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Cleft Collective @cleftcollective.bsky.social · 21d

Latest research using Cleft Collective data looking at psychological well-being in caregivers of young children with cleft lip and/or palate. More info here: academic.oup.com/jpepsy/advan...
#cleftlip #cleftpalate #cleftawareness

Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate

AbstractObjective. Caregivers of children with chronic conditions can experience psychological distress and an impact on quality of life (QoL). Cleft lip a

academic.oup.com

Cleft Collective @cleftcollective.bsky.social · Sep 4

⭐️New research alert⭐️
We examined genetic information from children in the Cleft Collective study to look for specific rare genetic changes called copy number variants or CNVs. Read more: academic.oup.com/hmg/advance-...
#cleftlip #cleftpalate #cleftawareness

Copy number variants and their implications for developmental and behavioural problems in cleft lip and/or palate

Abstract. Cleft lip and/or palate (CL/P) is the most common craniofacial congenital anomaly and has been associated with higher risk of neurodevelopmental

academic.oup.com

Reposted by Cleft Collective

The Cleft Lip and Palate Association (CLAPA) @clapacommunity.bsky.social · Jul 26

Answered yes?✅

Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.

They are currently recruiting young adults to attend one of their research clinics.

🔗 To find out more: buff.ly/C2qDBiV

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Cleft Collective @cleftcollective.bsky.social · Jul 17

💥 New research using Cleft Collective data💥
How cleft-related speech errors affect children's communication.
✴️ Findings show the need for targeted, individualized speech therapy. @yvonnewren.bsky.social
Read more: pubmed.ncbi.nlm.nih.gov/40408135/
#CleftPalate #SpeechTherapy #ChildDevelopment

Relationship Between Intelligibility in Context Scale and Cleft-Related Speech Sound Errors in 3-Year-Olds With Nonsyndromic Cleft (Lip and) Palate - PubMed

The presence of anterior oral errors and passive errors reduced speech intelligibility across different communication partners. Non-oral errors did not show as strong an impact, although specific subt...

pubmed.ncbi.nlm.nih.gov

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Reposted by Cleft Collective

Dr Sam Burr @samburrslt.bsky.social · Jun 25

@yvonnewren.bsky.social presents work work on #SpeechIntelligibility from @cleftcollective.bsky.social at @icpla2025.bsky.social

@bristoluni.bsky.social @bristol-sltru.bsky.social @sharynnemcleod.bsky.social Amy Davies

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Cleft Collective @cleftcollective.bsky.social · May 2

Professor Evie Stergiakouli also presented her own work on 'Copy Number Variants Linked to Neurodevelopmental Disorders and their Implications for Cleft Lip and/or Palate' #CFSGBI2025

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Cleft Collective @cleftcollective.bsky.social · May 2

An informative talk from Professor Evie Stergiakouli on behalf of Professor Sarah Lewis: 'Findings from genome wide association analyses in the Cleft Collective'. #CFSGBI2025

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Cleft Collective @cleftcollective.bsky.social · May 2

We are enjoying another day in Newcastle at the #CFSGBI2025 conference 🤩 with a poster from our Research Coordinator, Amy Davies, 'Making sense of speech intelligibility outcome data: Findings from the Cleft Collective'.
@yvonnewren.bsky.social

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Cleft Collective @cleftcollective.bsky.social · May 1

A brilliant presentation from Sonya Gholami on her research using Cleft Collective data:
'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025

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Cleft Collective @cleftcollective.bsky.social · May 1

Great to be in Newcastle for the annual Craniofacial Society of Great Britain and Ireland Conference #cfsgbi2025😀
A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'.
@yvonnewren.bsky.social

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Reposted by Cleft Collective

Cleft@18-23 Study @cleft1823study.bsky.social · Apr 16

We are now recruiting study participants in Salisbury and surrounding areas!

If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.

Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.

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Reposted by Cleft Collective

Cleft@18-23 Study @cleft1823study.bsky.social · Apr 11

If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.

Head to the link in bio to register your interest and help us shape the future of cleft care in the UK.

We are now recruiting study participants in Oxford and surrounding areas!

