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lucibee.bsky.social
Lucibee
@lucibee.bsky.social
1.5K followers 720 following 3.3K posts
Science defender and eco-worrier.
(she/her)
Posts Replies Media Videos
Reposted by Lucibee
betsyladyzhets.bsky.social
Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:04 PM
lucibee.bsky.social
Wednesday 10 December is going to be a busy day for #SevereME as Adam Price's 🏴󠁧󠁢󠁷󠁬󠁳󠁿 Senedd debate is also that day.

record.senedd.wales/Motion/8884
November 25, 2025 at 4:21 PM
Reposted by Lucibee
karenlhargrave.bsky.social
A short thread with our takeaways from last week's Westminster Hall debate on government support for ME 👇

(AKA Karen gets her nerd on 🤓 + Emma brings her graphics game 🎨)
thereforme.bsky.social ThereForME @thereforme.bsky.social · 22h
Today's #ThereForME blog shares our takeaways from last week's Westminster Hall debate, tabled by @tessamunt.bsky.social

👇
Campaign Update 28. Five takeaways from Westminster Hall. MPs turned out in force. Clear cross party consensus on need for action. Severe and very severe ME got airtime. Argument for research funding bolstered. Stronger DHSC rhetoric. New #ThereForME Substack post.
November 25, 2025 at 9:52 AM
lucibee.bsky.social
What Caligula *actually* meant:

"My favourite horse would do a better job than you lot!"

www.the-tls.com/regular-feat...
Making your horse a consul
One of the best known bon mots of a Roman emperor is Caligula’s quip that he fancied making his favourite racing horse a consul (he didn’t actually do it, he just said he planned to). Traditionally th...
www.the-tls.com
November 25, 2025 at 12:28 PM
lucibee.bsky.social
This is the Davos clip that Anita Anand mentioned at the beginning of the Reith Lecture this morning on BBC Radio 4.

And had the BBC not censored his lecture, I would not have found it.

So maybe they've done us a service?

#UnintendedConsequences

www.youtube.com/watch?v=paae...
How a Historian Nailed Billionaires for Their Greed at Davos | NowThis
YouTube video by NowThis Impact
www.youtube.com
November 25, 2025 at 11:25 AM
Reposted by Lucibee
rutgerbregman.com
I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture.

They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
November 25, 2025 at 9:26 AM
Reposted by Lucibee
elisaperego78.bsky.social
Costs of #LongCovid "are estimated at an average annual burden of $1 trillion globally"

www.nature.com/articles/s41...
www.nature.com
November 23, 2025 at 10:57 PM
lucibee.bsky.social
"There is no ongoing funding for longer term follow-up of the existing cohort studies."

Read that again.

There are no long-term cohort (longitudinal) studies for Long Covid in the UK.

That is a shocking omission. UK Government / medical research bodies should be ashamed.
lucibee.bsky.social Lucibee @lucibee.bsky.social · 3d
This paragraph from Brightling and Evans' report is very concerning.

The government stopped the long-term follow-up of cohort studies in 2021. 🤦
5.10. It is our opinion, shared with many of the participants of the National Long Covid research group, that there has been a lack of progression in research funding from mid-2021. Further discussion of current and future research, along with potential gaps are described in M3. Overall, there is no ongoing funding for longer term follow-up of the existing cohort studies [Routen A 2022], the CIS [Covid Infection Survey] through ONS was stopped in March 2023, and no precision medicine studies were funded including no funding for mechanistic studies as part of Stimulate-lCP. The latter means that Stimulate-I GP may not be able to identify any variability in response to treatments that would inform next steps. There remains a substantial number of people suffering from Long Covid and there remain unanswered questions about causes, diagnostic tests and any specific treatments. In contrast, the UK's early response to Long Covid during the pandemic in terms of research was better than compared with other countries for example the National Institute of Health Recover initiative started in February 2021 (albeit a sizeable investment of over $1 billion) with awards being made in summer 2021 and 2022 [recovercovid.org] The crisis we faced due to acute Covid has subsided and correctly health priorities have been reset to address other acute and long-term conditions. However, Long Covid is now amongst these important long-term conditions and requires support commensurate to the scale of the problem i.e., research funding should be similar to other long-term conditions with a similar burden of symptoms and impact on quality of life.
November 24, 2025 at 6:23 PM
Reposted by Lucibee
lucibee.bsky.social
Statement from CATA (COVID Airborne Transmission Alliance) in response to #UKCovidInquiry report into module 2:

