Travelling when you have a rare disease or chronic illness can be hard. But careful planning can make it more manageable, even during the holiday hustle and bustle.

#PARareDisease #raredisease
#rarediseaseawareness
#HolidayTravel #AccessibleTravel

I have been collaborating w/ a incredible team at UPenn on a paper about PARDAC's needs assessment. I am proud to say it was published in Public Health Reports.

This one’s close to my heart — it highlights real stories from PAs #raredisease community.

pmc.ncbi.nlm.nih.gov/articles/PMC...

Rare Disease Day PA is coming!

📢 Save the Date!
🗓️ Monday, June 23
📍 PA Capitol, Main Rotunda

Join us for #RareDiseaseDay in Harrisburg to amplify patient voices & advocate for equitable care.

🤝 Press Conference & Legislative Lunch

#PARareDisease #raredisease

Rare diseases are often misdiagnosed, but your family medical history could hold the key! Sharing your family's health story with doctors can help uncover patterns, leading to faster diagnosis and treatment.

#PARareDisease #raredisease
#rarediseaseawareness #MedicalHistoryMatters

We recently collaborated w/ PA Health Care Cost Containment Council on "Challenges in Rare Disease Research."

We thank the PHC4 team & leadership for their support on #RareDiseaseDay

Read the article at tinyurl.com/2adbsqjh

#PARareDisease

Rare is strong. 
Rare is proud. 
Rare is resilient. 

February is #RareDiseaseMonth - let's shine a light on the community and advocate for a brighter future for all! 

#RareDiseases #PARareDisease
#FightForRare  #HopeInAction
#RareDiseaseAwareness
#ShowYourStripes