Richard Vallée
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
“It is deeply disappointing that we yet again mark another year where the government has failed to recognise Long COVID and severe post COVID-19 complications as an occupational disease in healthcare workers.”
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
Healthcare Today: 'Calls for the government to recognise Long Covid'
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
'The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease'
healthcaretoday.com/article/call...
Calls for the government to recognise Long Covid
The British Medical Association and the Royal College of Nursing have written to the government urging it to recognise long COVID as a prescribed industrial disease.
healthcaretoday.com
November 25, 2025 at 3:59 PM
“It is deeply disappointing that we yet again mark another year where the government has failed to recognise Long COVID and severe post COVID-19 complications as an occupational disease in healthcare workers.”
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
The BMA has long opposed recognition of the chronic illnesses seen in Long Covid.
The fact that the research has not progressed at all says everything.
Medicine got this all wrong from the start, despite having everything in their hands to do better, and has shown itself incapable of adapting.
A system with no real leadership, accountability or ability to learn. Major fail.
Medicine got this all wrong from the start, despite having everything in their hands to do better, and has shown itself incapable of adapting.
A system with no real leadership, accountability or ability to learn. Major fail.
#MEAction’s Scientific Director, Jaime Seltzer:
“The flawed idea central to these trials is that exercise is a panacea, and gradually increasing it could treat Long COVID. As a result, the research won’t advance our understanding of the disease’s actual underlying mechanisms."
“The flawed idea central to these trials is that exercise is a panacea, and gradually increasing it could treat Long COVID. As a result, the research won’t advance our understanding of the disease’s actual underlying mechanisms."
November 25, 2025 at 2:45 PM
The fact that the research has not progressed at all says everything.
Medicine got this all wrong from the start, despite having everything in their hands to do better, and has shown itself incapable of adapting.
A system with no real leadership, accountability or ability to learn. Major fail.
Medicine got this all wrong from the start, despite having everything in their hands to do better, and has shown itself incapable of adapting.
A system with no real leadership, accountability or ability to learn. Major fail.
Reposted by Richard Vallée
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.
substack.com/home/post/p-...
substack.com/home/post/p-...
November 24, 2025 at 11:30 PM
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.
substack.com/home/post/p-...
substack.com/home/post/p-...
Most governments and public health & medical authorities had more than enough information to act about LC by Fall 2020.
They all refused to do anything & covered it up instead. A massive scandal that anyone can easily see but is impossible to fix because there is no accountability in those systems.
They all refused to do anything & covered it up instead. A massive scandal that anyone can easily see but is impossible to fix because there is no accountability in those systems.
1/
"There was sufficient information available by October 2020 for decision-makers to understand that Long Covid was a significant policy and health issue to be tackled”. Yet those warnings were dismissed as anecdotal":
www.longcovid.org/impact/news/...
"There was sufficient information available by October 2020 for decision-makers to understand that Long Covid was a significant policy and health issue to be tackled”. Yet those warnings were dismissed as anecdotal":
www.longcovid.org/impact/news/...
Long Covid Support
To learn more visit LongCovid.org
www.longcovid.org
November 24, 2025 at 3:29 PM
Most governments and public health & medical authorities had more than enough information to act about LC by Fall 2020.
They all refused to do anything & covered it up instead. A massive scandal that anyone can easily see but is impossible to fix because there is no accountability in those systems.
They all refused to do anything & covered it up instead. A massive scandal that anyone can easily see but is impossible to fix because there is no accountability in those systems.
Reposted by Richard Vallée
All public health officials and infectious disease experts who advocated for “you do you” and “be kind” and refused to listen to experts in adjacent fields like physics, engineering and industrial hygiene:
This is on you.
You fed the anti-science monster. Now it has taken over.
This is on you.
You fed the anti-science monster. Now it has taken over.
Disinformation escalation by RFK:
The CDC has now "repudiated its past insistence that vaccines do not cause autism after decades of fighting misinformation linking the two, blindsiding career staff and delighting anti-vaccine activists."
What to know:
1/6
www.washingtonpost.com/health/2025/...
