Lucibee
@lucibee.bsky.social
Science defender and eco-worrier.
(she/her)
(she/her)
Reposted by Lucibee
UNRWA's compound in occupied East Jerusalem - a United Nations premises.
Seized and demolished by Israeli authorities, in an unprecedented violation of international law.
Water and electricity to UNRWA's East Jerusalem installations have also been cut.
UNRWA services must be allowed to continue.
Seized and demolished by Israeli authorities, in an unprecedented violation of international law.
Water and electricity to UNRWA's East Jerusalem installations have also been cut.
UNRWA services must be allowed to continue.
February 13, 2026 at 2:01 PM
UNRWA's compound in occupied East Jerusalem - a United Nations premises.
Seized and demolished by Israeli authorities, in an unprecedented violation of international law.
Water and electricity to UNRWA's East Jerusalem installations have also been cut.
UNRWA services must be allowed to continue.
Seized and demolished by Israeli authorities, in an unprecedented violation of international law.
Water and electricity to UNRWA's East Jerusalem installations have also been cut.
UNRWA services must be allowed to continue.
[TW Unpopular Opinion]
I'm not sure that making certain training modules "mandatory" is necessarily the right thing to do.
Often the problem is a lack of basic *core* training because of entrenched views and stigma, and a lack of any basic services.
Those issues need addressing first.
I'm not sure that making certain training modules "mandatory" is necessarily the right thing to do.
Often the problem is a lack of basic *core* training because of entrenched views and stigma, and a lack of any basic services.
Those issues need addressing first.
February 13, 2026 at 1:38 PM
[TW Unpopular Opinion]
I'm not sure that making certain training modules "mandatory" is necessarily the right thing to do.
Often the problem is a lack of basic *core* training because of entrenched views and stigma, and a lack of any basic services.
Those issues need addressing first.
I'm not sure that making certain training modules "mandatory" is necessarily the right thing to do.
Often the problem is a lack of basic *core* training because of entrenched views and stigma, and a lack of any basic services.
Those issues need addressing first.
The first of the papers mentioned in this article has one of the most astonishing figures I've ever seen wrt ME.
www.mdpi.com/ijms/ijms-24...
www.mdpi.com/ijms/ijms-24...
February 13, 2026 at 1:26 PM
The first of the papers mentioned in this article has one of the most astonishing figures I've ever seen wrt ME.
www.mdpi.com/ijms/ijms-24...
www.mdpi.com/ijms/ijms-24...
Reposted by Lucibee
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
www.medscape.com
January 9, 2026 at 2:57 PM
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Reposted by Lucibee
Literally waiting for this re: #MECFS ... had spoken to folks at Moderna about a trial for #MECFS .
Love living in this anti-science country.
Love living in this anti-science country.
In terms of what cures are being lost:
- Epstein-Barr virus is perhaps the major trigger for multiple sclerosis
- herpes simplex virus causes cold sores, genital herpes, infections in babies, deadly meningitis
- shingles virus causes an intensely painful disease
- Epstein-Barr virus is perhaps the major trigger for multiple sclerosis
- herpes simplex virus causes cold sores, genital herpes, infections in babies, deadly meningitis
- shingles virus causes an intensely painful disease
February 13, 2026 at 12:58 PM
Reposted by Lucibee
It was believed in medieval times that hedgehogs had spikes so they could roll over fruit to carry home to their children, which is not true but is a really cute idea
February 13, 2026 at 11:26 AM
It was believed in medieval times that hedgehogs had spikes so they could roll over fruit to carry home to their children, which is not true but is a really cute idea
Reposted by Lucibee
Does anyone on here know anyone (friend, partner, relative) who gets regular emails from RCGP who might be able to help me with this?
Please??????
Even if the result draws a blank?
Please??????
Even if the result draws a blank?
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
3/n
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 12, 2026 at 12:09 PM
Does anyone on here know anyone (friend, partner, relative) who gets regular emails from RCGP who might be able to help me with this?
Please??????
Even if the result draws a blank?
Please??????
Even if the result draws a blank?
