Lucibee
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lucibee.bsky.social
Lucibee
@lucibee.bsky.social
Science defender and eco-worrier.
(she/her)
Reposted by Lucibee
Finally caught up with Alaa Alqaisi's essay on Palestine and the geography of vanishing. Never not read Alaa Alqaisi www.thenation.com/article/worl...
What Edward Said Teaches Us About Gaza
On Palestine and the geography of vanishing.
www.thenation.com
February 13, 2026 at 6:05 PM
Reposted by Lucibee
The Evening Post, Bristol, England. 13th February 1998.

""CFS/ME is a very poorly understood condition and services are virtually non-existent."" - twenty-seven years ago today.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs
February 13, 2025 at 10:12 PM
Reposted by Lucibee
The latest #CopernicusAtmosphere forecasts show a Saharan dust episode that will affect south-east Europe over the weekend.

The animation below shows the plume in our Aerosol Alert, based on the forecasts.

Explore more at the link: aerosol-alerts.atmosphere.copernicus.eu
February 13, 2026 at 3:48 PM
Reposted by Lucibee
This seems as good an excuse as any for a short thread introducing people to some single moths I've found in my area, looking for fun.

1. Here, for starters, is a Canary-Shouldered Thorn Moth (I didn't make this up).
February 12, 2026 at 11:54 AM
tbf they probably don't, because they likely get sent far too many emails from such orgs anyway.
But it would be nice if someone could do a quick keyword search for me... 🙏
February 13, 2026 at 3:15 PM
That's good. But even if they are learning the right things about ME, once they get into clinical training, won't it just be beaten out of them? (so to speak)
February 13, 2026 at 2:18 PM
Reposted by Lucibee
UNRWA's compound in occupied East Jerusalem - a United Nations premises.

Seized and demolished by Israeli authorities, in an unprecedented violation of international law.

Water and electricity to UNRWA's East Jerusalem installations have also been cut.

UNRWA services must be allowed to continue.
February 13, 2026 at 2:01 PM
...and of course by "the first" I mean "the earliest" 🙄
February 13, 2026 at 1:56 PM
I think there's a fairly strong sentiment of "if I didn't learn about it at medical school, it doesn't exist!"
February 13, 2026 at 1:55 PM
Also, I suspect folks get very blinkered with the training they receive, so if one bit of training conflicts with another, they will tend to default to what they have been told to do by their core training, even if the supplementary training tells them to make specific exceptions.
February 13, 2026 at 1:50 PM
For one thing, it is up to the employer to decide who requires that "mandatory" training.

Just because it is called "mandatory training" does not mean that everyone is required to do it.

I think that's an important thing to realise.
February 13, 2026 at 1:47 PM
Yesterday, I had a look at the Oliver McGowan Mandatory Training on Learning Disability and Autism, and omg it is so much more intensive and comprehensive than what's currently provided for ME/CFS, but I'm still not clear how it will achieve the aims it sets out to achieve.
The Oliver McGowan Mandatory Training on Learning Disability and Autism - elearning for healthcare
The Oliver McGowan Mandatory Training on Learning Disability and Autism
www.e-lfh.org.uk
February 13, 2026 at 1:45 PM
[TW Unpopular Opinion]

I'm not sure that making certain training modules "mandatory" is necessarily the right thing to do.

Often the problem is a lack of basic *core* training because of entrenched views and stigma, and a lack of any basic services.

Those issues need addressing first.
February 13, 2026 at 1:38 PM
The first of the papers mentioned in this article has one of the most astonishing figures I've ever seen wrt ME.

www.mdpi.com/ijms/ijms-24...
February 13, 2026 at 1:26 PM
Reposted by Lucibee
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
www.medscape.com
January 9, 2026 at 2:57 PM
Reposted by Lucibee
Literally waiting for this re: #MECFS ... had spoken to folks at Moderna about a trial for #MECFS .

Love living in this anti-science country.
In terms of what cures are being lost:

- Epstein-Barr virus is perhaps the major trigger for multiple sclerosis
- herpes simplex virus causes cold sores, genital herpes, infections in babies, deadly meningitis
- shingles virus causes an intensely painful disease
February 13, 2026 at 12:58 PM
Reposted by Lucibee
It was believed in medieval times that hedgehogs had spikes so they could roll over fruit to carry home to their children, which is not true but is a really cute idea
February 13, 2026 at 11:26 AM
Reposted by Lucibee
Does anyone on here know anyone (friend, partner, relative) who gets regular emails from RCGP who might be able to help me with this?

Please??????

Even if the result draws a blank?
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?

Thanks!
3/n

The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 12, 2026 at 12:09 PM
Do we know whether RCGP Scotland send out the same emails as RCGP England?
Kevin Deans (on X) mentioned that NHS Scotland also has a different e-learning platform.
February 12, 2026 at 8:44 PM
Reposted by Lucibee
Happy birthday to one of my favourite haters, Charles Darwin
February 12, 2026 at 4:31 PM
This thread got a bit broken, so the continuation section is here: bsky.app/profile/luci...
As I think I've said elsewhere, there is significant overlap between the modules, but there is also material that is covered in one module that then isn't covered in another. Sometimes material differs between the modules.

There are also sections that I know folks will disagree with...
February 12, 2026 at 3:58 PM
I searched the BJGP for mentions, and one of the most recent times the term appeared was here: bjgp.org/content/74/7...
Books: The Lady’s Handbook for Her Mysterious Illness: a Memoir
Sarah Ramey Fleet, 2020, PB, 432pp, £9.09, 978-1844087242 Sarah Ramey was 21 when she first became ill, and 17 years later this book, which is so much more than an illness memoir, was published, 10...
bjgp.org
February 12, 2026 at 1:15 PM
Reposted by Lucibee
Reliability of LLMs as medical assistants for the general public: a randomized preregistered study added to the hub. www.pslhub.org/learn/commis... #AI #patientsafety
Reliability of LLMs as medical assistants for the general public: a randomized preregistered study (9 February 2026)
Using artificial intelligence (AI) chatbots to help seek medical advice can be "dangerous", a new study has found.
www.pslhub.org
February 12, 2026 at 1:00 PM
I've searched and searched, and there is nothing on RCP or RCGP websites about it.

The only mention in the medical press was in Pulse when the Final #MEDeliveryPlan was announced.

But that statement was from DHSC not RCGP.

www.pulsetoday.co.uk/news/clinica...
GPs to support delivery of ME/CFS care under new NHS plan
GPs are set to play a key role in delivering care for people with mild and moderate ME/CFS under a new delivery plan.
www.pulsetoday.co.uk
February 12, 2026 at 12:11 PM
Does anyone on here know anyone (friend, partner, relative) who gets regular emails from RCGP who might be able to help me with this?

Please??????

Even if the result draws a blank?
wrt this action statement in the #MEDeliveryPlan, are there any UK GPs on here who can confirm whether the RCGP has indeed been sharing and promoting the NHSE e-learning modules on ME/CFS?

Thanks!
3/n

The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
February 12, 2026 at 12:09 PM