The CDC has now "repudiated its past insistence that vaccines do not cause autism after decades of fighting misinformation linking the two, blindsiding career staff and delighting anti-vaccine activists."
What to know:
1/6
www.washingtonpost.com/health/2025/...
Under RFK Jr., CDC promotes false vaccines-autism link it once discredited
The CDC’s website now says health authorities ignored evidence of a potential connection between vaccines and autism, despite dozens of studies showing no link.
www.washingtonpost.com
November 20, 2025 at 12:41 PM
All public health officials and infectious disease experts who advocated for “you do you” and “be kind” and refused to listen to experts in adjacent fields like physics, engineering and industrial hygiene:
This is on you.
You fed the anti-science monster. Now it has taken over.
This is on you.
You fed the anti-science monster. Now it has taken over.
Reposted by Richard Vallée
Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you
🚨New survey alert 🚨
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
www.physiosforme.com/hcpwithmesur...
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
www.physiosforme.com/hcpwithmesur...
hcps with ME survey | Physiosforme
www.physiosforme.com
November 18, 2025 at 8:00 PM
Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you
It's wild how one of the many big cliffs coming for humanity, demographic collapse pushing already unfit health care systems into even more chaos, is never talked about.
Things are already really bad everywhere, and they will get so much worse as our societies age.
Things are already really bad everywhere, and they will get so much worse as our societies age.
What an awful mess the NHS is in. Nearly two thirds of staff working while sick. This is risking patient and staff safety. The government guidance needs updating to reflect COVID is airborne and management and unions need to push back please! www.theguardian.com/society/2025...
Two-thirds of nurses in UK work while unwell, says union
Understaffing is driving workers to ill health and discouraging them for taking leave, says Royal College of Nursing CEO
www.theguardian.com
November 17, 2025 at 3:31 PM
It's wild how one of the many big cliffs coming for humanity, demographic collapse pushing already unfit health care systems into even more chaos, is never talked about.
Things are already really bad everywhere, and they will get so much worse as our societies age.
Things are already really bad everywhere, and they will get so much worse as our societies age.
Ironically, the increasing popularity of things that don't even work within medicine itself, driven by so-called evidence-based medicine, has been growing for decades and is a big reason for this.
People respond to failed systems. Failed systems don't adapt. Medicine isn't adapting. It's stuck.
People respond to failed systems. Failed systems don't adapt. Medicine isn't adapting. It's stuck.
First opinions, 2nd opinions, analyzing lab tests, preparing for a clinic visit, helping to make difficult diagnoses, and more use cases. Its popularity will keep increasing despite lack of objective data for benefit or harm
www.nytimes.com/2025/11/16/w...
www.nytimes.com/2025/11/16/w...
Frustrated by the Medical System, Patients Turn to A.I.
www.nytimes.com
November 16, 2025 at 4:53 PM
Ironically, the increasing popularity of things that don't even work within medicine itself, driven by so-called evidence-based medicine, has been growing for decades and is a big reason for this.
People respond to failed systems. Failed systems don't adapt. Medicine isn't adapting. It's stuck.
People respond to failed systems. Failed systems don't adapt. Medicine isn't adapting. It's stuck.
Hopefully they don't waste 90% of it like RECOVER did...
Or just cancel it under pressure from ideologues holding on to their precious fairy tales.
The biggest obstacle to solving those illnesses will remain the medical profession itself for quite a while.
Or just cancel it under pressure from ideologues holding on to their precious fairy tales.
The biggest obstacle to solving those illnesses will remain the medical profession itself for quite a while.
Big step for people with #mecfs & #LongCovid in Germany: the BMFTR announces a “National Decade on Post-Infectious Diseases” with long-term research funding and a focus on diagnostics & treatments. #mecfsresearch #research
November 14, 2025 at 3:16 PM
Hopefully they don't waste 90% of it like RECOVER did...
Or just cancel it under pressure from ideologues holding on to their precious fairy tales.
The biggest obstacle to solving those illnesses will remain the medical profession itself for quite a while.
Or just cancel it under pressure from ideologues holding on to their precious fairy tales.
The biggest obstacle to solving those illnesses will remain the medical profession itself for quite a while.
