charleneson.bsky.social
@charleneson.bsky.social
In the last few years in #raredisease, we've gone from "Cure" being almost a forbidden word to hearing it every day. Rare disease patient families don't use the word "cure" lightly, & we are realistic in our optimism. @ingohelbig.bsky.social explores this in Cure vs. treat
bit.ly/3Z7HpGo
bit.ly/3Z7HpGo
Cure vs. treat: the Babel problem in rare disease language
Language. There are a few words in medicine that seem simple until you say them out loud in front of the wrong audience. In rare disease clinics, two of them are cure and treat. We use them consta…
epilepsygenetics.blog
January 30, 2026 at 12:26 AM
In the last few years in #raredisease, we've gone from "Cure" being almost a forbidden word to hearing it every day. Rare disease patient families don't use the word "cure" lightly, & we are realistic in our optimism. @ingohelbig.bsky.social explores this in Cure vs. treat
bit.ly/3Z7HpGo
bit.ly/3Z7HpGo