Sickle Cell Disease Coalition
@conquerscd.bsky.social
📢 Call for SCDC Update submissions!
Missed the first newsletter of the month? You can submit items for the next edition until Jan 26.
We welcome community news, events, opportunities, and resources related to sickle cell disease.
Not sure if your item fits? Email us: [email protected]
Missed the first newsletter of the month? You can submit items for the next edition until Jan 26.
We welcome community news, events, opportunities, and resources related to sickle cell disease.
Not sure if your item fits? Email us: [email protected]
January 15, 2026 at 1:40 PM
📢 Call for SCDC Update submissions!
Missed the first newsletter of the month? You can submit items for the next edition until Jan 26.
We welcome community news, events, opportunities, and resources related to sickle cell disease.
Not sure if your item fits? Email us: [email protected]
Missed the first newsletter of the month? You can submit items for the next edition until Jan 26.
We welcome community news, events, opportunities, and resources related to sickle cell disease.
Not sure if your item fits? Email us: [email protected]
Attention SCDC Members! ASH is still accepting public comments on the new guidelines on dosing and monitoring of HU for SCD. Send your comments using the link below!
📢 ASH is now accepting public comments on the new guidelines on dosing and monitoring of Hydroxyurea for SCD.
Submit your comments by January 20, 2026.
🔗 https://www.hematology.org/education/clinicians/guidelines-and-quality-care/public-comment-guidelines
#ConquerSCD #HemeSky #MedSky
Submit your comments by January 20, 2026.
🔗 https://www.hematology.org/education/clinicians/guidelines-and-quality-care/public-comment-guidelines
#ConquerSCD #HemeSky #MedSky
January 14, 2026 at 10:08 PM
Attention SCDC Members! ASH is still accepting public comments on the new guidelines on dosing and monitoring of HU for SCD. Send your comments using the link below!
Today marks the start of National Blood Donor Month! 🩸
Celebrate by exploring @ADRP’s Resource Library for tools and resources that support diverse blood donation efforts.
Learn more: https://ow.ly/HTwB50XGXWG
Celebrate by exploring @ADRP’s Resource Library for tools and resources that support diverse blood donation efforts.
Learn more: https://ow.ly/HTwB50XGXWG
Resource Library - ADRP: The Association for Blood Donor Professionals
Search Resources Browse by Topic Discover Your Perfect Resource Unlock a wealth of knowledge by searching ADRP's comprehensive library using filters like resource type, topic, and date to quickly find the exact information you need. Resource Type Topic Results per page Sort By
ow.ly
January 1, 2026 at 2:01 PM
Today marks the start of National Blood Donor Month! 🩸
Celebrate by exploring @ADRP’s Resource Library for tools and resources that support diverse blood donation efforts.
Learn more: https://ow.ly/HTwB50XGXWG
Celebrate by exploring @ADRP’s Resource Library for tools and resources that support diverse blood donation efforts.
Learn more: https://ow.ly/HTwB50XGXWG
🎄✨ Happy Holidays from the SCDC team! ✨🎄
Thank you to our community, partners, and supporters for your courage and dedication this year. We’ll see you in 2026! ❤️
#SickleCell #SCDCPartner #ConquerSCD #SCDC
Thank you to our community, partners, and supporters for your courage and dedication this year. We’ll see you in 2026! ❤️
#SickleCell #SCDCPartner #ConquerSCD #SCDC
December 24, 2025 at 3:01 PM
🎄✨ Happy Holidays from the SCDC team! ✨🎄
Thank you to our community, partners, and supporters for your courage and dedication this year. We’ll see you in 2026! ❤️
#SickleCell #SCDCPartner #ConquerSCD #SCDC
Thank you to our community, partners, and supporters for your courage and dedication this year. We’ll see you in 2026! ❤️
#SickleCell #SCDCPartner #ConquerSCD #SCDC
The holidays are busy, and for those with sickle cell, self-care matters just as much as celebration.
Check out this helpful guide from our #SCDCPartner, As One Foundation: https://ow.ly/2MWP50XGWHC
#SickleCell #SelfCare #HolidayHealth #SCDC
Check out this helpful guide from our #SCDCPartner, As One Foundation: https://ow.ly/2MWP50XGWHC
#SickleCell #SelfCare #HolidayHealth #SCDC
7 Tips to Manage Holiday Stress with Sickle Cell - As One Foundation
The holidays are upon us . This is the time of year we spend celebrating with friends and/or family. Cooking that delicious holiday meal, shopping for those special gifts, traveling […]
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December 22, 2025 at 3:01 PM
The holidays are busy, and for those with sickle cell, self-care matters just as much as celebration.
