Billy Hanlon
@bhanlon15.bsky.social
ME/CFS | Long COVID | IACC
Reposted by Billy Hanlon
Infection Connections: How past microbial incursions can lead to neurodegenerative diseases
stanmed.stanford.edu/infections-l...
stanmed.stanford.edu/infections-l...
Why acute infections can lead to neurodegeneration
Researchers are uncovering the mysteries of why early-in-life acute infections can lead to neurodegenerative diseases in later years.
stanmed.stanford.edu
November 21, 2025 at 8:13 PM
Infection Connections: How past microbial incursions can lead to neurodegenerative diseases
stanmed.stanford.edu/infections-l...
stanmed.stanford.edu/infections-l...
Reposted by Billy Hanlon
From Germany:
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas
journals.plos.org/plosone/arti...
"A significant inverse association was present between fatigue (assessed by the WEIMuS-score) & CBF in the right middle and inferior occipital gyrus”
#LongCovid
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas
journals.plos.org/plosone/arti...
"A significant inverse association was present between fatigue (assessed by the WEIMuS-score) & CBF in the right middle and inferior occipital gyrus”
#LongCovid
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas
Background and purpose A proportion of individuals recovering from COVID-19 continue to experience persistent symptoms, including fatigue and cognitive difficulties — a syndrome commonly referred to a...
journals.plos.org
November 24, 2025 at 4:34 PM
From Germany:
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas
journals.plos.org/plosone/arti...
"A significant inverse association was present between fatigue (assessed by the WEIMuS-score) & CBF in the right middle and inferior occipital gyrus”
#LongCovid
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas
journals.plos.org/plosone/arti...
"A significant inverse association was present between fatigue (assessed by the WEIMuS-score) & CBF in the right middle and inferior occipital gyrus”
#LongCovid
Reposted by Billy Hanlon
I am so terribly sorry. I often think about how MECFS must be for the experience-lovers, the adventurers, the physically adept, the people who were superb users of their bodily faculties. I know I am one of the lucky ones, a homebody introvert who loves looking at my beautiful stuff all day.
November 24, 2025 at 10:36 PM
I am so terribly sorry. I often think about how MECFS must be for the experience-lovers, the adventurers, the physically adept, the people who were superb users of their bodily faculties. I know I am one of the lucky ones, a homebody introvert who loves looking at my beautiful stuff all day.
Reposted by Billy Hanlon
I’ve always felt unattached, even overwhelmed, by stuff (material items). I loved a good closet clean out, like ditching dead weight. I just wanted experiences. The irony of being shut up inside my house by this illness, surrounded by stuff, kept away from experiences is… really something. #MECFS
November 24, 2025 at 10:20 PM
I’ve always felt unattached, even overwhelmed, by stuff (material items). I loved a good closet clean out, like ditching dead weight. I just wanted experiences. The irony of being shut up inside my house by this illness, surrounded by stuff, kept away from experiences is… really something. #MECFS
Reposted by Billy Hanlon
People in the UK with #ME and #LongCOVID can complete the Big Survey, which is run every five years. There is a separate survey for under 17 year olds. The deadline is 27th January 2026. You can complete the survey online or on paper.
Our 2025 Big Survey is now open! 🎉
For more information, our FAQs, and to take part, head to our web page: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/
Thank you for supporting our research💙
🤝in collaboration with
@durhamimh.bsky.social @kacheston.bsky.social
For more information, our FAQs, and to take part, head to our web page: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/
Thank you for supporting our research💙
🤝in collaboration with
@durhamimh.bsky.social @kacheston.bsky.social
October 15, 2025 at 11:49 AM
People in the UK with #ME and #LongCOVID can complete the Big Survey, which is run every five years. There is a separate survey for under 17 year olds. The deadline is 27th January 2026. You can complete the survey online or on paper.
Reposted by Billy Hanlon
#LongCovid costs the world economy $1 trillion each year. #CovidIsNotOver https://www.cidrap.umn.edu/covid-19/long-covid-takes-1-trillion-global-economic-toll-each-year-analysis-suggests
November 25, 2025 at 2:08 AM
#LongCovid costs the world economy $1 trillion each year. #CovidIsNotOver https://www.cidrap.umn.edu/covid-19/long-covid-takes-1-trillion-global-economic-toll-each-year-analysis-suggests
Reposted by Billy Hanlon
A whole page of books by people with #MECFS!! (My book is not here bc it’s been on my todo list for like… 8 months to get it added 🤦♀️) #BookSky #ChronicIllness
Get some books!
chronic.market/chronic-illn...
Get some books!
chronic.market/chronic-illn...
Books by Authors with ME/CFS and Related Chronic Illnesses – Chronic Market
chronic.market
November 25, 2025 at 4:47 PM
A whole page of books by people with #MECFS!! (My book is not here bc it’s been on my todo list for like… 8 months to get it added 🤦♀️) #BookSky #ChronicIllness
Get some books!
chronic.market/chronic-illn...