Reposted by Richard Vallée
Big step for people with #mecfs & #LongCovid in Germany: the BMFTR announces a “National Decade on Post-Infectious Diseases” with long-term research funding and a focus on diagnostics & treatments. #mecfsresearch #research
November 14, 2025 at 3:10 PM
Big step for people with #mecfs & #LongCovid in Germany: the BMFTR announces a “National Decade on Post-Infectious Diseases” with long-term research funding and a focus on diagnostics & treatments. #mecfsresearch #research
Hundreds of trials of exercise and rehabilitation have been performed to treat post-infectious chronic illness. Literally hundreds.
Dozens more are ongoing and planned, most for LC.
Even though literally not a single thing has been learned out of it. Not one damn thing.
This industry is a fraud.
Dozens more are ongoing and planned, most for LC.
Even though literally not a single thing has been learned out of it. Not one damn thing.
This industry is a fraud.
November 11, 2025 at 10:53 PM
Hundreds of trials of exercise and rehabilitation have been performed to treat post-infectious chronic illness. Literally hundreds.
Dozens more are ongoing and planned, most for LC.
Even though literally not a single thing has been learned out of it. Not one damn thing.
This industry is a fraud.
Dozens more are ongoing and planned, most for LC.
Even though literally not a single thing has been learned out of it. Not one damn thing.
This industry is a fraud.
Reposted by Richard Vallée
Watching public health and infection control handle SARS / Covid this is the least surprising outcome ever.
1/
Bravo #Antivaxxers 👏👏👏
After a yearlong outbreak that has infected more than 5,000 people & killed 2 infants, 🇨🇦 Canada has lost its measles elimination status after nearly 3 decades, held since 1998 -
www.cbc.ca/news/health/...
Bravo #Antivaxxers 👏👏👏
After a yearlong outbreak that has infected more than 5,000 people & killed 2 infants, 🇨🇦 Canada has lost its measles elimination status after nearly 3 decades, held since 1998 -
www.cbc.ca/news/health/...
Canada loses measles elimination status, federal officials announce | CBC News
Canada has lost its measles elimination status, the Public Health Agency of Canada said on Monday.
www.cbc.ca
November 10, 2025 at 3:07 PM
Watching public health and infection control handle SARS / Covid this is the least surprising outcome ever.
Governments will not work on solving illnesses like Long Covid and ME/CFS.
Even after a predicted increase because of COVID, they will simply lie about it and cover it up. Just as they've always done.
The LC community needs to wake up to this. The medical profession will not be helping either.
Even after a predicted increase because of COVID, they will simply lie about it and cover it up. Just as they've always done.
The LC community needs to wake up to this. The medical profession will not be helping either.
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
November 7, 2025 at 4:32 PM
Governments will not work on solving illnesses like Long Covid and ME/CFS.
Even after a predicted increase because of COVID, they will simply lie about it and cover it up. Just as they've always done.
The LC community needs to wake up to this. The medical profession will not be helping either.
Even after a predicted increase because of COVID, they will simply lie about it and cover it up. Just as they've always done.
The LC community needs to wake up to this. The medical profession will not be helping either.
Reposted by Richard Vallée
This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
November 6, 2025 at 10:15 AM
This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
Reposted by Richard Vallée
Many thanks to @davetuller1.bsky.social for the chance to chat about my book and its resonance with #MECFS, #LongCovid, and the war on disabled people
(For those interested in reading more, pls check here: link.springer.com/book/10.1007...)
(For those interested in reading more, pls check here: link.springer.com/book/10.1007...)
Interview with Brian Hughes, professor of psychology and University of Galway in Ireland.
YouTube video by David M Tuller
www.youtube.com
November 6, 2025 at 1:43 PM
Many thanks to @davetuller1.bsky.social for the chance to chat about my book and its resonance with #MECFS, #LongCovid, and the war on disabled people
(For those interested in reading more, pls check here: link.springer.com/book/10.1007...)
(For those interested in reading more, pls check here: link.springer.com/book/10.1007...)
The full story of chronic illnesses like Long Covid and ME/CFS isn't missed opportunities, it's wasted opportunities.
Every tiny step forward, the product of years of work from hundreds to thousands of people, can simply be cancelled.
