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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 12h

📣 New research shows that only 50% of CYP with a #BoneTumour are diagnosed within 12.5 weeks.

We're proud to launch new evidence-based support to help doctors recognise and diagnose bone tumours in patients under 18 sooner: https://bit.ly/42wguWV

#ChildCancerSmart

Bone Tumours

The Child Cancer Smart bone tumour decision support tool provides guidance for healthcare professionals on the management of child or young person aged 0-18 years presenting with symptoms that may prompt the clinician to consider further investigation to diagnose or rule out a bone tumour.

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 2d

Earlier this year we proudly invested £800,000 into vital #EwingSarcoma research in partnership with the @bcrt-uk.bsky.social and @greatormondst.bsky.social, collectively funding four groundbreaking new bone cancer research projects.

Find out more at https://bit.ly/4kqXOxS

#BoneCancerAwarenessWeek

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 8d

As a proud member of @walescanceralliance.org, we are pleased to share the Alliance’s manifesto to improve cancer care in Wales. Published today, this outlines our four key recommendations, and we are calling on all parties to commit to delivering these should they form the next Welsh Government 👇

Wales Cancer Alliance @walescanceralliance.org · 8d

📢 We've launched our 2025 manifesto!
Fixing the Foundations: Building a better future for cancer care in Wales.

Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.

What we're calling for⬇️

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Reposted by CCLG: The Children & Young People’s Cancer Association

Wales Cancer Alliance @walescanceralliance.org · 8d

📢 We've launched our 2025 manifesto!
Fixing the Foundations: Building a better future for cancer care in Wales.

Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.

What we're calling for⬇️

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 9d

Can we improve how brain tumours are diagnosed?

Dr Rob Dineen and Professor Madhumita Dandapani think so! Their research is pushing for faster, more accurate diagnoses and better outcomes for children 🎗️🔬 @littleprincesses.bsky.social

Read more at bit.ly/4mID06b

#CCAM #BrainTumourResearch #CCLG

Can we improve how brain tumours are diagnosed?

Diagnosis is a scary time for families, full of unknowns. So how can we make diagnosis quicker and more accurate? Our researchers have some exciting ideas...

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 10d

Lewis Paget was diagnosed with two different leukaemias at the same time as a teenager in 2016.

In Contact magazine, he describes the impact of this and how it influenced him to become a cancer researcher himself 🎗️🔬

Read Lewis' full article at https://bit.ly/3VC0fne

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 12d

Teenagers finishing cancer treatment face many challenges as they adjust to life afterward. Our free guide, 'What happens next?', offers valuable support for this transition. Share this resource with teens completing their treatment! 🌟

Order or download bit.ly/42IUV5l

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 14d

In 1977, less than 30% of children survived cancer; now it's over 80%. But we can do more!

Our new research strategy aims for a future where every child and young person receives the best treatment and care.

#WorldCancerResearchDay

Read more at bit.ly/4njxfwA

The future of children and young people’s cancer research

Earlier this year, CCLG launched its new research strategy. Ashley Ball-Gamble, CEO of CCLG, explains what this means for children and young people’s cancer.

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 19d

New Frontier Economics report, commissioned by @amrc-uk.bsky.social and @wellcometrust.bsky.social, showcases the extensive benefits of non-commercial clinical research 🔬

It reveals the ‘triple dividend’ this research brings to the UK: unlocking growth, supporting the NHS and improving lives 👇

Association of Medical Research Charities @amrc-uk.bsky.social · 20d

New Frontier Economics report, commissioned by AMRC and @wellcometrust.bsky.social, showcases the extensive benefits of non-commercial clinical research. It reveals the ‘triple dividend’ this research brings to the UK: unlocking growth, supporting the NHS and improving lives. bit.ly/3KrW7nf

Health and growth: How non-commerical clinical research benefits the UK. www.amrc.org.uk/HealthAndGrowth25 A report for the Association of Medical Research Charities (AMRC) and Wellcome, by Frontier Economics

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 28d

🚨 Attention, early career researchers working in childhood and young people's cancer: Share your work 🗣️

Submit a poster, presentation, or power pitch for our Early Career Research Day.

Deadline: 5 pm, Friday, 19 September.

More info and submit at bit.ly/42qh9c6

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Sep 5

💡 Have an idea to improve cancer outcomes for children and young people?

@littleprincesses.bsky.social Project Grants are available for #research into kinder treatments, better care, and improved diagnosis.