Get some books!
chronic.market/chronic-illn...
Reposted by Billy Hanlon
!["your labs look fine."
me:
[woman hissing]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreihtuvoe63ivby26hpvbymmrprexaz7ibwrr3rumiegmzkvirjhp5q@jpeg)
Reposted by Billy Hanlon
The fact that asymptomatic Covid cases can lead to Long Covid IMO probably leads to more people attributing illness to vaccine complications than what could actually occurring, when the underlying problem could be a Covid infection.
November 21, 2025 at 6:53 PM
The fact that asymptomatic Covid cases can lead to Long Covid IMO probably leads to more people attributing illness to vaccine complications than what could actually occurring, when the underlying problem could be a Covid infection.
Reposted by Billy Hanlon
The Sick Times @thesicktimes.org : Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
thesicktimes.org/2025/11/21/l...
Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID.
#LongCovid #PEM
thesicktimes.org/2025/11/21/l...
Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID.
#LongCovid #PEM
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 24, 2025 at 12:03 AM
The Sick Times @thesicktimes.org : Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
thesicktimes.org/2025/11/21/l...
Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID.
#LongCovid #PEM
thesicktimes.org/2025/11/21/l...
Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID.
#LongCovid #PEM
Reposted by Billy Hanlon
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
November 24, 2025 at 4:48 PM
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Reposted by Billy Hanlon
It's now been over two months, and we still don't have any updates from the federal government on RFK Jr.'s Long COVID Consortium. During the meeting the head of ARPA-H stated they would have plans within "weeks".
thesicktimes.org/2025/10/21/i...
thesicktimes.org/2025/10/21/i...
It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium. - The Sick Times
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
thesicktimes.org
November 25, 2025 at 5:59 PM
It's now been over two months, and we still don't have any updates from the federal government on RFK Jr.'s Long COVID Consortium. During the meeting the head of ARPA-H stated they would have plans within "weeks".
thesicktimes.org/2025/10/21/i...
thesicktimes.org/2025/10/21/i...
Reposted by Billy Hanlon
Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:04 PM
Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
Reposted by Billy Hanlon
Watching, digesting, processing, contextualizing, & writing about these conferences is intense work, but @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social never miss a beat. They're consistently doing journalism that no one else is doing.
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:14 PM
Watching, digesting, processing, contextualizing, & writing about these conferences is intense work, but @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social never miss a beat. They're consistently doing journalism that no one else is doing.
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Help @thesicktimes.org keep going? bit.ly/49AUf4t
The Sick Times: 'International Long COVID conference spotlights biomarker and mechanism research'
'The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease'
thesicktimes.org/2025/11/25/i...
'The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease'
thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:34 PM
The Sick Times: 'International Long COVID conference spotlights biomarker and mechanism research'
'The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease'
thesicktimes.org/2025/11/25/i...
'The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease'
thesicktimes.org/2025/11/25/i...
Washington Square News: COVID-19 may affect sense of smell for years, Langone study finds
'Patients can struggle with their sense of smell years down the line, without noticing the deficiencies'
'..branch of the NIH's RECOVER initiative..on long-term effects of COVID'
nyunews.com/news/2025/11...
'Patients can struggle with their sense of smell years down the line, without noticing the deficiencies'
'..branch of the NIH's RECOVER initiative..on long-term effects of COVID'
nyunews.com/news/2025/11...
COVID-19 may affect sense of smell for years, Langone study finds - Washington Square News
Langone researchers found that people may unknowingly retain a reduced sense of smell years after having COVID-19, according to a report that measured perception of odors, or olfactory functions. Rese...
nyunews.com
November 25, 2025 at 6:31 PM
Washington Square News: COVID-19 may affect sense of smell for years, Langone study finds
'Patients can struggle with their sense of smell years down the line, without noticing the deficiencies'
'..branch of the NIH's RECOVER initiative..on long-term effects of COVID'
nyunews.com/news/2025/11...
'Patients can struggle with their sense of smell years down the line, without noticing the deficiencies'
'..branch of the NIH's RECOVER initiative..on long-term effects of COVID'
nyunews.com/news/2025/11...
Reposted by Billy Hanlon
just a reminder: if you're too scared to talk to that person with a disability because they're disabled, you're probably missing out on a really cool person/friendship and that's your loss... they already know how important and cool they are.
November 25, 2025 at 2:46 AM
just a reminder: if you're too scared to talk to that person with a disability because they're disabled, you're probably missing out on a really cool person/friendship and that's your loss... they already know how important and cool they are.
Can't wait to indulge in some Stranger Things S5 in short order...
November 25, 2025 at 4:43 PM
Can't wait to indulge in some Stranger Things S5 in short order...