#cleft #cleftresearch

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Cleft Collective @cleftcollective.bsky.social · Apr 8

HRH The Duchess of Edinburgh visited @bristoluni.bsky.social to learn more about world-leading research funded by Scar Free Foundation. HRH visited the Cleft Collective as one of the studies funded by Scar Free for over 10 years.
Read more: www.bristol.ac.uk/news/2025/ma...
Image credit: James Allan

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Reposted by Cleft Collective

Dr Abhaya Vadlamudi @abhayavadlamudi.bsky.social · Mar 21

Cleft@18-23 study is now recruiting participants across the UK! @cleft1823study.bsky.social

#cleft #cleft18-23 #cleftresearch #cleftlipandpalate

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Reposted by Cleft Collective

Cleft@18-23 Study @cleft1823study.bsky.social · Mar 6

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Cleft Collective @cleftcollective.bsky.social · Feb 26

If you’re aged between 18-23 and want to get involved with important cleft research, see below! 👇

Cleft@18-23 Study @cleft1823study.bsky.social · Feb 20

Cleft@18-23 are looking to recruit participants to take part in our research study at the South West Clinic! Please scan the QR code for more info

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Cleft Collective @cleftcollective.bsky.social · Feb 25

Our Winter newsletter is here!
Click the link to read what we've been up to: www.bristol.ac.uk/dental/cleft...

Cleft Collective @cleftcollective.bsky.social · Jan 31

If you’re aged between 18-23 and have a cleft, this study is for you! More details coming soon…

Cleft@18-23 Study @cleft1823study.bsky.social · Jan 31

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Cleft Collective @cleftcollective.bsky.social · Dec 17

10 Facts about The Cleft Collective. We are so proud of these numbers and we are so grateful to all of our participants for contributing so much to our research! Head to our website to find out how to access the data: www.bristol.ac.uk/dental/cleft...

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Cleft Collective @cleftcollective.bsky.social · Dec 4

Latest research from cleftcollective.bsky.social concludes that children born with a cleft and two or more anomalies are more likely to have a syndrome than those with fewer anomalies and should be prioritised for assessment by Clinical Genetics services. www.mdpi.com/2077-0383/13...

Predicting Syndromic Status Based on Longitudinal Data from Parental Reports of the Presence of Additional Structural and Functional Anomalies in Children Born with an Orofacial Cleft

Background: Orofacial clefts are the most common craniofacial congenital malformation in humans. Approximately 30% of clefts arise as part of a syndrome or sequence, characterised by co-existing struc...

www.mdpi.com

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Reposted by Cleft Collective

Dr Stephanie van Eeden @stephvanee-slt.bsky.social · Dec 1

Interested in a PhD looking at identifying early indicators of persistent speech sound disorder in children born with cleft? Check this link for a funded PhD opportunity working with the Cleft Collective www.findaphd.com/phds/project...

Reducing inequality through early identification of risk of persistent speech disorder in children born with cleft palate at University of Bristol on FindAPhD.com

PhD Project - Reducing inequality through early identification of risk of persistent speech disorder in children born with cleft palate at University of Bristol, listed on FindAPhD.com

www.findaphd.com

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Reposted by Cleft Collective

The Cleft Lip and Palate Association (CLAPA) @clapacommunity.bsky.social · Nov 27

Finding out that your baby will be born with a cleft can be overwhelming.

CLAPA's free Counselling Service can help you to make sense of your feelings and work with you to help you feel better about what the future will bring: https://buff.ly/4bnJem0

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Reposted by Cleft Collective

Professor Yvonne Wren @yvonnewren.bsky.social · Nov 15

Funded PhD opportunity with @cleftcollective.bsky.social at University of Bristol and @stephvanee-slt.bsky.social. Great opportunity to work that has impact for health providers and those affected by cleft lip/palate. More info at
www.findaphd.com/phds/project...

Timing and technique of primary surgery for children born with cleft lip and/or palate and associations with childhood outcomes at University of Bristol on FindAPhD.com

PhD Project - Timing and technique of primary surgery for children born with cleft lip and/or palate and associations with childhood outcomes at University of Bristol, listed on FindAPhD.com

www.findaphd.com

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Cleft Collective @cleftcollective.bsky.social · Nov 6

Together we can investigate the causes of cleft, best treatments of cleft and better understand what it's like to be an adult living with a cleft.
Watch our 4 minute film to find out more about this valuable research:
🎥 www.youtube.com/watch?v=imyJ...

Leading the way in cleft research for better lives and futures

YouTube video by University of Bristol

www.youtube.com

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