Carmen Camacho , MA, LSW
camachoc2000.bsky.social
Carmen Camacho , MA, LSW
@camachoc2000.bsky.social
Mental health Clinician , Rare Disease Advocate , patient educator. Received a double lung transplant May 27 due to the pulmonary fibrosis of Hermansky Pudlak syndrome.
Celebrating my new life . Felling better everyday and continuing working on finding a cure for HPS pulmonary fibrosis. I had my double lung transplant May 27 2025, I'm feeling better.Transplant is not a cure is changing one condition for another !! So we still committed to finding a cure for HPS!!!
October 12, 2025 at 8:21 PM
Reposted by Carmen Camacho , MA, LSW
We're coming back! This weekend we'll be hanging out with the HPS Network for their weekend conference, and then in May our online store returns! Sign up for the newsletter or stay tuned here for more announcements about what's in store. 💫 daretoberare.org
April 2, 2025 at 8:00 PM
Pentagon fires Greenland military-base chief for “undermining” JD Vance - BBC News

Fired for doing the right thing!!! I would not want to be associated with him either!
April 11, 2025 at 1:22 PM
Reposted by Carmen Camacho , MA, LSW
Thank you to whoever made this
April 3, 2025 at 2:08 PM
March 28, 2025 at 2:41 PM
February 28, 2025 at 3:42 PM
Reposted by Carmen Camacho , MA, LSW
A great website tracking all the companies that have bent the knee to Trump and eliminated their DEI programs, and all the companies that have stood strong.

www.dei.watch
DEI WATCH
This guide is broken into three categories: 1) DISMANTLED - companies that have ended or scaled back their DEI efforts; 2) COMMITTED - companies that have active DEI initiatives; and 3) FUNDED - organ...
www.dei.watch
February 9, 2025 at 7:26 AM
Reposted by Carmen Camacho , MA, LSW
Anandamide Is a Potential Blood Biomarker of Hermansky-Pudlak Syndrome Pulmonary Fibrosis.
https://doi.org/10.1164/rccm.202406-1143RL
Anandamide Is a Potential Blood Biomarker of Hermansky-Pudlak Syndrome Pulmonary Fibrosis.
Published in American journal of respiratory and critical care medicine
doi.org
January 23, 2025 at 8:00 AM
I am listed for transplant and my friends are listed or going through the process! Ask your representatives to stand up for your health and safety ! This is beyond politics!! This is our health !
January 24, 2025 at 1:12 PM
This times are hard but is nice to come back and remember the good times
January 20, 2025 at 2:03 AM
My Sis!!!
January 20, 2025 at 1:59 AM
January 14, 2025 at 3:24 AM
I am so happy here!!!!
November 24, 2024 at 9:36 PM