feverishness is one of my least favourite symptoms because i just feel slightly wrong and it unnerves me

every time i’ve left the house in the last few months i’ve been left horrendously unwell afterwards. i don’t want to end up housebound again but it’s looking like we’re going that way :(

crash caused so much nausea i had to beg gp for anti nausea medication bc i couldn’t eat. i have no idea why this one is different

i’ve got my diagnosis, i have my routine that works & i’m stable-ish so i’m laying off the research for a bit. there’s not a lot more that i personally can get out of it but it takes energy to read that i’d rather spend on other things

small exertion: awful headache immediately after/during, usually no PEM

big exertion: feel relatively okay until big PEM crash

does anyone know why this is because it is infuriating!! the headaches are so bad but i’m not triggering PEM so i feel its okay? like i sleep and i’m fine again

officially applied to be on the social housing register in my area🤞🤞 where i live atm is not at all suitable for my needs & i have capacity to be significantly more independent elsewhere

my legs are declining quite quickly in terms of strength, but to strengthen them i need to exercise which i can’t really do at all without PEM so i’m a bit stuck really

the best part about bluesky is that, unlike twitter, it isn’t putting annoying bull shit designed to piss me off in front of me every 3 minutes

getting a ‘normal’ person illness on top of a chronic illness really is a lot to deal with. second time in a month that i’ve been completely out of it for a week due to infection. really hoping this does not become a regular thing

whatever illness i had is now finally going. temperature is back to normal. ate proper food today. life is becoming okay

i have been unwell - bad crash then some immune system reaction (possibly to a virus) for a week now and i am so fed up

currently working on porting my blog over to a more accessible platform because wordpress requires me to pay £7 a month to make the font size legible🤔🤔

okay i definitely have more reach here to the chronically ill community than i do on the other app😅

is there a #mecfs #longcovid starter pack? i need to find more people to follow on here

hi 💙☁️, i’m beck👋
- i have #mecfs #pots #autism and probable #mcas
- i was previously severe/v severe (depending on scale) and i’m now moderate-severe
- i am a wheelchair user
- my special interests are cats, winnie the pooh and minecraft

first post on here, hoping to use that extension that finds your twitter following once i am well enough to be at my pc