"Lady Hallett Shouldn’t Hold Her Breath" while waiting for the UK Government to implement the Inquiry's recommendations

www.bohs.org/media-resour...
Lady Hallett Shouldn’t Hold Her Breath, says Health Campaign Group November 21, 2025 The leaders of the COVID Airborne Transmission Alliance (CATA) are advising Baroness Hallett not to hold her breath while waiting for implementation of recommendations in the long-awaited Module 2 report of the long-running COVID-19 Inquiry. The group, formed to represent tens of thousands of healthcare professional and employee bodies, was a core participant for Module 3. It continues to highlight the UK’s failure to protect healthcare workers from life-changing respiratory diseases. BOHS - British Occupational Hygience Society - The Chartered Society for Worker Health Protection
November 23, 2025 at 11:54 AM
Reposted by Lucibee
longcovidsupport.bsky.social
1/ The Covid Inquiry's Module 2 report confirms critical failures at the highest levels of government, failures that have left millions with Long Covid and inadequate support.

We've drafted a press release in response:

www.longcovid.org/impact/news/...
Long Covid Support
To learn more visit LongCovid.org
www.longcovid.org
November 20, 2025 at 6:21 PM
Reposted by Lucibee
thesicktimes.org
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.

Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Artistic depiction of ME symptoms by a woman who has the disease, showing a woman slumped over with exhaustion in a river of blue and orange. The text reads, “The Sick Times. Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise. By Simon Spichak.” "People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous." - Jaime Seltzer Scientific director of the advocacy group #MEAction
November 24, 2025 at 4:48 PM
Reposted by Lucibee
natureportfolio.nature.com
A paper in Nature Communications defines Long COVID trajectories using data from a prospective cohort study in the US involving symptom questionnaires from acute infection up to 15 months. go.nature.com/4o3OzFr #medsky 🧪
This is figure 2, which shows a sankey diagram for longitudinal changes in Long COVID status over time, among participants prospectively followed from initial SARS-CoV-2 infection.
November 24, 2025 at 2:09 PM
Reposted by Lucibee
drjoepajak.bsky.social
Researchers conclude, 'symptom severity in Long COVID is associated with immune cell mitochondrial dysfunction and altered cytokine responses, highlighting potential disease biomarkers and targets for future therapeutic strategies.' @clionaofarrelly.bsky.social et al doi.org/10.1093/ofid...
Digitally Assessed Long COVID Symptomatology Is Associated With Lymphocyte Mitochondrial Dysfunction and Altered Immune Potential
AbstractBackground. Postacute sequelae of SARS-CoV-2 infection, also known as long COVID (LC), is a complex and heterogenous condition affecting millions w
doi.org
November 24, 2025 at 9:56 AM
Reposted by Lucibee
craftycow.bsky.social
My cat sofas are all on sale..
Many cheaper than ever before! #Caturday #Catsofbluesky #Proofofcat >>>>
www.etsy.com/uk/shop/Craf...
A black cat is sitting on a Chinese themed cat sofa with black gold brocade fabric covering and red painted platform. A black cat is sitting upright on a bright pink chaise long cat sofa. She is in profile with her tail swooping downwards. A black cat is slumped on a bright coloured cat sofa. A black cat is sitting loaf style on a blue striped cat sofa with inbuilt drawers for important cat stuff..like Dreamies and catnip.
November 22, 2025 at 2:05 PM
Reposted by Lucibee
mark-ungrin.bsky.social
Province that has no plan to deal with the #longCOVID destroying the healthcare workforce turns to AI to hallucinate a world in which that problem has a solution that doesn't involve facing reality.
In the wake of a scandal involving fabricated sources found in the province’s Education Accord, The Independent has confirmed another major government-commissioned policy report contains false citations like generated by artificial intelligence, calling into question the credibility of policy papers involving the use of AI. Authored by global consulting firm Deloitte and published by the Department of Health and Community Services in May, Newfoundland and Labrador’s Health Human Resources Plan contains at least four citations which do not, or appear not to, exist. The report cost the province nearly $1.6 million, according to documents obtained through an access to information request and published on blogger Matt Barter’s website. The Health Human Resources Plan was commissioned by the previous Liberal government as part of its efforts to develop an effective human resource strategy for the province’s healthcare sector, which has been plagued by nurse and doctor staffing shortages.
November 23, 2025 at 8:09 AM
Reposted by Lucibee
lucibee.bsky.social
[with alt text]
The Daily Politik Unpaid carers not in paid work and not seeking employment are typically classifed as economically inactive. According to the most recent data from Carers UK, there are 5.8 million unpaid carers in the UK as of December 2024 with 2.6 million of these having given up paid work to care. This represents about 9% of the adult population providing regular unpaid support to family members, friends, or others with illnesses, disabilities, or age-related needs. Unpaid carers play a vital role in our society, contributing an estimated £184 billion in economic vlaue annually. Social Care services would collapse overnight without them. They deserve support and recognition, yet over 1.2 million live in poverty (50% higher rate than non-carers), with 1 in 10 in "deep poverty" unable to afford food or heating.
November 23, 2025 at 2:08 PM
lucibee.bsky.social
Statement from CATA (COVID Airborne Transmission Alliance) in response to #UKCovidInquiry report into module 2:

"Lady Hallett Shouldn’t Hold Her Breath" while waiting for the UK Government to implement the Inquiry's recommendations

www.bohs.org/media-resour...
Lady Hallett Shouldn’t Hold Her Breath, says Health Campaign Group November 21, 2025 The leaders of the COVID Airborne Transmission Alliance (CATA) are advising Baroness Hallett not to hold her breath while waiting for implementation of recommendations in the long-awaited Module 2 report of the long-running COVID-19 Inquiry. The group, formed to represent tens of thousands of healthcare professional and employee bodies, was a core participant for Module 3. It continues to highlight the UK’s failure to protect healthcare workers from life-changing respiratory diseases. BOHS - British Occupational Hygience Society - The Chartered Society for Worker Health Protection
November 23, 2025 at 11:54 AM
Reposted by Lucibee
claguenjc36.bsky.social
71 responses in 4 days. Thank you to all hcps who have answered the survey so far. Please keep sharing. You can stop and restart the survey so it does allow for pacing. Thank you for all your insights, so valuable. @physiosforme.bsky.social
physiosforme.bsky.social Physios For ME @physiosforme.bsky.social · 7d
🚨New survey alert 🚨

The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME

All information can be found on the landing page here.

www.physiosforme.com/hcpwithmesur...
hcps with ME survey | Physiosforme
www.physiosforme.com
November 23, 2025 at 7:55 AM
Reposted by Lucibee
lucibee.bsky.social
Back to part 1 of the Module 2 report, and this section of chapter 1, which covers Long Covid.

There are a few things here that are just incorrect. Although if these are the presumptions of those involved, it explains why we are where we are.

covid19.public-inquiry.uk/reports/modu...
Complications or resulting conditions 1.51. Viral infections can cause long-term illnesses – known as ‘long-term sequelae’ – after the initial acute infection. While these may appear rare for most viruses, large numbers of cases can occur at the same time when the virus is at the scale of a pandemic.68Not all viruses will cause significant long-term illnesses, and this was not a “major common problem” for viruses such as severe acute respiratory syndrome coronavirus 1 (SARS-CoV-1), which causes SARS and is closely related to severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2, which causes Covid-19) and Middle East respiratory syndrome coronavirus (MERS-CoV), which causes MERS.69 As Professor Whitty told the Inquiry: “Some very severe diseases rarely have post infection syndromes whilst other relatively trivial infections can have quite common and prolonged ones.”70 1.52. While the potential for long-term illnesses to occur is predictable, the scale and characteristics of those illnesses vary from virus to virus and cannot be predicted.71 The long-term illnesses arising from Covid-19 are commonly described as Long Covid. Over 200 symptoms of Long Covid have been reported, though it often involves fatigue, breathlessness and ‘brain fog’, impacting on both mental and physical function and leading to disability and impaired health.72 Much remains unknown about the mechanisms causing Long Covid.73 The percentage of those who go on to develop it following infection with Covid-19 also remains unknown – the World Health Organization has estimated that between 10% and 20% of infected people will develop Long Covid.74 Chapter 1 footnotes - annotated to say where they have come from - mainly Chris Whitty and Jenny Harries' Fourth witness statements, and Chris Brighling and Rachael Evans' Report on Long Covid.
November 22, 2025 at 3:40 PM
Reposted by Lucibee
acjsissons.bsky.social
There’s some very bad news hidden in the Ofgem price cap for January announced yesterday: the electricity to gas price ratio has jumped to 4.67, its highest level since before the energy crisis.