The failure of the medical profession is truly historic here.
Every tiny step forward, the product of years of work from hundreds to thousands of people, can simply be cancelled.
The failure of the medical profession is truly historic here.
💸 German government cutting millions in Long COVID funding
🛌 Study found 1.4% of people with documented COVID-19 case were diagnosed with Long COVID
😷 Scientist who alerted world that SARS-CoV-2 was airborne recognized with prestigious science prize
#LongCOVID research updates: bit.ly/4okEB3u
🛌 Study found 1.4% of people with documented COVID-19 case were diagnosed with Long COVID
😷 Scientist who alerted world that SARS-CoV-2 was airborne recognized with prestigious science prize
#LongCOVID research updates: bit.ly/4okEB3u
November 6, 2025 at 3:37 PM
The full story of chronic illnesses like Long Covid and ME/CFS isn't missed opportunities, it's wasted opportunities.
Every tiny step forward, the product of years of work from hundreds to thousands of people, can simply be cancelled.
The failure of the medical profession is truly historic here.
Every tiny step forward, the product of years of work from hundreds to thousands of people, can simply be cancelled.
The failure of the medical profession is truly historic here.
Reposted by Richard Vallée
Every single window of opportunity and line of scientific inquiry to dig deeper in the field of ME/cfs has been squandered, suppressed or sabotaged. I wish saying this was an exaggeration, but unfortunately for us pwME, it is not.
November 4, 2025 at 1:48 PM
Every single window of opportunity and line of scientific inquiry to dig deeper in the field of ME/cfs has been squandered, suppressed or sabotaged. I wish saying this was an exaggeration, but unfortunately for us pwME, it is not.
Reposted by Richard Vallée
Post hoc "scientific debate" via the medium of journal correspondence changes absolutely nothing.
The key is to publish your absolute drivel in such huge quantity that it cannot be avoided in the literature, and effectively drowns out anyone else.
A few key charlatans worked this out early on.
The key is to publish your absolute drivel in such huge quantity that it cannot be avoided in the literature, and effectively drowns out anyone else.
A few key charlatans worked this out early on.
November 4, 2025 at 3:17 PM
Post hoc "scientific debate" via the medium of journal correspondence changes absolutely nothing.
The key is to publish your absolute drivel in such huge quantity that it cannot be avoided in the literature, and effectively drowns out anyone else.
A few key charlatans worked this out early on.
The key is to publish your absolute drivel in such huge quantity that it cannot be avoided in the literature, and effectively drowns out anyone else.
A few key charlatans worked this out early on.
Reposted by Richard Vallée
I've been looking at this for a decade now, and I think this is the fundamental flaw in the way that everyone thinks Science is supposed to work, because it doesn't.
1. Publish a load of 💩
2. Get loads of letters about it and publish a false balance.
3. Wonder why nothing ever moves forward. 😩
1. Publish a load of 💩
2. Get loads of letters about it and publish a false balance.
3. Wonder why nothing ever moves forward. 😩
"We have received 41 other letters making very similar points to those of Ms Hartnell and Dr Wookey - Ed, BMJ"
Yeah. Maybe try actually listening to what they say, one day? 🙄
Yeah. Maybe try actually listening to what they say, one day? 🙄
November 4, 2025 at 3:11 PM
I've been looking at this for a decade now, and I think this is the fundamental flaw in the way that everyone thinks Science is supposed to work, because it doesn't.
1. Publish a load of 💩
2. Get loads of letters about it and publish a false balance.
3. Wonder why nothing ever moves forward. 😩
1. Publish a load of 💩
2. Get loads of letters about it and publish a false balance.
3. Wonder why nothing ever moves forward. 😩
Reposted by Richard Vallée
Nothing has boosted the conspiracy fantasies and antivax communities like medical professionals minimizing the risks of infectious diseases, even arguing they are good for health, and denying the long-term consequences of COVID.
It legitimized them by saying all the same things. Giant failure.
It legitimized them by saying all the same things. Giant failure.
Antivaxxers own this. Infectious disease minimizers own this.
