Lucibee
@lucibee.bsky.social
Science defender and eco-worrier.
(she/her)
(she/her)
Reposted by Lucibee
Appending here... my review of Module 3 from last year: bsky.app/profile/luci...
I've just had a look at this module.
To my unexpert eye it looks reasonably OK.
The important thing to remember though is that this is not/should not be a replacement for proper clinical training in this area (of which there is none).
It does at least raise awareness among staff.
To my unexpert eye it looks reasonably OK.
The important thing to remember though is that this is not/should not be a replacement for proper clinical training in this area (of which there is none).
It does at least raise awareness among staff.
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched.
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
February 10, 2026 at 11:59 AM
Appending here... my review of Module 3 from last year: bsky.app/profile/luci...
Reposted by Lucibee
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
February 9, 2026 at 3:57 PM
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
Reposted by Lucibee
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
February 10, 2026 at 1:45 PM
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan.
The Plan simply does not mention it.
Astounding. 😖
The Plan simply does not mention it.
Astounding. 😖
February 10, 2026 at 3:21 PM
As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan.
The Plan simply does not mention it.
Astounding. 😖
The Plan simply does not mention it.
Astounding. 😖
Reposted by Lucibee
In this week's #ThereForME blog our co-founder @karenlhargrave.bsky.social writes about the challenges she and her husband James have faced accessing NHS Continuing Healthcare funding.
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
![A picture of a young woman and man together smiling (Karen and James). Overlaid on the picture: "When I first came across CHC funding it felt like the perfect fit [...] Their initial assessment concluded he was eligible. Yet, one year on both our CHC application and subsequent appeal have been rejected." Karen Hargrave. New #ThereForME Substack post.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreifod7x7n4p4nd4i7wresiukfpxc4sb3rewzva7r63te4vpqpioo2m@jpeg)
February 10, 2026 at 9:19 AM
In this week's #ThereForME blog our co-founder @karenlhargrave.bsky.social writes about the challenges she and her husband James have faced accessing NHS Continuing Healthcare funding.
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
Well damn! Just how many birds did they want me to ID today??? There were at least 3 in that clip!
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Birdle United Kingdom
Play Birdle UK, a daily bird guessing game. Learn about British birds in just 5 guesses.
birdle.co.uk
February 10, 2026 at 3:03 PM
Well damn! Just how many birds did they want me to ID today??? There were at least 3 in that clip!
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Birdle 🇬🇧 10/02/2026
🟩⬜🟩🟩🟩
🟩🟩🟩🟩🟩
birdle.co.uk
Reposted by Lucibee
'A Duty Forsaken: The Legal and Ethical Abandonment of ME/CFS Patients'
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
February 10, 2026 at 11:07 AM
'A Duty Forsaken: The Legal and Ethical Abandonment of ME/CFS Patients'
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
Thanks to Jenny Wilson for preparing this summary of a longer document she is working on. I'm going to send a copy to my MP Beccy Cooper. Please do the same if you can manage it. #MyalgicEncephalomyelitis #MECFS
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
February 10, 2026 at 1:45 PM
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Reposted by Lucibee
Grazalema, Spain, received over 2,000 mm (78 inches) of rain in just the last 20 days.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
February 9, 2026 at 4:11 PM
Grazalema, Spain, received over 2,000 mm (78 inches) of rain in just the last 20 days.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
Over a year’s worth of rain — and it’s only early February. This is hydrologically absurd.
Reposted by Lucibee
Can anyone remember an old animation about little people in glass jars a bit like Small Prophets? I'm thinking Eastern European folk story type thing. The people may have been animated paper shapes. Possibly gold? A bit like Bagpuss would have in his story sections.
February 10, 2026 at 12:35 PM
Can anyone remember an old animation about little people in glass jars a bit like Small Prophets? I'm thinking Eastern European folk story type thing. The people may have been animated paper shapes. Possibly gold? A bit like Bagpuss would have in his story sections.
Reposted by Lucibee
Another good point: This summary slide.
Shame it’s right at the end.
Shame it’s right at the end.
September 8, 2025 at 3:18 PM
Another good point: This summary slide.
Shame it’s right at the end.
Shame it’s right at the end.
Reposted by Lucibee
Thank you for your efforts. Advocacy groups and people with ME/CFS should be asking all medical schools to provide similar information. Schools that do not have an updated curriculum or no curriculum at all could be picketed on ME/CFS awareness day. Medical schools hate bad publicity.
February 9, 2026 at 9:21 PM
Thank you for your efforts. Advocacy groups and people with ME/CFS should be asking all medical schools to provide similar information. Schools that do not have an updated curriculum or no curriculum at all could be picketed on ME/CFS awareness day. Medical schools hate bad publicity.
Reposted by Lucibee
I'm pretty outspoken about the fact that I do not enjoy football, but I would pay hard-earned money to be able to participate in the halftime show dressed as a bush.
February 9, 2026 at 9:05 PM
I'm pretty outspoken about the fact that I do not enjoy football, but I would pay hard-earned money to be able to participate in the halftime show dressed as a bush.
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
February 9, 2026 at 3:57 PM
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
Channel 4 Dispatches on the proscription of Palatine Actin (or Packhorse Acumen) to air tomorrow (Monday 9 February 2026).
www.c21media.net/news/lion-tv...
www.c21media.net/news/lion-tv...
