Donna Cunningham
@cabluestarmom.bsky.social
Multiple Myeloma warrior, high risk with 3 genetic mutations. Never quit the fight. 🌊💙
MM is very treatable. Over 36,000 diagnosed every year.
December 27, 2025 at 5:38 PM
MM is very treatable. Over 36,000 diagnosed every year.
Please thank him for his service. This was my 3rd protest. 2 years since my MM diagnosis, and it will never stop me from saving democracy. My friend on the right is a Stage IV breast cancer warrior.
October 21, 2025 at 2:22 PM
Please thank him for his service. This was my 3rd protest. 2 years since my MM diagnosis, and it will never stop me from saving democracy. My friend on the right is a Stage IV breast cancer warrior.
If you ever need patient data, please reach out.
October 10, 2025 at 3:47 PM
If you ever need patient data, please reach out.
The biggest barrier is that Medicare covers injections given at an infusion center under Part A/B, but not if self-administered. It is then considered Part D and becomes yet another financial burden for the patient, just like lenalidomide. Personally, I don't want to self-inject Darzalex or Velcade.
October 6, 2025 at 11:57 PM
The biggest barrier is that Medicare covers injections given at an infusion center under Part A/B, but not if self-administered. It is then considered Part D and becomes yet another financial burden for the patient, just like lenalidomide. Personally, I don't want to self-inject Darzalex or Velcade.
I am in complete response after stem cell transplant and a year of maintenance and I have high risk mutations. It's possible.
September 27, 2025 at 1:53 AM
I am in complete response after stem cell transplant and a year of maintenance and I have high risk mutations. It's possible.
It's very treatable. Pet parents do exceptionally well because fur baby love keeps spirits high. You got this.
September 26, 2025 at 4:18 PM
It's very treatable. Pet parents do exceptionally well because fur baby love keeps spirits high. You got this.
I take lenalidomide daily for multiple myeloma maintenance. It's a cousin of thalidomide and it's helping to keep me alive. Sorry about your brother.
September 24, 2025 at 3:12 PM
I take lenalidomide daily for multiple myeloma maintenance. It's a cousin of thalidomide and it's helping to keep me alive. Sorry about your brother.
Very treatable. More like a chronic disease.
September 21, 2025 at 3:47 PM
Very treatable. More like a chronic disease.
It was lifelong. Took my first pregnancy to finally get a diagnosis through a bone marrow sample. I was crammed full of iron, cod liver oil, etc. all through childhood, none of which made a difference because it is not an iron-deficiency anemia, but a microcytic anemia.
September 19, 2025 at 2:12 PM
It was lifelong. Took my first pregnancy to finally get a diagnosis through a bone marrow sample. I was crammed full of iron, cod liver oil, etc. all through childhood, none of which made a difference because it is not an iron-deficiency anemia, but a microcytic anemia.
No, but I have thalassemia, which can complicate things.
September 19, 2025 at 3:40 AM
No, but I have thalassemia, which can complicate things.
Super important issue, especially where viruses are concerned.
September 19, 2025 at 3:37 AM
Super important issue, especially where viruses are concerned.
Who wrote this? Jeez.
September 14, 2025 at 8:53 PM
Who wrote this? Jeez.
He will be able to wear a mask both pre and post-op. During surgery the staff are all masked. I've had 3 surgeries, 2 during Covid protocol and one since my MM diagnosis. Wore a mask with all 3 except in surgery. I still mask everywhere in public. Stay proactive/stay safe. Hugs.
September 13, 2025 at 12:19 AM
He will be able to wear a mask both pre and post-op. During surgery the staff are all masked. I've had 3 surgeries, 2 during Covid protocol and one since my MM diagnosis. Wore a mask with all 3 except in surgery. I still mask everywhere in public. Stay proactive/stay safe. Hugs.
Sounds more like something other than myeloma if he had a tumor on his face, but at this point, I'll settle for anything.
September 9, 2025 at 3:06 AM
Sounds more like something other than myeloma if he had a tumor on his face, but at this point, I'll settle for anything.
Beyond sad to hear this. Fuck MM.
September 8, 2025 at 2:28 AM
Beyond sad to hear this. Fuck MM.
God, I hope not. I don't want anything in common with that MFer.
September 2, 2025 at 4:12 AM
God, I hope not. I don't want anything in common with that MFer.
Such a doggone rotten disease. The animals, too?
September 2, 2025 at 4:10 AM
Such a doggone rotten disease. The animals, too?
Made my night. 🤣
August 31, 2025 at 1:46 AM
Made my night. 🤣
Agree 💯 and he's got obvious medical issues that his handlers work hard to cover up. Heart failure? Diabetes? Cancer? Most likely several diagnoses which require IV infusions on a regular schedule. Tick tock . . .
August 30, 2025 at 6:30 PM
Agree 💯 and he's got obvious medical issues that his handlers work hard to cover up. Heart failure? Diabetes? Cancer? Most likely several diagnoses which require IV infusions on a regular schedule. Tick tock . . .
Sorry you had to join the club, but it is very treatable, and some people are living for decades. Best advice I've gotten: Live your life! 🎸
August 30, 2025 at 2:59 PM
Sorry you had to join the club, but it is very treatable, and some people are living for decades. Best advice I've gotten: Live your life! 🎸
Infusions of IVIG are quite common for myeloma patients as we deal with immunity compromised both by the cancer in our plasma cells (the body's immune factory) plus depleted blood counts especially neotropenia. I get these infusions monthly. Most of us don't require a port, so bruise at the IV site.
August 30, 2025 at 12:10 AM
Infusions of IVIG are quite common for myeloma patients as we deal with immunity compromised both by the cancer in our plasma cells (the body's immune factory) plus depleted blood counts especially neotropenia. I get these infusions monthly. Most of us don't require a port, so bruise at the IV site.
Myeloma isn't a bone cancer. It's a cancer of the plasma cells in the bone marrow.
August 30, 2025 at 12:05 AM
Myeloma isn't a bone cancer. It's a cancer of the plasma cells in the bone marrow.
Malcolm and Sally! ❤️
August 29, 2025 at 11:56 PM
Malcolm and Sally! ❤️
I had my SCT over a year ago. In my experience, it wasn't that bad. It deepened my response, and I'm still in technically a complete response (M-spike 0.010.) I have aggressive high risk IgG Kappa with several mutations, so throwing everything available at it from the jump makes perfect sense to me.
August 29, 2025 at 3:31 PM
I had my SCT over a year ago. In my experience, it wasn't that bad. It deepened my response, and I'm still in technically a complete response (M-spike 0.010.) I have aggressive high risk IgG Kappa with several mutations, so throwing everything available at it from the jump makes perfect sense to me.
Oh hell, no! I don't want anything in common with him. 🤮
August 24, 2025 at 12:59 AM
Oh hell, no! I don't want anything in common with him. 🤮