Check out this helpful guide from our #SCDCPartner, As One Foundation: https://ow.ly/2MWP50XGWHC
#SickleCell #SelfCare #HolidayHealth #SCDC
Check out this helpful guide from our #SCDCPartner, As One Foundation: https://ow.ly/2MWP50XGWHC
#SickleCell #SelfCare #HolidayHealth #SCDC
🎉 From milestones to moments that made an impact this year, relive the highlights that made 2025 unforgettable for the SCDC community.
Dive in now and celebrate with us! 🚀 #SCDCWrapped #YearInReview #SCDCPartner #SCD #Coalition
Dive in now and celebrate with us! 🚀 #SCDCWrapped #YearInReview #SCDCPartner #SCD #Coalition
December 19, 2025 at 7:00 PM
🎉 From milestones to moments that made an impact this year, relive the highlights that made 2025 unforgettable for the SCDC community.
Dive in now and celebrate with us! 🚀 #SCDCWrapped #YearInReview #SCDCPartner #SCD #Coalition
Dive in now and celebrate with us! 🚀 #SCDCWrapped #YearInReview #SCDCPartner #SCD #Coalition
Last SCDC-Wide Meeting of the Year!
Join us to hear updates and upcoming changes.
Make sure your organization is represented.
Questions: [email protected]
Join us to hear updates and upcoming changes.
Make sure your organization is represented.
Questions: [email protected]
December 15, 2025 at 2:05 PM
Last SCDC-Wide Meeting of the Year!
Join us to hear updates and upcoming changes.
Make sure your organization is represented.
Questions: [email protected]
Join us to hear updates and upcoming changes.
Make sure your organization is represented.
Questions: [email protected]
Have you seen "Sacred Spaces: Healing Through Art" at The Sanctuary yet? 🎨
Explore visual storytelling that inspires reflection and connection. Created on behalf of our #SCDCPartner, Cayenne Wellness Center. 📅 Weekends | 10 AM – 6 PM | Glendale, CA
Get tickets: https://ow.ly/g1rf50XGTjS
Explore visual storytelling that inspires reflection and connection. Created on behalf of our #SCDCPartner, Cayenne Wellness Center. 📅 Weekends | 10 AM – 6 PM | Glendale, CA
Get tickets: https://ow.ly/g1rf50XGTjS
December 12, 2025 at 2:01 PM
Have you seen "Sacred Spaces: Healing Through Art" at The Sanctuary yet? 🎨
Explore visual storytelling that inspires reflection and connection. Created on behalf of our #SCDCPartner, Cayenne Wellness Center. 📅 Weekends | 10 AM – 6 PM | Glendale, CA
Get tickets: https://ow.ly/g1rf50XGTjS
Explore visual storytelling that inspires reflection and connection. Created on behalf of our #SCDCPartner, Cayenne Wellness Center. 📅 Weekends | 10 AM – 6 PM | Glendale, CA
Get tickets: https://ow.ly/g1rf50XGTjS
Missed our November SCD Coalition Peer Learning Exchange with CHAI? The full session is now on YouTube. Catch up and explore how data-driven insights, policy alignment, and catalytic financing are transforming access to care.
👉https://ow.ly/PteR50XGYsH
👉https://ow.ly/PteR50XGYsH
December 11, 2025 at 2:01 PM
Missed our November SCD Coalition Peer Learning Exchange with CHAI? The full session is now on YouTube. Catch up and explore how data-driven insights, policy alignment, and catalytic financing are transforming access to care.
👉https://ow.ly/PteR50XGYsH
👉https://ow.ly/PteR50XGYsH
Reposted by Sickle Cell Disease Coalition
Michelle Weeks presenting a Master Class in DNA sequencing at #ASH25 of over 4,000 #sicklecelldisease cases showing clonal hematopoiesis starts at infancy and increases to 7.1% by age 11 @danafarber.bsky.social drivers include TP53, ATM, PPMID, CHEK2 @ascaa.bsky.social @conquerscd.bsky.social
December 6, 2025 at 3:07 PM
Michelle Weeks presenting a Master Class in DNA sequencing at #ASH25 of over 4,000 #sicklecelldisease cases showing clonal hematopoiesis starts at infancy and increases to 7.1% by age 11 @danafarber.bsky.social drivers include TP53, ATM, PPMID, CHEK2 @ascaa.bsky.social @conquerscd.bsky.social
Missed some sessions at the ASH Annual Meeting?
