@Carsueb
carsueb.bsky.social
@Carsueb
@carsueb.bsky.social
I am an ICU Survivor & Ostomate. I advocate for other Survivors & StomaBuds, as I have an Ileostomy.
If you're an #ICUSurvivor, would it have helped you to talk to another #ICUSurvivor prior to hospital discharge? This is something I think would be helpful. I know it would have helped me & my family to know what to expect once I got home.
January 28, 2026 at 1:29 AM
Hello #Ostomates,
When you receive your #Ostomy supplies from your distributor or pharmacy, make sure you note the expiration dates. All products have these dates on the packaging. Keep them in a space which is neither too cold nor too warm, because the adhesive quality can be compromised.
January 13, 2026 at 7:22 PM
At #Thanksgiving, watch your alcohol & dessert intake, too. Both contain a lot of sugar & sugar makes your #Ostomy #Stoma produce more output. Sugar acts as a laxative & Sugar is the enemy of the #Ostomate.
Happy Holidays.
November 23, 2025 at 4:57 PM
GM #StomaBuds,with Thanksgiving this week, make sure you eat a balanced meal with protein & carbs. Steer clear of fresh fruits & veggies, unless your Dr has told you otherwise. Chew your foods slowly & thoroughly. You want to avoid a possible ##BowelObstruction
November 23, 2025 at 4:54 PM
Hi #StomaBuds, #Ostomates,
when you have an #Ostomy, there are red light foods (popcorn, corn, fresh fruits & veggies, to name a few), & green light foods (pasta, white rice, breads, crackers, tuna, cheese, to name a few). What goes in must come out. So make like a train & chew chew chew! ❤️
November 22, 2025 at 8:52 PM
2/2 When my #Peristomal skin is a little irritated, I wash the skin with a little Head & Shoulders in the shower & dry my skin thoroughly before putting on a new appliance. I even use my hair dryer on a low setting to dry my skin.
#Ostomates
#Ostomies
#Peristomal
November 19, 2025 at 5:08 PM
GM #StomaBuds, your #Peristomal skin, the skin around your #Stoma, must be given the utmost care. It's imp to keep the skin dry & prepped before you change your #Ostomy appliance. Less is more! If your skin is good shape, you don't need to use any prep, but listen to your
nurse or Dr. 1/2
November 19, 2025 at 5:07 PM
If you have an #Ostomy & need help or support, I'm your go to! I have an #Ileostomy bec my colon ruptured after a critical illness. It's been 7 yrs now. It was very challenging bec when I was discharged from the hospital, I weighed 69 lbs. Message me for help or support.
November 19, 2025 at 5:05 PM
The cold weather is now upon us. Please make sure you have an adequate amount of all #Ostomy supplies. With the holidays approaching, deliveries may be slower. Please allow plenty of time to order your supplies. #Ostomates
October 30, 2025 at 2:13 PM
Spread some love and light to brighten up our world. We need it! ❤️
April 2, 2025 at 8:51 PM
I will soon be approaching the anniversary of the day I became critically ill (April 22). My life was forever changed. I am beyond grateful to be alive, and I have gone on to help countless patients thru my advocacy. I owe my life to my Mom and brother, Alan. Without them, I would not have survived.
March 24, 2025 at 5:00 PM
Just something to be aware of in your friendships.
Always remember it's easy for folks to surround you on sunny days. But what's really important is who sticks by you during life's storms!
March 17, 2025 at 12:48 AM
My Dr wrote me a prescription for #Paxlovid. I called the pharmacy to see if the prescription was ready and the cost. With my prescription plan, it was a little over $600. SERIOUSLY? Needless to say, I canceled the prescription. Thanks #BigPharma.
I have never stopped #Masking since the #CovidPandemic. I have gotten all my #Vaccinations AND #Booster shots. I went to my #PCP yesterday because I was feeling sick. I tested + for #Covid. I was shocked! So I am very thankful I did all those things because my body is immunocompromised.
March 14, 2025 at 1:48 AM
I have never stopped #Masking since the #CovidPandemic. I have gotten all my #Vaccinations AND #Booster shots. I went to my #PCP yesterday because I was feeling sick. I tested + for #Covid. I was shocked! So I am very thankful I did all those things because my body is immunocompromised.
March 12, 2025 at 4:16 PM
The 🌎 is upside down & inside out. But you can decide to live your life every day with joy. Smile at a stranger, help someone in the grocery store, pay it forward. You can make a difference.
March 10, 2025 at 11:48 PM
Always remember it's easy for folks to surround you on sunny days. But what's really important is who sticks by you during life's storms!
March 8, 2025 at 11:03 PM
I need a positive space where I can help Survivors of #Criticalillness & folks with #Stomas #Ostomies. If I can help, pls reach out. I like to share all my tips & tricks with those living w/ #Ostomies. My colon ruptured in 2018, and after many surgeries, I have a life-saving #Ileostomy.
March 8, 2025 at 10:37 PM
Reposted by @Carsueb
Call your senators now, if you don’t know what to say, use what I said below. Spice it up with your own language.
February 4, 2025 at 2:47 PM
Reposted by @Carsueb
We could have had this guy 🫤
February 3, 2025 at 10:32 PM
Never give up hoping! Hope fuels your mind and body. Yesterday is gone, but tomorrow has endless possibilities. Hope . . . ❤️
January 17, 2025 at 7:50 AM
Thoughts & prayers offered up for everyone touched by the wildfires in California. It's not just homes, but entire communities being wiped out. All sense of safety is gone.
January 9, 2025 at 9:17 PM
Reposted by @Carsueb
We also discussed the many ways you and your loved ones can stay safe when exposed to toxic smoke.

Please reshare and stay as safe as you can #medsky
January 8, 2025 at 9:17 PM
Hi StomaBuds/Ostomates, I decided to take the plunge to a positive platform, where my sky is always blue. I am here to answer your questions. I hear you. I support you.

An Ostomy is not the end of your life. It is the start of a new life, a quality life. My Ostomy saved my life.
January 8, 2025 at 4:32 PM
We are mere grains of sand on the beach of life!
December 2, 2024 at 8:49 PM