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National Brain Tumor Society

@braintumor.org

90 followers 96 following 270 posts

National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites the brain tumor community to discover a cure, deliver effective treatments, and advocate for patients and caregivers.

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National Brain Tumor Society @braintumor.org · Sep 1

When she was in sixth grade, Rhea Kochhar was diagnosed with #pineoblastoma — a rare, cancerous brain tumor that forms in the #pinealgland.

Now 23, Rhea shares her story and how she's using her voice to advocate for the #pediatricbraintumor community alongside NBTS.

National Brain Tumor Society @braintumor.org · 8h

Today, on World Mental Health Day, we share words of #affirmation– because a #braintumor can take a toll on your #mentalhealth.

NBTS offers programs that provide support and help address the emotional impact that comes along with a diagnosis: braintumor.org/support-services/

#WorldMentalHealthDay

National Brain Tumor Society @braintumor.org · 11h

It’s not too late to register!

Join us for a morning of hope, awareness, and community: braintumor.org/event/race-f...

#R4HPHL #RaceforHopePHL

National Brain Tumor Society @braintumor.org · 11h

We are thankful to Darlene and her family for their willingness to share their experience with us and the brain tumor community! 💙

National Brain Tumor Society @braintumor.org · 11h

Tomorrow, Sat., Oct. 11, we’re gathering in for the Race for Hope Greater Philadelphia & we couldn’t do it without our amazing sponsors, volunteers, and participants!

National Brain Tumor Society @braintumor.org · 1d

Today, on DAF Day, your donor-advised fund gift will be MATCHED, up to $20,000, thanks to the Gordon Family Charitable Trust DAF grant, to advance #braintumor research, advocate for change & support patients & their loved ones.

Learn more at BrainTumor.org/DAF

#DAFforNBTS #DAFDay

National Brain Tumor Society @braintumor.org · 2d

Discover why identifying your brain tumor at the molecular level matters at mytumorid.org

#MyTumorID

National Brain Tumor Society @braintumor.org · 2d

Accurately identifying Darlene’s brain tumor changed everything.

Instead of a “watch and wait” approach, her care team started treatment immediately, giving Darlene and the Peterson family more time together.

#MyTumorID

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National Brain Tumor Society @braintumor.org · 2d

For the Peterson family, biomarker testing gave them clarity — what was first thought to be a low-grade glioma turned out to be grade 4 glioblastoma.

#MyTumorID

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National Brain Tumor Society @braintumor.org · 3d

🏌️‍♂ The 3rd annual McGuiness Memorial Golf Tournament is back in Rehoboth Beach!

Honoring Nicholas McGuiness, this event has raised $214K+ for brain tumor research. 🙏 Huge thanks to Chris E. & Brain Cancer Answer!

Start your own #FundraiseYourWay event: braintumor.org/FYW

National Brain Tumor Society @braintumor.org · 3d

The holiday season can amplify the physical and emotional challenges that people living with #braintumors and their care partners already face.

Share your story and tips with us to inform –– and possibly be featured in –– future NBTS content: https://braintumor.org/brain-tumors/stories/holiday-tips

National Brain Tumor Society @braintumor.org · 4d

Turning resistance into vulnerability: NBTS-funded science is now in a clinical trial for glioblastoma.

More: https://braintumor.org/news/turning-resistance-into-vulnerability-nbts-funded-discovery-drives-new-glioblastoma-clinical-trial

National Brain Tumor Society @braintumor.org · 5d

The Gray Nation Endurance team is out on the course today for the Medtronic Twin Cities Marathon, Half Marathon, & 10-Mile, putting meaning behind their miles.

Together, they've raised over $35,000 and counting!

Learn more about GNE at BrainTumor.org/GNE

#GrayNationEndurance

National Brain Tumor Society @braintumor.org · 5d

When you recommend a grant to NBTS from your donor-advised (DAF) fund between now and #DAFDay on Oct. 9, your #DAF gift will be MATCHED, up to $20,000, thanks to the Gordon Family Charitable Trust DAF grant, to drive real change.