If you registered—whether in-person or virtual—you still have access to the platform. Session recordings and posters are available until January 1st. Catch up while you can!
👉https://ow.ly/ciRj50XGSOg
If you registered—whether in-person or virtual—you still have access to the platform. Session recordings and posters are available until January 1st. Catch up while you can!
👉https://ow.ly/ciRj50XGSOg
December 10, 2025 at 3:02 PM
Missed some sessions at the ASH Annual Meeting?
If you registered—whether in-person or virtual—you still have access to the platform. Session recordings and posters are available until January 1st. Catch up while you can!
👉https://ow.ly/ciRj50XGSOg
If you registered—whether in-person or virtual—you still have access to the platform. Session recordings and posters are available until January 1st. Catch up while you can!
👉https://ow.ly/ciRj50XGSOg
🎵 The BEAT SCD project is exploring how music can help reduce stigma and support mental health for people living with sickle cell disease.
Take the survey and share your views on SCD and music 🎶
👉 https://ow.ly/WyJQ50XG0mz
Take the survey and share your views on SCD and music 🎶
👉 https://ow.ly/WyJQ50XG0mz
December 9, 2025 at 1:15 PM
🎵 The BEAT SCD project is exploring how music can help reduce stigma and support mental health for people living with sickle cell disease.
Take the survey and share your views on SCD and music 🎶
👉 https://ow.ly/WyJQ50XG0mz
Take the survey and share your views on SCD and music 🎶
👉 https://ow.ly/WyJQ50XG0mz
The 67th ASH Annual Meeting is Dec 6-9! 🎉 Are you attending? 👇 ✅ Yes, can’t wait! ❌ Not this year 🤔 Still deciding? Connect with SCD advocates, meet hematologists, and share insights. #SCDCoalition #AnnualMeeting #SickleCellDisease #Networking #CommunityEngagement
December 1, 2025 at 2:30 PM
The 67th ASH Annual Meeting is Dec 6-9! 🎉 Are you attending? 👇 ✅ Yes, can’t wait! ❌ Not this year 🤔 Still deciding? Connect with SCD advocates, meet hematologists, and share insights. #SCDCoalition #AnnualMeeting #SickleCellDisease #Networking #CommunityEngagement
🦃 Happy Thanksgiving from the SCD Coalition! Celebrate while keeping your sickle cell health in mind: 🥗 Balance your plate, 💤 Rest & pace yourself, 🩺 Know your resources. Wishing you a joyful and safe holiday! #SCDCoalition #SickleCellDisease #HealthTips #Thanksgiving #Wellness
November 27, 2025 at 1:01 PM
🦃 Happy Thanksgiving from the SCD Coalition! Celebrate while keeping your sickle cell health in mind: 🥗 Balance your plate, 💤 Rest & pace yourself, 🩺 Know your resources. Wishing you a joyful and safe holiday! #SCDCoalition #SickleCellDisease #HealthTips #Thanksgiving #Wellness
The SCD Coalition works to amplify the voice of the SCD community and we have the opportunity to share insights with trainees at #ASH25.
We want to hear from YOU. Let us know your thoughts below or send us a DM. Responses will be anonymized and shared with this year’s trainees at ASH-a-Palooza.
We want to hear from YOU. Let us know your thoughts below or send us a DM. Responses will be anonymized and shared with this year’s trainees at ASH-a-Palooza.
November 21, 2025 at 7:01 PM
The SCD Coalition works to amplify the voice of the SCD community and we have the opportunity to share insights with trainees at #ASH25.
We want to hear from YOU. Let us know your thoughts below or send us a DM. Responses will be anonymized and shared with this year’s trainees at ASH-a-Palooza.
We want to hear from YOU. Let us know your thoughts below or send us a DM. Responses will be anonymized and shared with this year’s trainees at ASH-a-Palooza.
