Definition of the problem The concept of intersectionality is receiving increasing attention in international bioethical research on reproductive medicine. In medical ethics in German-speaking countri...

Background The screening of newborns for severe congenital diseases has been a success story since the 1960s. With the upsurge of genomic sequencing technologies, the question arises: Should genomic N...

Definition of the problem Assistance systems based on machine learning are increasingly being used in medical imaging diagnostics. But can physicians still take responsibility for a diagnosis if they ...

Definition of problem Newborn screening (NBS) is an internationally successful program for the secondary prevention of rare congenital diseases. At present, most of the target conditions in NBS are di...

Ethik in der Medizin -

Ethik in der Medizin -

Definition of the problem This article examines the ethical implications of genomic newborn screening (gNBS) from a hermeneutic perspective. Decisions on criteria for preventive actionability, as well as on the detailed analysis and disclosure of genetic information to parents or to those affected, largely depend on the meaning and significance of the genetic information in question. gNBS represents a new form of genetic communication in which also popular understandings of the special significance of the genome play a role. Arguments The concept of „temporal vulnerability“ (Janna Thompson) can highlight the challenges faced by children who cannot consent to the collection of their genomic data at birth. Based on two case studies that are far apart in terms of actionability—familial hypercholesterolemia and complete androgen insensitivity syndrome—the paper discusses how to find the ethically relevant reasons that play a role in deciding about early genetic diagnosis. Conclusions We advocate for a nuanced ethical framework that considers not only medical actionability but also the broader societal impacts of making genomic information available from birth.

Definition of the problem This article examines the ethical implications of genomic newborn screening (gNBS) from a hermeneutic perspective. Decisions on criteria for preventive actionability, as well...

Problem Trust and trustworthiness are usually highly valued in modern medicine. These phenomena are seen as components of a good patient–doctor relationship (P-D-R). In the field of artificial intelli...

Background Newborn screening (NBS) is a coordinated and comprehensive public health program that includes parent and provider education, the collection of dried blood spot specimens, testing and patie...

Definition of the problem The article presents a historical analysis and interpretation of the construct “History, Theory and Ethics of Medicine” (abbreviated as GTE in German) in German medical educa...

Die Monatszeitschrift Bundesgesundheitsblatt – Gesundheitsforschung – Gesundheitsschutz umfasst alle Fragestellungen und Bereiche, mit denen sich das ...

In diesem Open-Access-Sammelband werden Forschungsergebnisse zu gesundheitlichen und sozialen Lebensbedingungen alter Menschen gebündelt.

Die Zeitschrift Ethik in der Medizin widmet sich der interdisziplinären wissenschaftlichen Erforschung und Vermittlung von Ethik in der Medizin in allen ...

Definition of the problem This article discusses the legal challenges associated with the use and storage of blood samples collected as part of newborn screening programs. A key question is whether th...

Ethik in der Medizin -

Definition of the problem Seldom does a day go by at the hospital without an admission out of a ‚social indication‘. But is it just as easy to speak of a ‚social contraindication‘? This topic is avoid...

Ethik in der Medizin -

Background Medically assisted reproduction (MAR) has expanded the chances people have to reproduce, but it has also raised a number of ethical issues on how to use these technologies. One of the most ...