Breathe with MD, Inc.
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Breathe with MD, Inc.
@breathewithmd.bsky.social
16 followers 44 following 30 posts
We are a 501(c)(3) nonprofit public charity that educates and raises awareness about breathing muscle weakness in Neuromuscular Disease (NMD). We promote a proactive approach to respiratory care. Our mission focuses on noninvasive ventilation (NIV).
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breathewithmd.bsky.social
Earlier this week, our President and Founder shared a personal letter with our active email subscribers. Read it here: conta.cc/4oHJR0G

#NeuromuscularDisease
#BreathingMuscleWeakness
December 12, 2025 at 10:05 PM
breathewithmd.bsky.social
You can access two of our popular medical self-advocacy tools on breathewithmd.org. Learn about the Respiratory Care Information Card at breathewithmd.org/respiratoryi... and the Clinical Considerations Form at breathewithmd.org/clinicalcons....

#BreathingMuscleWeakness
#NeuromuscularDisease
August 16, 2025 at 9:32 PM
breathewithmd.bsky.social
Mouthpiece ventilation (MPV) is an option for some Noninvasive Ventilation (NIV) users who need mask-free breathing support during the day.

"Breathe community" member Anna shares her success with volume support MPV: app-strapi-swe-uat.azurewebsites.net/uploads/MAR_...
August 3, 2025 at 5:33 PM
breathewithmd.bsky.social
Did you see our July email update earlier this week? If not, read it here: conta.cc/46xlAoC

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy
August 1, 2025 at 1:40 AM
breathewithmd.bsky.social
We hope you are able to find some joy in this day.

#FourthofJuly
July 4, 2025 at 4:10 PM
breathewithmd.bsky.social
Did you see our June email update earlier this week? If not, read it here: conta.cc/44CEB7q

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy
June 28, 2025 at 2:49 PM
breathewithmd.bsky.social
Knowledge is power and can save lives! See our supplemental Oxygen caution-related animations playlist at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure
June 17, 2025 at 10:29 PM
breathewithmd.bsky.social
Wishing a Happy Father’s Day to all!
June 15, 2025 at 3:32 PM
breathewithmd.bsky.social
Did you see our May email update earlier this week? If not, read it here: conta.cc/4mAOauP

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy
May 31, 2025 at 3:49 AM
breathewithmd.bsky.social
Does your clinician measure MIP and MEP on Pulmonary Function Testing (PFT)? Measures of MIP and MEP will can show respiratory muscle weakness when FVC (Forced Vital Capacity) does not.

Reference: www.annualreviews.org/content/jour...

#BreathingMuscleWeakness
#NeuromuscularDisease
May 25, 2025 at 5:42 PM
breathewithmd.bsky.social
Do you have questions on mechanical ventilation? If so, fill out our form at forms.gle/VPwzVw49PQje... to tell us what YOU want to know about mechanical ventilation for Neuromuscular Disease (NMD). We will select as many questions as possible to answer.

#VentilatedVoices
#BreathingMuscleWeakness
May 17, 2025 at 4:31 PM
breathewithmd.bsky.social
Knowledge is power and can save lives! See our supplemental Oxygen caution-related animations on our YouTube Channel in a playlist located at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure
May 2, 2025 at 2:43 AM
breathewithmd.bsky.social
Did you see our April email update? If not, read it at conta.cc/4jJejoK

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy
April 25, 2025 at 5:23 PM
breathewithmd.bsky.social
Consider asking your Neuromuscular breathing clinician if painless methods to measure Carbon Dioxide (CO2) via the exhaled breath (capnography) or through the skin (transcutaneous) might be available to you.

Reference: www.breathenvs.com/e-m-older-ch...
April 19, 2025 at 7:55 PM
breathewithmd.bsky.social
Accounts for our free, self-paced, online course, “Breathing Muscle Weakness 101,” are still available.

Enroll here, and please allow our volunteer approximately 48 hours to send your account details: forms.gle/kYZVhzUPv9d3...
April 12, 2025 at 6:20 PM
breathewithmd.bsky.social
See article:
practicalneurology.com/articles/202...

#BreathingMuscleWeakness #NeuromuscularDisease #MuscularDystrophy
April 4, 2025 at 7:05 PM
breathewithmd.bsky.social
Our “Clinical Considerations for Neuromuscular Disease (NMD) Patients” form is a self advocacy resource for those who use assisted/mechanical ventilation.

Learn more at
breathewithmd.org/clinicalcons..., and download the form at the bottom of the page to print and begin using it.
March 31, 2025 at 3:52 PM
breathewithmd.bsky.social
ONE WEEK until enrollees will get their account information, log on, and learn! Have you enrolled?

Learn more: breathewithmd.org/education.html
March 30, 2025 at 9:27 PM
breathewithmd.bsky.social
Fill out the form at forms.gle/VPwzVw49PQje... to tell us what YOU want to know about mechanical ventilation for Neuromuscular Disease (NMD). We will select as many questions as possible to answer in social posts, our Living Ventilated blog, and/or in our monthly email updates.
March 28, 2025 at 7:45 PM
breathewithmd.bsky.social
Do you know what happens to cause respiratory involvement in NMD? Are you familiar with the appropriate management and intervention options? With our self-paced, online course, learn all of this and more!

Learn more here: breathewithmd.org/education.html

Enroll here: forms.gle/kYZVhzUPv9d3...
March 27, 2025 at 9:01 PM
breathewithmd.bsky.social
It costs nothing to support our mission, except for the time it takes to comment on or share our posts, to mention us on your social media and/or in groups, and to tell others about us. We appreciate your support. Find our mission here: breathewithmd.org/missionandpr...
March 26, 2025 at 1:01 AM
breathewithmd.bsky.social
Our 2025 version of “Breathing Muscle Weakness 101,” our FREE online course for individuals living with Neuromuscular Disease (NMD) and their loved ones, will be enrolling students soon. Stay tuned for forthcoming details.

#BreathingMuscleWeakness #NeuromuscularDisease
March 13, 2025 at 2:01 AM
breathewithmd.bsky.social
Knowledge is power and can save lives! See our supplemental Oxygen caution-related animations on our YouTube Channel in a playlist located at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure
February 26, 2025 at 8:12 PM
breathewithmd.bsky.social
Our Evaluation webpage on our website provides an overview of what individuals living with an NMD in the US should expect when seeking a clinical evaluation of their condition’s respiratory involvement. Check it out at breathewithmd.org/evaluation.html.

#BreathingMuscleWeakness
February 21, 2025 at 2:13 AM
breathewithmd.bsky.social
You may have noticed our decreased presence on social media and our slower response. We are working through a COVID-19 infection and a subsequent rebound infection. Our hope is to get back to our usual day-to-day operations the week of February 17.

We hope everyone is staying well!
February 15, 2025 at 12:32 AM