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The Autidacts community project: Explore news on autism, articles, translations, a list of autistic authors, interactive bibliographies, and more...
https://autidacts.org
#AutismArticles #AutisticAuthors #Autism #Autistic #ActuallyAutistic #AutRes
https://autidacts.org
#AutismArticles #AutisticAuthors #Autism #Autistic #ActuallyAutistic #AutRes
5/6 First task: verify whether each publication explicitly reports AIMS-2-TRIALS support (quick, form-based).
Even limited help would be fantastic — tracing autistic participation across ~350 studies is a collective effort, and your contribution moves us forward.
Discord: discord.gg/3NhpBrxm
Even limited help would be fantastic — tracing autistic participation across ~350 studies is a collective effort, and your contribution moves us forward.
Discord: discord.gg/3NhpBrxm
Join the Autistic Participatory Metrics Discord Server!
The Autistic Participatory Metrics Discord coordinates the broader Autistic Participatory Metrics project. | 15 members
discord.gg
September 20, 2025 at 2:10 PM
5/6 First task: verify whether each publication explicitly reports AIMS-2-TRIALS support (quick, form-based).
Even limited help would be fantastic — tracing autistic participation across ~350 studies is a collective effort, and your contribution moves us forward.
Discord: discord.gg/3NhpBrxm
Even limited help would be fantastic — tracing autistic participation across ~350 studies is a collective effort, and your contribution moves us forward.
Discord: discord.gg/3NhpBrxm
5/6 With ~€115M total funding (incl. ~€55M from the EU) and hundreds of papers, plus a stated commitment to involving autistic people and carers across the project, it’s ideal for examining how participation is described and reported.
September 20, 2025 at 2:10 PM
5/6 With ~€115M total funding (incl. ~€55M from the EU) and hundreds of papers, plus a stated commitment to involving autistic people and carers across the project, it’s ideal for examining how participation is described and reported.
4/6 We apply the framework to peer-reviewed outputs that acknowledge AIMS-2-TRIALS funding. Launched 2018–2026, it’s a large European biomedical programme uniting multiple groups to study autism across the lifespan.
September 20, 2025 at 2:10 PM
4/6 We apply the framework to peer-reviewed outputs that acknowledge AIMS-2-TRIALS funding. Launched 2018–2026, it’s a large European biomedical programme uniting multiple groups to study autism across the lifespan.
3/6 This evaluation is fully independent of the consortium, organized by volunteers via Discord. A protocol draft and a proposed timeline are available for consultation.
Protocol draft: go.cedricdetienne.be/1
Protocol draft: go.cedricdetienne.be/1
September 20, 2025 at 2:10 PM
3/6 This evaluation is fully independent of the consortium, organized by volunteers via Discord. A protocol draft and a proposed timeline are available for consultation.
Protocol draft: go.cedricdetienne.be/1
Protocol draft: go.cedricdetienne.be/1
2/6 Our first case study examines peer-reviewed publications supported by AIMS-2-TRIALS (~350+). We’ll assess how participatory practices are reported using a structured GRIPP2-LF–based framework.
September 20, 2025 at 2:10 PM
2/6 Our first case study examines peer-reviewed publications supported by AIMS-2-TRIALS (~350+). We’ll assess how participatory practices are reported using a structured GRIPP2-LF–based framework.
I should clarify that the article would, of course, not be made available on Autidacts. However, it would allow us to build the interactive bibliography, which is one of Autidacts.org 's strengths.
August 20, 2025 at 7:14 AM
I should clarify that the article would, of course, not be made available on Autidacts. However, it would allow us to build the interactive bibliography, which is one of Autidacts.org 's strengths.
Hello, Autidacts.org is interested in having a private copy to add your article to its database. (sorry, I can't seem to send a private message)
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August 20, 2025 at 5:29 AM
Hello, Autidacts.org is interested in having a private copy to add your article to its database. (sorry, I can't seem to send a private message)
"This suggests that camouflaging is not always responsive to the mechanisms targeted in traditional CBT and emphasizes the importance of contextual, identity-affirming approaches in intervention design."
So why persist in applying traditional CBT to autistic people?
So why persist in applying traditional CBT to autistic people?
August 9, 2025 at 2:38 PM
"This suggests that camouflaging is not always responsive to the mechanisms targeted in traditional CBT and emphasizes the importance of contextual, identity-affirming approaches in intervention design."