Learn more at BrainTumor.org/DAF

#DAFforNBTS

National Brain Tumor Society @braintumor.org · 6d

Amber was training for a 5K in July 2024 when a sudden migraine led to a life-changing diagnosis: #PituitaryMacroadenoma

After treatment, she crossed the finish line at the #DFWBrainTumorWalkRace wearing a “survivor” shirt: braintumor.org/news/sharing-my-prolactinoma-story-so-others-dont-feel-alone

National Brain Tumor Society @braintumor.org · 6d

Myth: #Braintumor clinical trials are too expensive.

Fact: Patients don’t pay to participate. Sponsors often cover trial costs, while routine care is billed to insurance, with patients responsible for co-pays or deductibles.

Learn more at our webinar: braintumor.org/brain-tumors...

National Brain Tumor Society @braintumor.org · 8d

Want to support #braintumor research in a smart, impactful way?

A donor-advised fund (DAF) is one of the most effective tools for charitable giving, and it can be a game-changer in the fight against #braintumors.

Learn more at BrainTumor.org/DAF

#DAFDay #DAFforNBTS

National Brain Tumor Society @braintumor.org · 8d

👟 Our Virginia Brain Tumor Walk & Race just 30 days away!

Join us at Bryan Park on Sunday, November 2, for a day of hope, community, and impact.

Secure your spot today: https://braintumor.org/event/virginia-brain-tumor-walk-race/

#VABTWalkRace #braintumorcommunity

National Brain Tumor Society @braintumor.org · 9d

Please take action and urge members of Congress to pass a full, bipartisan FY26 budget that prioritizes brain tumor innovation and care and ends the current shutdown: https://braintumor.quorum.us/campaign/141926/

National Brain Tumor Society @braintumor.org · 9d

Thank you for joining us on Saturday at beautiful Sloan’s Lake for a powerful morning of remembrance and hope with the Colorado brain tumor community.

Together with more than 1,000 participants across 96 teams, we’ve raised over $185,000 and counting!

#ColoradoBTWalk

National Brain Tumor Society @braintumor.org · 10d

A #braintumor can impact anyone, at any age.

Today, on #RareCancerDay and as #ChildhoodCancerAwarenessMonth ends, we reflect on the urgent need for better treatments and improved quality of life for people of all ages facing a rare #braincancer diagnosis.

National Brain Tumor Society @braintumor.org · 11d

Now 23, Rhea is a two-time #braintumor survivor, but far too many children don’t get the same chance.

This #CCAM, join Rhea and NBTS to fund research, advocacy, and support for families of our youngest, most vulnerable patients: BrainTumor.org/CCAM2025

#GoldforCCAM

National Brain Tumor Society @braintumor.org · 11d

Join our Caregiver Support Conversation on Mon, Oct 6, at 7 PM ET to connect with fellow care partners who understand the challenges of supporting someone with a brain tumor.

Share, listen & find community in a welcoming, safe space: braintumor.org/support-services/support-groups/caregiver-support

National Brain Tumor Society @braintumor.org · 12d

Six-year-old Devin was diagnosed with #DIPG after collapsing during a snowboard lesson.

His family now honors his legacy by showing that hope is stronger than fear.

Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/

#GoldforCCAM #CCAM

National Brain Tumor Society @braintumor.org · 12d

Have you or a loved one participated in a clinical trial?

If you're willing to be part of this effort, please fill out this brief form to share your video response: https://vocalvideo.com/c/national-brain-tumor-society-share-your-story-national-brain-tumor-society-hkiiuwgw

National Brain Tumor Society @braintumor.org · 13d

This #CCAM, help us shine a light on the urgent need for action.

Share fast facts about #pediatricbraintumors and help amplify the cause.

Learn more and get involved: BrainTumor.org/CCAM

#ChildhoodCancerAwarenessMonth

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