Lucibee
@lucibee.bsky.social
Science defender and eco-worrier.
(she/her)
(she/her)
Reposted by Lucibee
Some Winter Olympics athletes, teams, and their loved ones are protecting themselves from airborne pathogens by masking and isolating.
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
February 11, 2026 at 3:53 PM
Some Winter Olympics athletes, teams, and their loved ones are protecting themselves from airborne pathogens by masking and isolating.
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
Reposted by Lucibee
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
3/n
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 11, 2026 at 11:22 AM
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
Reposted by Lucibee
During a congressional visit, Congressman Joaquin Castro discovered that babies as young as two months old are being held at the Dilley, Texas Family Concentration Camp. (February 10, 2026)
February 11, 2026 at 4:18 AM
During a congressional visit, Congressman Joaquin Castro discovered that babies as young as two months old are being held at the Dilley, Texas Family Concentration Camp. (February 10, 2026)
Interesting.
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Painful Side Effect of Statins Explained After Decades of Mystery
Around 10 percent of people who take statins to lower cholesterol experience mysterious muscle pains, causing many to discontinue these potentially life-saving medicines.
www.sciencealert.com
February 11, 2026 at 2:58 PM
Interesting.
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Reposted by Lucibee
1) "Incorporating PEM into a new conceptual model of long covid cardiac rehabilitation programmes is essential to clinically distinguish it from cardiovascular deconditioning and to safeguard patients from unintended harm"
February 11, 2026 at 1:21 PM
1) "Incorporating PEM into a new conceptual model of long covid cardiac rehabilitation programmes is essential to clinically distinguish it from cardiovascular deconditioning and to safeguard patients from unintended harm"
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
3/n
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 11, 2026 at 11:22 AM
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
Reposted by Lucibee
Appending here... my review of Module 3 from last year: bsky.app/profile/luci...
I've just had a look at this module.
To my unexpert eye it looks reasonably OK.
The important thing to remember though is that this is not/should not be a replacement for proper clinical training in this area (of which there is none).
It does at least raise awareness among staff.
To my unexpert eye it looks reasonably OK.
The important thing to remember though is that this is not/should not be a replacement for proper clinical training in this area (of which there is none).
It does at least raise awareness among staff.
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched.
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
February 10, 2026 at 11:59 AM
Appending here... my review of Module 3 from last year: bsky.app/profile/luci...
Reposted by Lucibee
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
February 9, 2026 at 3:57 PM
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
Reposted by Lucibee
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
February 10, 2026 at 1:45 PM
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan.
The Plan simply does not mention it.
Astounding. 😖
The Plan simply does not mention it.
Astounding. 😖
February 10, 2026 at 3:21 PM
As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan.
The Plan simply does not mention it.
Astounding. 😖
The Plan simply does not mention it.
Astounding. 😖
Reposted by Lucibee
In this week's #ThereForME blog our co-founder @karenlhargrave.bsky.social writes about the challenges she and her husband James have faced accessing NHS Continuing Healthcare funding.
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
![A picture of a young woman and man together smiling (Karen and James). Overlaid on the picture: "When I first came across CHC funding it felt like the perfect fit [...] Their initial assessment concluded he was eligible. Yet, one year on both our CHC application and subsequent appeal have been rejected." Karen Hargrave. New #ThereForME Substack post.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreifod7x7n4p4nd4i7wresiukfpxc4sb3rewzva7r63te4vpqpioo2m@jpeg)
February 10, 2026 at 9:19 AM
In this week's #ThereForME blog our co-founder @karenlhargrave.bsky.social writes about the challenges she and her husband James have faced accessing NHS Continuing Healthcare funding.
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
Well damn! Just how many birds did they want me to ID today??? There were at least 3 in that clip!
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Birdle United Kingdom
Play Birdle UK, a daily bird guessing game. Learn about British birds in just 5 guesses.
birdle.co.uk
February 10, 2026 at 3:03 PM
Well damn! Just how many birds did they want me to ID today??? There were at least 3 in that clip!