Reposted by Lucibee
Happy birthday to one of my favourite haters, Charles Darwin
February 12, 2026 at 4:31 PM
Happy birthday to one of my favourite haters, Charles Darwin
Reposted by Lucibee
Reliability of LLMs as medical assistants for the general public: a randomized preregistered study added to the hub. www.pslhub.org/learn/commis... #AI #patientsafety
Reliability of LLMs as medical assistants for the general public: a randomized preregistered study (9 February 2026)
Using artificial intelligence (AI) chatbots to help seek medical advice can be "dangerous", a new study has found.
www.pslhub.org
February 12, 2026 at 1:00 PM
Reliability of LLMs as medical assistants for the general public: a randomized preregistered study added to the hub. www.pslhub.org/learn/commis... #AI #patientsafety
Does anyone on here know anyone (friend, partner, relative) who gets regular emails from RCGP who might be able to help me with this?
Please??????
Even if the result draws a blank?
Please??????
Even if the result draws a blank?
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
3/n
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 12, 2026 at 12:09 PM
Does anyone on here know anyone (friend, partner, relative) who gets regular emails from RCGP who might be able to help me with this?
Please??????
Even if the result draws a blank?
Please??????
Even if the result draws a blank?
Reposted by Lucibee
A female Hooded Merganser communicating a message to a male Hooded Merganser. I think she wanted to go for a walk, because soon after this they were strolling along the icy shoreline together.
February 11, 2026 at 10:17 PM
A female Hooded Merganser communicating a message to a male Hooded Merganser. I think she wanted to go for a walk, because soon after this they were strolling along the icy shoreline together.
Reposted by Lucibee
Major earthquakes don’t run to timetable ⏰
BAS' Dr Zakaria Ghazoui-Schaus has overturned a common assumption about earthquake prediction: that major earthquakes follow predictable cycles, and that regions can be ‘overdue’ for the next big one.
This has big consequences for disaster planning ⬇️
BAS' Dr Zakaria Ghazoui-Schaus has overturned a common assumption about earthquake prediction: that major earthquakes follow predictable cycles, and that regions can be ‘overdue’ for the next big one.
This has big consequences for disaster planning ⬇️
February 11, 2026 at 8:04 PM
Major earthquakes don’t run to timetable ⏰
BAS' Dr Zakaria Ghazoui-Schaus has overturned a common assumption about earthquake prediction: that major earthquakes follow predictable cycles, and that regions can be ‘overdue’ for the next big one.
This has big consequences for disaster planning ⬇️
BAS' Dr Zakaria Ghazoui-Schaus has overturned a common assumption about earthquake prediction: that major earthquakes follow predictable cycles, and that regions can be ‘overdue’ for the next big one.
This has big consequences for disaster planning ⬇️
Reposted by Lucibee
I love Ilia and he’s the one of the greatest figure skaters of our lifetime, but let’s not pretend he isn’t insulated by white male privilege when people talk about his backflip. I’m old enough to remember watching Surya Bonaly, a Black woman, do hers and being publicly DRAGGED for it.
It’s Completely Insane, Worth No Points and Has the Olympics Flipping Out
The most spectacular backflip at this Winter Olympics is happening on ice, not snow. And it’s the highlight of American figure skater Ilia Malinin’s program.
www.wsj.com
February 10, 2026 at 5:52 PM
I love Ilia and he’s the one of the greatest figure skaters of our lifetime, but let’s not pretend he isn’t insulated by white male privilege when people talk about his backflip. I’m old enough to remember watching Surya Bonaly, a Black woman, do hers and being publicly DRAGGED for it.
Reposted by Lucibee
the people who spread the “female brains are bad at math and spatial reasoning” lies should be tried at the Hague
Another fun wrinkle from that period (that might still exist): I was good at math and loved it and then my geometry teacher told me that I'd probably struggle because female brains were bad at spatial thinking. I kept loving math & being good at it but assumed that would end so I ended it first.
Those who weren’t resigned to the Math Idiot Garbage Bin as kids may not grasp how much “if you’re bad at math, you’ll die in a ditch and all will be better off for it” sentiment was floating around in the 90s and 2000s, but it sure felt real to me.
(my parents are great! It didn’t come from them!)
(my parents are great! It didn’t come from them!)
February 11, 2026 at 2:41 PM
the people who spread the “female brains are bad at math and spatial reasoning” lies should be tried at the Hague
Reposted by Lucibee
Some Winter Olympics athletes, teams, and their loved ones are protecting themselves from airborne pathogens by masking and isolating.
