National Brain Tumor Society
@braintumor.org
National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites the brain tumor community to discover a cure, deliver effective treatments, and advocate for patients and caregivers.
Pinned
Theo was diagnosed with medulloblastoma at the age of 1; since he was 6, Theo & his family have attended Head to the Hill, advocating for research funding & connecting with #braintumor advocates from across the country.
Join them in making a difference: Braintumor.org/Impact
Join them in making a difference: Braintumor.org/Impact
As we step into 2026, we’d like to thank you for the incredible work you've done in 2025.
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
January 14, 2026 at 9:23 PM
As we step into 2026, we’d like to thank you for the incredible work you've done in 2025.
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
“At least it’s benign.”
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
January 14, 2026 at 5:53 PM
“At least it’s benign.”
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
A #braintumor diagnosis can be overwhelming, but in many cases there is time to seek a second opinion before surgery.
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
January 13, 2026 at 6:06 PM
A #braintumor diagnosis can be overwhelming, but in many cases there is time to seek a second opinion before surgery.
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
🤠💙 Lace up, DFW!
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
January 12, 2026 at 7:14 PM
🤠💙 Lace up, DFW!
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
An unforgettable finish at the 2026 Walt Disney World® Marathon, sponsored by State Farm, racing through all four Walt Disney World® theme parks. 🏰🏃♂
January 11, 2026 at 9:51 PM
An unforgettable finish at the 2026 Walt Disney World® Marathon, sponsored by State Farm, racing through all four Walt Disney World® theme parks. 🏰🏃♂
Join us on Sunday, January 18th, at 7 p.m. ET for our monthly Brain Tumor Support Conversation.
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
January 11, 2026 at 5:55 PM
Join us on Sunday, January 18th, at 7 p.m. ET for our monthly Brain Tumor Support Conversation.
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
The Nathanson family is putting magic & meaning behind their miles!
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
January 10, 2026 at 9:35 PM
The Nathanson family is putting magic & meaning behind their miles!
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
Today, we’re celebrating 33 incredible #GNE runners taking on the 2026 Walt Disney World® Half Marathon with strength, purpose, and heart.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
January 10, 2026 at 7:37 PM
Today, we’re celebrating 33 incredible #GNE runners taking on the 2026 Walt Disney World® Half Marathon with strength, purpose, and heart.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
Today we’re celebrating 27 amazing #GNE runners taking on the 2026 Walt Disney World® 10K, sponsored by State Farm with heart, strength, and purpose.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
January 10, 2026 at 3:31 AM
Today we’re celebrating 27 amazing #GNE runners taking on the 2026 Walt Disney World® 10K, sponsored by State Farm with heart, strength, and purpose.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
🎉 Together, WE DID IT!
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
January 9, 2026 at 5:25 PM
🎉 Together, WE DID IT!
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
Our 27 amazing #GrayNationEndurance team members are hitting the course today for the 2026 Walt Disney World® 5K, sponsored by State Farm!
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
January 8, 2026 at 9:10 PM
Our 27 amazing #GrayNationEndurance team members are hitting the course today for the 2026 Walt Disney World® 5K, sponsored by State Farm!
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
Have you undergone #laserinterstitialthermaltherapy (#LITT) for either seizure management or #braintumor care?
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
January 7, 2026 at 4:55 PM
Have you undergone #laserinterstitialthermaltherapy (#LITT) for either seizure management or #braintumor care?
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
On May 2, 2020, a quiet night at home changed everything.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
January 6, 2026 at 9:16 PM
On May 2, 2020, a quiet night at home changed everything.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
Reposted by National Brain Tumor Society
This one hurts deeply. Adam Hayden helped shape how I show up for this community. His wisdom, clarity of thought and advocacy style made so many of us braver voices, better listeners, and fearless advocates. The #btsm community will miss him terribly. 🩶
It is with a heavy heart that we share news of the passing of philosopher, writer, patient advocate, and NBTS board member Adam Hayden. Read about Adam’s life, legacy, and enduring impact on the brain tumor community: https://braintumor.org/news/remembering-adam-hayden/
December 23, 2025 at 3:47 AM
This one hurts deeply. Adam Hayden helped shape how I show up for this community. His wisdom, clarity of thought and advocacy style made so many of us braver voices, better listeners, and fearless advocates. The #btsm community will miss him terribly. 🩶
💙 Parenting through a brain tumor diagnosis is full of unique challenges.