Is Canada losing the battle against #measles? Country could soon lose elimination status. Q+A w/ @msmacrophage.bsky.social www.cbc.ca/listen/live-... via @cbcnews.ca #vaccination
November 2, 2025 at 3:07 PM
Nothing has boosted the conspiracy fantasies and antivax communities like medical professionals minimizing the risks of infectious diseases, even arguing they are good for health, and denying the long-term consequences of COVID.
It legitimized them by saying all the same things. Giant failure.
It legitimized them by saying all the same things. Giant failure.
Health care services cannot provide services they don't know how to perform.
There are no treatments, so unless the clinics are heavily involved in research, which they are not, they are a complete waste of resources.
And they sure are. Not a single thing has been achieved here. Not one.
There are no treatments, so unless the clinics are heavily involved in research, which they are not, they are a complete waste of resources.
And they sure are. Not a single thing has been achieved here. Not one.
Australia: Nurse among patients calling for better access to long COVID treatment
Former ICU nurse Julie Mirtschen, 43, from Port Macquarie, developed long COVID after back-to-back flu and COVID infections in March 2020.
Researchers say she’s among up to 870,000 Australians living with long COVID.
Former ICU nurse Julie Mirtschen, 43, from Port Macquarie, developed long COVID after back-to-back flu and COVID infections in March 2020.
Researchers say she’s among up to 870,000 Australians living with long COVID.
Long COVID patients seeking help 'let down by the system'
Patients are calling for better access to long COVID care after the closure of one of the country's last public clinics.
www.abc.net.au
November 1, 2025 at 3:05 PM
Health care services cannot provide services they don't know how to perform.
There are no treatments, so unless the clinics are heavily involved in research, which they are not, they are a complete waste of resources.
And they sure are. Not a single thing has been achieved here. Not one.
There are no treatments, so unless the clinics are heavily involved in research, which they are not, they are a complete waste of resources.
And they sure are. Not a single thing has been achieved here. Not one.
Reposted by Richard Vallée
This article will be on interest to ME/CFS patients, and probably Long Covid patients too. Please donate to Dr David Tuller if you are able to. He's worked so hard for us all for so long! 🙂 👍
virology.ws/2025/10/25/t...
virology.ws/2025/10/25/t...
Trial By Error: Some Thoughts on Ten Years of Trial By Error | Virology Blog
By David Tuller, DrPH Ten years ago this month, I launched Trial By Error with a 15,000-word investigation of the misbegotten and fraudulent PACE trial, whi ...
virology.ws
October 25, 2025 at 6:49 PM
This article will be on interest to ME/CFS patients, and probably Long Covid patients too. Please donate to Dr David Tuller if you are able to. He's worked so hard for us all for so long! 🙂 👍
virology.ws/2025/10/25/t...
virology.ws/2025/10/25/t...
Reposted by Richard Vallée
"My preliminary work with students has identified a similar trend in #longCOVID exercise studies [...] The mixing of participants who may and may not respond normally to physical loading is probably also now confounding results in LC literature.”
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
No Evidence Supports Using Graded Exercise for ME/CFS
Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’
www.medscape.com
October 31, 2025 at 2:48 PM
"My preliminary work with students has identified a similar trend in #longCOVID exercise studies [...] The mixing of participants who may and may not respond normally to physical loading is probably also now confounding results in LC literature.”
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
Not surprising, a claim made without evidence, even against evidence, was false all along.
This belief stemmed from speculative scenarios about people being bed-bound for weeks with severe illness ending up severely deconditioned.
This was always false. Always. A fraudulent lie.
This belief stemmed from speculative scenarios about people being bed-bound for weeks with severe illness ending up severely deconditioned.
This was always false. Always. A fraudulent lie.
"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...
No Evidence Supports Using Graded Exercise for ME/CFS
Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’
www.medscape.com
October 31, 2025 at 3:14 PM
Not surprising, a claim made without evidence, even against evidence, was false all along.
This belief stemmed from speculative scenarios about people being bed-bound for weeks with severe illness ending up severely deconditioned.
This was always false. Always. A fraudulent lie.
This belief stemmed from speculative scenarios about people being bed-bound for weeks with severe illness ending up severely deconditioned.
This was always false. Always. A fraudulent lie.