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
February 11, 2026 at 3:53 PM
Some Winter Olympics athletes, teams, and their loved ones are protecting themselves from airborne pathogens by masking and isolating.
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
Meanwhile, the media stigmatizes disease prevention while minimizing serious risks of Long COVID.
Read more from @mileswgriffis.bsky.social: bit.ly/4rHDA6R
Reposted by Lucibee
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
3/n
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 11, 2026 at 11:22 AM
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
Reposted by Lucibee
During a congressional visit, Congressman Joaquin Castro discovered that babies as young as two months old are being held at the Dilley, Texas Family Concentration Camp. (February 10, 2026)
February 11, 2026 at 4:18 AM
During a congressional visit, Congressman Joaquin Castro discovered that babies as young as two months old are being held at the Dilley, Texas Family Concentration Camp. (February 10, 2026)
Interesting.
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Painful Side Effect of Statins Explained After Decades of Mystery
Around 10 percent of people who take statins to lower cholesterol experience mysterious muscle pains, causing many to discontinue these potentially life-saving medicines.
www.sciencealert.com
February 11, 2026 at 2:58 PM
Interesting.
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Particularly after The Lancet published a monster meta-analysis to deny that this side-effect was associated with statins at all.
www.sciencealert.com/painful-side...
Reposted by Lucibee
1) "Incorporating PEM into a new conceptual model of long covid cardiac rehabilitation programmes is essential to clinically distinguish it from cardiovascular deconditioning and to safeguard patients from unintended harm"
February 11, 2026 at 1:21 PM
1) "Incorporating PEM into a new conceptual model of long covid cardiac rehabilitation programmes is essential to clinically distinguish it from cardiovascular deconditioning and to safeguard patients from unintended harm"
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
3/n
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 11, 2026 at 11:22 AM
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?
Thanks!
Thanks!
Reposted by Lucibee
Appending here... my review of Module 3 from last year: bsky.app/profile/luci...
I've just had a look at this module.
To my unexpert eye it looks reasonably OK.
The important thing to remember though is that this is not/should not be a replacement for proper clinical training in this area (of which there is none).
It does at least raise awareness among staff.
To my unexpert eye it looks reasonably OK.
The important thing to remember though is that this is not/should not be a replacement for proper clinical training in this area (of which there is none).
It does at least raise awareness among staff.
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched.
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
February 10, 2026 at 11:59 AM
Appending here... my review of Module 3 from last year: bsky.app/profile/luci...
Reposted by Lucibee
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
February 9, 2026 at 3:57 PM
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
🧵 1/n
Reposted by Lucibee
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
February 10, 2026 at 1:45 PM
Just before I received the email about the FOIA request, I was looking at the Agreed Actions of the #MEDeliveryPlan again.
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
Some of the things I noticed, I've already mentioned in my thread on the FOIA data, but here's another thing that stood out.
It was one of the items on Research:
As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan.
The Plan simply does not mention it.
Astounding. 😖
The Plan simply does not mention it.
Astounding. 😖
February 10, 2026 at 3:21 PM
As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan.
The Plan simply does not mention it.
Astounding. 😖
The Plan simply does not mention it.
Astounding. 😖
Reposted by Lucibee
In this week's #ThereForME blog our co-founder @karenlhargrave.bsky.social writes about the challenges she and her husband James have faced accessing NHS Continuing Healthcare funding.
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
![A picture of a young woman and man together smiling (Karen and James). Overlaid on the picture: "When I first came across CHC funding it felt like the perfect fit [...] Their initial assessment concluded he was eligible. Yet, one year on both our CHC application and subsequent appeal have been rejected." Karen Hargrave. New #ThereForME Substack post.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreifod7x7n4p4nd4i7wresiukfpxc4sb3rewzva7r63te4vpqpioo2m@jpeg)
February 10, 2026 at 9:19 AM
In this week's #ThereForME blog our co-founder @karenlhargrave.bsky.social writes about the challenges she and her husband James have faced accessing NHS Continuing Healthcare funding.
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇
She explains why CHC funding for very severe ME is an issue that deserves attention.
🔗 in next post 👇