So why persist in applying traditional CBT to autistic people?
So why persist in applying traditional CBT to autistic people?
The expression "**person-centered** quantitative phenotypic analysis" sounds impressive but is ultimately rather empty.
August 7, 2025 at 12:16 PM
The expression "**person-centered** quantitative phenotypic analysis" sounds impressive but is ultimately rather empty.
5/5
Project link: github.com/cedric-detie...
Project link: github.com/cedric-detie...
GitHub - cedric-detienne/Autistic-participatory-metrics: Empirical tools and methods to analyse participatory approaches in autism research
Empirical tools and methods to analyse participatory approaches in autism research - cedric-detienne/Autistic-participatory-metrics
github.com
May 24, 2025 at 4:35 PM
5/5
Project link: github.com/cedric-detie...
Project link: github.com/cedric-detie...
4/5
Of course, this analysis is based on what is reported in the studies. But given how little information is publicly available about the actual participation of autistic people in the consortium, it's probably better than nothing.
Of course, this analysis is based on what is reported in the studies. But given how little information is publicly available about the actual participation of autistic people in the consortium, it's probably better than nothing.
May 24, 2025 at 4:35 PM
4/5
Of course, this analysis is based on what is reported in the studies. But given how little information is publicly available about the actual participation of autistic people in the consortium, it's probably better than nothing.
Of course, this analysis is based on what is reported in the studies. But given how little information is publicly available about the actual participation of autistic people in the consortium, it's probably better than nothing.
3/5
Rather than relying on institutional branding, this project aims to ground evaluation in actual evidence of co-production and participation.
Rather than relying on institutional branding, this project aims to ground evaluation in actual evidence of co-production and participation.
May 24, 2025 at 4:35 PM
3/5
Rather than relying on institutional branding, this project aims to ground evaluation in actual evidence of co-production and participation.
Rather than relying on institutional branding, this project aims to ground evaluation in actual evidence of co-production and participation.
2/5
The focus will be on identifying concrete indicators of participation within the studies — to assess whether claims that autistic individuals are “equal partners” in AIMS-2-TRIALS (Loth 2023, doi:10.3389/fpsyt.2023.1085445) hold up under scrutiny.
The focus will be on identifying concrete indicators of participation within the studies — to assess whether claims that autistic individuals are “equal partners” in AIMS-2-TRIALS (Loth 2023, doi:10.3389/fpsyt.2023.1085445) hold up under scrutiny.
May 24, 2025 at 4:35 PM
2/5
The focus will be on identifying concrete indicators of participation within the studies — to assess whether claims that autistic individuals are “equal partners” in AIMS-2-TRIALS (Loth 2023, doi:10.3389/fpsyt.2023.1085445) hold up under scrutiny.
The focus will be on identifying concrete indicators of participation within the studies — to assess whether claims that autistic individuals are “equal partners” in AIMS-2-TRIALS (Loth 2023, doi:10.3389/fpsyt.2023.1085445) hold up under scrutiny.
1/1
You might find this interesting. A new citizen-led research initiative is launching with the specific goal of analyzing all peer-reviewed publications funded by the AIMS-2-TRIALS consortium.
You might find this interesting. A new citizen-led research initiative is launching with the specific goal of analyzing all peer-reviewed publications funded by the AIMS-2-TRIALS consortium.
May 24, 2025 at 4:35 PM
1/1
You might find this interesting. A new citizen-led research initiative is launching with the specific goal of analyzing all peer-reviewed publications funded by the AIMS-2-TRIALS consortium.
You might find this interesting. A new citizen-led research initiative is launching with the specific goal of analyzing all peer-reviewed publications funded by the AIMS-2-TRIALS consortium.
All feedback and suggestions are welcome — especially critical feedback on the methodological approach.
github.com/cedric-detie...
github.com/cedric-detie...
GitHub - cedric-detienne/Autistic-participatory-metrics: Empirical tools and methods to analyse participatory approaches in autism research
Empirical tools and methods to analyse participatory approaches in autism research - cedric-detienne/Autistic-participatory-metrics
github.com
May 20, 2025 at 1:51 PM
All feedback and suggestions are welcome — especially critical feedback on the methodological approach.
github.com/cedric-detie...
github.com/cedric-detie...
