Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus

@lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social

#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights.
@lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social
Kathleen Arntsen,
Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen,
Autumn Austin

The Lupus Walk webpage is live! Join us on May 17th by walking or running to benefit lupus research sponsored by @masonicresearch.bsky.social and #LADAorg while also promoting #LupusAwareness during Lupus Awareness Month.

www.mmri.edu/ways-to-give...

Are you ready to show your support for those affected by #lupus on May 10th by sharing facts about lupus and proudly wearing your purple for #WorldLupusDay #MakeLupusVisible WorldLupusDay.org/tool-kit @lupus.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

A Truly Amazing DOCTOR is hard to find
Difficult to part with
AND Impossible to Forget
Thank You Doctor Moorthy 💜🦋🥼
#LupusChat
#LupusAwareness

@lupuschat.bsky.social
@ladaorg.bsky.social
@lupusresearch.bsky.social

Our next #LupusChat will be on Sunday, May 4 at 3PM Eastern Time! Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date!

Lupus is often life altering, dream stealing, career ending and physically, emotionally and financially devastating, but you can have a full life by becoming educated and empowered. With only 2 days to go ‘til Lupus Awareness Month, please read and share our daily Lupus facts. @lupuschat.bsky.social

#Lupus is a complex chronic inflammatory #autoimmune disease in which a triggering agent causes the immune system to dysregulate and attack the patient’s tissue in any organ system of the body; including the skin, joints, kidney, brain, heart, lungs, blood & blood vessel. @lupuschat.bsky.social

A person with #lupus takes between 8 and 12 medications a day, requiring careful attention to drug interactions and unique allergies and sensitivities and a team approach. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @ghlforg.bsky.social

#Lupus clinical research has been problematic due to the lack of basic understanding of the disease, reliable biomarkers, and uniform control groups, clinical outcome measure limitations and the heterogeneity of the patient population. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social

We were thrilled to sponsor the 40th Annual Health Policy Ball to support #healthpolicy fellows. Loved networking with passionate stakeholders like #SequoiaRagland from the House Health Committee.
#HealthProm25 #patientvoice #KathleenArntsen @annezab.bsky.social
@infusionaccessfoundation.org

The #LADAorg Board was honored to attend the @masonicresearch.bsky.social 1958 Gala to represent the #PatientVoice and support #Lupus, Autoimmune, Cardiovascular, and Autism research. Kudos to Maria Kontaridis and her staff for hosting such an amazing event! @annezab.bsky.social

#LADAorg thanks our patient experts @annezab.bsky.social Kaamilah Gilyard and Whitney LaBar for attending #CARRA2025 to provide valuable #patient insights and interact with the amazing CARRA research community!

carrainc research community!

#FluSeason is here, and if you have #lupus, protecting yourself from infection is essential. With a higher risk due to lupus and treatments, proactive steps like flu shots and managing exposure can help.

Learn more tips: buff.ly/41jQ9eI

We’re at the finish line! @speakerjohnson.bsky.social help us make history by including the #MCEDAct in the end of year package. This legislation will revolutionize #cancer detection, improve survivorship, and save lives. Cancer doesn’t wait, and neither should we. #MCED @acscan.bsky.social

Investing in #HealthForAll means protecting people, especially the most vulnerable among us, from impoverishing health costs and financial hardship caused by illness.

It’s on the government to adopt laws and budgets that guarantee the right to health for everyone, everywhere.

@govkathyhochul.bsky.social please prioritize passing step therapy reform & sign #A901AS1267A. NYers shouldn't have to suffer through ineffective treatments before receiving the medication they truly need. It's time to prioritize patient well-being over unreasonable cost-cutting measures.

Patients, families and communities across NY cannot wait any longer for access to #MCED technologies. The time for Congress to act is NOW – we urge Congress to pass the #MCEDAct this year @schumer.senate.gov
#HakeemJeffers
@ghlforg.bsky.social @acscan.bsky.social @infusioncenter.bsky.social