COVID-19 Longhauler Advocacy Project
@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.bit.ly/FR4LC26
C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
December 6, 2025 at 12:45 AM
C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
Reposted by COVID-19 Longhauler Advocacy Project
This story is about UNC Chapel Hill's #LongCOVID clinic being closed due to funding being cut. Another huge reason for our plea for donations to the @c19lap.bsky.social C-19 Longhauler Advocacy Project 🙏🏾.
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
Long COVID patients in NC struggle to find care as clinics close their doors
“Like a lot of people, I still have a house payment, I still have car payments, and, you know, I couldn’t just stop working.”
www.charlotteobserver.com
December 5, 2025 at 2:40 PM
This story is about UNC Chapel Hill's #LongCOVID clinic being closed due to funding being cut. Another huge reason for our plea for donations to the @c19lap.bsky.social C-19 Longhauler Advocacy Project 🙏🏾.
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
Your leadership matters. Whether through a personal contribution or a major gift, you fuel the programs federal, state, and local agencies have abandoned.
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 5, 2025 at 8:00 PM
Your leadership matters. Whether through a personal contribution or a major gift, you fuel the programs federal, state, and local agencies have abandoned.
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
December 5, 2025 at 1:01 PM
We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
C19LAP develops the most comprehensive patient-led #LongCOVID resources in the world. Our #publichealth tools are used by patients, clinicians, medical schools, state health departments, and beyond.
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
December 5, 2025 at 12:00 AM
C19LAP develops the most comprehensive patient-led #LongCOVID resources in the world. Our #publichealth tools are used by patients, clinicians, medical schools, state health departments, and beyond.
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
Every day without action on #LongCOVID leads to progressive disease, rising #disability, death, economic instability, and healthcare collapse.
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
December 4, 2025 at 6:30 PM
Every day without action on #LongCOVID leads to progressive disease, rising #disability, death, economic instability, and healthcare collapse.
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
#LongCOVID is now the leading #chronicillness in children. Schools are unprepared and families are overwhelmed. Your support helps builds #pediatric guidance, school resources, and statewide programs.
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
December 4, 2025 at 2:01 PM
#LongCOVID is now the leading #chronicillness in children. Schools are unprepared and families are overwhelmed. Your support helps builds #pediatric guidance, school resources, and statewide programs.
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
C19LAP leads at the highest levels of national public health, partnering with cross-sector partners across public health to shape the national response to #LongCOVID.
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
December 4, 2025 at 12:30 AM
C19LAP leads at the highest levels of national public health, partnering with cross-sector partners across public health to shape the national response to #LongCOVID.
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
We are building a national #LongCOVID #PublicHealth infrastructure including statewide offices, clinical alignment, resource hubs, community outreach, and disability and workforce support.
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
December 3, 2025 at 4:14 PM
We are building a national #LongCOVID #PublicHealth infrastructure including statewide offices, clinical alignment, resource hubs, community outreach, and disability and workforce support.
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
Long COVID affects every community. Parents, teachers, healthcare workers, and employers are all impacted as systems fail and support disappears.
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 3, 2025 at 2:01 PM
Long COVID affects every community. Parents, teachers, healthcare workers, and employers are all impacted as systems fail and support disappears.
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
C19LAP's reporting on disability prevalence & economic cost of #LongCOVID lead to the memorandum that formed the majority of Long COVID federal efforts. Now abandoned, C19LAP is stepping in but we need your support this #GivingTuesday! https://bit.ly/FR4LC26
#SystemsChange #PublicHealth #Donate
#SystemsChange #PublicHealth #Donate
December 3, 2025 at 12:30 AM
C19LAP's reporting on disability prevalence & economic cost of #LongCOVID lead to the memorandum that formed the majority of Long COVID federal efforts. Now abandoned, C19LAP is stepping in but we need your support this #GivingTuesday! https://bit.ly/FR4LC26
#SystemsChange #PublicHealth #Donate
#SystemsChange #PublicHealth #Donate
Help C19LAP lead the #LongCOVID response millions need this #GivingTuesday! #Donate, #Give, #Spreadtheword, and create your own individual or team campaign today! bit.ly/FR4L ✅
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
bit.ly
December 2, 2025 at 10:23 PM
Help C19LAP lead the #LongCOVID response millions need this #GivingTuesday! #Donate, #Give, #Spreadtheword, and create your own individual or team campaign today! bit.ly/FR4L ✅
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
Every fundraiser becomes a force multiplier, expanding awareness, strengthening the national response, and fueling real progress for #Long COVID.