Using a different methodology, the (nascent) citizen project Autistic Participation Metrics will also try “to look into this further, and better.”
The project is led by people who are “skeptical” (as you suggest), yet supportive of the efforts made by autistic people within A2T.
The project is led by people who are “skeptical” (as you suggest), yet supportive of the efforts made by autistic people within A2T.
May 20, 2025 at 1:51 PM
Using a different methodology, the (nascent) citizen project Autistic Participation Metrics will also try “to look into this further, and better.”
The project is led by people who are “skeptical” (as you suggest), yet supportive of the efforts made by autistic people within A2T.
The project is led by people who are “skeptical” (as you suggest), yet supportive of the efforts made by autistic people within A2T.
Regarding "autism research", refer them to the list of autistic researchers whose work is highlighted on Autidacts.org (both the list and the featured work are evolving...)
autidacts.org/en/pg/list-a...
autidacts.org/en/pg/list-a...
May 20, 2025 at 1:41 PM
Regarding "autism research", refer them to the list of autistic researchers whose work is highlighted on Autidacts.org (both the list and the featured work are evolving...)
autidacts.org/en/pg/list-a...
autidacts.org/en/pg/list-a...
Thank you for your message. I posted a short note following the announcement of your article's publication.
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bsky.app/profile/tere...
Following the journal's open peer review policy, the paper will receive public comments, and we will submit further revisions based on that feedback. In brief, our findings show... 2/4
May 20, 2025 at 10:41 AM
Thank you for your message. I posted a short note following the announcement of your article's publication.
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bsky.app/profile/tere...
Just a note: the “4 % of researchers (...) formally diagnosed autistic” figure comes from the survey sample (under half of consortium members responded). Autistic researchers may have been more motivated to take part, so the true proportion across the whole consortium could differ.
May 20, 2025 at 10:37 AM
Just a note: the “4 % of researchers (...) formally diagnosed autistic” figure comes from the survey sample (under half of consortium members responded). Autistic researchers may have been more motivated to take part, so the true proportion across the whole consortium could differ.
Post 5 / 5
I want to emphasize that my very direct response should in no way downplay the effort you put into tackling this very sensitive issue.
I want to emphasize that my very direct response should in no way downplay the effort you put into tackling this very sensitive issue.
May 20, 2025 at 10:30 AM
Post 5 / 5
I want to emphasize that my very direct response should in no way downplay the effort you put into tackling this very sensitive issue.
I want to emphasize that my very direct response should in no way downplay the effort you put into tackling this very sensitive issue.
Post 4 / 5
We appreciate your approach, though this disagreement over the numbers may undercut the strength of your conclusion: “The 4% formal diagnosis rate in the consortium is higher than the worldwide”
We appreciate your approach, though this disagreement over the numbers may undercut the strength of your conclusion: “The 4% formal diagnosis rate in the consortium is higher than the worldwide”
May 20, 2025 at 10:30 AM
Post 4 / 5
We appreciate your approach, though this disagreement over the numbers may undercut the strength of your conclusion: “The 4% formal diagnosis rate in the consortium is higher than the worldwide”
We appreciate your approach, though this disagreement over the numbers may undercut the strength of your conclusion: “The 4% formal diagnosis rate in the consortium is higher than the worldwide”
Post 3 / 5
Only 124 researchers filled out the questionnaire, yet the pre-print notes “239 active contributors” in the consortium. So the quoted 4 % is five autistic respondents out of 124—but against the full 239-person team that’s closer to 2 %, a very different picture.
Only 124 researchers filled out the questionnaire, yet the pre-print notes “239 active contributors” in the consortium. So the quoted 4 % is five autistic respondents out of 124—but against the full 239-person team that’s closer to 2 %, a very different picture.
May 20, 2025 at 10:30 AM
Post 3 / 5
Only 124 researchers filled out the questionnaire, yet the pre-print notes “239 active contributors” in the consortium. So the quoted 4 % is five autistic respondents out of 124—but against the full 239-person team that’s closer to 2 %, a very different picture.
Only 124 researchers filled out the questionnaire, yet the pre-print notes “239 active contributors” in the consortium. So the quoted 4 % is five autistic respondents out of 124—but against the full 239-person team that’s closer to 2 %, a very different picture.