Find out more and apply by 8 October at bit.ly/47vDWa5

#CCAM #CYPCancerResearch

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Sep 2

This #CCAM, Laura and Dave, parents of Max, who was diagnosed with acute lymphoblastic leukaemia (ALL) at the age of seven, are raising awareness and funds for research to improve treatments for this disease 🎗️

Read more at bit.ly/47UOLlV

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Sep 1

Around 1 in 500 children in the UK will be diagnosed with cancer by age 14. This #CCAM, we’re highlighting #ChildCancerSmart, sharing information about how diagnoses are made and what support is available for families 🎗️

Find out more and get involved at bit.ly/45JBdsi

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 27

We're joining #OneCancerVoice, a coalition of over 60 charities, to urge the UK Government to deliver a bold and fully funded #NationalCancerPlan for England. This plan aims to save and improve the lives of more people, including children and young people 🎗️📣

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 21

Exciting breakthrough 🎗️ New @nature.com paper from @universityofleeds.bsky.social reveals how DNA circles can drive relapse in childhood leukaemia. “This could provide an early warning system for patients more at risk of relapse.” – Dr Boyes

Read more at bit.ly/4mjNE3I @littleprincesses.bsky.social

New discovery links circular DNA by-products to childhood leukaemia relapse

A Little Princess Trust-funded research project has found that a previously overlooked type of circular DNA may explain why some children with leukaemia relapse.

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 20

Interested in #ImagingScience in #PaediatricOncology? 🔍

Join CCLG’s first-ever Imaging Science Day in person on Friday, 5 September. Discover exciting new developments and research from expert speakers.

🚨 Registration deadline: 22 August

Register at bit.ly/45cyibe

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 19

3 persistent symptoms, 3 GP visits or 3 weeks of unexplained symptoms? We want #HealthcareProfessionals to consider: 'Could it be cancer?'

#ChildCancerSmart Dissemination Lead, @drbobphillips.bsky.social, explains more about our evidence-based approach.

🔗 bit.ly/4lno0Kh

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 8

We want #HealthcareProfessionals to consider the question: 'Could it be cancer?'

If a child has 3 persistent symptoms, 3 GP visits, or 3 weeks of unexplained symptoms, it might be time to call your local on-call paediatrician 📞

cclg.org.uk/childcancers...

#ChildCancerSmart

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 7

Today, we’re launching #ChildCancerSmart alongside campaign ambassador @dramirkhangp.bsky.social - an evidence-based public and professional awareness campaign to improve #EarlyDiagnosis of cancer in children and teenagers aged up to 18 🩵🎗️

Find out more at cclg.org.uk/childcancers...

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 7

Cancer is the biggest killer by disease in the UK of children and teenagers. Too many are waiting longer than necessary to be diagnosed ‼️ Research shows that while some are diagnosed quickly after showing symptoms, many may take months or years - we want to close this gap 👇

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jul 31

Next week, brothers Jamie and John are paddleboarding across the English Channel to raise funds for CCLG, in memory of Jamie’s daughter, Pearl.

Join us in wishing Jamie and John the best of luck for their incredible challenge 💛🎗️

More info and donate at bit.ly/3G1lQ4f

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Reposted by CCLG: The Children & Young People’s Cancer Association

Association of Medical Research Charities @amrc-uk.bsky.social · Jul 29

Fantastic to see this collaboration between AMRC members @cclguk.bsky.social, @bcrt-uk.bsky.social and @goshcharity.bsky.social!

“The team hopes that by disrupting these protein networks, they can reverse the changes that allow cancer to grow...” 👇

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jul 29

🧬 New research funded into Ewing sarcoma, led by Dr Sara Sánchez Molina.

Our Special Named Funds are co-funding a new study into this rare and aggressive bone cancer, alongside @bcrt-uk.bsky.social, Ewing’s Sarcoma Research Trust & @goshcharity.bsky.social.

Find out more at bit.ly/44RoKSU

New research aims to understand and fight the mechanisms of Ewing sarcoma

CCLG: The Children & Young People’s Cancer Association is proud to be one of four charities co-funding a new research project that could pave the way to more effective and targeted treatments for a ra...

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jul 29

🧬 New research funded into Ewing sarcoma, led by Dr Sara Sánchez Molina.

Our Special Named Funds are co-funding a new study into this rare and aggressive bone cancer, alongside @bcrt-uk.bsky.social, Ewing’s Sarcoma Research Trust & @goshcharity.bsky.social.

Find out more at bit.ly/44RoKSU

New research aims to understand and fight the mechanisms of Ewing sarcoma

CCLG: The Children & Young People’s Cancer Association is proud to be one of four charities co-funding a new research project that could pave the way to more effective and targeted treatments for a ra...

bit.ly

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Reposted by CCLG: The Children & Young People’s Cancer Association

Bone Cancer Research Trust @bcrt-uk.bsky.social · Jul 28

Rethinking Ewing sarcoma research 🔬

Instead of targeting the cancer-causing protein, scientists are now studying the support system behind it.

Led by Dr. Sánchez Molina, this project could revolutionise future treatment.

Visit: ow.ly/CTOI50WtUl0

#SarcomaAwarenessMonth #Research #UntilTheresACure

A person with curly brunette hair smiling for a photograph against a white background. She is wearing a pattered cardigan, a black t-shirt and long earrings.

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jul 25

Unit 9 of our eLearning series for #multiprofessionals in the early years of a career in #CYPCancer services is now live - ‘An introduction to palliative and end of life care for children, teenagers and young adults’ 💛

Access the eLearning Hub at learning.cclg.org.uk