Start an individual or team campaign for C19LAP or donate: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Start an individual or team campaign for C19LAP or donate: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 2, 2025 at 5:45 PM
Every fundraiser becomes a force multiplier, expanding awareness, strengthening the national response, and fueling real progress for #Long COVID.
Start an individual or team campaign for C19LAP or donate: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Start an individual or team campaign for C19LAP or donate: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Delay is devastation. Every day without action brings more disability and economic loss. Your donation powers national clinician guidance, public health coordination, and vital resources families rely on.
Act now: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #Donate
Act now: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #Donate
December 2, 2025 at 1:30 PM
Delay is devastation. Every day without action brings more disability and economic loss. Your donation powers national clinician guidance, public health coordination, and vital resources families rely on.
Act now: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #Donate
Act now: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #Donate
#GivingTuesday Week: Day 1 Summary
The #LongCOVID crisis is accelerating while the response collapses. C19LAP is stepping in to fill the gap.
Read + take action: https://longhauler-advocacy.org/so/f7PhRSMp-?languageTag=en&cid=32cccdf3-66ea-4355-b4fd-6877749a1a9d
#Donate: https://bit.ly/FR4LC26
The #LongCOVID crisis is accelerating while the response collapses. C19LAP is stepping in to fill the gap.
Read + take action: https://longhauler-advocacy.org/so/f7PhRSMp-?languageTag=en&cid=32cccdf3-66ea-4355-b4fd-6877749a1a9d
#Donate: https://bit.ly/FR4LC26
Help Lead the Long COVID Response Millions Need!
The crisis is growing. The response is shrinking. We need you.Long COVID affects an estimated seventy million people in the United States, and nearly every Long COVID program has been dismantled six years into the pandemic. There are no FDA-approved treatments, no cures, and no coordinated national response to guide patients, clinicians, or public health leaders.Since 2020, disability rates have risen 20 percent, mirroring Long COVID prevalence. Eighty percent of affected children report difficulties with daily activities, and Long COVID has surpassed asthma as the leading chronic condition...
bit.ly
December 2, 2025 at 4:45 AM
#GivingTuesday Week: Day 1 Summary
The #LongCOVID crisis is accelerating while the response collapses. C19LAP is stepping in to fill the gap.
Read + take action: https://longhauler-advocacy.org/so/f7PhRSMp-?languageTag=en&cid=32cccdf3-66ea-4355-b4fd-6877749a1a9d
#Donate: https://bit.ly/FR4LC26
The #LongCOVID crisis is accelerating while the response collapses. C19LAP is stepping in to fill the gap.
Read + take action: https://longhauler-advocacy.org/so/f7PhRSMp-?languageTag=en&cid=32cccdf3-66ea-4355-b4fd-6877749a1a9d
#Donate: https://bit.ly/FR4LC26
C19LAP helped define Long COVID at the national level. This definition now guides clinicians, researchers, and disability determinations.
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
December 2, 2025 at 12:30 AM
C19LAP helped define Long COVID at the national level. This definition now guides clinicians, researchers, and disability determinations.
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
You have the power to shift what happens next. Your support accelerates clinician education, research translation, and public health alignment at a time when federal leadership has retreated.
Take the lead: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SystemsChange #SocialImpact
Take the lead: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SystemsChange #SocialImpact
December 1, 2025 at 6:30 PM
You have the power to shift what happens next. Your support accelerates clinician education, research translation, and public health alignment at a time when federal leadership has retreated.
Take the lead: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SystemsChange #SocialImpact
Take the lead: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SystemsChange #SocialImpact
The #LongCOVID crisis is accelerating while the national response collapses. Your support strengthens the national infrastructure families urgently need.
Donate or start a fundraiser: https://bit.ly/FR4LC26
#GivingTuesday #PublicHealthMatters
Donate or start a fundraiser: https://bit.ly/FR4LC26
#GivingTuesday #PublicHealthMatters
December 1, 2025 at 2:02 PM
The #LongCOVID crisis is accelerating while the national response collapses. Your support strengthens the national infrastructure families urgently need.
Donate or start a fundraiser: https://bit.ly/FR4LC26
#GivingTuesday #PublicHealthMatters
Donate or start a fundraiser: https://bit.ly/FR4LC26
#GivingTuesday #PublicHealthMatters
Now - Dec 31, YOU have the power to propel a national movement forward.