⏰ Reminder! Join us for the SCD Coalition Peer Learning Exchange on Nov 24, 2025, at 9:00 a.m. ET. Discover how data-driven insights and financing are expanding access. Hear from Melynda Watkins & Melissa Leavitt! 📲Scan the QR Code or Register here: https://ow.ly/FRp950XtRlh
November 21, 2025 at 1:00 PM
⏰ Reminder! Join us for the SCD Coalition Peer Learning Exchange on Nov 24, 2025, at 9:00 a.m. ET. Discover how data-driven insights and financing are expanding access. Hear from Melynda Watkins & Melissa Leavitt! 📲Scan the QR Code or Register here: https://ow.ly/FRp950XtRlh
🌍 Don’t miss our final SCD Coalition Global Perspectives Meeting of 2025!
🗓 November 19th
If you’re an SCDC member, make sure to attend — and if you’re not yet a member, click here to learn how to join: https://ow.ly/AuLX50Xn8fP
🗓 November 19th
If you’re an SCDC member, make sure to attend — and if you’re not yet a member, click here to learn how to join: https://ow.ly/AuLX50Xn8fP
November 17, 2025 at 2:00 PM
🌍 Don’t miss our final SCD Coalition Global Perspectives Meeting of 2025!
🗓 November 19th
If you’re an SCDC member, make sure to attend — and if you’re not yet a member, click here to learn how to join: https://ow.ly/AuLX50Xn8fP
🗓 November 19th
If you’re an SCDC member, make sure to attend — and if you’re not yet a member, click here to learn how to join: https://ow.ly/AuLX50Xn8fP
We’re attending the Sick Cells Therapeutics Conference tomorrow, Nov 13, 2025, in Washington, D.C.! Hosted by our SCDC Partner, Sick Cells, this hybrid event brings everyone together to explore the latest in sickle cell disease therapeutics. Learn more & register: https://ow.ly/I1Au50Xn843
Sick Cells Therapeutics Conference
The Sick Cells Therapeutics Conference will explore the future of clinical trials, therapies and access to care for the sickle cell community.
ow.ly
November 12, 2025 at 3:01 PM
We’re attending the Sick Cells Therapeutics Conference tomorrow, Nov 13, 2025, in Washington, D.C.! Hosted by our SCDC Partner, Sick Cells, this hybrid event brings everyone together to explore the latest in sickle cell disease therapeutics. Learn more & register: https://ow.ly/I1Au50Xn843
Join us for the SCD Coalition Peer Learning Exchange (Session 2) on Nov 24, 2025 | 9:00 a.m. ET.
Discover how data-driven insights are unlocking access to HIV treatment & SCD therapies at scale.
📲 Register via the QR code
#SCDCoalition #PeerLearning #GlobalHealth #HealthAccess
Discover how data-driven insights are unlocking access to HIV treatment & SCD therapies at scale.
📲 Register via the QR code
#SCDCoalition #PeerLearning #GlobalHealth #HealthAccess
November 5, 2025 at 3:02 PM
Join us for the SCD Coalition Peer Learning Exchange (Session 2) on Nov 24, 2025 | 9:00 a.m. ET.
Discover how data-driven insights are unlocking access to HIV treatment & SCD therapies at scale.
📲 Register via the QR code
#SCDCoalition #PeerLearning #GlobalHealth #HealthAccess
Discover how data-driven insights are unlocking access to HIV treatment & SCD therapies at scale.
📲 Register via the QR code
#SCDCoalition #PeerLearning #GlobalHealth #HealthAccess
We’re excited to join Bluesky! 💙
The SCD Coalition is all about connection — and now we have a new space to share what we’re working on, highlight your events and resources, and keep pushing forward together to conquer SCD.
Come say hello and be part of the community! https://ow.ly/NwcT50XmBBY
The SCD Coalition is all about connection — and now we have a new space to share what we’re working on, highlight your events and resources, and keep pushing forward together to conquer SCD.
Come say hello and be part of the community! https://ow.ly/NwcT50XmBBY
November 4, 2025 at 5:55 PM
We’re excited to join Bluesky! 💙
The SCD Coalition is all about connection — and now we have a new space to share what we’re working on, highlight your events and resources, and keep pushing forward together to conquer SCD.
Come say hello and be part of the community! https://ow.ly/NwcT50XmBBY
The SCD Coalition is all about connection — and now we have a new space to share what we’re working on, highlight your events and resources, and keep pushing forward together to conquer SCD.
Come say hello and be part of the community! https://ow.ly/NwcT50XmBBY