Lion TV investigates proscription of Palestine Action as terror group for C4’s Dispatches
Channel 4's Dispatches strand has investigated the UK government's decision to proscribe Palestine Action as a terrorist organisation in a programme that will air next week.
www.c21media.net
February 8, 2026 at 6:48 PM
Channel 4 Dispatches on the proscription of Palatine Actin (or Packhorse Acumen) to air tomorrow (Monday 9 February 2026).
www.c21media.net/news/lion-tv...
www.c21media.net/news/lion-tv...
Reposted by Lucibee
Great video. The homes are thoughtful, attractive and well designed. Khan is eloquent and considerate. Much more like this please.
A real pleasure to meet George Clarke and hear about his experiences growing up on a council estate. We both know the positive impact social housing can have on families’ lives.
That’s why I’m determined to continue delivering more council homes as we build a fairer London for everyone.
That’s why I’m determined to continue delivering more council homes as we build a fairer London for everyone.
February 7, 2026 at 12:20 PM
Great video. The homes are thoughtful, attractive and well designed. Khan is eloquent and considerate. Much more like this please.
Reposted by Lucibee
Good morning and happy Superb Owl day to all who celebrate! Here are superb owls for your enjoyment.
#SuperbOwl
#SuperbOwl
February 8, 2026 at 1:33 PM
Good morning and happy Superb Owl day to all who celebrate! Here are superb owls for your enjoyment.
#SuperbOwl
#SuperbOwl
I recognise that there is a conflict here, between orgs that provide advocacy (need to adhere to strict protocols for privacy, confidentiality, etc) and individuals providing advocacy (as friends or fellow sufferers, for whom those boundaries may not seem so apparent).
There is too big a void.
There is too big a void.
That would be useful, as many of us are at a loss as to what to do.
February 8, 2026 at 3:42 PM
I recognise that there is a conflict here, between orgs that provide advocacy (need to adhere to strict protocols for privacy, confidentiality, etc) and individuals providing advocacy (as friends or fellow sufferers, for whom those boundaries may not seem so apparent).
There is too big a void.
There is too big a void.
Reposted by Lucibee
While ordinary people were losing their jobs and their homes, Mandelson was acting in the best interests of a paedophile billionaire rather than the public he was supposed to serve, writes Mhairi Black ✍️
🔗 www.thenational.scot/politics/25834554.peter-mandelson-just-tip-iceberg-uk-politics/
🔗 www.thenational.scot/politics/25834554.peter-mandelson-just-tip-iceberg-uk-politics/
February 7, 2026 at 12:23 PM
While ordinary people were losing their jobs and their homes, Mandelson was acting in the best interests of a paedophile billionaire rather than the public he was supposed to serve, writes Mhairi Black ✍️
🔗 www.thenational.scot/politics/25834554.peter-mandelson-just-tip-iceberg-uk-politics/
🔗 www.thenational.scot/politics/25834554.peter-mandelson-just-tip-iceberg-uk-politics/
Reposted by Lucibee
Absolutely here for the women's speed skating. They make such great, ferocious, determined shapes. #WinterOlympics
February 7, 2026 at 4:42 PM
Absolutely here for the women's speed skating. They make such great, ferocious, determined shapes. #WinterOlympics
Reposted by Lucibee
Mark Kermode reviews Melania, so you don't have to match the new MAGA version of "Triumph of the Will"
You get the lowdown on this piece of crap in only 9 minutes
You get the lowdown on this piece of crap in only 9 minutes
Mark Kermode reviews Melania
YouTube video by Kermode and Mayo's Take
www.youtube.com
February 7, 2026 at 4:37 PM
Mark Kermode reviews Melania, so you don't have to match the new MAGA version of "Triumph of the Will"
You get the lowdown on this piece of crap in only 9 minutes
You get the lowdown on this piece of crap in only 9 minutes
Reposted by Lucibee
There are over 18,000 types of lichen in existence. My personal favourite is ‘village bench lichen’, which devotes its entire existence selflessly to gradually making communal public seating more furry and comfortable.
February 6, 2026 at 9:41 PM
There are over 18,000 types of lichen in existence. My personal favourite is ‘village bench lichen’, which devotes its entire existence selflessly to gradually making communal public seating more furry and comfortable.
Reposted by Lucibee
Use only water or fresh air on tear gas or pepper spray.
No milk, vinegar, antacids, urine, etc. and especially not in eye.
Thank me later,
An actual expert
No milk, vinegar, antacids, urine, etc. and especially not in eye.
Thank me later,
An actual expert
October 9, 2025 at 8:06 PM
Use only water or fresh air on tear gas or pepper spray.
No milk, vinegar, antacids, urine, etc. and especially not in eye.
Thank me later,
An actual expert
No milk, vinegar, antacids, urine, etc. and especially not in eye.
Thank me later,
An actual expert
Reposted by Lucibee
It took considerable courage for the jury in the Palestine Action trial to ignore the demands to convict from the judge, government, police and media and instead to weigh the actual evidence.
My latest sets out why jurors were right to reject all the bullying: www.jonathan-cook.net/blog/2026-02...
My latest sets out why jurors were right to reject all the bullying: www.jonathan-cook.net/blog/2026-02...
February 6, 2026 at 2:33 PM
It took considerable courage for the jury in the Palestine Action trial to ignore the demands to convict from the judge, government, police and media and instead to weigh the actual evidence.
My latest sets out why jurors were right to reject all the bullying: www.jonathan-cook.net/blog/2026-02...
My latest sets out why jurors were right to reject all the bullying: www.jonathan-cook.net/blog/2026-02...