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
January 5, 2026 at 5:54 PM
💙 Parenting through a brain tumor diagnosis is full of unique challenges.
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
Join Gray Nation Endurance® (GNE) and put meaning behind your miles!
Together, we’re one team with one mission to conquer brain tumors — once and for all.
Lace up and join us this year: BrainTumor.org/GNE
#GrayNationEndurance
Together, we’re one team with one mission to conquer brain tumors — once and for all.
Lace up and join us this year: BrainTumor.org/GNE
#GrayNationEndurance
January 4, 2026 at 6:16 PM
Join Gray Nation Endurance® (GNE) and put meaning behind your miles!
Together, we’re one team with one mission to conquer brain tumors — once and for all.
Lace up and join us this year: BrainTumor.org/GNE
#GrayNationEndurance
Together, we’re one team with one mission to conquer brain tumors — once and for all.
Lace up and join us this year: BrainTumor.org/GNE
#GrayNationEndurance
In 2025, Josh B., an #oligodendroglioma survivor, and his team raised nearly $32,000 to fuel breakthroughs ahead for the brain tumor community.
Josh benefited from a clinic trial that NBTS had helped advance and signed up to put meaning behind his miles: https://bit.ly/3Lqij28
#GrayNationEndurance
Josh benefited from a clinic trial that NBTS had helped advance and signed up to put meaning behind his miles: https://bit.ly/3Lqij28
#GrayNationEndurance
January 3, 2026 at 7:00 PM
In 2025, Josh B., an #oligodendroglioma survivor, and his team raised nearly $32,000 to fuel breakthroughs ahead for the brain tumor community.
Josh benefited from a clinic trial that NBTS had helped advance and signed up to put meaning behind his miles: https://bit.ly/3Lqij28
#GrayNationEndurance
Josh benefited from a clinic trial that NBTS had helped advance and signed up to put meaning behind his miles: https://bit.ly/3Lqij28
#GrayNationEndurance
Join us on Thurs., Jan. 8th at 7 p.m. for Grief Support Conversations.
The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process: braintumor.org/support-services/support-groups/grief-support
The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process: braintumor.org/support-services/support-groups/grief-support
January 2, 2026 at 9:19 PM
Join us on Thurs., Jan. 8th at 7 p.m. for Grief Support Conversations.
The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process: braintumor.org/support-services/support-groups/grief-support
The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process: braintumor.org/support-services/support-groups/grief-support
Our impact is so much greater when we partner with others. This year we:
🤝Co-promoted #MyTumorID with affiliate organizations
🤝Connected private industry with academic research through #BTIF
🤝Convened thought leaders to plan the future of neuro-oncology therapy development
🤝Co-promoted #MyTumorID with affiliate organizations
🤝Connected private industry with academic research through #BTIF
🤝Convened thought leaders to plan the future of neuro-oncology therapy development
December 31, 2025 at 9:56 PM
Our impact is so much greater when we partner with others. This year we:
🤝Co-promoted #MyTumorID with affiliate organizations
🤝Connected private industry with academic research through #BTIF
🤝Convened thought leaders to plan the future of neuro-oncology therapy development
🤝Co-promoted #MyTumorID with affiliate organizations
🤝Connected private industry with academic research through #BTIF
🤝Convened thought leaders to plan the future of neuro-oncology therapy development
Your year-end gift makes an immediate impact for the brain tumor community!
Learn more in this video from NBTS President & CEO David Arons.
🔐 Give by 11:59 p.m. today, Dec. 31, to help us unlock an additional gift of $150K from our generous board: http://BrainTumor.org/Impact
Learn more in this video from NBTS President & CEO David Arons.