This is a big barrier to households adopting heat pumps in Britain, and threatens our climate goals
Line graph shows the electricity to gas price ratio in GB since 2019. It was very high before the energy crisis, then fell (due to higher gas prices) and was flat since until jumping sharply in the new price cap period
November 22, 2025 at 7:51 AM
Reposted by Lucibee
drjoepajak.bsky.social
Aerosol transmission of SARSCoV2 virus is the dominant route for transmitting COVID-19.
👏'2025 Faraday Horizon Prize for advancing understanding of the physicochemical properties of exhaled aerosols, and their impact on transmissibility of respiratory pathogens.' @rsc.org
www.rsc.org/standards-an...
Aerosol transmission of SARSCoV2 virus is the dominant route for transmitting COVID-19. 👏'2025 Faraday Horizon Prize for advancing understanding of the physicochemical properties of exhaled aerosols, and their impact on transmissibility of respiratory pathogens.' @rsc.org https://www.rsc.org/standards-and-recognition/prizes/winners/the-perform-covid-19-team
June 25, 2025 at 11:20 AM
Reposted by Lucibee
mark-ungrin.bsky.social
IMO "the Inquiry has not seen evidence of any specific campaigns..." prior to 2021 bit speaks volumes.

A great many of the guilty parties have tried to have it both ways, doing nothing, but quietly laying the foundations to say "I always knew" when the denial becomes unsustainable even in medicine.
mark-ungrin.bsky.social Mark Ungrin @mark-ungrin.bsky.social · Mar 15
Dr Henry appears to be trying to hide a few minimalist admissions in various places to prepare for future rewriting of history, but she's also forbidden BC institutions to accept the need to mitigate aerosol transmission.

She's still killing people, just protecting her CV.

bsky.app/profile/mark...
mark-ungrin.bsky.social Mark Ungrin @mark-ungrin.bsky.social · Dec 24
BC's Dr Henry & BCCDC just released a report dated December 2024 (but if you check the "cited" data in the references the information hasn't been updated in two years) quietly 👉admitting COVID is airborne and transmitted in aerosols.👈

H/T @notatmypicnic.bsky.social

www2.gov.bc.ca/assets/gov/h...
November 21, 2025 at 7:02 PM
lucibee.bsky.social
Just scanning through this document, there are some interesting points of focus as well as some interesting omissions.

I'll go through those that immediately leap out to me below...
November 21, 2025 at 6:50 PM
Reposted by Lucibee
mark-ungrin.bsky.social
The second report of the UK COVID Inquiry is out. The two volumes are here: covid19.public-inquiry.uk/documents/mo...

The section on "The focus on handwashing over ventilation" begins in section 12.32 of the second volume (page 167 in the PDF of voume 2).

#itsairborne #COVID #longCOVID #aerosol
Module 2, 2A, 2B, 2C Report - Core decision-making and political governance UK Covid-19 Inquiry Archives
A report by The Rt Hon the Baroness Hallett DBE, Chair of the UK Covid-19 Inquiry on the core decision-making and political governance, dated 20 November 2025.
covid19.public-inquiry.uk
November 20, 2025 at 11:09 PM
Reposted by Lucibee
julialmv.bsky.social
I've been surprised to see how many Long COVID trials focus on exercise & how few measure PEM.

Thanks to @spichaksimon.bsky.social for covering this in @thesicktimes.org

"Testing exercise is “money down the drain” & won’t advance understanding of LC, experts say"

thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 4:47 PM