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Cancer52 @cancer52org.bsky.social · 8d

Busy time at #Lab25, connecting with policy makers and member charities.
With the National Cancer Plan in the final stages of development, it’s a vital time to collaborate to improve outcomes for people affected by rare & less common cancers.

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Reposted by Cancer52

ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · Aug 27

Today, One Cancer Voice sets out 6 key asks for the National Cancer Plan.

As a @cancer52org.bsky.social member, ALK+ UK stands with this call.

The National Cancer Plan must deliver for everyone affected by cancer - including those with rare & less common cancers like ALK+ #lungcancer.

#LCSM

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Cancer52 @cancer52org.bsky.social · Aug 27

2.92 million new cancer cases will be rare & less common. We welcome the six tests nominated by #OneCancerVoice. Focussed and targeted action in the new National Cancer Plan is needed to combat the projected increase to and provide a much-needed boost to survival rates.

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Cancer52 @cancer52org.bsky.social · Jul 14

We are so pleased that the Rare Cancers Bill passed its 3rd Reading in the House of Commons on Friday.

This Bill could mark a significant step forward in addressing the urgent need for increased focus and research in the field of rare cancers.

Rare Cancers Bill has now passed through the House of Commons!
What the Bill wants to achieve for rare cancers.
1. Governmental lead for research.
2. Improve clinical trial access.
3. Incentivise research.

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Cancer52 @cancer52org.bsky.social · Jul 9

Cancer52 welcomes the ambitions in the new 10 Year Health Plan for England, especially on tackling health inequalities & innovation.

The focus on prevention, AI, genomics, and joined-up care is exciting - we hope that the resources will match the ambition.

Read the Plan: bit.ly/46u5sUC

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Cancer52 @cancer52org.bsky.social · Jul 1

Great news! 👏

Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @drscottarthurmp.bsky.social · Jul 1

Big news for my Rare Cancers Bill! - Yesterday, it took a major step forward as the UK Government confirmed the funding needed for it to progress.

This clears the way for the Bill to move to the committee stage—where it will be examined line by line—and, hopefully, to a 3rd Reading on 11 July! >>

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Reposted by Cancer52

Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @drscottarthurmp.bsky.social · Jun 25

It was a privilege to speak with the UK rare and less common cancer community at the Big Cancer52 Conversation in Canary Wharf yesterday.

I shared an update on what’s next for my Rare Cancers Bill—Committee Stage is scheduled for 2 July, with the Third Reading expected on 11 July.

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Cancer52 @cancer52org.bsky.social · Jun 26

Thank you for being part of the Big Cancer52 Conversation

Teenage Cancer Trust @teenagecancertrust.bsky.social · Jun 26

On Wednesday, Teenage Cancer Trust attended @cancer52org.bsky.social “The Big Conversation”. The event brought together charity partners to discuss how to improve patient outcomes for those with rare and less common cancers. (1/5).

Kirsty and Juliet from our policy team with Youth Advisory Group member Carys, who spoke at the event.

One of the insightful talks at Cancer52's "The Big Conversation"

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Reposted by Cancer52

Cameron Miller @cameronmillertbtc.bsky.social · Jun 25

A real pleasure to introduce @drscottarthurmp.bsky.social at the @cancer52org.bsky.social meeting this week and hear his motivation and hopesfor leading the Rare Cancers Bill. A chance for real change.

Proud to have been a part of this.

Cancer52 @cancer52org.bsky.social · Jun 24

We’re proud to bring the rare & less common cancer community together at the #BigCancer52Conversation

So far we’ve discussed what’s next in terms of policy for rare and less common cancers with the Rare Cancers Bill and National Cancer Plan @drscottarthurmp.bsky.social @thekingsfund.bsky.social

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Cancer52 @cancer52org.bsky.social · Jun 25

A massive thank you to our excellent speakers, panellists, topic experts and attendees who all contributed to the success of our sixth #BigCancer52Conversation yesterday!

A group photo of the attendees of the Big Cancer52 Conversation. Attendees are grouped together, stood or sat on the conference room stage and smiling.

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Cancer52 @cancer52org.bsky.social · Jun 24

This afternoon at the #BigCancer52Conversation we’re hearing incredible stories of patients' experiences of rare & less common cancers @clivejonesmp.bsky.social @teenagecancertrust.bsky.social

Thank you to AstraZeneca UK & @TNLComFund for making today possible

Cancer52 @cancer52org.bsky.social · Jun 24

We’re proud to bring the rare & less common cancer community together at the #BigCancer52Conversation

So far we’ve discussed what’s next in terms of policy for rare and less common cancers with the Rare Cancers Bill and National Cancer Plan @drscottarthurmp.bsky.social @thekingsfund.bsky.social

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Cancer52 @cancer52org.bsky.social · Jun 14

Congratulations Jane Lyons MBE!

Cancer52 @cancer52org.bsky.social · Jun 10

At our most recent All Member Meeting, we enjoyed a great presentation from @ipsosintheuk.bsky.social outlining their research on gender bias in cancer care.

Read more in their report: bit.ly/3Thqlus

Cover of a report by IPSOS titled Gender Bias: The 'Invisible' Barrier to Equitable Healthcare.

Cancer52 @cancer52org.bsky.social · May 28

At Cancer52 we love to get our charity members together with others in the rare & less common cancer community!
The photo is of our last #BigCancer52Conversation, held in Manchester.

We're now looking forward to our next event in London in June. Watch this space for more info…

Group of people from Cancer52 member charities, stood in a group.

Cancer52 @cancer52org.bsky.social · May 28

Cancer52 member charities came together recently at DHSC with Minister @ashleydaltonmp.bsky.social to help develop the new National Cancer Plan to improve outcomes for those affected by rare & less common cancers

Huge thanks to DHSC for hosting & all attendees for their engagement and contributions

Cancer52 @cancer52org.bsky.social · May 28

Excellent resource from @abpi.bsky.social with @pifonline.bsky.social ‬to support cross-sector collaboration

[email protected], PIF, @hrci.bsky.social‬, CRIG worked to develop FMV for patient orgs—important for partnership working & recognises expertise of charity sector➡️ bit.ly/3XIG7AB

Patient Information Forum @pifonline.bsky.social · May 13

New out today!

Working together: a handbook for industry and patient organisation partnerships.

Intended to help companies and patient organisations work successfully together for patients.

Created with @abpi.bsky.social

Get the guidance here: www.abpi.org.uk/publications...

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Cancer52 @cancer52org.bsky.social · May 28

Diagnosing cancer at stage I/II is important but doesn't fully capture all rare & less common cancers. Patients & clinicians told us early diagnosis should mean finding cancer when a real difference can be made.

Read our report: bit.ly/earlcandiag

Report cover with Cancer52 and GRAIL logos, titled Improving diagnosis. Patient and clinician perspectives on increasing diagnosis in rare and less common cancers.

Cancer52 @cancer52org.bsky.social · May 28

Cancer52 is now on Bluesky!

Excited to connect with our charity members and others in the rare and less common cancer community on this platform.

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