ARRE Foundation
21 followers
LightNews LightNews
Research Elements
Research Elements
@reselements.bsky.social
RASopathies Network
RASopathies Network
@rasnet.bsky.social
Junior Einsteins Science Club®
Junior Einsteins Science Club®
@junioreinsteins.bsky.social
Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
@engagedroadmap.bsky.social
The MED13L Foundation
The MED13L Foundation
@med13lfoundation.bsky.social
Razor's Edge
Razor's Edge
@razorbedamned.bsky.social
Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
Catherine Stratton, MPH
Catherine Stratton, MPH
@cathsmstratton.bsky.social
Kabuki Syndrome Foundation
Kabuki Syndrome Foundation
@kabukisyndrome.bsky.social
Sünne van Gemert-Godbersen
Sünne van Gemert-Godbersen
@sunnevgg.bsky.social
Maddie Gillentine, PhD
Maddie Gillentine, PhD
@maddiegillentine.bsky.social
Eric Conway
Eric Conway
@conwayer1.bsky.social
Bohring-Opitz Syndrome/ASXL1
Bohring-Opitz Syndrome/ASXL1
@bohring-opitz.bsky.social
Alysha
Alysha
@lookatthisimage.bsky.social
CRID - Unique Patient ID for rare disease clinical research
CRID - Unique Patient ID for rare disease clinical research
@thecrid.bsky.social
The Rare Disease Data Repository
The Rare Disease Data Repository
@therddr.bsky.social
Barbara Rachelson
Barbara Rachelson
@barbararvt.bsky.social
Coalition to Cure CHD2
Coalition to Cure CHD2
@curechd2.bsky.social