'COVID, Neuroinflammation & Alzheimer’s: What Eye Imaging Is Showing, with Dr. Sean Miller, Yale, PhD'
'..Dr. Miller describes how..COVID-19 virus can..trigger..neuroinflammation..Yale Eye Center is identifying amyloid & tau deposits in patients with long COVID...'
www.youtube.com/watch?v=ynlS...
'..Dr. Miller describes how..COVID-19 virus can..trigger..neuroinflammation..Yale Eye Center is identifying amyloid & tau deposits in patients with long COVID...'
www.youtube.com/watch?v=ynlS...
COVID, Neuroinflammation & Alzheimer’s: What Eye Imaging Is Showing, with Dr. Sean Miller, Yale, PhD
YouTube video by Ali Moresco
www.youtube.com
November 25, 2025 at 4:12 PM
'COVID, Neuroinflammation & Alzheimer’s: What Eye Imaging Is Showing, with Dr. Sean Miller, Yale, PhD'
'..Dr. Miller describes how..COVID-19 virus can..trigger..neuroinflammation..Yale Eye Center is identifying amyloid & tau deposits in patients with long COVID...'
www.youtube.com/watch?v=ynlS...
'..Dr. Miller describes how..COVID-19 virus can..trigger..neuroinflammation..Yale Eye Center is identifying amyloid & tau deposits in patients with long COVID...'
www.youtube.com/watch?v=ynlS...
The Power of Rare: 'A Science Journalist Speaks about Struggle with Long COVID (Emma's Story)'
'Emma Smith, a 26-year-old science and health journalist, shares her long COVID journey...'
H/T to @3mm4sm1th.bsky.social for sharing her story
www.youtube.com/watch?v=qiFw...
'Emma Smith, a 26-year-old science and health journalist, shares her long COVID journey...'
H/T to @3mm4sm1th.bsky.social for sharing her story
www.youtube.com/watch?v=qiFw...
A Science Journalist Speaks about Struggle with Long COVID (Emma's Story)
YouTube video by The Power of Rare
www.youtube.com
November 25, 2025 at 4:10 PM
The Power of Rare: 'A Science Journalist Speaks about Struggle with Long COVID (Emma's Story)'
'Emma Smith, a 26-year-old science and health journalist, shares her long COVID journey...'
H/T to @3mm4sm1th.bsky.social for sharing her story
www.youtube.com/watch?v=qiFw...
'Emma Smith, a 26-year-old science and health journalist, shares her long COVID journey...'
H/T to @3mm4sm1th.bsky.social for sharing her story
www.youtube.com/watch?v=qiFw...
Reposted by Billy Hanlon
Millions of people have had to struggle for decades not just with unrelenting disabling chronic illness, but with a medical profession that has done nothing but amplify that suffering and placed every barrier in the way.
Ultimately this is their fault, but they take zero responsibility for it.
Ultimately this is their fault, but they take zero responsibility for it.
November 25, 2025 at 3:59 PM
Millions of people have had to struggle for decades not just with unrelenting disabling chronic illness, but with a medical profession that has done nothing but amplify that suffering and placed every barrier in the way.
Ultimately this is their fault, but they take zero responsibility for it.
Ultimately this is their fault, but they take zero responsibility for it.
Reposted by Billy Hanlon
This opposition long predates Long Covid, as those illnesses have been denied, dismissed and discriminated by the medical profession.
They're still opposing it. This rings completely hollow coming from them. I can't trust what they say because I can see what they do.
They're still opposing it. This rings completely hollow coming from them. I can't trust what they say because I can see what they do.
November 25, 2025 at 3:59 PM
This opposition long predates Long Covid, as those illnesses have been denied, dismissed and discriminated by the medical profession.
They're still opposing it. This rings completely hollow coming from them. I can't trust what they say because I can see what they do.
They're still opposing it. This rings completely hollow coming from them. I can't trust what they say because I can see what they do.
Reposted by Billy Hanlon
“It is deeply disappointing that we yet again mark another year where the government has failed to recognise Long COVID and severe post COVID-19 complications as an occupational disease in healthcare workers.”
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
Healthcare Today: 'Calls for the government to recognise Long Covid'
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
Calls for the government to recognise Long Covid
The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease.
healthcaretoday.com
November 25, 2025 at 3:59 PM
“It is deeply disappointing that we yet again mark another year where the government has failed to recognise Long COVID and severe post COVID-19 complications as an occupational disease in healthcare workers.”
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
Reposted by Billy Hanlon
🚨👀👇
Healthcare Today: 'Calls for the government to recognise Long Covid'
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
Calls for the government to recognise Long Covid
The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease.
healthcaretoday.com
November 25, 2025 at 3:10 PM
🚨👀👇
Healthcare Today: 'Calls for the government to recognise Long Covid'
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
Calls for the government to recognise Long Covid
The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease.
healthcaretoday.com
November 25, 2025 at 3:00 PM
Healthcare Today: 'Calls for the government to recognise Long Covid'
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...