Becomes Your Enemy

Living with Long COVID’s Brutal Economics

open.substack.com

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Fred Rossi @darthfoo.bsky.social · 1d

My new post about Reasonable Accommodations in the workplace is up on my Substack, Center Left. #LongCovid #MECFS #Disability #ChronicIllness #ADA #Workplace

open.substack.com/pub/centerle...

When Showing Up Is Not Enough

Why Employers Must Learn the Economics of Chronic Illness

open.substack.com

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