tired of this rewriting of a Global Pandemic -- Crying out, as best I can. Thank you for reading, Rachel. I'll continue to watch this space.

I am one of many. The #millionsmissing

#mecfs #chronicillness
#chronicfatigue #ehlersdanlosawareness #ehlersdanlossyndrome #pots #smallfiberneuropathy #mcas #SIBO #nocturnalepilepsy #arttherapy #covid19 #longcovid #longhauler #postviralillness

That is not hyperboley, but a fact.
Yes, we will find a way to strive onward [we always do. We are not a quiet bunch], but we have lost decades of our grasp on these mysterious illnesses.
3/

which can be a huge disruption to our lives--and levels past that, to get a seat at the table. This committee was a seismic shift toward new meds, more trials, and a better tomorrow.

This dissolution will lead to a lot of people losing their lives and leaving this world. 2/

He is amazing. I don't know how he finds the time.

And this is why you are a writer.

We are not even into a full week of 47's 2nd term, and already, things are starting to feel grim. #chronicillness #chronicfatigue #mmwr #CDC #chronicillness #ehlersdanlossyndrome #dysautonomia #mcas #mecfs #smallfiberneuropathy nocturnalepilepsy

Woah! Congrats...my first next gen system was PS1. How long did you wait for pre-order?