C19LAP has launched a major campaign & we need your help to lead the response millions desperately need.
Be a Force Multiplier & Get Started: www.zeffy.com/en-US/peer-t...
#GivingTuesday #GivingSeason
#DonateNow #LongCOVID
C19LAP has launched a major campaign & we need your help to lead the response millions desperately need.
Be a Force Multiplier & Get Started: www.zeffy.com/en-US/peer-t...
#GivingTuesday #GivingSeason
#DonateNow #LongCOVID
November 30, 2025 at 5:39 PM
Now - Dec 31, YOU have the power to propel a national movement forward.
C19LAP has launched a major campaign & we need your help to lead the response millions desperately need.
Be a Force Multiplier & Get Started: www.zeffy.com/en-US/peer-t...
#GivingTuesday #GivingSeason
#DonateNow #LongCOVID
C19LAP has launched a major campaign & we need your help to lead the response millions desperately need.
Be a Force Multiplier & Get Started: www.zeffy.com/en-US/peer-t...
#GivingTuesday #GivingSeason
#DonateNow #LongCOVID
We just launched a peer-to-peer fundraiser to rebuild the #LongCOVID response, and we can’t do it without you!
Donate or start a fundraiser, text and email your friends and family, and share across your socials!
bit.ly/FR4LC26
The top 5 fundraisers will receive…
1/2
Donate or start a fundraiser, text and email your friends and family, and share across your socials!
bit.ly/FR4LC26
The top 5 fundraisers will receive…
1/2
Help Lead the Long COVID Response Millions Need!
The crisis is growing. The response is shrinking. We need you.Long COVID affects an estimated seventy million people in the United States, and nearly every Long COVID program has been dismantled six y...
bit.ly
November 29, 2025 at 7:42 PM
We just launched a peer-to-peer fundraiser to rebuild the #LongCOVID response, and we can’t do it without you!
Donate or start a fundraiser, text and email your friends and family, and share across your socials!
bit.ly/FR4LC26
The top 5 fundraisers will receive…
1/2
Donate or start a fundraiser, text and email your friends and family, and share across your socials!
bit.ly/FR4LC26
The top 5 fundraisers will receive…
1/2
C19LAP was founded by patients, for patients. Our work drives action that gets us closer to solutions, treatment, cures, prevention, assistance, and more. Our work is rooted in education, the center of being able to address Long COVID. Learn more here: www.longhauler-advocacy.org/post/novembe...
November 2025
Dear community, We’re closing out November with urgency, momentum, and a renewed commitment to the tens of millions still living with Long COVID. This month’s newsletter brings critical updates from o...
www.longhauler-advocacy.org
November 26, 2025 at 5:45 PM
C19LAP was founded by patients, for patients. Our work drives action that gets us closer to solutions, treatment, cures, prevention, assistance, and more. Our work is rooted in education, the center of being able to address Long COVID. Learn more here: www.longhauler-advocacy.org/post/novembe...
We’re closing out November with urgency, momentum, & a renewed commitment to the tens of millions living with #LongCOVID. This month’s newsletter brings critical updates from our work, calls to action, research updates, community stories & more!
Read our newsletter here:
bit.ly/C19LAPNLNOV25
Read our newsletter here:
bit.ly/C19LAPNLNOV25
November 25, 2025 at 4:42 PM
We’re closing out November with urgency, momentum, & a renewed commitment to the tens of millions living with #LongCOVID. This month’s newsletter brings critical updates from our work, calls to action, research updates, community stories & more!
Read our newsletter here:
bit.ly/C19LAPNLNOV25
Read our newsletter here:
bit.ly/C19LAPNLNOV25
Thank you to everyone who joined our recent webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project (C19LAP).
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
Navigating Long COVID, SSDI, and Disability Insurance: What Patients Need to Know
YouTube video by COVID-19 Longhauler Advocacy Project
www.youtube.com
November 19, 2025 at 11:34 PM
Thank you to everyone who joined our recent webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project (C19LAP).
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
We’re asking for short videos (under 1 minute) from individuals willing to share the importance of C19LAP’s work and why now, more than ever, our work and continuity is essential.
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
November 18, 2025 at 6:27 PM
We’re asking for short videos (under 1 minute) from individuals willing to share the importance of C19LAP’s work and why now, more than ever, our work and continuity is essential.
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
NEW! The Long COVID Community Spotlight
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
November 17, 2025 at 7:58 PM
NEW! The Long COVID Community Spotlight
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...