Excited that Dr Sharifa Battashi @qmul-wiph.bsky.social is sharing insights from our @mssocietyuk.bsky.social participatory research project

She’ll be speaking about working with peer researchers to explore collaborative data analysis in practice

Project info here: www.mspeerresearch.co.uk

Fascinating talk by Dr Alison Thompson @qmul.bsky.social on design-led & participatory research #NThamesArcECR

Understanding how people make sense of prevention is crucial. Check out our editorial co-written with Rachel Horne, Charlotte Kenten, Sube Banerjee, Sallyann Browning, Tommy Pouncey ‪@claudiacooper.bsky.social‬ #DeNPRU-QM onlinelibrary.wiley.com/doi/full/10.... @qmul-wiph.bsky.social

The NHS #10YearPlan calls for a shift to prevention. But what does that mean for dementia, MS or Parkinson’s? People with lived experience preferred “stop diseases before they start” to describe primary and early secondary prevention (clearer language that made more sense).

Awareness of possible preventative measures was highest for dementia: 43% said they knew what to do to prevent it or had some knowledge. Fewer (< 10%) knew about MS and Parkinson's disease preventative measures

Around half of those surveyed said they would be willing to take part in a research study on preventing dementia, MS, or Parkinson’s disease

What does the public think about preventing dementia, MS & Parkinson’s? @denpru-qm.bsky.social has just released findings from our YouGov poll, surveying 1,700 people in England, to explore attitudes to neurological prevention: bit.ly/3TwiN7l

Led by @alisonthomson.bsky.social, the briefing summarises results from a @yougov.co.uk poll of over 1,700 people in England. Read more below 👇

📑 Policy briefing: qmro.qmul.ac.uk/xmlui/handle...

📊 Poll results & editorial: denpru-qmul.nihr.ac.uk/resources/

#denpruQM #prevention

In Oslo for #ECSM2025 with Megan Clinch, asking what happens when public participation in health research is promised but structurally constrained. We share insights on why involvement often falls short, and how speculative, performative approaches might reconfigure it.
Abstracts: lnkd.in/ez-GanFc