cosmicblasts.bsky.social
@cosmicblasts.bsky.social
@d428.bsky.social
I just limited access to our chat to only the people mentioned in it, which is us.

I feel bad about asking, but did you ever tell me your name?
January 23, 2025 at 4:50 PM
@spsvirtualhangout.bsky.social I have been hearing from around the country that neurologists from the Mayo Clinic are putting their SPS patients in detox because it isn't real. This will have terrible repercussions.
January 22, 2025 at 9:16 AM
@spsvirtualhangout.bsky.social I was told by teaching neurologists and practicing that my problems were psychogenic. After years of tests, I was sent to the SPS clinic at Johns Hopkins.
January 22, 2025 at 9:14 AM
@spsvirtualhangout.bsky.social I've been surviving for almost 25 years with what my last group called “Sadistic” SPS and Ehlors-Danlos syndrome (1 in 32 million). The palliative care clinic in my area has been a lifesaver.
January 22, 2025 at 9:10 AM
Cuddling with my pups under blankets. Brr in Texas!
January 22, 2025 at 9:03 AM
The picture of me is from December in Salem, MA, when I went to visit my BFF. I have done great pics from that trip.
January 19, 2025 at 5:43 PM