Ayça Şahin
@aycasahin.bsky.social
Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
I’m part of SMA in many ways — as a patient, a sister, and a PhD candidate. I'm in close contact with many SMA families and have long advocated for our rights and real awareness. I’m happy to be part of SMA Europe. I hope one day our slogan comes true — and no one is left behind.
Being a volunteer at SMA Europe means being part of a family built on care and trust. 💙 “No one is left behind.” — Ayça 🇹🇷
Thank you to our volunteers for your kindness and strength. Together, #WeAreOne 💫
#SMAEurope #Community #Inclusion #InternationalVolunteerDay
Thank you to our volunteers for your kindness and strength. Together, #WeAreOne 💫
#SMAEurope #Community #Inclusion #InternationalVolunteerDay
December 5, 2025 at 9:46 AM
I’m part of SMA in many ways — as a patient, a sister, and a PhD candidate. I'm in close contact with many SMA families and have long advocated for our rights and real awareness. I’m happy to be part of SMA Europe. I hope one day our slogan comes true — and no one is left behind.
There are now three FDA-approved treatment options available for people with SMA of all ages! I’m looking forward to the EMA decisions on Itvisma, high-dose Spinraza, and Apitegromab. We’ll learn more in 2026!
Breaking News! 📣🧬 Today, Novartis announced that the company has received the FDA approval for Itvisma® (onasemnogene abeparvovec-brve. In Europe, the therapy is currently undergoing a Joint Clinical Assessment, with results expected in mid-2026 https://bit.ly/4pzd5Qb #spinalmuscularatrophy
November 26, 2025 at 2:48 PM
There are now three FDA-approved treatment options available for people with SMA of all ages! I’m looking forward to the EMA decisions on Itvisma, high-dose Spinraza, and Apitegromab. We’ll learn more in 2026!
Happy Spinraza Day with the 21st dose! Soon, we'll learn FDA's decisions on higher dose Spinraza and Apitegromab! Fingers crossed! 🍀🤞🏻
September 22, 2025 at 8:40 PM
Happy Spinraza Day with the 21st dose! Soon, we'll learn FDA's decisions on higher dose Spinraza and Apitegromab! Fingers crossed! 🍀🤞🏻
Here is the photo of the 20th dose of Spinraza! ❤
May 28, 2025 at 2:33 PM
Here is the photo of the 20th dose of Spinraza! ❤
My giant gel and me. Hours of work, but it was worth it—the experiment worked! Sending lots of love to my trusty deltoid muscles; they've been putting in the work these past two days!
March 28, 2025 at 6:28 PM
My giant gel and me. Hours of work, but it was worth it—the experiment worked! Sending lots of love to my trusty deltoid muscles; they've been putting in the work these past two days!
Here on BlueSky! 🌟
I’m a PhD candidate in Neuroscience. Spinal Muscular Atrophy (SMA) is both my scientific focus and personal experience, as my brother and I both have SMA. Eager to connect with researchers across fields—from genetics and neurology to patient-centered science and beyond.
I’m a PhD candidate in Neuroscience. Spinal Muscular Atrophy (SMA) is both my scientific focus and personal experience, as my brother and I both have SMA. Eager to connect with researchers across fields—from genetics and neurology to patient-centered science and beyond.
March 16, 2025 at 8:37 PM
Here on BlueSky! 🌟
I’m a PhD candidate in Neuroscience. Spinal Muscular Atrophy (SMA) is both my scientific focus and personal experience, as my brother and I both have SMA. Eager to connect with researchers across fields—from genetics and neurology to patient-centered science and beyond.
I’m a PhD candidate in Neuroscience. Spinal Muscular Atrophy (SMA) is both my scientific focus and personal experience, as my brother and I both have SMA. Eager to connect with researchers across fields—from genetics and neurology to patient-centered science and beyond.