🔐 Give by 11:59 p.m. today, Dec. 31, to help us unlock an additional gift of $150K from our generous board: http://BrainTumor.org/Impact
December 31, 2025 at 5:51 PM
Your year-end gift makes an immediate impact for the brain tumor community!
Learn more in this video from NBTS President & CEO David Arons.
🔐 Give by 11:59 p.m. today, Dec. 31, to help us unlock an additional gift of $150K from our generous board: http://BrainTumor.org/Impact
Learn more in this video from NBTS President & CEO David Arons.
🔐 Give by 11:59 p.m. today, Dec. 31, to help us unlock an additional gift of $150K from our generous board: http://BrainTumor.org/Impact
Earlier this year, NBTS helped advance the first-ever FDA approval of a drug to treat recurrent H3K27M-mutant diffuse midline #glioma, a historic step forward.
“For years, there was no approved treatment,” said our CEO, David Arons. “Today, that changes.”
“For years, there was no approved treatment,” said our CEO, David Arons. “Today, that changes.”
December 30, 2025 at 9:20 PM
Earlier this year, NBTS helped advance the first-ever FDA approval of a drug to treat recurrent H3K27M-mutant diffuse midline #glioma, a historic step forward.
“For years, there was no approved treatment,” said our CEO, David Arons. “Today, that changes.”
“For years, there was no approved treatment,” said our CEO, David Arons. “Today, that changes.”
This year, advocates like Theo & his mom, Lori, rallied support in Congress, urging leaders to restore funding & advance childhood cancer legislation.
Make a gift today to unlock an additional $150K from our board & accelerate the change we so urgently need: BrainTumor.org/Impact
Make a gift today to unlock an additional $150K from our board & accelerate the change we so urgently need: BrainTumor.org/Impact
December 29, 2025 at 5:55 PM
This year, advocates like Theo & his mom, Lori, rallied support in Congress, urging leaders to restore funding & advance childhood cancer legislation.
Make a gift today to unlock an additional $150K from our board & accelerate the change we so urgently need: BrainTumor.org/Impact
Make a gift today to unlock an additional $150K from our board & accelerate the change we so urgently need: BrainTumor.org/Impact
Join our Caregiver Support Conversation on Mon, Jan 5, at 7 PM ET to connect with fellow care partners who understand the challenges of supporting someone with a brain tumor.
Share, listen & find community in a welcoming, safe space: braintumor.org/support-services/support-groups/caregiver-support
Share, listen & find community in a welcoming, safe space: braintumor.org/support-services/support-groups/caregiver-support
December 29, 2025 at 4:06 PM
Join our Caregiver Support Conversation on Mon, Jan 5, at 7 PM ET to connect with fellow care partners who understand the challenges of supporting someone with a brain tumor.
Share, listen & find community in a welcoming, safe space: braintumor.org/support-services/support-groups/caregiver-support
Share, listen & find community in a welcoming, safe space: braintumor.org/support-services/support-groups/caregiver-support
Thanks to incredible partnership from our advocates, NBTS faced down a year marked by division and championed both unity and change.
Make a gift now to support our relentless advocacy for reliable research funding in 2026: BrainTumor.org/Impact
Make a gift now to support our relentless advocacy for reliable research funding in 2026: BrainTumor.org/Impact
December 29, 2025 at 1:30 PM
Thanks to incredible partnership from our advocates, NBTS faced down a year marked by division and championed both unity and change.
Make a gift now to support our relentless advocacy for reliable research funding in 2026: BrainTumor.org/Impact
Make a gift now to support our relentless advocacy for reliable research funding in 2026: BrainTumor.org/Impact
🧠✨In 2025, NBTS launched the only brain tumor-specific research advocate program in the U.S. Patients and care partners use their voices to bridge gaps among scientists, officials, and industry, shaping research and driving impact for the community.
December 28, 2025 at 6:25 PM
🧠✨In 2025, NBTS launched the only brain tumor-specific research advocate program in the U.S. Patients and care partners use their voices to bridge gaps among scientists, officials, and industry, shaping research and driving impact for the community.