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Reposted by Lucibee
'A Duty Forsaken: The Legal and Ethical Abandonment of ME/CFS Patients'
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
February 10, 2026 at 11:07 AM
'A Duty Forsaken: The Legal and Ethical Abandonment of ME/CFS Patients'
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
February 10, 2026 at 1:45 PM
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Reposted by Lucibee
Grazalema, Spain, received over 2,000 mm (78 inches) of rain in just the last 20 days.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
February 9, 2026 at 4:11 PM
Grazalema, Spain, received over 2,000 mm (78 inches) of rain in just the last 20 days.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
Reposted by Lucibee
Can anyone remember an old animation about little people in glass jars a bit like Small Prophets? I'm thinking Eastern European folk story type thing. The people may have been animated paper shapes. Possibly gold? A bit like Bagpuss would have in his story sections.
February 10, 2026 at 12:35 PM
Can anyone remember an old animation about little people in glass jars a bit like Small Prophets? I'm thinking Eastern European folk story type thing. The people may have been animated paper shapes. Possibly gold? A bit like Bagpuss would have in his story sections.
Reposted by Lucibee
Another good point: This summary slide.
Shame it’s right at the end.
Shame it’s right at the end.
September 8, 2025 at 3:18 PM
Another good point: This summary slide.
Shame it’s right at the end.
Shame it’s right at the end.
Reposted by Lucibee
Thank you for your efforts. Advocacy groups and people with ME/CFS should be asking all medical schools to provide similar information. Schools that do not have an updated curriculum or no curriculum at all could be picketed on ME/CFS awareness day. Medical schools hate bad publicity.
February 9, 2026 at 9:21 PM
Thank you for your efforts. Advocacy groups and people with ME/CFS should be asking all medical schools to provide similar information. Schools that do not have an updated curriculum or no curriculum at all could be picketed on ME/CFS awareness day. Medical schools hate bad publicity.
Reposted by Lucibee
I'm pretty outspoken about the fact that I do not enjoy football, but I would pay hard-earned money to be able to participate in the halftime show dressed as a bush.
February 9, 2026 at 9:05 PM
I'm pretty outspoken about the fact that I do not enjoy football, but I would pay hard-earned money to be able to participate in the halftime show dressed as a bush.
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
February 9, 2026 at 3:57 PM
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
Channel 4 Dispatches on the proscription of Palatine Actin (or Packhorse Acumen) to air tomorrow (Monday 9 February 2026).
www.c21media.net/news/lion-tv...
www.c21media.net/news/lion-tv...
Lion TV investigates proscription of Palestine Action as terror group for C4’s Dispatches
Channel 4's Dispatches strand has investigated the UK government's decision to proscribe Palestine Action as a terrorist organisation in a programme that will air next week.
www.c21media.net
February 8, 2026 at 6:48 PM
Channel 4 Dispatches on the proscription of Palatine Actin (or Packhorse Acumen) to air tomorrow (Monday 9 February 2026).
www.c21media.net/news/lion-tv...
www.c21media.net/news/lion-tv...
Reposted by Lucibee
Great video. The homes are thoughtful, attractive and well designed. Khan is eloquent and considerate. Much more like this please.
A real pleasure to meet George Clarke and hear about his experiences growing up on a council estate. We both know the positive impact social housing can have on families’ lives.
That’s why I’m determined to continue delivering more council homes as we build a fairer London for everyone.
That’s why I’m determined to continue delivering more council homes as we build a fairer London for everyone.
February 7, 2026 at 12:20 PM
Great video. The homes are thoughtful, attractive and well designed. Khan is eloquent and considerate. Much more like this please.
Reposted by Lucibee
Good morning and happy Superb Owl day to all who celebrate! Here are superb owls for your enjoyment.
#SuperbOwl
#SuperbOwl
February 8, 2026 at 1:33 PM
Good morning and happy Superb Owl day to all who celebrate! Here are superb owls for your enjoyment.
#SuperbOwl
#SuperbOwl
I recognise that there is a conflict here, between orgs that provide advocacy (need to adhere to strict protocols for privacy, confidentiality, etc) and individuals providing advocacy (as friends or fellow sufferers, for whom those boundaries may not seem so apparent).
There is too big a void.
There is too big a void.
That would be useful, as many of us are at a loss as to what to do.
February 8, 2026 at 3:42 PM
I recognise that there is a conflict here, between orgs that provide advocacy (need to adhere to strict protocols for privacy, confidentiality, etc) and individuals providing advocacy (as friends or fellow sufferers, for whom those boundaries may not seem so apparent).
There is too big a void.
There is too big a void.
